Sleep Patterns and Parents’ Experience in Caring for Young Children Newly Diagnosed with Juvenile Idiopathic Arthritis

Thesis (Ph.D.)--University of Washington, 2016-05

Authors' institutional affiliations in Australian intellectual and developmental disabilities journals: a comparison of two decades

The generation of new knowledge through research can contribute significantly to the improvement of services for individuals with intellectual and developmental disabilities. This study extends a previous study by Sigafoos, Roberts, and Couzens [Aust. N.Z.J. Dev. Disabil. 17 (1991) 331] by examining research productivity in intellectual and developmental disability in Australian journals for 1990-1999. Institutions that published research articles on intellectual and developmental disabilities in Australian journals in the 1990s were identified by noting the affiliations of authors. The most productive institutions were primarily universities in Australia and the United States of America. Publication trends in the decade of the 1990s are compared with trends of the previous decade (1980-1990). (C) 2003 Published by Elsevier Ltd.

Integrating science and management through collaborative learning and better information management

Achieving more sustainable land and water use depends on high-quality information and its improved use. In other words, better linkages are needed between science and management. Since many stakeholders with different relationships to the natural resources are inevitably involved, we suggest that collaborative learning environments and improved information management are prerequisites for integrating science and management. Case studies that deal with resource management issues are presented that illustrate the creation of collaborative learning environments through systems analyses with communities, and an integration of scientific and experiential knowledge of components of the system. This new knowledge needs to be captured and made accessible through innovative information management systems designed collaboratively with users, in forms which fit the users' 'mental models' of how their systems work. A model for linking science and resource management more effectively is suggested. This model entails systems thinking in a collaborative learning environment, and processes to help convergence of views and value systems, and make scientists and different kinds of managers aware of their interdependence. Adaptive management provides a mechanism for applying and refining scientists' and managers' knowledge. Copyright (C) 2003 John Wiley Sons, Ltd.

Science-policy in environmental and health risk assessment: if we cannot do without, can we do better?

How can empirical evidence of adverse effects from exposure to noxious agents, which is often incomplete and uncertain, be used most appropriately to protect human health? We examine several important questions on the best uses of empirical evidence in regulatory risk management decision-making raised by the US Environmental Protection Agency (EPA)'s science-policy concerning uncertainty and variability in human health risk assessment. In our view, the US EPA (and other agencies that have adopted similar views of risk management) can often improve decision-making by decreasing reliance on default values and assumptions, particularly when causation is uncertain. This can be achieved by more fully exploiting decision-theoretic methods and criteria that explicitly account for uncertain, possibly conflicting scientific beliefs and that can be fully studied by advocates and adversaries of a policy choice, in administrative decision-making involving risk assessment. The substitution of decision-theoretic frameworks for default assumption-driven policies also allows stakeholder attitudes toward risk to be incorporated into policy debates, so that the public and risk managers can more explicitly identify the roles of risk-aversion or other attitudes toward risk and uncertainty in policy recommendations. Decision theory provides a sound scientific way explicitly to account for new knowledge and its effects on eventual policy choices. Although these improvements can complicate regulatory analyses, simplifying default assumptions can create substantial costs to society and can prematurely cut off consideration of new scientific insights (e.g., possible beneficial health effects from exposure to sufficiently low 'hormetic' doses of some agents). In many cases, the administrative burden of applying decision-analytic methods is likely to be more than offset by improved effectiveness of regulations in achieving desired goals. Because many foreign jurisdictions adopt US EPA reasoning and methods of risk analysis, it may be especially valuable to incorporate decision-theoretic principles that transcend local differences among jurisdictions.

