Cyberbullying : a violência virtu@l conectada ao mundo real dos estudantes em contextos universitários do Brasil e Portugal

Tese de doutoramento, Psicologia (Psicologia da Educação), Universidade de Lisboa, 2016

Behavioural profiles of captive capuchin monkeys (Sapajus spp.): analyses at group and individual levels

The use of behavioural indicators of suffering and welfare in captive animals has produced ambiguous results. In comparisons between groups, those in worse condition tend to exhibit increased overall rate of Behaviours Potentially Indicative of Stress (BPIS), but when comparing within groups, individuals differ in their stress coping strategies. This dissertation presents analyses to unravel the Behavioural Profile of a sample of 26 captive capuchin monkeys, of three different species (Sapajus libidinosus, S. flavius and S. xanthosternos), kept in different enclosure types. In total, 147,17 hours of data were collected. We explored four type of analysis: Activity Budgets, Diversity indexes, Markov chains and Sequence analyses, and Social Network Analyses, resulting in nine indexes of behavioural occurrence and organization. In chapter One we explore group differences. Results support predictions of minor sex and species differences and major differences in behavioural profile due to enclosure type: i. individuals in less enriched enclosures exhibited a more diverse BPIS repertoire and a decreased probability of a sequence with six Genus Normative Behaviour; ii. number of most probable behavioural transitions including at least one BPIS was higher in less enriched enclosures; iii. proeminence indexes indicate that BPIS function as dead ends of behavioural sequences, and proeminence of three BPIS (pacing, self-direct, active I) were higher in less enriched enclosures. Overall, these data are not supportive of BPIS as a repetitive pattern, with a mantra-like calming effect. Rather, the picture that emerges is more supportive of BPIS as activities that disrupt organization of behaviours, introducing “noise” that compromises optimal activity budget. In chapter Two we explored individual differences in stress coping strategies. We classified individuals along six axes of exploratory behaviour. These were only weakly correlated indicating low correlation among behavioural indicators of syndromes. Nevertheless, the results are suggestive of two broad stress coping strategies, similar to the bold/proactive and shy/reactive pattern: more exploratory capuchin monkeys exhibited increased values of proeminence in Pacing, aberrant sexual display and Active 1 BPIS, while less active animals exhibited increased probability in significant sequences involving at least one BPIS, and increased prominence in own stereotypy. Capuchin monkeys are known for their cognitive capacities and behavioural flexibility, therefore, the search for a consistent set of behavioural indictors of welfare and individual differences requires further studies and larger data sets. With this work we aim contributing to design scientifically grounded and statistically correct protocols for collection of behavioural data that permits comparability of results and meta-analyses, from whatever theoretical perspective interpretation it may receive.

Efeito do topiramato sobre o craving em usuários de crack

The study aims to analyze the effects of topiramato on the craving of crack users. It is an open crossover clinical trial involving users from the Psychosocial Care Center for Alcohol and Drugs (CAPSad) in city of Parnamirim, RN, approved by the CEP CAAE: 38710614.1.0000.5537, respecting the norms of the resolution n. 466/2012/CNS. The study produced preliminary two scientific papers: a theoretical essay and an integrative review, as a way of seeking the state of art. The first paper was based in the theoretical framework of Hinds, Chaves and Cypress, which focuses different contexts, from the issues of individual use to the coping policies in Brazil, highlighting that the situation and the complexity of the phenome requires coping strategies for the full attention to the user, family and society. As a result of the integrative review, among the 902 retrieved records, eight of them presented therapeutic schemes with positive effects for the craving of cocaine. They used nine different drugs. It is important to spot out that there was no result for the craving of crack. The data collection was conducted from December 2014 to July 2015 and has as sample predominantly single males. The sample was composed of 30 subjects who met the inclusion criteria: adults, age from 18 years, diagnosis of the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) for cocaine/crack; cognitive capacity preserved; attendance to the service, participated at least three visits in the 12 months prior to data collection; and accepted to be monitored in the proposed treatment. Data was analyzed using descriptive statistics from the Statistical Package of Support for Social Sciences (SPSS) on the instruments: 1) Alcohol, Smoking, and Substance Involvement Screening Test (ASSIST), pointing out, among other results, that only 14% used crack/cocaine weekly during treatment, while 83% used daily or weekly after the washout period; 2) Barratt Impulsiveness Scale, with an average of 80.23 and 77.47 with and without drug treatment, respectively. An analysis from the Student t test show no significant differences in impulsivity with or without the drug; and 3) Cocaine-Craving Questionnaire-Brief (CCK-B), indicating that the number of users with craving intensity level is significantly higher without drug treatment (86%) than with treatment (33%). The analysis between craving and level of impulsivity showed that there is a low correlation (Pearson) between these two variables during treatment and after the washout, demonstrating that impulsivity has low influence on the outcome of drug therapy. As conclusion, it was noted that the topiramate produces positive effect on reducing the craving for crack users and their use is a relevant strategy for efficacy in the treatment of crack users.

