Concepções de mulheres com deficiência física sobre a maternidade

The study aimed to understand the concept of women with physical disabilities about their ability to gestate, give birth or care a child. This is an exploratory, descriptive study with qualitative approach developed in three non-governmental organizations in Natal, Rio Grande do Norte, Brazil. The data collection occurred in the period from April to June, 2014, through semi-structured interviews, using a script composed by sociodemographic questions and a guiding one. It was obtained a priori the permission from the association’s directors, the approval from the Research Ethics Committee, of the Federal University of Rio Grande do Norte, CAAE nº 27442814.7.0000.5537 and the assent n° 618.045, as well as the participant’s formal authorization by signing the Informed Consent Statement. Participated in the study 12 women, selected according to the following inclusion criteria: to have physical disability, to be aged 18 to 49 years old, and to affirm the existence of limiting characteristics from early childhood (0-3 years). The information obtained in the interviews were subjected to the precepts of Content Analysis according to Bardin, under the thematic analysis technique. From this process, three categories emerged: Conceiving motherhood in front of disability; Conceiving the capacity to be mother with disability; and Conceiving the support during pregnancy and puerperium period. As the theoretical framework we adopted the principles of symbolic interactionism proposed by Blumer. The discussion was supported by literature findings on women's health care in the context of reproduction. The interviewees conceive motherhood as an accomplishment and believe in their own ability to gestate, give birth and care a child. However, the desire for the maternal role tends to be influenced by adverse feelings and limitations raised by disability, social barriers and prejudices. They also referred the importance of support from partner, family and health professionals in the care of child. Upon these findings, it is understood that although there are barriers to the realization of their desire, these barriers were not enough to make them give up on becoming a mother. Therefore, it is necessary that health professionals, highlighted the nurse, be trained to care for women with disabilities in the context of reproductive health care in order to offer adequate support to their needs

Edukacja integracyjna w doświadczeniach i opiniach nauczycieli oraz rodziców

Wydział Studiów Edukacyjnych

Perspetiva dos empregadores face à integração socioprofissional de pessoas com dificuldades intelectuais e de desenvolvimento

O presente estudo pretende analisar a perspetiva dos empregadores face à integração socioprofissional de pessoas com Dificuldades Intelectuais e de Desenvolvimento (DID). Considerando as políticas que consagram direitos e igualdade de oportunidades, pretende-se analisar a integração social ou exclusão existente aquando da contratação laboral de uma pessoa com deficiência e/ou incapacidade. Foi aplicada uma entrevista semiestruturada a 13 empregadores, dos quais sete já têm no seu quadro empresarial pessoas com DID e seis que nunca integraram esta população nas suas organizações. As entrevistas foram analisadas a partir da metodologia de análise. Os resultados revelaram que os empregadores que integram população com DID manifestam uma abertura à empregabilidade de indivíduos com DID, numa lógica de igualdade de oportunidades face ao emprego. No entanto, o vínculo laboral às entidades empregadoras continua a ser precário (e.g. estágios e medidas de apoio à contratação). Os resultados também sugerem as características individuais da pessoa com DID um importante determinante da sua contratação. No que respeita os empregadores que nunca integraram pessoas com DID os resultados revelaram que estes participantes estão muito pouco informados acerca da problemática da deficiência, principalmente de indivíduos com DID. Os resultados voltam a sugerir que o ajustamento entre características pessoais e posto de trabalho são decisivas para a integração de pessoas com DID no mercado de trabalho. O conjunto dos resultados é discutido considerando as limitações da presente investigação bem como suas implicações para a investigação e a prática; The employers perspective concerning social and professional integration of people with Intellectual and Developmental Disability Abstract: The present study aims to analyze the employers perspective concerning social and professional integration of people with “Intellectual and Developmental Disability” (IDD). Considering that policies establish equal rights and opportunities, we intend to analyze the social integration or social exclusion that occurs when hiring a disabled person. We conducted a semi-structured interview to 13 employers, seven of which have already have people with IDD in their business environment and the other six had never had people with IDD in their organizations. The interviews were analyzed using analysis methodology. The results showed that employers who integrate people with IDD are more open to the employability of these individuals, pursuing employment gender equality. However the employment contract for employers remain precarious (eg, internships and employment support measures). The results also suggest that the individual’s characteristics are an important determinant for hiring the person with IDD. Employers who have never integrated individuals with IDD lack awareness about disability issues. As suggested by the results, the adjustment between personal characteristics and the workstation is crucial for the integration of people with IDD in the labor market. This particular set of results is discussed considering the limitations of this research and its implications for future research and practice.