Examining the role of networking capability in small and medium firm internationalization

While research on SME internationalization has increased, there remains a lack of relevant theory on the SME internationalization process. The literature reports that small firms overcome their resource poverty-based constraints to internationalization by developing network relationships. Networking enables SMEs to acquire much needed internationalization process knowledge, and knowledge for the development of innovative products and services for this internationalization. However, networking activity has not yet been conceptualized and measured as a competitive capability in internationalization research. Drawing on the capability-based theory of competitive strategy, this paper conjectures that internationally entrepreneurial SMEs build and nurture distinctive networking capabilities, enabling them to acquire new knowledge. These learning capabilities enable them to pursue innovation thereby facilitating nternationalization. Data from Australian firms largely supports the conceptual framework. Implications for theory and practice are presented.

The changing nature of innovation networks in Taiwan: From imitation to innovation?

Taiwan is embarking on a new phase in its approach to building its national innovative capacity, through building the infrastructure for a biotechnology industry. Rather than acting as a “fast follower” of trends developed elsewhere, Taiwan is seeking to evolve the elements of a national innovation system, including upgrading the role of universities in providing fundamental R&D, in providing incubators for new, knowledge-based firms, in developing new funding models, and in establishing new biotech-focused science parks. This paper reviews the progress achieved to date, and the prospects for this new phase in Taiwan’s transition from imitation to innovation

Global flows of foreign talent: Identity anxieties in Singapore's ethnoscape

This paper draws on Appadurai's (1996) concept of ethnoscapes — the global flow of people or what has become increasingly popularized as the global flow of talent. Singapore has initiated a foreign talent policy to compete for a global pool of talent to make up for its shortfall of indigenous work-force. The rationale for recruiting foreign talent is informed by a nationalist competitive ideology to sustain Singapore in the new knowledge-based economy. This paper examines the competing and dissenting discourses surrounding the foreign talent policy. It argues that the mobility of migratory flow has transformative and disruptive effects at the level of culture and the identity landscape of Singapore, where its discursive cultural boundaries are drawn according to a nationalist framework. Drawing on theories and concepts of ‘diaspora’, ‘hybridity’, and ‘third space’, these are the political and cultural issues that this paper attempts to tease out. [ABSTRACT FROM AUTHOR]

O IMPACTO DA TECNOLOGIA DA INFORMAÇÃO NA SATISFAÇÃO DAS PESSOAS EM EMPRESAS PÚBLICAS: O CASO DE UMA EMPRESA MUNICIPAL PRESTADORA DE SERVIÇOS DE SANEAMENTO AMBIENTAL NA REGIÃO DO GRANDE ABC

O principal objetivo deste estudo foi identificar e analisar qual o impacto da tecnologia da informação (TI) na satisfação das pessoas em uma empresa pública. Este estudo pretendeu abordar o assunto de forma a concentrar-se na investigação, com um estudo de caso em uma empresa pública de saneamento ambiental da região do grande ABC paulista, o SEMASA, com o intuito de avaliar as mudanças nas rotinas operacionais dos diversos departamentos da empresa e o impacto causado pela TI na satisfação das pessoas envolvidas. Com base na literatura sobre trabalho e sociedade na era da globalização e empresas públicas, foram analisados inicialmente os motivos que podem contribuir para as pessoas buscarem ingressar na carreira pública. Esse estudo verificou a importância da adoção de ferramentas de tecnologia nos processos produtivos e na prestação de serviços das organizações. Verificou também, que estimular os funcionários de empresas públicas a criarem mecanismos para facilitarem seus trabalhos, através de ferramentas de TI atualizadas, pode ser benéfico, ao mesmo tempo em que pode proporcionar condições destes adquirirem novas capacitações profissionais com a aquisição de novos conhecimentos tecnológicos. Os resultados obtidos apontaram para um significativo aumento na satisfação das pessoas envolvidas sendo estas estimuladas a estarem em constante aperfeiçoamento, através da realização de novos treinamentos e cursos de tecnologia.(AU)