Efeito do topiramato sobre o craving em usuários de crack

The study aims to analyze the effects of topiramato on the craving of crack users. It is an open crossover clinical trial involving users from the Psychosocial Care Center for Alcohol and Drugs (CAPSad) in city of Parnamirim, RN, approved by the CEP CAAE: 38710614.1.0000.5537, respecting the norms of the resolution n. 466/2012/CNS. The study produced preliminary two scientific papers: a theoretical essay and an integrative review, as a way of seeking the state of art. The first paper was based in the theoretical framework of Hinds, Chaves and Cypress, which focuses different contexts, from the issues of individual use to the coping policies in Brazil, highlighting that the situation and the complexity of the phenome requires coping strategies for the full attention to the user, family and society. As a result of the integrative review, among the 902 retrieved records, eight of them presented therapeutic schemes with positive effects for the craving of cocaine. They used nine different drugs. It is important to spot out that there was no result for the craving of crack. The data collection was conducted from December 2014 to July 2015 and has as sample predominantly single males. The sample was composed of 30 subjects who met the inclusion criteria: adults, age from 18 years, diagnosis of the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) for cocaine/crack; cognitive capacity preserved; attendance to the service, participated at least three visits in the 12 months prior to data collection; and accepted to be monitored in the proposed treatment. Data was analyzed using descriptive statistics from the Statistical Package of Support for Social Sciences (SPSS) on the instruments: 1) Alcohol, Smoking, and Substance Involvement Screening Test (ASSIST), pointing out, among other results, that only 14% used crack/cocaine weekly during treatment, while 83% used daily or weekly after the washout period; 2) Barratt Impulsiveness Scale, with an average of 80.23 and 77.47 with and without drug treatment, respectively. An analysis from the Student t test show no significant differences in impulsivity with or without the drug; and 3) Cocaine-Craving Questionnaire-Brief (CCK-B), indicating that the number of users with craving intensity level is significantly higher without drug treatment (86%) than with treatment (33%). The analysis between craving and level of impulsivity showed that there is a low correlation (Pearson) between these two variables during treatment and after the washout, demonstrating that impulsivity has low influence on the outcome of drug therapy. As conclusion, it was noted that the topiramate produces positive effect on reducing the craving for crack users and their use is a relevant strategy for efficacy in the treatment of crack users.

Mulheres com lúpus eritematoso sistêmico: sintomas depressivos e apoio social percebido

Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease, rare, multisystem, with a very heterogeneous clinical and serological manifestations standard. The patient, in addition to suffering injuries on his physical and physiological functioning, may also face a number of psychosocial problems. Research indicates that SLE can cause significant damage to the psychological realm, especially with the presence of anxiety and depression. In 1999, the American College of Rheumatology (ACR), proposed the establishment of 19 neuropsychiatric clinical syndromes attributed to SLE. Depression lies between mood disorders and is one of the most common psychiatric manifestations in this group, being found more frequently in these patients than in the general population. Studies also suggest that social support plays an important role in the development of coping strategies, in SLE management and depression. This study has as main objective verify the association between depressive symptoms and perceived social support in patients with SLE. The specific objectives turned to: investigte the prevalence of depressive symptoms; investigate the perceived social support and verify if there is an association between depression, social support and sociodemographic variables. We used a sociodemographic questionnaire, the Beck Depression Scale, and the Perceived Social Support Scale. The analysis was performed through descriptive and inferential statistics. The final sample could count with 79 SLE women, with an average age of 35.7 years. 44 (55.7%) of the participants were married. Only 6 (7.59%) had completed higher education and 32 (40.51%) have not finished high school. Seventy-one (89.87%) had an income below three minimum salaries and 71 (89.87) practiced a religion, and the Catholic (67.71%) was the most mentioned by them. Of the total sample, 37 (46.74%) had been diagnosed SLE more than 7 years before, and 25 (31.65%) had the disease for more than 10 years. Only 19 (24.05%) had some work activity. Forty-two of them (53.17%) had depressive symptoms levels from mild to severe, and 51 (64.46%) reported pain levels of 5, or above. The study found a significant association between depressive symptoms and pain (p = 0.013) and depressive symptoms and work activity (p = 0.02). When we examined the perception of social support, the results showed high levels among participants. Using the Spearman correlation test we found a strong correlation between depressive symptoms and social support (p= 0,000037). It means that the higher the frequency of support, the lower the score of depression. These findings are relevant because depressive symptoms in patients with SLE have a multicausal and multifactorial character and may remain unnoticed, since many of them are confused with the manifestations of the disease. This fact requires a careful assessment from professionals, not only in the clinical setting, but also considering other psychosocial reasons, that may be influencing the emergence or worsening of symptoms. These results also corroborate other studies, which not only confirm the predictive role of social support in the physical wellbeing, but also in the psychological.