Equal employment opportunity report.

Description based on: 1978.

Personcentrerad omvårdnad vid demens : En deskriptiv kvalitativ studie

Bakgrund: Demens är en av de stora folksjukdomarna och vårdpersonal möter dessa personer med demens både inom akutsjukvård och kommunal vård. På slutet av sitt liv bor de flesta personer som drabbats av demens på institution. Personcentrerad vård beskrivs vara gynnsamt i vården av personer med demens och personalens erfarenhet av detta har stor betydelse. Syfte: Syftet var att studera sjuksköterskors, enhetschefers och undersköterskors erfarenhet av personcentrerad omvårdnad inom kommunal hälso och sjukvård. Metod: Designen var en deskriptiv studie med kvalitativ ansats som har analyserats med hjälp av en induktiv innehållsanalys. Deltagarna som inkluderades i intervjustudien kom från samma kommun. Det var tio personer och bestod av fyra sjuksköterskor, fyra undersköterskor och två enhetschefer. De valdes ut av verksamhetschefen där inklusionskriteriet var att ha arbetat med personer med demens i minst fem år. Resultat: I resultatet framkom fyra kategorier och 12 subkategorier. Personcentrerad omvårdnad ansågs relevant i samband med god omvårdnad av personer med demens. I arbetet med personcentrerad vård var fokus att; anpassa sig till personen med demens, att se till dennes identitet och personlighet. Vidare lades vikt vid anhörigas deltagande, bemötande och ett gemensamt arbetssätt, vilket bestod av att identifiera behov och se personen bakom sjukdomen. Slutsats: Resultatet visade att de flesta intervjupersonerna hade liknande erfarenheter i att arbeta med personer med demens. Det framkom i studien att bemötandet hade stor betydelse i omvårdnaden. Fokus i personcentrerad omvårdnad var de redovisade kategorierna och dess innehåll och ansågs betydelsefull och nödvändig för att personer med demens får ett så bra och värdigt liv som möjligt efter sjukdomsdebuten.

Recours aux services de soutien formel par les parents immigrants d’un enfant en situation de handicap

Les parents immigrants d’un enfant en situation de handicap présentent davantage de sources de vulnérabilité que d’autres parents. Cette situation peut diminuer le temps disponible et altérer leur implication dans le programme de réadaptation de leur enfant. L’objectif de cette thèse doctorale est de déterminer les attentes et les besoins en services de soutien formel de ces parents, afin de leur proposer une aide adaptée à leurs conditions de vie, et ceci, au fur et à mesure que l’enfant grandit. D’abord, une étude de la portée des écrits scientifiques est menée dans le but de mieux cerner les connaissances existantes en lien avec le recours aux services de soutien par les parents immigrants (chapitre 1). Les vingt publications sélectionnées indiquent que l’aide pour trouver de l’information s’avère la plus requise, que ce soit au sujet de la condition de l’enfant, du fonctionnement sociosanitaire et éducatif du pays d’accueil, ou encore des services de soutien. En outre, la transmission de ces informations peut se compliquer en cas de non-maîtrise de la langue du pays d’accueil ou lorsque des interculturelles apparaissent entre les parents immigrants et les différents intervenants rencontrés. Quant au non-recours aux aides formelles, il semble principalement dû à l’inadéquation entre l’aide concrète et les attentes des parents, au soutien informel reçu, à la méconnaissance des opportunités d’obtenir des services d’aide destinés aux parents, ou encore à un épuisement non ressenti. Compte tenu du nombre restreint d’écrits scientifiques recensés, des entrevues semi-dirigées sont conduites auprès de 28 parents immigrants d’un enfant en situation de handicap dans la province du Québec (Canada) dans le cadre d’une recherche de plus grande envergure portant sur la communication avec les intervenants en petite enfance (chapitre 2). Le but de cette deuxième étude est de mieux saisir l’utilisation des services de soutien formel par les parents immigrants et les facteurs influençant leurs choix. Il faut préciser que les propos recueillis restent très centrés sur les services destinés à l’enfant. Le soutien pour recevoir des informations et l’accompagnement à la décision apparaissent comme les aides formelles les plus utilisées par les participants, suivies du soutien à l’éducation, de l’écoute active et de l’aide financière. Cinq facteurs semblent guider le recours au soutien formel qui est destiné aux parents, soit : (1) leur perception de la condition de leur enfant, (2) l’accès à l’information, (3) leurs stratégies et leur capacité d’agir, (4) l’implication du réseau informel, et (5) leur perception de leur besoin de services de soutien. Suite à ces résultats, de nouvelles entrevues semi-dirigées sont menées auprès de huit parents immigrants d’enfants d’âges différents à Montréal et à Québec. Cette démarche permet d’approfondir le thème du recours au soutien formel destiné aux parents, et ce, au fur et à mesure que l’enfant grandit (chapitre 3). Le guide d’entretien conçu pour cette étude met l’emphase sur les attentes et les besoins des parents immigrants afin d’atteindre un équilibre dans toutes les sphères de leur vie. Suite à une analyse thématique exploratoire du discours des parents et par l’application d’un modèle de stress et de coping, sept principales sources de stress sont mises en évidence : (1) le parcours migratoire, (2) la condition de l’enfant, (3) l’organisation sociosanitaire du pays d’accueil, (4) l’insertion professionnelle, (5) la relation de couple, (6) le réseau social, et (7) l’état de santé du parent. Afin de faire face à ces circonstances difficiles, les parents immigrants recourent principalement à de l’aide financière, du soutien pour obtenir des informations, de l’accompagnement à la décision, de l’aide en éducation et pour le transport. La satisfaction exprimée varie, notamment en raison des divergences entre les attentes et les services obtenus (soutien en éducation, écoute active, services de garde), ainsi qu’en termes de quantité d’aide reçue (soutien financier, informations, accompagnement à la décision). Un modèle théorique original est proposé afin d’illustrer le contexte parental en termes d’attentes, de besoins et de recours au soutien. Si certains moments de la vie de l’enfant peuvent entraîner un stress supplémentaire pour les parents (annonce du diagnostic, arrivée à l’école, transition à l’âge adulte), le parcours migratoire semble davantage expliquer le recours aux aides formelles.

