World Cultures in English(es) at the School of Arts and Humanities Library, University of Lisbon: the Communication Platform Architecture and Its Critical Analysis

We will consider the architecture of the communication platform prototype, "World Cultures in English(es)" (WCE), in relation to the interaction among different types of media and audiences. Such an architecture has emphasized the need for an interdisciplinary team of scholars, librarians, and Information Technology experts who have conceived the prototype. This prototype was developed using PHP and MySQL, and is based on the University of Lisbon server. The "World Cultures in English(es)" is an Open Access platform bringing together different types of documents—written, audio, visual, multimedia, and electronic—and aims at educational, cultural, social, and economic inclusiveness, namely in terms of users with special needs. The WCE platform strongly implies social commitment through reliable information and forms of communication adequate to different kinds of audiences. The "World Cultures in English(es)" prototype will be tested by different audiences from different schools and universities, leading to the necessary adjustments.

Contributo do ipad® para o desenvolvimento e aprendizagem de uma criança com limitações motoras e sensoriais

Dissertação apresentada à Escola Superior de Educação de Lisboa para obtenção de grau de mestre em Educação Especial – ramo de Problemas de Cognição e Multideficiência

Aumentar as oportunidades de comunicação nos momentos de brincadeira - descrição de um programa de intervenção

Objetivo: Partindo da análise da literatura realizada, em que é salientada a ideia de que o desenvolvimento e aprendizagem ocorrem a partir das experiências e influência dos contextos em que as crianças estão incluídas e a partir das interações que estabelecem nesses mesmos contextos, pretende-se compreender, neste estudo, se partindo do contexto natural, com diferentes materiais e atores, é possível aumentar as oportunidades de comunicação e participação de uma criança com restrições ao nível da linguagem, nos momentos de jogo. Método: Foi delineado e implementado um programa de intervenção, num estabelecimento de ensino, na valência de pré-escolar, onde estiveram envolvidas uma criança de 4 anos com restrições ao nível da linguagem oral, o grupo de crianças em que estava incluída e a educadora do grupo. Para monitorização do programa e avaliação da sua eficácia realizou-se um pré e pós teste, onde foi definida a linha de base da criança. Ao longo do programa foram registados, a partir de uma grelha de observação da frequência dos atos comunicativos da criança, nas situações de jogo planificadas. Os comportamentos e modelagem realizada por parte educador, foram igualmente registados e analisados. Recorreu-se a realização de entrevistas semiestruturadas para a recolha de dados relativos à criança e perceção do educador. Resultados/Discussão: Os dados recolhidos demonstram um aumento significativo das tomadas de iniciativa verbal e alternância entre turnos, ao longo da intervenção por parte da criança alvo. A presença do adulto e dos pares parecem revelar-se como facilitador dos atos comunicativos da criança com restrições ao nível da linguagem

Children's rights and parenting beliefs : a study of attitudes, values and emotions

The conceptualization of childhood has changed over the centuries and appears to be undergoing further change in our post-modern culture. While the United Nations Convention on the Right of the Child is designed to give children everywhere basic human rights while taking into consideration their special needs, no recent research has examined adult attitudes toward those rights. In an attempt to understand the attitudes adults hold regarding autonomy rights and to look for some factors that could predict those attitudes, the current study considers values, parenting style, emotions and the issue of parent status as possible predictor variables. A total of 90 participants took part in the research, which had both written and interview components. Results generally failed to establish a reliable set of predictors. However, some interesting information was obtained regarding the endorsement of children's autonomy rights and some general conclusions were reached about our view of children and their rights at the end of the twentieth century.