Mulheres com lúpus eritematoso sistêmico: sintomas depressivos e apoio social percebido

Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease, rare, multisystem, with a very heterogeneous clinical and serological manifestations standard. The patient, in addition to suffering injuries on his physical and physiological functioning, may also face a number of psychosocial problems. Research indicates that SLE can cause significant damage to the psychological realm, especially with the presence of anxiety and depression. In 1999, the American College of Rheumatology (ACR), proposed the establishment of 19 neuropsychiatric clinical syndromes attributed to SLE. Depression lies between mood disorders and is one of the most common psychiatric manifestations in this group, being found more frequently in these patients than in the general population. Studies also suggest that social support plays an important role in the development of coping strategies, in SLE management and depression. This study has as main objective verify the association between depressive symptoms and perceived social support in patients with SLE. The specific objectives turned to: investigte the prevalence of depressive symptoms; investigate the perceived social support and verify if there is an association between depression, social support and sociodemographic variables. We used a sociodemographic questionnaire, the Beck Depression Scale, and the Perceived Social Support Scale. The analysis was performed through descriptive and inferential statistics. The final sample could count with 79 SLE women, with an average age of 35.7 years. 44 (55.7%) of the participants were married. Only 6 (7.59%) had completed higher education and 32 (40.51%) have not finished high school. Seventy-one (89.87%) had an income below three minimum salaries and 71 (89.87) practiced a religion, and the Catholic (67.71%) was the most mentioned by them. Of the total sample, 37 (46.74%) had been diagnosed SLE more than 7 years before, and 25 (31.65%) had the disease for more than 10 years. Only 19 (24.05%) had some work activity. Forty-two of them (53.17%) had depressive symptoms levels from mild to severe, and 51 (64.46%) reported pain levels of 5, or above. The study found a significant association between depressive symptoms and pain (p = 0.013) and depressive symptoms and work activity (p = 0.02). When we examined the perception of social support, the results showed high levels among participants. Using the Spearman correlation test we found a strong correlation between depressive symptoms and social support (p= 0,000037). It means that the higher the frequency of support, the lower the score of depression. These findings are relevant because depressive symptoms in patients with SLE have a multicausal and multifactorial character and may remain unnoticed, since many of them are confused with the manifestations of the disease. This fact requires a careful assessment from professionals, not only in the clinical setting, but also considering other psychosocial reasons, that may be influencing the emergence or worsening of symptoms. These results also corroborate other studies, which not only confirm the predictive role of social support in the physical wellbeing, but also in the psychological.

CAREGIVING FOR A FAMILY MEMBER WITH HEAD AND NECK CANCER

Objective: To know the perception of informal caregivers regarding the care for a family member with head and neck cancer. Methods: Qualitative study conducted between March and May 2014 in the radiotherapy outpatient center of the Centro de Alta Complexidade em Oncologia – CACON (Oncology High Complexity Center) of the Hospital Universitário de Brasília – HUB (University Hospital of Brasília) using semi-structured interviews with nine caregivers about the experience of caring for family members. Data underwent Content Analysis and four units of meaning were identified: “Representation of cancer in the Family”, “The care as debt, individual reward or reconstruction of family ties”, “Repercussions of cancer on the caregiver’s personal life” and “Social support and network used by caregivers”. Results: Feelings of sadness and surprise at the moment of diagnosis were attributed to cancer, as well as the idea of punishment. The care was seen as personal satisfaction, accomplishment and opportunity for family rapprochement. Work overload and change in routine were altered functions. Religiosity, exchange of experience in the waiting room and institutional support appeared as coping strategies. Conclusion: The experience of caring for family members with head and neck cancer directly interferes in the lives of caregivers. Pointing out the institutional embracement as a strategy within the social network reinforces the importance of integrating the caregivers as a significant part of the health care plan developed by the health team.

