Moderating Variables Impacting Adherence to the Reducing Disability in Alzheimer's Disease (RDAD) Intervention

Thesis (Ph.D.)--University of Washington, 2016-06

Parent management training and Asperger syndrome - A randomized controlled trial to evaluate a parent based intervention

This controlled trial of a parent management intervention aimed to increase parental competence in management of problem behaviours associated with Asperger syndrome. The intervention compared two formats, a 1 day workshop and six individual sessions. Measures were taken on three occasions: pre-intervention, at 4 weeks, and at 3 month follow-up. Variables of interest were number and intensity of problem behaviours, and parent evaluation of social interaction skills. Results showed parents reporting fewer and lower intensity of problem behaviours and increased social interactions at 4 weeks and 3 months. Results held across formats and suggest that parent management training can provide an effective intervention for parents of a child with Asperger syndrome. Group differences on outcome measures and in the use of strategies are discussed along with limitations of the study.

Coping with a diagnosis of Alzheimer's disease: A client and caregiver perspective

The purpose of this study was to examine how individuals and their caregivers cope with a diagnosis of Alzheimer's disease. The sample size consisted of six patients with Alzheimer's disease and seven caregivers. The caregivers included spouses and adult children. The study was conducted at an academic medical center in the South Florida area. Using a phenomenological approach, data were collected by audiotaped interviews. Data were analyzed following the seven steps of Colaizzi (1978).^ The results of the study indicated that clients experienced fear, social withdrawal, decreased self-esteem and a need for love and support. Caregivers experienced psychological strain, burden, lifestyle adjustments and sacrifice. Both clients and caregivers identified numerous strategies for coping with Alzheimer's disease. The findings reflect the need for a holistic approach to promoting the quality of life for patients and caregivers. ^

Interação individualizada educador-criança e desenvolvimento da linguagem

Relatório de estágio apresentado para a obtenção do grau de mestre na especialidade profissional de Educação pré-Escolar e ensino do 1º ciclo do ensino básico

Further evidence for a parent-of-origin effect at the NOP9 locus on language-related phenotypes

Background - Specific language impairment (SLI) is a common neurodevelopmental disorder, observed in 5–10 % of children. Family and twin studies suggest a strong genetic component, but relatively few candidate genes have been reported to date. A recent genome-wide association study (GWAS) described the first statistically significant association specifically for a SLI cohort between a missense variant (rs4280164) in the NOP9 gene and language-related phenotypes under a parent-of-origin model. Replications of these findings are particularly challenging because the availability of parental DNA is required. Methods - We used two independent family-based cohorts characterised with reading- and language-related traits: a longitudinal cohort (n = 106 informative families) including children with language and reading difficulties and a nuclear family cohort (n = 264 families) selected for dyslexia. Results - We observed association with language-related measures when modelling for parent-of-origin effects at the NOP9 locus in both cohorts: minimum P = 0.001 for phonological awareness with a paternal effect in the first cohort and minimum P = 0.0004 for irregular word reading with a maternal effect in the second cohort. Allelic and parental trends were not consistent when compared to the original study. Conclusions - A parent-of-origin effect at this locus was detected in both cohorts, albeit with different trends. These findings contribute in interpreting the original GWAS report and support further investigations of the NOP9 locus and its role in language-related traits. A systematic evaluation of parent-of-origin effects in genetic association studies has the potential to reveal novel mechanisms underlying complex traits.

Out of View: Stories

OUT OF VIEW is a collection of stories set in the American Southwest about people coping with loss—the death of parents, children, ideals, innocence. The characters in this collection reap or resist lessons of life as they struggle to find their place in the world. In “First Rain,” 15-year-old Tessie struggles with the loss of her father and the demands of her mother as she navigates the rocky terrain of adolescence. In “Monsters,” middle-aged Maury has to choose between a new relationship and protecting the well-being of his 4-year-old ‘daughter.’ The stories are influenced by the Western realism of Maile Meloy and the playful plotting of Ron Carlson. These stories are inspired both by the Sonoran Desert—expansive, sun-soaked, unrepentant—and by the people who live, love, and lose in the interstices between Manifest Destiny and the Reconquista.