Examining Mentoring within a Particular Service Learning Context

My goal for this research project was to explore the levels of mentoring within a disability-focused service learning context known as the Special Needs Activity Program (SNAP). At present, research on mentoring within specific service learning contexts remains largely unexamined. In an effort to assess service learning and mentoring, I completed a comparative case study across three distinct years of SNAP. Undergraduate student leaders, known as coordinators, organize and implement SNAP as a thesis project. I focused specifically on the mentoring experience of particular coordinators of SNAP. My thesis presents and describes the findings of several levels of analysis across three SNAP coordinator cohorts. The analysis focused on key words, idiomatic expressions, patterns and dissonances. In my conclusion, I offer three metaphors that describe mentoring within the SNAP experience and relate these to my discussion about how mentoring functions as a component of service learning.

TactoColor : conception et évaluation d’une interface d’exploration spatiale du web pour malvoyants.

Nous nous intéressons, dans le cadre de cette recherche, à l’accès à l’internet des personnes malvoyantes. Plusieurs types d’outils destinés à ce public sont disponibles sur le marché, comme les lecteurs et les agrandisseurs d’écran, en fonction de l’acuité visuelle de la personne. Bien que ces outils soient utiles et régulièrement utilisés, les malvoyants (ainsi que les aveugles) évoquent souvent leur aspect frustrant. Plusieurs raisons sont citées, comme le manque d’organisation spatiale du contenu lu avec les lecteurs d’écran ou le fait de ne solliciter qu’un seul sens. La présente recherche consiste à adapter pour les malvoyants un système en développement le TactoWeb (Petit, 2013) qui permet une exploration audio-tactile du Web. TactoWeb a été conçu pour les handicapés ayant une cécité complète et n’offre donc aucune propriété visuelle. Nous proposons ici une adaptation du système pour les handicapés n’ayant qu’une déficience visuelle partielle. Nous espérons fournir à cette population des outils performants qui leur permettront de naviguer sur l’internet de façon efficace et agréable. En effet, grâce à une exploration non-linéaire (qui devrait améliorer l’orientation spatiale) et une interface multimodale (qui sollicite la vue, l’ouïe et le toucher), nous pensons réduire fortement le sentiment de frustration qu’évoquent les malvoyants. Nous avons posé l’hypothèse qu’une exploration non-linéaire et trimodale d’un site internet avec TactoColor est plus satisfaisante et efficace qu’une exploration non-linéaire bimodale avec TactoWeb (sans retour visuel). TactoColor a été adapté pour les malvoyants en ajoutant des indices visuels traduisant les composantes de la page (liens, menus, boutons) qui devraient rendre l’exploration plus aisée. Pour vérifier notre hypothèse, les deux versions du logiciel ont été évaluées par des malvoyants. Ainsi, les participants ont commencé soit avec TactoWeb, soit avec TactoColor afin de ne pas favoriser une des versions. La qualité de la navigation, son efficacité et son efficience ont été analysées en se basant sur le temps nécessaire à l’accomplissement d’une tâche, ainsi que la facilité ou la difficulté évoquée par le participant. Aussi, à la fin de chaque session, nous avons demandé leur avis aux participants, grâce à un questionnaire d’évaluation, ce qui nous a permis d’avoir leur retour sur notre logiciel après leur brève expérience. Tous ces relevés nous ont permis de déterminer que l’ajout des couleurs entraine une exploration plus rapide des pages web et une meilleure orientation spatiale. Par contre les performances très différentes des participants ne permettent pas de dire si la présence des couleurs facilite la complétion des tâches.

Services aux adultes handicapés physiques : enquête auprès des bibliothèques publiques québécoises