O cuidador familiar no olhar da pessoa com depressão

CONTEXTO: O papel de cuidador assumido pelo familiar nem sempre é bem aceite pela pessoa que vive depressão, o que tem repercussões na vida familiar, principalmente nas relações interpessoais. OBJETIVO(S): Caraterizar a depressão na perspetiva de quem a vive; Caraterizar o papel de cuidador familiar na perspetiva do doente; Descrever reações do doente na relação com os cuidadores familiares. METODOLOGIA: Desenho de natureza qualitativa e indutiva com recurso à Grounded Theory. Seleção de participantes, não probabilística intencional. Realização de entrevista semiestruturada. RESULTADOS: Encontradas quatro categorias na codificação axial. A pessoa deprimida identifica o início, causas, caraterísticas e manifestações da doença. A depressão é vivida de forma intimista pelo doente, desenvolvendo estratégias de enfrentamento e de gestão da sua situação clínica. Na perspetiva do doente, o familiar falha o papel de cuidador por controlo excessivo, falta de compreensão, incapacidade para escutar, chantagem emocional e por vezes agressividade verbal. A pessoa deprimida não reconhece capacidade ao familiar para o ajudar, não o aceita como cuidador, ignora as suas intervenções e conselhos, e o seu sentimento de solidão aumenta. CONCLUSÕES: Quando há uma pessoa com depressão na família, os familiares constroem o papel de cuidador na interação quotidiana e as estratégias de cuidados desenvolvem-se de modo reativo em função do comportamento do doente, adquirindo contornos particulares de conteúdo nem sempre adequado à situação de saúde vivida pela pessoa. O doente não se sente cuidado e não reconhece o familiar como parceiro ativo no seu processo de recuperação.

Cuidados de natureza psicoeducacional. De que falamos?

Introdução - Psicoeducacional significa educação da alma, do espirito ou da mente. Este conceito extravasa o simples significado etimológico das palavras, para se constituir numa forma de intervenção estruturada, regrada e sistemática, com aplicabilidade em vários campos, nomeadamente no campo da saúde. Com a Lei de Saúde Mental em 98, o modelo assistencial de referência mudou; é na comunidade e com a família que se prioriza a prestação de cuidados de saúde mental, o que abre caminho para os cuidados psicoeducacionais, os quais também são da competência dos enfermeiros. Objetivo - Compreender a importância da psicoeducação como técnica de intervenção na saúde mental. Metodologia - Pesquisa de natureza teórica Principais resultados - A psicoeducação coloca o sujeito no centro de toda a intervenção, considerando-o como um ser em constante desenvolvimento e atualização. O sujeito descobre as suas potencialidades através de um programa de intervenção estruturado, que favorece a sua participação nas tomadas de decisão e estimula a sua autonomia. A intervenção psicoeducacional facilita o entendimento e compreensão da patologia, potencializa aspetos positivos do doente, promove a reabilitação psicossocial, diminui a sobrecarga na relação familiar, melhora a adesão ao tratamento farmacológico, amplia o conhecimento sobre os efeitos colaterais da medicação, contribui para a redução das recaídas e reinternamentos e promove hábitos e estilos de vida saudáveis. Como intervenção, a psicoeducação deve resultar de um processo de avaliação diagnóstica, que permita identificar e planear os cuidados psicoeducacionais a realizar. A partir do reconhecimento da experiência do outro (doente e/ou família), bem como da identificação das suas necessidades e potencialidades, com recurso a um processo de avaliação diagnóstica compreensiva, importa o modo como a pessoa experimenta as coisas, as suas vivências, a sua verdade sobre o mundo que se traduz numa realidade subjetiva, em detrimento da realidade objetiva, ou seja, em detrimento daquilo que a pessoa vive ou percebe. As evidências apontam para o facto de que um maior conhecimento e consciência sobre uma doença e as implicações na vida do sujeito e na dos que o rodeiam, aumenta a sensação de controlo levando ao desenvolvimento de estratégias de enfrentamento mais eficazes; a psicoeducação assume um papel educativo e simultaneamente exploratório (do próprio individuo), desenhando um caminho que vai do conhecimento ao autoconhecimento. Conclusões - A psicoeducação é um instrumento fortíssimo, envolvendo um conjunto de abordagens que visam dotar os doentes e familiares de conhecimentos sobre a doença mental, novas formas de lidar com ela e com os problemas do quotidiano. Favorece a relação intrafamiliar assente numa plataforma de compreensão e comunicação eficaz, permitindo o envolvimento e tomada de decisões no processo terapêutico

