196 resultados para grief
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Thesis (Master's)--University of Washington, 2016-06
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Thesis (Master's)--University of Washington, 2016-06
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Thesis (Ph.D.)--University of Washington, 2016-06
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Thesis (Ph.D.)--University of Washington, 2016-06
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The death of a child with a disability presents unique challenges for individual family members. Whereas parents have received much attention in terms of their needs and challenges, siblings have received less attention. Growing up with a child with a disability who subsequently dies has a profound impact. This paper used in-depth interviews to illuminate the experiences and perceptions of siblings in one family in which a child with cerebral palsy died. The 5 siblings were interviewed about their experiences of family life and their methods of coping during the terminal phases of illness and after their sister's death. Their views on friendships, growing up, vocational choices, their sister's contribution to their lives, and their adjustment to her death are illustrated. Implications for health professionals working with siblings and families are drawn in terms of adult siblings' coping responses and their need for mutual support.
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Esta tese tem como objetivo compreender o fenômeno do luto por morte a partir da fenomenologia, por meio das experiências de membros da Igreja Metodista no Grande ABC. Para alcançar o objetivo geral, tem como objetivos específicos: dialogar com teóricos do luto nas áreas da teologia e da psicologia; conhecer a fenomenologia do corpo existencial de Maurice Merleau-Ponty como parâmetro para a compreensão do estudo do luto por morte; contribuir para as pesquisas de Cuidado Espiritual em situações de luto por morte. A trajetória teórico-metodológica tem como lócus da pesquisa o relato oral de dez pessoas, que trazem sua vivência do luto a partir da pergunta norteadora: como você viveu a sua experiência do luto? Depois de transcritos e literalizados, esses relatos permitiram levantar as unidades de significado e estabelecer as categorias analíticas: dor, tipo de perda, desorganização do ser, corpo existencial, cuidado, fé, luto por morte como ordem natural, processo relacional, racionalização, saudade, luto antecipatório, dimensão material do viver, culpa, memória e serenidade. A partir dessas categorias, fenomenologicamente interpretadas, a construção de uma tabela nomotética tornou possível a identificação das convergências e divergências entre os relatos, bem como das idiossincrasias. No percurso em direção à compreensão da experiência do luto, os relatos foram submetidos à análise ideográfica, que é a tentativa de alcançar a psicologia individual dos sujeitos da pesquisa. A síntese de um pensar, como a expressão da fenomenologia do luto, desvela nuanças da práxis pastoral. Resultantes da construção desse novo saber em torno da vivência do luto por morte, foram significativas algumas percepções: o processo do luto no contexto religioso institucionalizado é similar ao de um contexto não-religioso; a teologia cristã tem espaço para a ressignificação da morte, por meio da criação de uma espiritualidade para o processo do morrer e, para que isso seja possível, destaca-se a necessidade, no interior das comunidades religiosas, de uma teologia da perda, que possibilite uma educação cristã voltada para o enfrentamento do luto, ou seja, de uma teologia de valorização da vida em meio às perdas; o corpo foi a linguagem mais presente na vivência do luto e, no entanto, o corpo enlutado é um paradoxo na igreja cristã, na medida em que esta se tem debruçado sobre o tema da corpo de forma tímida, no que se refere à educação da fé. Ficou patente a percepção da necessidade de fomentar um cuidado espiritual terapêutico abrangente e continuado em situações de luto, de forma a alcançar não apenas o indivíduo em situação de enlutamento, mas também de alcance comunitário, como parte do conjunto de ações públicas que acolham essa questão.(AU)
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Background: Qualitative research has suggested that spousal carers of someone with dementia differ in terms of whether they perceive their relationship with that person as continuous with the premorbid relationship or as radically different, and that a perception of continuity may be associated with more person-centered care and the experience of fewer of the negative emotions associated with caring. The aim of the study was to develop and evaluate a quantitative measure of the extent to which spousal carers perceive the relationship to be continuous. Methods: An initial pool of 42 questionnaire items was generated on the basis of the qualitative research about relationship continuity. These were completed by 51 spousal carers and item analysis was used to reduce the pool to 23 items. The retained items, comprising five subscales, were then administered to a second sample of 84 spousal carers, and the questionnaire's reliability, discriminative power, and validity were evaluated. Results: The questionnaire showed good reliability: Cronbach's α for the full scale was 0.947, and test-retest reliability was 0.932. Ferguson's δ was 0.987, indicating good discriminative power. Evidence of construct validity was provided by predicted patterns of subscale correlations with the Closeness and Conflict Scale and the Marwit-Meuser Caregiver Grief Inventory. Conclusion: Initial psychometric evaluation of the measure was encouraging. The measure provides a quantitative means of investigating ideas from qualitative research about the role of relationship continuity in influencing how spousal carers provide care and how they react emotionally to their caring role. © 2012 International Psychogeriatric Association.
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In line with Wittgenstein's axiom that "what the solipsist means is quite correct; only it cannot be said, but makes itself manifest," this thesis aims to demonstrate how the gulf between analytic and continental philosophy can best be bridged through the mediation of art. The present thesis brings attention to Markson's work, lauded in the tradition of Faulkner, Joyce, and Lowry, as exemplary of the shift from modernity to postmodernity, wherein the human heart is not only in conflict with itself, but with the language out of which it is necessarily constituted. Markson limns the paradoxical condition of the subject severed from intersubjectivity, and affected not only by the grief of bereavement, which can be defined in Heideggarian terms as anxiety for the ontic negation of a being (i.e., death), but by loss, which I assert is the ontological ground for how Dasein encounters the nothing in anxiety proper.