Les services aux usagers des bibliothèques représentent un sujet fondamental en bibliothéconomie. Or, les usagers sont un groupe hétérogène à qui l’on doit offrir les mêmes services ou, à tout le moins, la possibilité d’obtenir des services répondant à leurs besoins en matière d’adaptation des lieux et des services. Malheureusement, les bibliothèques publiques ont parfois du mal à rendre un service adapté adéquat et les personnes concernées connaissent souvent mal les services dont elles pourraient bénéficier. Pourtant, les personnes handicapées font partie intégrante des usagers et leur présence augmente, notamment à cause du vieillissement de la population et d’une meilleure capacité d’établir des diagnostics. Notons que ces citoyens revendiquent de plus en plus leur autonomie et le fait de pouvoir profiter des mêmes services que le reste de la population. Ceci est d’autant plus vrai depuis l’apparition d’aides techniques et des outils technologiques tels les ordinateurs, les tablettes, les logiciels, etc. qui leur permettent de vivre leur vie à part entière. Aussi, les bibliothèques et leurs gestionnaires doivent impérativement s’assurer que l’accueil de ces usagers « comme les autres », mais aux besoins particuliers, sera assuré convenablement. Puisqu’il manque d’études concernant les services offerts aux personnes handicapées dans les bibliothèques publiques du Québec, nous avons décidé de procéder à une enquête, par le biais d’un questionnaire électronique administré aux employés de bibliothèques dont les fonctions sont de participer aux services aux usagers. Les réponses obtenues ont permis de dresser un portrait de la situation actuelle en matière de services aux personnes adultes handicapées dans les bibliothèques publiques québécoises et d’avancer certaines recommandations. Les résultats devraient aider les responsables de bibliothèques à déterminer où et comment concentrer leurs efforts pour rendre leurs établissements plus accueillants pour les personnes ayant des incapacités. Plus précisément, les objectifs de la recherche étaient les suivants : 1. Recenser les services offerts par les bibliothèques publiques québécoises aux usagers adultes handicapés. 2. Recenser les éléments d’accessibilité présents dans les infrastructures des bibliothèques publiques québécoises. 3. Évaluer l’impact de certaines caractéristiques des bibliothèques sur l’offre de services aux usagers adultes handicapés et les éléments reliés à l’accessibilité. 4. Comparer les résultats des enquêtes précédentes (Bibliothèque nationale du Canada 1976 ; Bergeron 1987) pour mettre en évidence les recommandations qui ont été appliquées et celles qui ne l’ont pas été.

Teaching reading comprehension to students with learning difficulties. 'Enseñar la comprensión lectora a estudiantes con dificultades de aprendizaje'.

Recurso para el aula, ofrece recomendaciones basadas en la investigación para ayudar a los estudiantes, de todos los grados, a entender y aprender lo que leen. Explica las habilidades y estrategias que los buenos lectores utilizan para comprender el texto y muestra cómo apoyar a los estudiantes con dificultades en el desarrollo de estas habilidades. Presenta una gran variedad de procedimientos de evaluación, los modos de mejorar la enseñanza del vocabulario y enseñar a los estudiantes las estructuras de textos diferentes y las prácticas de enseñanza que promuevan la comprensión antes, durante y después de leer Incluye preguntas de discusión en cada capítulo, material didáctico fotocopiable y planificación de lecciones.

Meeting SEN in the curriculum : ICT.

Los profesores tienen cada vez más alumnos con necesidades especiales en las aulas y aunque sean cuestiones generales, sin detrimento de los especialistas, siempre quieren modelos y orientación específica. Este manual ha sido elaborado para profesores de secundaria. Los autores tienen experiencia de las TIC en las escuelas y un amplio conocimiento del potencial de la tecnología para apoyar a los alumnos con necesidades especiales. El texto no necesariamente enseñará acerca de las TIC, sin embargo ayudará a encontrar la forma de involucrar, alentar y motivar a los alumnos y a ampliar las oportunidades de aprendizaje de las TIC para todos los niños de la clase. Incluye: una explicación de la estrategia del Gobierno inserción/SEN (Necesidades Educativas Especiales), orientación sobre política departamental; explicación de la terminología de SEN; asesoramiento sobre la creación de un entorno inclusivo; cómo elegir hardware y software correcto; estudio de casos útiles para destacar diferentes usos de paquetes informáticos; cómo satisfacer las necesidades de los diferentes estilos de aprendizaje.

