Death and late-stage dementia in institutions : a cultural analysis

The first purpose of this study was to describe the deaths of fifteen nursing home residents with late-stage dementia. The devastating effect of dementia on a person has been called a ‘living death’ (Woods, 1989). The caring which occurs when someone is going through this process in a nursing home was recorded and analysed. In analysing this act of caring, the second purpose was to look for the origins of the structures and the sources of pressure that shaped the context and therefore helped determine the behaviour of the various groups under observation. These groups were residents and their relatives, the staff of the nursing home and the treating doctors. Before commencing observations and carrying out this study, an understanding needed to be developed of: the condition of dementia as it is perceived by health professionals and presented in the media; the institutions in which the majority of people with dementia end their days; the background and conditions of the staff who nurse in them; the models of care that guide and determine policies; and the conceptions of life and death which underpin relevant laws and moral standpoints. Accordingly, in part 1. chapter 1 the history, causes, pathology and effects of dementing conditions are examined. Relevant medical and lay literature including media influences are examined which pertain to the subject of death and dementia and nursing home care. The history of this institutional care is briefly examined together with the growth of the discipline of gerontological nursing. Chapter 2 discusses some of the effects of this history on present day care and the concept of emotional work being carried out within the present day aged care public policy regulations. The moral arguments surrounding illness and dying in Australian society today are briefly discussed. Chapter 3 describes the conceptual framework for the study, the ethnographic method that has been employed and an outline of critical theory as the basis for analysis. The chapter concludes by recounting the practical steps taken to arrange the field work, secure the consent of participants, record data and gather documents, and outlines the ethical considerations given to the undertaking of the study. Chapter 4 describes the context in which the study took place and the first tentative exploration of the culture from an etic perspective. Part 2 describes the death trajectories observed and raises some questions about alternative strategies that may have been considered within a different paradigm of caring. In chapter 5 the death trajectories of each of the fifteen residents in the study are described, each written with a particular emphasis to illustrate aspects of the culture of care that emerged through thematic analysis. Observations, comments and feelings from staff and family are wound in and around these case studies. Chapter 6 looks more closely at the impact of policy and institutional pressure on the milieu in which these deaths took place. Part 3 draws conclusions from the observations and makes suggestions for emancipatory change as viewed from the author's standpoint of critical ethnographic analysis. In the final chapter an argument is presented for policy change that leads a movement towards palliative care practices for people with late-stage dementia. Approaches to implementation of palliative care will need to take account of any expression by the resident such as an advanced directive, indicating a preferred approach to treatment in the period prior to death; a need for a better understanding of such issues as the significance of body breakdown, the manifestations of pain and electrolyte imbalances; the surrounding ethical complexities and shift in public opinion, and perhaps, most of ail, the culture of the institutions in which this dying will take place. A definition of late-stage dementia which might be used in determining patterns of care is set out. A discussion about changes in practice which relate lo communication with treating doctors, the administering of antibiotics, the relief of pain, the mobilisation of residents and the provision of food and water takes place in light of the evidence found. The discussion of these issues is raised in the form of debate. Each aspect needs more rigorous analysis and information so that evidence-based practice, rather than care which is value-laden and emotional, can be used when treatment decisions are made for people with late-stage dementia.

The influence of need-for-cognition on ethical decision-making in marketing

The research established that the work-related norms of marketers and their socialisation into the marketing profession are influenced beneficially by their need-for-cognition. The research revealed contradictions between corporate codes of ethics and the values espoused by professional associations. Better ways of managing corporate ethical standards and behaviour are suggested.

Poster presentation for the 7th Australian Women's Health Conference

This poster presentation demonstrates the significant impact Intimate Partner Violence is having on health outcomes in Australia.  One in three Australian women will experience Intimate Partner Violence within their lifetime. Despite nurses and midwives being in an ideal position to care for women who have expereinced Intimate Partner Violence, they have not been trained to do so.  This poster outlines the issue of Intimate Partner Violence in Australia and highlights how imprtant it is that nurses and midwives are able to assess and care for women who have been victimised.  This poster also provides information about a national Australian study which commences in 2014 with the aim to promote the ability for Australian nurses and midwives to be able to assess and care for women experiencing Intimate Partner Violence. 