A construção social do cuidado em um grupo de apoio aos indivíduos portadores do vírus HIV/AIDS: estratégias e enfretamentos

O objetivo principal deste trabalho consiste em analisar a construção social do cuidado em um grupo específico de apoio aos portadores do vírus HIV/AIDS. Para tanto, apresentamos uma discussão teórico-conceitual e metodológica desenvolvida em quatro capítulos. Nos dois primeiros refletimos sobre a trajetória, do enfrentamento da epidemia do HIV/Aids no Brasil e o papel das ONGs nessa trajetória, buscando delinear o campo de disputando qual um grupo específico de portadores do vírus HIV/Aids se insere e assume posição contra-hegemônica. Em seguida, no terceiro capítulo, mapeamos o percurso da formação desse grupo, analisando o engendramento das atividades ali desenvolvidas e os reflexos do campo de disputa no interior do grupo. No capítulo seguinte, refletimos sobre a história de vida de uma das participantes do grupo, por meio da qual identificamos quais as possíveis configurações desse sujeito, mediante sua inserção nos espaços sociais. Verificamos que tal inserção amplia sua capacidade de articular saberes no enfrentamento dos seus problemas de saúde. Concluímos que o grupo estabelece modos de fazer que primam pela manutenção do vínculo por onde circulam bens e se efetuam as solidariedades. Além disso, percebemos que as hegemônicas concepções de saúde e doença estão tendo seus poros alargados por este reordenamento social que não somente filtra os valores indesejáveis da visão hegemônica, como também propicia aos sujeitos a redescoberta do seu próprio cuidado. Por fim, constatamos que as representações sobre saúde e doença, decorrentes da que as representações dobre saúde e doença, decorrentes da inserção do sujeito em espaços sociais específicos, como os grupos de apoio, provocam (re)significações importantes: trabalhar, cozinhar, dormir, alimentar-se e também aquelas que estavam somente na ordem do lazer, como passear, ficar em casa com a família, visitar e ser visitado por amigos, dançar e outras, ganham nova dimensão e passam a ser vistas como vetores de saúde. Deste modo, gestos simples e práticas habituais assumem aspectos de táticas que modulam o cuidado dos sujeitos, Estas práticas realizadas no cotidiano, as quais chamamos de cuidado vivo, são também percebidas pelos sujeitos como cuidado.

Estratégias de coping e agressividade : um estudo comparativo entre crianças vítimas e não vítimas de violência doméstica

O presente estudo teve como objetivo comparar dois grupos de crianças, vítimas e não vítimas de violência doméstica, no que se refere aos problemas enfrentados e relatados com os professores e os colegas, as estratégias de coping adotadas e a manifestação da agressividade no ambiente escolar. A amostra foi composta por 87 crianças de ambos os sexos, 49 vítimas de violência doméstica e 38 não vítimas, com idades entre sete e doze anos. As crianças vítimas de violência doméstica apontaram com maior freqüência as agressões verbais por parte da professora como problema e utilizam agressões físicas como estratégia de coping mais do que as outras crianças. As crianças não vítimas citam com maior freqüência a busca de apoio de outras pessoas como estratégia para lidar com seus problemas junto aos colegas. Os resultados da Escala de Percepção de Professores dos Comportamentos Agressivos de Crianças na Escola mostram que as crianças vítimas de violência são percebidas como mais agressivas que as outras e que os meninos são percebidos como mais agressivos que as meninas. Estes dados foram discutidos segundo a Abordagem Ecológica do Desenvolvimento Humano. Concluiu-se que o aprofundamento de estudos sobre a conceitualização das estratégias de coping, enfatizando, especialmente, os aspectos do contexto e das relações hierárquicas, e manifestação da agressividade em crianças vítimas de violência doméstica pode trazer maiores esclarecimentos e subsídios para programas de intervenção que promovam a resiliência e adaptação sadia dessas crianças na escola.