Organização da escola e as necessidades educativas especiais

RESUMO: Este estudo tem como objetivo analisar as entidades que interagem entre si para tornar a Escola verdadeiramente inclusiva: Órgãos de Gestão e Professores. Se no caso dos primeiros, estamos a falar de decisões a dois níveis, pedagógico e organizacional, como por exemplo a nível dos processos de avaliação, ou no estabelecimento de um critério de atribuição das turmas aos professores mais experientes, logo mais capazes para lidar com estas dificuldades inerentes aos alunos com NEE, no caso dos professores falamos exclusivamente de decisões a nível pedagógico, relacionadas com formas de organização, construção de currículo, formações de grupos ou a definição de tutorias durante a aula. A recolha de dados, feita a partir de um conjunto de entrevistas a professores e directores de escolas, e a sua análise qualitativa permitiu apurar que no caso dos professores, as decisões tomadas têm ido ao encontro dos estudos actuais, com métodos de trabalho que assentam no trabalho cooperativo (Johnson, &, Johnson, 1990) como meio de promover a inclusão destes alunos no seio de uma turma regular. Em relação às escolas analisadas, não existem critérios consistentes para distribuição dos alunos com necessidades educativas permanentes por diferentes turmas, com desrespeito do quadro normativo, nem para a atribuição de turmas aos professores. o que na prática significa que frequentemente as turmas com mais alunos portadores de necessidades educativas especiais são atribuídas de forma aparentemente aleatória, recaindo nos professores em início de carreira e em estágio pedagógico, a quem é pedido que façam as pontes entre a escola e as respectivas famílias, entre a investigação e a prática lectiva, numa relação contínua de estudo, reflexão e acção. ABSTRACT: This qualitative based study, aims at analyzing the interactions between the two entities responsible for promoting inclusive schools: Governing Bodies and Teachers. Supported by the legal framework concerning the conditions to include Special Needs Students in regular schools, the former are the ones responsible for, at educational and organizational levels, establishing the guidelines for learning assessment and setting the criteria for assigning students to classes and classes to teachers. The teachers are in charge of decisions concerning the field work, such as the relationships with families, the issues of classroom work, and of responding to students’ learning needs, may these be permanent or occasional. Regardless of their experience in classroom teaching, it is the responsibility of each teacher to care for their classroom inclusiveness, taking care of the specificities of the Special Needs Students allocated to their classes, and taking decisions concerning the classroom organization, the composition of the working groups , the curriculum administration and the involvement of all students in tutoring the “special” ones , so that they may be included as successful class members, according to the level of expectations designed for their conditions. Governing Bodies and teachers behaved differently in responding to the interviews designed for this study, teachers being more open to talk about their conditions of work, their teaching strategies and working methods. These are based on classroom cooperative work, coping with the current research findings on the same issues of inclusion in regular school settings. It is up to them to bridge school and families, knowledge and practice, self-study, reflection and action. Governing bodies, however, revealed to be more inconsistent in assigning teachers to classes, and in allocating Special Needs Students to regular classes, often skipping what is established in the national norms.

Accessibility-by-design: a framework for delivery-context-aware personalised media content re-purposing

This paper describes a framework architecture for the automated re-purposing and efficient delivery of multimedia content stored in CMSs. It deploys specifically designed templates as well as adaptation rules based on a hierarchy of profiles to accommodate user, device and network requirements invoked as constraints in the adaptation process. The user profile provides information in accordance with the opt-in principle, while the device and network profiles provide the operational constraints such as for example resolution and bandwidth limitations. The profiles hierarchy ensures that the adaptation privileges the users' preferences. As part of the adaptation, we took into account the support for users' special needs, and therefore adopted a template-based approach that could simplify the adaptation process integrating accessibility-by-design in the template.