FUSÕES E AQUISIÇÕES: UMA EXPERIÊNCIA DE INTEGRAÇÃO COM SUCESSO

Esta dissertação apresenta um estudo exploratório que tem como objetivo analisar o caso de uma experiência de integração com sucesso de uma fusão de duas empresas com estruturas organizacionais diferentes, tomando como referência a experiência internacional diante da escassez de estudos sistemáticos sobre a integração de fusões e aquisições no Brasil. O estudo se propõe a investigar como foi processada a integração entre as duas empresas buscando analisar os fatores que ocasionaram o sucesso dessa fusão. A metodologia adotada consiste na pesquisa bibliográfica e documental com observação participativa. Os dados foram obtidos por meio de documentos públicos sobre a empresa, que serviram de apoio à pesquisa realizada. Para objeto de pesquisa foi selecionada a empresa SmithKline Beecham, por ser uma empresa global com fabricas no Brasil. Os resultados obtidos apontaram que a integração da empresa foi feita com sucesso, significando que os objetivos estratégicos e de sinergias da fusão, representados por resultados financeiros, de mercado, pesquisa, desenvolvimento e lançamento de novos produtos foram alcançados. A empresa combinada, depois de terminado o processo de integração, apresentava resultados superiores do que quando as duas atuavam separadamente, comprovando que os mecanismos utilizados na integração das duas empresas funcionaram com eficácia. Entretanto, recomendamos que outros estudos como este sejam organizados na busca de novos aspectos que possam servir de suporte às decisões dos empresários quanto à adoção da abordagem estratégica das fusões e aquisições.(AU)

Corpos Enlutados: Por um cuidado espiritual terapêutico em situações de luto

Esta tese tem como objetivo compreender o fenômeno do luto por morte a partir da fenomenologia, por meio das experiências de membros da Igreja Metodista no Grande ABC. Para alcançar o objetivo geral, tem como objetivos específicos: dialogar com teóricos do luto nas áreas da teologia e da psicologia; conhecer a fenomenologia do corpo existencial de Maurice Merleau-Ponty como parâmetro para a compreensão do estudo do luto por morte; contribuir para as pesquisas de Cuidado Espiritual em situações de luto por morte. A trajetória teórico-metodológica tem como lócus da pesquisa o relato oral de dez pessoas, que trazem sua vivência do luto a partir da pergunta norteadora: como você viveu a sua experiência do luto? Depois de transcritos e literalizados, esses relatos permitiram levantar as unidades de significado e estabelecer as categorias analíticas: dor, tipo de perda, desorganização do ser, corpo existencial, cuidado, fé, luto por morte como ordem natural, processo relacional, racionalização, saudade, luto antecipatório, dimensão material do viver, culpa, memória e serenidade. A partir dessas categorias, fenomenologicamente interpretadas, a construção de uma tabela nomotética tornou possível a identificação das convergências e divergências entre os relatos, bem como das idiossincrasias. No percurso em direção à compreensão da experiência do luto, os relatos foram submetidos à análise ideográfica, que é a tentativa de alcançar a psicologia individual dos sujeitos da pesquisa. A síntese de um pensar, como a expressão da fenomenologia do luto, desvela nuanças da práxis pastoral. Resultantes da construção desse novo saber em torno da vivência do luto por morte, foram significativas algumas percepções: o processo do luto no contexto religioso institucionalizado é similar ao de um contexto não-religioso; a teologia cristã tem espaço para a ressignificação da morte, por meio da criação de uma espiritualidade para o processo do morrer e, para que isso seja possível, destaca-se a necessidade, no interior das comunidades religiosas, de uma teologia da perda, que possibilite uma educação cristã voltada para o enfrentamento do luto, ou seja, de uma teologia de valorização da vida em meio às perdas; o corpo foi a linguagem mais presente na vivência do luto e, no entanto, o corpo enlutado é um paradoxo na igreja cristã, na medida em que esta se tem debruçado sobre o tema da corpo de forma tímida, no que se refere à educação da fé. Ficou patente a percepção da necessidade de fomentar um cuidado espiritual terapêutico abrangente e continuado em situações de luto, de forma a alcançar não apenas o indivíduo em situação de enlutamento, mas também de alcance comunitário, como parte do conjunto de ações públicas que acolham essa questão.(AU)