Investigation of Changes in Prescribed and Voluntary Job Roles in Community Service Delivery for People who have Intellectual Disabilities after the Implementation of the 3 Rs; Rights, Respect and Responsibility Project

The purpose of this thesis was to explore whether there is change in organizational citizenship behaviours in community agency staff following agency adoption of a rights - based service philosophy. Four community agency support staff were interviewed to investigate how residential care providers in services for persons who have intellectual disabilities describe their voluntary job related behaviours following training about human rights. The major finding was that the participants were actively engaged in displaying civic virtue, courtesy, and altruism discretionary behaviours. There was evidence of a post rights training shift in communication patterns with support staff reporting that they used language that prom,oted and advocated for human rights, and reported increased communication exchanges among persons supported by the agency, support staff and managers. Participants also suggested that the individuals they support asserted their rights more frequently and they were more active in their own life choices following rights training.

Challenges to improve inter-professional care and service collaboration for people living with psychiatric disabilities in ordinary housing

The aim of this study was to describe health care- and social service professionals' experiences of a quality-improvement program implemented in the south of Sweden. The focus of the program was to develop inter-professional collaboration to improve care and service to people with psychiatric disabilities in ordinary housing. Focus group interviews and a thematic analysis were used. The result was captured as themes along steps in process. (I) Entering the quality-improvement program: Lack of information about the program, The challenge of getting started, and Approaching the resources reluctantly. (II) Doing the practice-based improvement work: Facing unprepared workplaces, and Doing twice the work. (III) Looking backevaluation over 1 year: Balancing theoretical knowledge with practical training, and Considering profound knowledge as an integral part of work. The improvement process in clinical practice was found to be both time and energy consuming, yet worth the effort. The findings also indicate that collaboration across organizational boundaries was broadened, and the care and service delivery were improved.

A Comparative Study: Service Animals and Emotional Support Animals under the Fair Housing Act and the Americans with Disabilities Act & An Overview of Assistance Animal Laws of Select States, April 18, 2010

The Americans with Disabilities Act (ADA) and the Fair Housing Act (FHA) prohibit discrimination on the basis of disability and govern the use of service or emotional support animals in places where pets may not be permitted. However, courts have been struggling with how to define and treat animals that qualify for protection under each law. This has created confusion as to what rights and duties are owed disabled persons and the animals that live with or accompany them. This essay attempts to clarify these two federal laws with regard to service or emotional support animals and the differing parties‘ rights and interests. It also includes an overview of select state laws that govern assistance animals of all types and our recommendations for enhancing the Iowa Civil Rights Act.