Loss of language in early development of autism and specific language impairment

Background:  Several authors have highlighted areas of overlap in symptoms and impairment among children with autism spectrum disorder (ASD) and children with specific language impairment (SLI). By contrast, loss of language and broadly defined regression have been reported as relatively specific to autism. We compare the incidence of language loss and language progression of children with autism and SLI. Methods:  We used two complementary studies: the Special Needs and Autism Project (SNAP) and the Manchester Language Study (MLS) involving children with SLI. This yielded a combined sample of 368 children (305 males and 63 females) assessed in late childhood for autism, history of language loss, epilepsy, language abilities and nonverbal IQ. Results:  language loss occurred in just 1% of children with SLI but in 15% of children classified as having autism or autism spectrum disorder. Loss was more common among children with autism rather than milder ASD and is much less frequently reported when language development is delayed. For children who lost language skills before their first phrases, the phrased speech milestone was postponed but long-term language skills were not significantly lower than children with autism but without loss. For the few who experienced language loss after acquiring phrased speech, subsequent cognitive performance is more uncertain. Conclusions:  Language loss is highly specific to ASD. The underlying developmental abnormality may be more prevalent than raw data might suggest, its possible presence being hidden for children whose language development is delayed.

Clinical and molecular delineation of the 17q21.31 microdeletion syndrome

Background: The chromosome 17q21.31 microdeletion syndrome is a novel genomic disorder that has originally been identified using high resolution genome analyses in patients with unexplained mental retardation. Aim: We report the molecular and/or clinical characterisation of 22 individuals with the 17q21.31 microdeletion syndrome. Results: We estimate the prevalence of the syndrome to be 1 in 16 000 and show that it is highly underdiagnosed. Extensive clinical examination reveals that developmental delay, hypotonia, facial dysmorphisms including a long face, a tubular or pear-shaped nose and a bulbous nasal tip, and a friendly/amiable behaviour are the most characteristic features. Other clinically important features include epilepsy, heart defects and kidney/urologic anomalies. Using high resolution oligonucleotide arrays we narrow the 17q21.31 critical region to a 424 kb genomic segment (chr17: 41046729-41470954, hg17) encompassing at least six genes, among which is the gene encoding microtubule associated protein tau (MAPT). Mutation screening of MAPT in 122 individuals with a phenotype suggestive of 17q21.31 deletion carriers, but who do not carry the recurrent deletion, failed to identify any disease associated variants. In five deletion carriers we identify a <500 bp rearrangement hotspot at the proximal breakpoint contained within an L2 LINE motif and show that in every case examined the parent originating the deletion carries a common 900 kb 17q21.31 inversion polymorphism, indicating that this inversion is a necessary factor for deletion to occur (p< 10(25)). Conclusion: Our data establish the 17q21.31 microdeletion syndrome as a clinically and molecularly well recognisable genomic disorder.

Impacto do trabalho voluntário na atuação de instituições privadas sem fins lucrativos : o caso APAE-Rio

A presente dissertação trata do trabalho voluntário e da atuação das instituições privadas sem fins lucrativos que atendem pessoas portadoras de necessidades especiais. A questão central deste estudo é a investigação a respeito do impacto do trabalho voluntário na atuação das mencionadas instituições, e seu objetivo final é a avaliação deste impacto. O estudo tem como objetivos secundários o levantamento de informações sobre as motivações do trabalhador voluntário e a identificação dos significados atribuídos ao trabalho voluntário. Adotou-se a pesquisa do tipo estudo de caso com tratamento qualitativo e quantitativo dos dados obtidos. A aplicação de questionários junto aos familiares e voluntários da Associação de Pais e Amigos dos Excepcionais (APAE-Rio) revelou aspectos importantes para a pesquisa e fomentou o estudo de assuntos vinculados ao voluntariado trazidos pelos próprios entrevistados, tais como o amor, a solidariedade e a cidadania. Questões próprias do voluntariado e do Terceiro Setor também são abordadas, juntamente com as principais correntes de pensamento no campo da ética, com o intuito de embasar as conclusões do estudo. Os resultados apontam para um impacto positivo do trabalho voluntário na atuação das instituições privadas sem fins lucrativos que atendem pessoas portadoras de necessidades eSpeCiaIS. PALAVRAS-CHAVE: Trabalho Voluntário, Terceiro Setor e Solidariedade