PROFESSOR ENSINA! MAS, QUEM ENSINA O PROFESSOR? Relações de Aprendizagem Mediadas pelas Tecnologias

A discussão sobre a formação de Professores sempre foi um desafio, especialmente em se tratando dos caminhos e descaminhos acerca das práticas cotidianas e, muito mais, ainda hoje, com a inserção da tecnologia dentro das salas de aula. A pesquisa investigou se o uso da tecnologia favorece a interação professor-aluno e se isso se torna um facilitador na busca de novos conhecimentos, colaborando para a alteração da prática cotidiana. Para desenvolver tais discussões realizamos uma revisão da literatura e da legislação sobre a formação de professores no contexto brasileiro e sobre a formação de professores e as tecnologias. Elaboramos análises das ações do Governo Federal, privilegiando o contexto do Estado de São Paulo por ser o foco da nossa investigação. Para a realização da pesquisa de campo contamos com a colaboração de professores do Ensino Fundamental II e do Ensino Médio de Escolas Estaduais e os responsáveis das Oficinas Pedagógicas das Diretorias de Ensino dos Municípios de Santo André e Mauá para a aplicação de um questionário e realização de entrevistas de aprofundamento. Verificamos que os esforços de implantação de projetos desenvolvidos pela rede estadual esbarram na burocracia e na descontinuidade, provocadas pela mudança de administração, onde se priorizam os interesses pessoais em detrimento dos interesses coletivos. Em contrapartida, encontramos os formadores nas Diretorias de Ensino, que precisam atender todas as questões administrativas e políticas, e, ao mesmo tempo, darem conta da formação continuada dos professores, resolvendo problemas que, muitas vezes, estão longe de suas possibilidades e verificamos também que o uso da tecnologia na atividade docente ainda não é o esperado, ou seja, estes professores não fazem uso pedagógico do computador, porém, o uso aumentou sistematicamente, mas trazê-lo para a sala de aula ainda é um desafio e reflete a forma de agir e de pensar dos professores envolvidos no processo desta pesquisa.

ERVING GOFFMAN, AS INTERAÇÕES NO COTIDIANO ESCOLAR, DESVENDANDO O ESTIGMA DENTRO DA INCLUSÃO ESCOLAR

As pessoas com deficiências são excluídas da sociedade devido à marca negativa de descrédito recebida pelo meio social - por sua aparência ou seu modo de ser diferentes - que os coloca fora da norma classificando-os como seres desviantes. No cotidiano escolar essas marcas se afirmam e se reproduzem, não promovendo às pessoas com deficiências uma superação desse estigma. A pesquisa visa analisar como o estigma incorporado pelos alunos com deficiências influencia no processo de interação e inclusão escolar, de forma a estudar indícios de como se desenvolve o processo de estigmatização no cotidiano escolar sob a luz dos pensamentos de Erving Goffman. O presente estudo utiliza-se uma revisão de literatura especifica do tema, fundamentada nos estudos de Erving Goffman, conjuntamente à pesquisa empírica baseada na etnografia vivenciada pelo autor em seus estudos de comunidade, foram utilizadas como estratégias de pesquisa, entrevistas com três professores e observações registradas por meio de de observação de cenas do cotidiano escolar de ´duas escolas públicas do estado de SPSão Paulo . No capítulo 1 buscamos entender os constructos de Goffman principalmente por meio de sua trajetória acadêmica, no capítulo 2 o trabalho centrou-se na compreensão da interação social e principalmente na questão definida pelo autor como ordem da interação, em queentende-se que as pessoas são autores dentro de um palco social, no capítulo 3. a pesquisa aborda o termo estigma e explica sua influência na interação e no avanço das pessoas com deficiência. Por fim, o trabalho se encerra no capítulo .4 apresentando a análise das entrevistas e dos registros das cenas do cotidiano escolar. As cenas selecionadas apresentam os atores envolvidos, o cenário, e o enredo das interações, identificando as estratégias do estigma incorporado pelos alunos com deficiência e buscando ligações com as políticas inclusivas e as escolas brasileira. A pesquisa identificou que a escola, como meio de socialização e criação de saberes, possui um papel importante neste processo de mudança, apesar de muitas vezes reproduzir o estigma social. Observamos então que a escola pode auxiliar na mudança do olhar que exclui, à maneira que mostra algumas máscaras do social e da própria inclusão; no entanto é importante salientar que sua renovação e de seus agentes sociais deve valorizar as diferenças para construção de novos conhecimentos.(AU)