Infrações éticas envolvendo pessoal de enfermagem

Foram estudados processos instaurados para apuração de denúncias de infrações éticas envolvendo pessoal de enfermagem de um hospital de ensino. Verificaram-se algumas características dos denunciados e denunciantes, e circunstâncias dos fatos apontados nas denúncias. As infrações mais freqüentes, comprovadas pelas comissões, foram as categorizadas pelos pesquisadores como: Indisciplina e Maus tratos ao paciente. São apresentadas recomendações que visam contribuir para a solução dos problemas.

Dignidade no cuidado: como prosseguir nos estudos e na pesquisa sobre ética em enfermagem?

A Dignidade é reconhecida como valor central e, também, controverso no discurso bioético. O objetivo deste artigo é examinar algumas das vertentes principais da extensa produção acadêmica e de literatura sobre o tema, na ética e prática da enfermagem. O método é a avaliação crítica de uma seleção de artigos publicados na Nursing Ethics e de outros manuscritos e textos identificados como influentes por pesquisadores do Reino Unido e Brasil. Os resultados sugerem um leque amplo e confuso de perspectivas e achados, embora haja temas gerais relacionados às características objetivas e subjetivas da dignidade. Em conclusão, os autores apontam para a necessidade de sólidos estudos filosóficos para contextualizar a dignidade humana dentro da pluralidade de valores profissionais. Pesquisas empíricas futuras devem explorar o que importa para pacientes, familiares, profissionais e cidadãos em diferentes contextos culturais, em vez de seguir desenvolvendo pesquisas qualitativas embasadas em um conceito impreciso e contestado.

Decisional Considerations in Left Ventricular Assist Device for Destination Therapy

Thesis (Ph.D.)--University of Washington, 2016-06

Who owns the child in hospital? A preliminary discussion

Aim. To 'own' a person is considered an infringement of human rights, but we suggest that concepts of ownership influence interactions between parents and staff when a child is admitted to hospital. This paper aims to stimulate debate and contains an explanation of the exploration of the literature for research and discussion of ownership of the child. Method. A wide variety of library indexes, databases and populist media were examined although it was impossible to examine all literature which may have contained references to this topic, and, apart from databases which contained abstracts in English, we could not include literature written in any language other than English, Swedish, and Icelandic. Findings. We found no research that examines how concepts of ownership of a child affects communication between health professionals and parents and, ultimately, the delivery of health care. This paper begins discussion on the issues. Discussion. Historical literature shows that ownership of humans has been a part of many cultures, and parents were once considered to own their children. Ownership of another has legal connotations, for instance in guardianship struggles of children during marriage breakup and in ethical debates over surrogacy and products of assisted conception. Within health care, it becomes a contentious issue in transplantation of body parts, in discourse on autonomy and informed consent, and for religious groups who refuse blood transfusions. In health care, models such as family centred care and partnership in care depend on positive communication between parents and staff. If a hospital staff member feels that he/she owns a child for whom he/she is caring, then conflict between the staff member and the parents over who has the 'best interests of the child' at heart is possible. Conclusion. We encourage debate about concepts of who owns the hospitalized child - the parents or the staff? Should it be argued at all? Is the whole concept of ownership of another, be it adult or child, the ethical antithesis to modern beliefs about human rights? Comment on this issue is invited.

Differences in ethical attitudes between registered nurses and medical students

In this study we compared the ethical attitudes of a group of experienced, predominantly female, registered nurses (n = 67) with those of a group of final year, mixed sex, medical students (n = 125). The purpose was to determine the basis of differences in attitudes that could lead to ethical disagreements between these two groups when they came to work together. A questionnaire developed to explore ethical attitudes was administered and the responses of the two groups were compared using t-tests. Because of the preponderance of females among the nurses an analysis of variance of the gender-adjusted scores for each group was also carried out. On comparing the responses, the nurses differed significantly from the medical students in a number of ethical domains. A potential source of conflict between these two groups is that the nurses were inclined to adopt the perspective of patients but the medical students identified with their profession. When corrected for the effects of gender, the differences persisted, indicating that it was discipline that determined the differences. We recommend that students of nursing and medicine receive ethics education together, and that more open dialogue between doctors and nurses with respect to their different ethical viewpoints is needed in the work setting. This article will be of interest to educators of students of medicine and nursing, as well as to doctors and nurses who are eager to improve their professional relations and thereby improve patient care.