Avaliação do Processo Sucessório em Empresas de Gestão Familiar

As mudanças e o aumento da concorrência em todos os segmentos econômicos têm exigido das empresas um grau de profissionalização cada vez maior. As empresas familiares, além desse desafio frente ao mercado, ainda se deparam com dificuldades intrínsecas às suas características, como a dificuldade em separar o que é família, empresa e patrimônio. Portanto, é necessário se preparar para continuar no mercado e desenvolver um plano de sucessão para as próximas gerações. O objetivo geral deste trabalho é propor um instrumento de avaliação do processo sucessório em empresas familiares. Dentre os objetivos específicos, encontram-se identificar itens de maturidade no processo sucessório, oferecer diretrizes estratégicas para promover a sucessão em empresas familiares e avaliar a aplicabilidade do instrumento de pesquisa. Para a empresa estar preparada para a sucessão, ela não pode tratar somente o assunto isoladamente. Portanto, os temas estratégia, planejamento estratégico, distinção entre família, propriedade e gestão, governança corporativa e maturidade, também são aprofundados ao longo da revisão de literatura. Por meio de um estudo de caso com abordagem exploratória, o trabalho foi desenvolvido tendo-se como base modelos disponíveis na literatura para avaliação de maturidade. Antes da aplicação, o instrumento foi submetido à avaliação por cinco especialistas em empresas familiares. Como resultado, foi possível propor uma avaliação para o processo sucessório, identificando itens de maturidade e oferecendo diretrizes estratégicas para promover a sucessão em empresas familiares. Conclui-se que a avaliação do processo sucessório pode contribuir para a empresa identificar seus pontos fortes, minimizando dificuldades e superando obstáculos para sua sobrevivência no mercado ao longo das gerações. / The advance of competition in all of the economy markets has being demanding companies to have professional businesses, in an increasing way. The family business, beyond this challenge, still faces particular difficulties, such as the difference among family, business and ownership. So, it is a necessity for them being ready for their continuity in the market and developing a succession plan for the next generations. The main objective of this work is to propose an evaluation instrument for succession process. Specific objectives are to identify maturity items in the succession process, offer strategic directions to promote succession in family businesses and evaluate the usage of the research instrument. To get ready for succession, the company can not work just this subject. Therefore, it includes topics like: strategy, strategic planning, difference among family, business and ownership, corporate governance, and maturity are reviewed along the literature. Using a case study research method with an exploratory approach, it was developed based on maturity models available in the literature for maturity evaluation. Prior to the application, the research instrument was applied to five specialists in family businesses. As a result, it was possible to propose an evaluation model for succession, identifying maturity items and offering strategic perspectives to promote the succession process in family businesses. As conclusion, the succession evaluation could contribute for the company identifies its strengths, minimizing difficulties and overcoming obstacles for survival throughout generations.

Interação individualizada educador-criança e desenvolvimento da linguagem

Relatório de estágio apresentado para a obtenção do grau de mestre na especialidade profissional de Educação pré-Escolar e ensino do 1º ciclo do ensino básico

As representações da família de crianças numa freguesia problemática (Rabo de Peixe, são Miguel, Açores)

Dissertação de Mestrado apresentada no Instituto Superior de Psicologia Aplicada para obtenção de grau de Mestre na especialidade de Psicologia Clínica

Filicídio

Projeto de Graduação apresentado à Universidade Fernando Pessoa como parte dos requisitos para obtenção do grau de licenciada em Criminologia

Hacia una lectura de la violencia en la formación de la subjetividad

Recibido 18 de junio de 2012 •  Corregido 29 de setiembre de 2012 • Aceptado 07 de noviembre de 2012Este ensayo presenta un recorrido general en la construcción de la subjetividad de los sujetos; desde una perspectiva analítico vincular, plantea cómo la intrasubjetividad de cada uno es un producto del interjuego de lo intersubjetivo y transubjetivo, y cómo el estar inmerso en grupos violentos, tanto familiares como escolares, produce que la violencia forme parte de la identidad de los infantes, y los convierte, así, en futuros reproductores de tramas vinculares violentas.