What May the Sheep safely know?

The relationship of knowledge and liberties in modern societies presents a multitude of fascinating issues that deserve to be explored more systematically. The production of knowledge is dynamic, and the conditions and practice of freedom is undergoing transformation. These changes ensure that the linkages between liberty and knowledge are always subject to changes. In the past, the connection between scientific knowledge, democracy, and emancipation seemed self-evident. More recently, the close linkage between democracy and knowledge has been viewed with skepticism. This volume explores the relationship between knowledge and democracy, Do they support each other, do they mutually depend on each other, or are they perhaps even in conflict with each other? Does knowledge increase the freedom to act? If additional knowledge contributes to individual and social well being, does it also enhance freedoms? Knowledge and Democracy focuses on the interpenetration of knowledge, freedom and democracy, and does so from various perspectives, theoretical as well as practical. Modern societies are transforming themselves into knowledge societies. This has a fundamental impact on political systems and the relationship of citizens to large social institutions. The contributors to this book systemically explore whether, and in what ways, these modern-day changes and developments are connected to expansion of the capacities of individual citizens to act. They focus on the interrelation of democracy and knowledge, and the role of democratic institutions, as well as on the knowledge and social conduct of actors within democratic institutions. In the process of investigation, they arrive at a newplatform for future research and theory, one that is sensitive to present-day societal conflicts, cleavages, and transformations generated by new knowledge.

From national innovation systems to national innovation capacity:internationalisation and technology transfer perspectives