An analysis of the systemic aspects of rights training for people with intellectual disabilities

Individuals with intellectual disabilities (ID) as a group have been subject to abuse. Individuals with ID need to be made aware of their rights. The 3Rs: Rights, Respect and Responsibility Human Rights Project is promoting rights awareness in individuals with ID, their caregivers and family members. To be effeCtive, abuse prevention must include support from the whole organization and its processes. This research evaluated the impact of the 3Rs initiative on the organization. It focused particularly on descriptions of organizational change perceived by full-time staff and managers in response to the initiation of the 3Rs Project. Behavioural interviews were conducted and a thematic analysis was used to describe changes in the organizational culture and behavioural mechanisms maintaining these changes. Systemic barriers to change were also explored. The results indicate that the Association is effectively implementing and supporting the rights-based philosophy.

Resources, staff beliefs and organizational culture: factors in the use of information and communication technology for adults with intellectual disabilities

Background  Access to, and the use of, information and communication technology (ICT) is increasingly becoming a vital component of mainstream life. First-order (e.g. time and money) and second-order factors (e.g. beliefs of staff members) affect the use of ICT in different contexts. It is timely to investigate what these factors may be in the context of service provision for adults with intellectual disabilities given the role ICT could play in facilitating communication and access to information and opportunities as suggested in Valuing People. Method  Taking a qualitative approach, nine day service sites within one organization were visited over a period of 6 months to observe ICT-related practice and seek the views of staff members working with adults with intellectual disabilities. All day services were equipped with modern ICT equipment including computers, digital cameras, Internet connections and related peripherals. Results  Staff members reported time, training and budget as significant first-order factors. Organizational culture and beliefs about the suitability of technology for older or less able service users were the striking second-order factors mentioned. Despite similar levels of equipment, support and training, ICT use had developed in very different ways across sites. Conclusion  The provision of ICT equipment and training is not sufficient to ensure their use; the beliefs of staff members and organizational culture of sites play a substantial role in how ICT is used with and by service users. Activity theory provides a useful framework for considering how first- and second-order factors are related. Staff members need to be given clear information about the broader purpose of activities in day services, especially in relation to the lifelong learning agenda, in order to see the relevance and usefulness of ICT resources for all service users.

Quality of life of people living with HIV/AIDS treated by the specialized service in Vitória-ES, Brazil

The aim of this study is to establish the factors that influence the quality of life of people living with HIV/AIDS being treated at a specialized public service. The participants answered the questionnaire on sociodemographic conditions, issues related to HIV and daily habits. The quality of life was analyzed using the HIV/AIDS-targeted quality of life (HAT-QoL) instrument with 42 items divided into 9 fields: General Activity, Sexual Activity, Confidentiality Concerns, Health Concerns, Financial Concerns, HIV Awareness, Satisfaction with Life, Issues related to Medication and Trust in the Physician. Bivariate and multiple linear regressions were performed. Of the participants, 53.1% were women and had a mean age of 42 years. In analyzing the quality of life, the HAT-QoL domain with the lowest average was Financial Concerns (39.4), followed by Confidentiality Concerns (43.2), Sexual Activity (55.2) and Health Concerns (62. 88). There was an association between the variables: not being gainfully employed (p < 0.001), being mulatto or black (p = 0.045) and alcohol consumption (p = 0.041) with the worst quality of life scores. Inadequate socioeconomic and health conditions had a negative impact on the quality of life of people with HIV/AIDS.

Register of officers and agents, civil, military, and naval, in the service of the United States, on the ... : showing the state or territory from which each person was appointed to office, the state or country in which he was born, and the compensation, pay, and emoluments allowed to each; together with the names and compensation of all printers in any way employed by Congress, or any department or officer of the government.

Description based on: 1863.

A new history of the life and reign of the Czar Peter the Great, Emperor of all Russia, and father of his country : Giving an exact relation of I. His travels, studies, and personal fatigues, for the attaining of knowledge in civil and military affairs, and the improvement of his subjects. II. His introduction of arts and sciences, a naval force, and commerce with foreign nations; also his many reformations in church and state, the army, and the customs and manners of his people. III. His wars with the Swedes, Turks, Tartars and Persians; victories by sea and land; acquisitions of territory, and increase of power. IV. His regard to genius and merit, particularly in the instances of General Le Fort, Prince Menzikoff, and the Empress Catharine: and his severe justice on offenders, exemplified in the proceedings against the czarewitz, and others. /

By John Bancks.