Adult siblings' perceptions of family life and loss: A pilot case study

The death of a child with a disability presents unique challenges for individual family members. Whereas parents have received much attention in terms of their needs and challenges, siblings have received less attention. Growing up with a child with a disability who subsequently dies has a profound impact. This paper used in-depth interviews to illuminate the experiences and perceptions of siblings in one family in which a child with cerebral palsy died. The 5 siblings were interviewed about their experiences of family life and their methods of coping during the terminal phases of illness and after their sister's death. Their views on friendships, growing up, vocational choices, their sister's contribution to their lives, and their adjustment to her death are illustrated. Implications for health professionals working with siblings and families are drawn in terms of adult siblings' coping responses and their need for mutual support.

Vivências de cuidado familiar à criança dependente de tecnologias: subsídios para a enfermagem

Crianças dependentes do uso de tecnologias para viver necessitam de cuidados diferenciados, tanto dos profissionais da saúde como de sua família. Para o enfermeiro atuar junto à família da criança dependente do uso de tecnologias é necessário que compreenda quais são os recursos importantes para o enfrentamento de situações estressantes que envolvem, necessariamente, o conviver com a doença e o cuidado. Ao vivenciar a relação com essa família, o enfermeiro estuda e desenvolve sua prática de aprendizado e de ensino sobre o cuidado humano, criando o fazer profissional e, nesse processo de aprender/ensinar/criar, ele concebe, organiza e expressa ações de cuidado. A compreensão da experiência da família no processo de cuidar da criança em seu cotidiano pode subsidiar as intervenções da enfermagem nessas situações. Assim, objetivou-se conhecer as vivências de famílias no cuidado às crianças dependentes de tecnologias. Realizou-se uma pesquisa qualitativa, descritiva e exploratória no primeiro semestre de 2014. Os dados foram coletados por meio de entrevistas semiestruturadas com treze familiares cuidadores de crianças dependentes de tecnologias atendidas em uma Unidade de Pediatria de um hospital universitário do sul do país e submetidos à análise temática. Encontraram-se como categorias: caracterização da população do estudo; identificação da percepção do familiar cuidador a cerca do cuidado à criança dependente de tecnologia; recepção do diagnóstico da criança; mudanças do cotidiano familiar em função do cuidado à criança; profissionais de saúde e a enfermagem: contribuições para a instrumentalização do familiar cuidador; facilidades e dificuldades encontradas pelo familiar cuidador durante o cuidado à criança dependente de tecnologia; recebimento de ajuda da rede de apoio social para o cuidado à criança. Acredita-se que este estudo possibilitou a compreensão da experiência de famílias no processo de cuidar da criança dependente de tecnologias em seu cotidiano, subsidiando as intervenções da enfermagem nessas situações.

A comparison of social interaction between groups of multiply handicapped and hearing-impaired children

This paper reviews a study to determine the differences between multiply handicapped and deaf children in social interactions.

Dependent and neglected children : report of the Committee on Socially Handicapped--Dependency and Neglect /

"Section IV--The handicapped: prevention, maintenance, protection. C. C. Carsten, Chairman."--p. [iii]

Children and family services institutions and community services to the visually handicapped, fiscal year ending June 30, 1963 /

On cover: Annual report, 1963.

Educational robotics as a learning aid for disabled children

Severe disabled children have little chance of environmental and social exploration and discovery, and due this lack of interaction and independency, it may lead to an idea that they are unable to do anything by themselves. This idea is called learned helplessness and is very negative for the child cognitive development and social development as well. With this entire situation it is very likely that the self-steam and mood of this child. Trying to help these children on this situation, educational robotics can offer and aid, once it can give them a certain degree of independency in exploration of environment. The system developed in this work allows the child to transmit the commands to a robot. Sensors placed on the child's body can obtain information from head movement or muscle pulses to command the robot to carry the tasks. Also, this system can be used with a variety of robots, being necessary just a previous configuration. It is expected that, with the usage of this system, the disabled children have a better cognitive development and social interaction, balancing in a certain way, the negative effects of their disabilities. © 2011 IEEE.