Predictive genetic test decisions for Huntington's disease: context, appraisal and new moral imperatives

Predictive testing is one of the new genetic technologies which, in conjunction with developing fields such as pharmacogenomics, promises many benefits for preventive and population health. Understanding how individuals appraise and make genetic test decisions is increasingly relevant as the technology expands. Lay understandings of genetic risk and test decision-making, located within holistic life frameworks including family or kin relationships, may vary considerably from clinical representations of these phenomena. The predictive test for Huntington's disease (HD), whilst specific to a single-gene, serious, mature-onset but currently untreatable disorder, is regarded as a model in this context. This paper reports upon a qualitative Australian study which investigated predictive test decision-making by individuals at risk for HD, the contexts of their decisions and the appraisals which underpinned them. In-depth interviews were conducted in Australia with 16 individuals at 50% risk for HD, with variation across testing decisions, gender, age and selected characteristics. Findings suggested predictive testing was regarded as a significant life decision with important implications for self and others, while the right not to know genetic status was staunchly and unanimously defended. Multiple contexts of reference were identified within which test decisions were located, including intra- and inter-personal frameworks, family history and experience of HID, and temporality. Participants used two main criteria in appraising test options: perceived value of, or need for the test information, for self and/or significant others, and degree to which such information could be tolerated and managed, short and long-term, by self and/or others. Selected moral and ethical considerations involved in decision-making are examined, as well as the clinical and socio-political contexts in which predictive testing is located. The paper argues that psychosocial vulnerabilities generated by the availability of testing technologies and exacerbated by policy imperatives towards individual responsibility and self-governance should be addressed at broader societal levels. (C) 2003 Elsevier Science Ltd. All rights reserved.

Construção moral dos estudantes de graduação em enfermagem como instrumento para a humanização do cuidado

O cuidado de enfermagem faz parte do mundo científico exigindo não apenas o desenvolvimento de habilidades para a realização de procedimentos técnicos, mas a possibilidade de resgatar a sensibilidade para cuidar de modo humanizado. Pressupõe-se que a construção moral durante o processo de formação dos estudantes de graduação em Enfermagem possibilita o exercício de um cuidado humanizado. Assim, tem-se como objetivo geral: Compreender como ocorre o processo de construção moral dos estudantes de graduação em Enfermagem para o exercício de um cuidado humanizado; e como objetivos específicos: Conhecer quais os valores morais que estão presentes nas ações dos estudantes de enfermagem para a promoção do cuidado humanizado; Refletir acerca de como a construção moral do estudante de graduação em enfermagem pode fomentar a humanização do cuidado; Conhecer barreiras vivenciadas no processo de construção moral dos estudantes de graduação em enfermagem para a realização do cuidado humanizado. Mediante uma abordagem qualitativa e utilizando, como referencial teórico-metodológico, a Etnoenfermagem de Leininger, o estudo foi desenvolvido com 28 estudantes regularmente matriculados na quinta e na sétima séries do Curso de Graduação em Enfermagem. A coleta dos dados ocorreu através de quatro fases de observação, uma fase de entrevista semi-estruturada e quatro fases de análise, identificando-se as categorias:- Processo de construção moral dos estudantes de enfermagem e o cuidado humanizado;- Valores morais nas ações dos estudantes de enfermagem para a promoção do cuidado humanizado;- Construção moral do estudantes de graduação em enfermagem como fomento da humanização do cuidado; - Humanização: barreiras vivenciadas no processo de construção moral dos estudantes de enfermagem. A partir da análise, afirma-se que a construção moral dos estudantes de graduação em Enfermagem, durante o processo de formação, possibilita o exercício de um cuidado humanizado. Destaca-se que o ambiente de formação deve ser um local em que o estudante seja respeitado e considerado como cidadão; estes aspectos culminarão com a possibilidade desse estudante desenvolver competências morais necessárias ao cuidado humanizado. Por outro lado, em um ambiente onde ocorra abuso ou desrespeito ao estudante, existe a tendência de ocorrer o fenômeno inverso, causando uma regressão da competência moral e possíveis repercussões negativas para o cuidado humanizado. Assim, pensar a construção moral dos estudantes de graduação em enfermagem exige das instituições de ensino um compromisso social e político, pois essa reflexão convida a avaliar e revisar suas práticas pedagógicas e condutas adotadas diante dos estudantes. Cabe, às escolas de enfermagem, oportunizar ao graduando, espaços que favoreçam sua construção moral. Na formação em enfermagem, é necessária a priorização das relações humanas e não somente do ensino de teorias e técnicas de cuidado, concluindo-se que o desenvolvimento moral é um dos eixos da humanização do cuidado.