A gestão estratégica e o enfrentamento da ilegalidade: um estudo de caso do combate à pirataria nas empresas farmacêuticas multinacionais no Brasil

As empresas multinacionais que investem em países emergentes onde as instituições responsáveis (Governo e Sociedade) que não conseguem reprimir a pirataria sofrem com a perda de mercado e se vêem compelidas a desenvolver novas estratégias para gerar valor e aumentar a sua performance. As empresas multinacionais fabricantes de medicamentos de disfunção erétil utilizam estratégias globais para se defender da pirataria. Localmente essas empresas desenvolvem estratégias de não-mercado que não são integradas com as estratégias de mercado e as estratégias de não-mercado - transacionais ou relacionais - são elaboradas para dar suporte às estratégias globais.

Estratégias locais para a redução da pobreza: construindo a cidadania

Em outubro de 1998, o Programa Gestão Pública e Cidadania da Fundação Getúlio Vargas de São Paulo, com o apoio da Fundação Ford, realizou no Rio de Janeiro o primeiro de um ciclo de quatro seminários voltados à análise e reflexão de estratégias locais para redução da pobreza. Em cada encontro de dois dias, por volta de 30 pessoas de diferentes universos de ação (pesquisa acadêmica, organizações comunitárias, ONGs, secretarias de governos municipal e estadual, banco de desenvolvimento e instituições multilaterais) estiveram presentes para debater o espaço possível de ação local no enfrentamento da pobreza

Marcadores sociais da diferença nas experiências travestis de enfrentamento à aids

Os argumentos apresentados neste artigo partem de apontamentos etnográficos oriundos de pesquisa antropológica realizada entre travestis que se prostituem. A partir da análise dessas notas, apresentam-se as categorias classificatórias acionadas pelas travestis que se prostituem a fim de, por esses termos, demarcarem diferenças pouco consideradas pelos formuladores de políticas de saúde, mas que são significativas para elas, pois se referem a maneiras singularizadas de subjetividades nas quais gênero, geração, classe e raça estão implicadas. Assim, procura-se explorar como esses marcadores sociais da diferença operam contextual e relacionalmente nas respostas que esses sujeitos têm elaborado frente à sistemática associação entre travestis e aids, e como esses eixos se enfeixam compondo experiências específicas do adoecer e do sofrimento, ao mesmo tempo em que permitem que as travestis mobilizem diversas estratégias de resistência e enfrentamento a processos de estigmatização. A discussão a ser empreendida vale-se do escopo teórico pós-estruturalista, bem como das contribuições do feminismo como crítica epistemológica.

Beirando a vida, driblando os problemas: estratégias de bem viver

The purpose of this study is to analyze the strategies used by families living in at-risk-and-vulnerable situations registered with the Estratégia Saúde da Família (ESF) ( Family Health Strategy ) as they face their daily problems. This is an investigation of a qualitative nature, using interview as the main tool for an empirical approach. Ten women from the Panatis location in northern Natal, Rio Grande do Norte, whose families live in precarious social-economical situations were interviewed. The interviews occurred between the months of April and June, 2007. The reports revealed that a mixture of improvisations and creativity was used as strategies for overcoming the privations and necessities of daily life. We also reached the conclusion that these families sought solutions for their problems through religiosity and a gift reciprocity system as resources for obtaining personal recognition and support in adversity. The results, in addition, point to ESF as one of the strategies used by these families in the search for attention and care. From this perspective, ESF has proven to be a place for listening and the construction of ties that are consolidated through home visits, organized groups, in parties and outings that are promoted in the community, reestablishing contact and support among people and signaling a way out of abandonment and isolation. Holders of knowledge constructed through life experiences, the participants of the study led us to induce and infer the need to amplify space that will allow them to express meanings, values and experiences, and consider that becoming ill is a process that incorporates dimensions of life that go beyond the physical. As health professionals, we need to be aware of the multiple and creative abilities used in the daily lives of these families, so that we can, along with them, reinvent a new way of dealing with health