Use of myoelectric signals to command mobile entertainment robot by disabled children: Design and control architecture

Severely disabled children have little chance of environmental and social exploration and discovery. This lack of interaction and independency may lead to an idea that they are unable to do anything by themselves. In an attempt to help children in this situation, educational robotics can offer and aid, once it can provide them a certain degree of independency in the exploration of environment. The system developed in this work allows the child to transmit the commands to a robot through myoelectric and movement sensors. The sensors are placed on the child's body so they can obtain information from the body inclination and muscle contraction, thus allowing commanding, through a wireless communication, the mobile entertainment robot to carry out tasks such as play with objects and draw. In this paper, the details of the robot design and control architecture are presented and discussed. With this system, disabled children get a better cognitive development and social interaction, balancing in a certain way, the negative effects of their disabilities. © 2012 IEEE.

Films on the handicapped;

Mode of access: Internet.

Parents' guide to the development of preschool children with disabilities : resources and services /

"May 1992."

Class list, program for physically handicapped, 1964-65.

Cover title.

Overcoming barriers to inclusion of children with disabilities in the local schools : a blueprint for change :executive summary: /

Cover title.

Orientation and mobility for the visually handicapped : a guide for parents.

Cover title.

A guide for establishing special classes for the educable mentally handicapped /

Preface signed by Ray Graham and Dorothy M. Seigle.

Genetic Predictors Of Long-term Response To Growth Hormone (gh) Therapy In Children With Gh Deficiency And Turner Syndrome: The Influence Of A Socs2 Polymorphism.

There is great interindividual variability in the response to GH therapy. Ascertaining genetic factors can improve the accuracy of growth response predictions. Suppressor of cytokine signaling (SOCS)-2 is an intracellular negative regulator of GH receptor (GHR) signaling. The objective of the study was to assess the influence of a SOCS2 polymorphism (rs3782415) and its interactive effect with GHR exon 3 and -202 A/C IGFBP3 (rs2854744) polymorphisms on adult height of patients treated with recombinant human GH (rhGH). Genotypes were correlated with adult height data of 65 Turner syndrome (TS) and 47 GH deficiency (GHD) patients treated with rhGH, by multiple linear regressions. Generalized multifactor dimensionality reduction was used to evaluate gene-gene interactions. Baseline clinical data were indistinguishable among patients with different genotypes. Adult height SD scores of patients with at least one SOCS2 single-nucleotide polymorphism rs3782415-C were 0.7 higher than those homozygous for the T allele (P < .001). SOCS2 (P = .003), GHR-exon 3 (P= .016) and -202 A/C IGFBP3 (P = .013) polymorphisms, together with clinical factors accounted for 58% of the variability in adult height and 82% of the total height SD score gain. Patients harboring any two negative genotypes in these three different loci (homozygosity for SOCS2 T allele; the GHR exon 3 full-length allele and/or the -202C-IGFBP3 allele) were more likely to achieve an adult height at the lower quartile (odds ratio of 13.3; 95% confidence interval of 3.2-54.2, P = .0001). The SOCS2 polymorphism (rs3782415) has an influence on the adult height of children with TS and GHD after long-term rhGH therapy. Polymorphisms located in GHR, IGFBP3, and SOCS2 loci have an influence on the growth outcomes of TS and GHD patients treated with rhGH. The use of these genetic markers could identify among rhGH-treated patients those who are genetically predisposed to have less favorable outcomes.

[food Insecurity In Brazilian Families With Children Under Five Years Of Age].

This article analyzes food insecurity and hunger in Brazilian families with children under five years of age. This was a nationally representative cross-sectional study using data from the National Demographic and Health Survey on Women and Children (PNDS-2006), in which the outcome variable was moderate to severe food insecurity, measured by the Brazilian Food Insecurity Scale (EBIA). Prevalence estimates and prevalence ratios were generated with 95% confidence intervals. The results showed a high prevalence of moderate to severe food insecurity, concentrated in the North and Northeast regions (30.7%), in economic classes D and E (34%), and in beneficiaries of conditional cash transfer programs (36.5%). Multivariate analysis showed that the socioeconomic relative risks (beneficiaries of conditional cash transfers), regional relative risks (North and Northeast regions), and economic relative risks (classes D and E) were 1.8, 2.0 and 2.4, respectively. Aggregation of the three risks showed 48% of families with moderate to severe food insecurity, meaning that adults and children were going hungry during the three months preceding the survey.