The last decade or so has witnessed the emergence of the national innovation system (NIS) phenomenon. Since then, many scholars have investigated NIS and its implementation in different countries. However, there are very few investigations into the relationship between the NIS of a country and its national innovation capacity. This paper aims to make a contribution in this area by examining the link that currently exists between these two topics. Whilst examining this relationship, we also explore internationalisation and technology transfer, being cognate areas that have been investigated during the same period. This follows our assertion that the link between NIS and national innovation capacity is the mechanism of internationalisation and technology transfer. The NIS approach was introduced in the late 1980s (see Freeman, 1987; Dosi et al., 1988) and further elaborated later (see Lundvall, 1992; Nelson, 1993; Edquist, 1997). In essence, a country?s NIS is a historically grown subsystem of the entire national economy consisting of organisations and institutions which play a major role in the innovative activity in the country. In the NIS approach, interactions within organisations as well as the interplay between organisations and institutions are of central importance. The NIS approach has been used to reveal the structure of the innovation processes and the main actors involved in them in industrialised and emerging countries. Although the national focus remains strong, it has been accompanied by studies seeking to analyse the notion of systems of innovation at an international level and at a sub-national scale (Archibugi et al., 1999). Dosi in the edition of Archibugi et al. (1999) argues that the general background of the discussion of national systems is the observation of non-random distributions across countries of: corporate capabilities; organisational forms; strategies; and ultimately revealed performances, in terms of production efficiency and inputs productivities, rates of innovation, rates of adoption/diffusion of innovation themselves, dynamics of market shares on the world markets, growth of income and employment. They also mention that there are several approaches to NIS. Nelson (1993) focuses upon the specificities of national institutions and policies supporting directly or indirectly innovation, diffusion and skills accumulation. Patel and Pavitt (1991) have stressed the links between the national patterns of technological accumulation and the competencies and innovative strategies of a few major national companies. Amable et al (1997) and Soskice (1993) and Zysman (1994) focus on the specifics of national institutions including, for example, the forms of organization, financial and labour markets, training institutions, forms of state intervention in the economy etc. However, the most common reference is by Lundvall (1992) who argues that the focus on the national level is associated with the fact that national economies vary according to their production system and their institutional framework and these differences are in turn strengthened by different historical experiences, language and culture. On the other hand, the national innovation capability consists of abilities to create and carry new technological possibilities through to economic practice. The term covers a wide range of activities from capability to invent to capability to innovate and to capability to improve existing technology beyond the original design parameters (Kim, 1997). The term innovation is often associated by many with technological change at international frontiers. However, technological capability is not the same as innovation capability. Technological capability refers to assimilation, use, adaptation, and change to existing technologies. It also enables the creation of new technologies and development of new products and processes in response to changing economic environments. It denotes operational command over knowledge (Kim, 1997). It is manifested not merely by the knowledge possessed, but, more important, by the uses to which that knowledge can be put and by the proficiency with which it is applied in the activities of investment and production and in the creation of new knowledge (Westphal et al., 1985). Therefore, the analytical framework that is used in this paper is based on the way a country derives from its NIS a national innovation capacity. There are two perspectives that are identified on this way. These are internationalisation and technology transfer. Even though NIS is not directly related to national innovation capacity, to achieve national innovation capacity from NIS, the country should have the ability for technology transfer. Technology transfer is a link between these two phenomena. On the other hand, internationalisation can be either the input or the output of the relationship between NIS and national innovation capability. If a company is investing in a country because of its national innovation capacity, this can be regarded as an input to the relationship between NIS and national innovation capacity. If this company is investigating the national innovation capacity of a country then, for its internationalisation, the national innovation capacity should be important, which in turn means this company is active in innovation and innovation is also an important success factor. The interrelationship between the investment of the company and the NIS of the country (assuming that the country is competent and competitive in technology transfer) will generate and improve that country?s national innovation capacity. This is the output of internationalisation from the relationship between NIS and national innovation capacity. When companies are evaluating whether to internationalise, they investigate certain factors in the countries in which they are considering to invest. The ability to transfer technology is dependent on ability to adopt a new technology and also on the learning derived from this technology. If countries wish to attract innovation related investment they need to show their ability to have a NIS and also the capability to transfer technology. Without the technology transfer capability, the NIS is not functioning. Therefore, companies that internationalise will investigate the factors common to NIS, technology transfer, and their business needs. Through this paper we will demonstrate this link though its mechanisms. Our research will be through extensive literature review and identifying relevant aspects of previous research carried out by the authors. It will investigate certain factors of different countries that are successful in attracting innovation related foreign direct investment. Through these, we will point out the factors that are important for the link and mechanisms of NIS and national innovation capability.

University ranking as social exclusion

In this article we explore the dual role of global university rankings in the creation of a new, knowledge-identified, transnational capitalist class and in facilitating new forms of social exclusion.We examine how and why the practice of ranking universities has become widely defined by national and international organisations as an important instrument of political and economic policy. We consider how the development of university rankings into a global business combining social research, marketing and public relations, as a tangible policy tool that narrowly redefines the social purposes of higher education itself. Finally, it looks at how the influence of rankings on national funding for teaching and research constrains wider public debate about the meaning of ‘good’ and meaningful education in the UK and other national contexts, particularly by shifting the debate away from democratic publics upward into the elite networked institutions of global capital. We conclude by arguing that, rather than regarding world university rankings as a means to establish criteria of educational value, the practice may be understood as an exclusionary one that furthers the alignment of higher education with neoliberal rationalities at both national and global levels.