Factors associated with physical activity in children attending family child care homes

Objective To determine the relationship between family child care home (FCCH) practices and characteristics, and objectively measured physical activity (PA) among children attending FCCHs. Methods FCCH practices and characteristics were assessed in 45 FCCHs in Oregon (USA) in 2010-2011 using the Nutrition and Physical Activity Self-Assessment for Child Care Instrument. Within the 45 FCCHs, 136 children between ages 2 and 5. years wore an accelerometer during child care attendance over a one-week period. Time spent in light, moderate, and vigorous PA per hour was calculated using intensity-related cut-points (Pate et al., 2006). Results FCCH characteristics and practices associated with higher levels of PA (min/h; p < 0.05) included provision of sufficient outdoor active play [32.2 (1.0) vs. 28.6 (1.3)], active play using portable play equipment [31.7 (1.0) vs. 29.3 (1.4)], the presence of a variety of fixed play equipment [32.2 (1.0) vs. 28.9 (1.3)], and suitable indoor play space [32.2 (1.0) vs. 28.6 (1.3)], engaging in active play with children [32.1 (1.1) vs. 29.6 (1.2)], and receiving activity-related training [33.1 (1.2) vs. 30.3 (1.1)]. Conclusions This is the first study to identify practices and characteristics of FCCHs that influence children's PA. These data should be considered when developing programs and policies to promote PA in FCCHs.

Paediatric death and dying: Exploring coping strategies of health professionals and perceptions of support provision

Without question a child’s death is a devastating event for parents and their families. Health professionals working with the dying child and family draw upon their expertise and experience to engage with children, parents, and families on this painful journey. A delicate and sensitive area of practice, it has strong and penetrating effects on health professionals. They employ physical, emotional, spiritual and problem solving strategies to continue to perform this role effectively and to protect their continued sense of well-being. Aim To explore health professionals’ perceptions of bereavement support surrounding the loss of a child. Methods The research was underpinned by social constructionism. Semi-structured interviews were held with 10 health professionals including doctors, nurses and social workers who were directly involved in the care of the dying child and family in 7 cases of paediatric death. Health professional narratives were analysed consistent with Charmarz’s (2006) approach. Results For health professionals, constructions around coping emerged as peer support, personal coping strategies, family support, physical impact of support and spiritual beliefs . Analysis of the narratives also revealed health professionals’ perceptions of their support provision. Conclusion Health professionals involved in caring for dying children and their families use a variety of strategies to cope with the emotional and physical toll of providing support. They also engage in self-assessment to evaluate their support provision and this highlights the need for self-evaluation tools in paediatric palliative care.

Mental Health Nurses' Family Focused Practice with Parents who have Mental Illness, their Children and Families in Adult Mental Health Services in Ireland

Introduction: While it is recommended that mental health professionals engage in family focused practice (FFP), there is limited understanding regarding psychiatric nurses’ practice with parents who have mental illness, their children and families in adult mental health services.

Methods: This study utilized a mixed methods approach to measure the extent of psychiatric nurses’ family focused practice and factors that predicted it. It also sought to explore the nature and scope of high scoring psychiatric nurses’ FFP and factors that affected their capacity to engage in FFP. Three hundred and forty three psychiatric nurses in 12 mental health services throughout Ireland completed the Family Focused Mental Health Practice Questionnaire (FFMHPQ). Fourteen nurses who achieved high scores on the FFMHPQ also participated in semi-structured interviews.

Results: Whilst the majority of nurses were not family focused a substantial minority were. High scoring nurses’ practice was complex and multifaceted, comprising various family focused activities, principles and processes. Nurses’ capacity to engage in FFP was determined by their knowledge and skills, working in community settings and own parenting experience.

Conclusions: Generally, low levels of family focused practice suggest the need for organizations to develop and implement guidelines, policies and training to support mental health professionals to adopt a whole family approach.

Reducing the risk of posttraumatic stress disorder in children following natural disasters

A significant number of children suffer long term psychological disturbance following exposure to a natural disaster. Evidence suggests that a dose-response relationship exists, so that children and adolescents who experience the most intense or extensive exposure to the risk factors for PTSD are likely to develop the most serious and persistent symptoms. Risk factors include gender, age, personality, extent of exposure to the natural disaster, amount of damage to property and infrastructure, witnessing injury or death of others or perceiving a threat to their own life. Knowing these factors enables various strategies to be put in place to decrease the risk of psychological disturbance following the aftermath of traumatic events. Re-establishing a sense of safety, security and normality is important in the aftermath of a natural disaster, and promoting social connectedness, positive family functioning, and effective coping mechanisms can make children more resilient in the face of catastrophic events. This paper examines the risk and protective factors associated with the development of post traumatic stress disorder (PTSD), and considers how schools can use this knowledge to contribute to the recovery effort, and reduce the prevalence of PTSD amongst pupils in the wake of a natural disaster.