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NEC(ROMANTIC) is a poetry collection thematically linked through images of insects, celestial bodies, bones, and other elements of the supernatural. These images are indicative of spells, but the parenthesis around romantic in the collection’s title also implies idealism. The poems explore the author’s experiences with death, grief, love, oppression, and addiction. NEC(ROMANTIC) employs the use of traditional forms such as the villanelle, sestina, and haiku to organize these experiences. Prose poetry and a peca kucha ground the center of NEC(ROMANTIC) which alternates between lyrical and narrative gestures. NEC(ROMANTIC) is influenced by Sylvia Plath. The author uses Plath’s methods of compression, sound, and rhythm to create a swift, child-like tone when examining emotionally laden topics. Ilya Kaminsky influences lyrical elements of the poems, including surrealism. Spencer Reese’s combination of the natural and personal world is also paramount to this book. Adrienne Rich and Audre Lorde influence NEC(ROMANTIC)’s political poetry.
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This work was supported with a ZonMw TOP grant of the Dutch Association for Scientific Research (NWO), grant number: 91208009.
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Stillbirth is without question one of the most devastating experiences of grief for parents and families. The death of a baby is also a distressing experience for healthcare professionals who share hopes of a live healthy baby at the end of pregnancy. It is a sad reality however, that in Ireland one in 238 babies will die before birth. The creation and nurture of new life in pregnancy is a spiritual experience as a new baby is at the same time experienced and anticipated. There is little in the published literature concerning the spiritual impact of stillbirth on healthcare chaplains who are the main providers of spiritual care for parents and staff colleagues in Irish maternity units. In addition there are few qualitative studies that explore the impact of stillbirth on consultant obstetricians and no published studies on the spiritual impact of stillbirth on bereaved parents. This study explored the spiritual and professional impact of stillbirth on Irish maternity healthcare chaplains, consultant obstetricians and bereaved parents. Following an overall review of spiritual care provision following stillbirth in the Irish maternity services, thematic analysis was used in the first phase of the study following in-depth interviews with maternity healthcare chaplains. Interpretative Phenomenological Analysis was used in the second and third phases with consultant obstetricians and bereaved parents respectively. The data from both maternity healthcare chaplains and consultant obstetricians revealed that stillbirth posed immense personal, spiritual and professional challenges. Chaplains expressed the spiritual and professional impact of stillbirth in terms of perception of their role, suffering, doubt and presence as they provided care for bereaved parents. A review of spiritual care provision in the Irish maternity services revealed a diversity of practice. The data from consultant obstetricians identified considerable personal, professional and spiritual impact following stillbirth that was identified in superordinate themes of human response to stillbirth, weight of professional responsibility, conflict of personal faith and incongruence between personal faith and professional practice. Data from bereaved parents revealed that stillbirth was spiritually challenging and all parents expressed that stillbirth posed considerable challenge to their faith/ belief structure. The parents of only three babies felt that their spiritual needs were adequately addressed while in hospital. The data had six superordinate themes of searching for meaning, maintaining hope, importance of personhood, protective care, questioning core beliefs and relationships. Other findings from the data from bereaved parents outlined the importance of environment of care and communication. This study has revealed the immense impact of stillbirth on healthcare chaplains, consultant obstetricians and most especially the spiritual impact for bereaved parents. Recommendations are made for improvements in clinical and spiritual care for bereaved parents following stillbirth and for staff wellbeing and support initiatives. Further research areas are recommended in the areas of spiritual care, theological reflection, bereavement care, post-mortem consent procedures and staff wellbeing.
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Aim: This study is going to assess the prevalance of prolonged grief diagnoses and it will evaluate the severity of the symptoms of depression, anxiety and complicated grief two months after a loved one is lost. We also intend to study which variables associated with the risk of grief could be more decisive when diagnosing it, its symptoms and the consequent emotional distress.Method: A total of 66 families of patients in the Palliative Care Unit (PCU) at Hospital San Cecilio in Granada have been evaluated. Measurements were taken two months after the death. This investigation has explored the existing emotional distress using the following questionnaires: Beck Depression Inventory (BDI-II), Beck Anxiety Inventory (BAI), Inventory of Complicated Grief (ICG) and Prolongued Grief Disorder (PG-12).Results: The results show that 33.3% and 21.21% of the sufferers had high levels of depression and clinical anxiety two months after the death. The prevalence of prolongued grief diagnoses, according to the PG-12, is 10.6% and 53.03% of the participants showed symptoms of complicated grief according to the ICG. Additionally, statistically significant differences are found in the sufferers with and without a prolongued grief diagnosis and scores in the ICG and BDI-II. The family’s financial situation is linked to the presence of symptoms of anxiety and depression and complicated grief, with the most determining variable being the risk of grief. Finally, the greater the age of the deceased and the longer the time spent in the PCU is linked to fewer symptoms of grief. However, important links have been found between the sufferers who have experienced stressful critical events prior to losing their loved one, with symptoms of depression, anxiety and complicated grief.Conclusions: The high numbers of cases of symptoms of complicated grief and levels of anxiety and clinical depression two months after a death suggests that early interventions should be carried out in those individuals with greater vulnerability.
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El arteterapia permite una aproximación creativa biográfica particularmente valiosa en la etapa final de la vida. La persona enferma presenta múltiples necesidades – físicas, emocionales, sociales y espirituales – que solo una atención holística puede pretender abarcar, tal como lo contempla la filosofía de los cuidados paliativos. El arteterapeuta integrado en el equipo interdisciplinar contribuye a aliviar y acompañar el sufrimiento del paciente y su familia. Se presentan aquí las bases teóricas y la metodología de la intervención, así como el marco sanitario en el cual se inscribe.