Informação, memória e identidade: estudo sobre as associações japonesas em Marília

Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES)

Informação, memória e identidade: estudo sobre as associações japonesas em Marília

Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES)

Living Invisible: HTLV-1-Infected Persons and the Lack of Care in Public Health

Introduction: Human T-cell lymphotropic virus type 1 (HTLV-1) infection is intractable and endemic in many countries. Although a few individuals have severe symptoms, most patients remain asymptomatic throughout their lives and their infections may be unknown to many health professionals. HTLV-1 can be considered a neglected public health problem and there are not many studies specifically on patients' needs and emotional experiences. Objective: To better understand how women and men living with HTLV-1 experience the disease and what issues exist in their healthcare processes. Methods: A qualitative study using participant observation and life story interview methods was conducted with 13 symptomatic and asymptomatic patients, at the outpatient clinic of the Emilio Ribas Infectious Diseases Institute, in Sao Paulo, Brazil. Results and Discussion: The interviewees stated that HTLV-1 is a largely unknown infection to society and health professionals. Counseling is rare, but when it occurs, focuses on the low probability of developing HTLV-1 related diseases without adequately addressing the risk of infection transmission or reproductive decisions. The diagnosis of HTLV-1 can remain a stigmatized secret as patients deny their situations. As a consequence, the disease remains invisible and there are potentially negative implications for patient self-care and the identification of infected relatives. This perception seems to be shared by some health professionals who do not appear to understand the importance of preventing new infections. Conclusions: Patients and medical staff referred that the main focus was the illness risk, but not the identification of infected relatives to prevent new infections. This biomedical model of care makes prevention difficult, contributes to the lack of care in public health for HTLV-1, and further perpetuates the infection among populations. Thus, HTLV-1 patients experience an "invisibility" of their complex demands and feel that their rights as citizens are ignored.

Entrepreneurship influential factors in development of rural tourism as diversified rural activity in Republic of Macedonia

Rural tourism is relatively new product in the process of diversification of the rural economy in Republic of Macedonia. This study used desk research and life story interviews of rural tourism entrepreneurs as qualitative research method to identify prevalent success influential factors. Further quantitative analysis was applied in order to measure the strength of influence of identified success factors. The primary data for the quantitative research was gathered using telephone questionnaire composed of 37 questions with 5-points Likert scale. The data was analyzed using Partial Least Squares Structural Equation Modeling (PLS-SEM) by SmartPLS 3.1.6. Results indicated that human capital, social capital, entrepreneurial personality and external business environment are predominant influential success factors. However, human capital has non-significant direct effect on success (p 0.493) nonetheless the effect was indirect with high level of partial mediation through entrepreneurial personality as mediator (VAF 73%). Personality of the entrepreneur, social capital and business environment have direct positive affect on entrepreneurial success (p 0.001, 0.003 and 0.045 respectably). Personality also mediates the positive effect of social capital on entrepreneurial success (VAF 28%). Opposite to the theory the data showed no interaction between social and human capital on the entrepreneurial success. This research suggests that rural tourism accommodation entrepreneurs could be more successful if there is increased support in development of social capital in form of conservation of cultural heritage and natural attractions. Priority should be finding the form to encourage and support the establishment of formal and informal associations of entrepreneurs in order to improve the conditions for management and marketing of the sector. Special support of family businesses in the early stages of the operation would have a particularly positive impact on the success of rural tourism. Local infrastructure, access to financial instruments, destination marketing and entrepreneurial personality have positive effect on success.

Performing ‘Readings’: The Interplay of Theatre And Digital Comics In Tezuka

The article investigates the intriguing interplay of digital comics and live-action elements in a detailed performance analysis of TeZukA (2011) by choreographer Sidi Larbi Cherkaoui. This dance theatre production enacts the life story of Osamu Tezuka and some of his famous manga characters, interweaving performers and musicians with large-scale projections of the mangaka’s digitised comics. During the show, the dancers perform different ‘readings’ of the projected manga imagery: e.g. they swipe panels as if using portable touchscreen displays, move synchronously to animated speed lines, and create the illusion of being drawn into the stories depicted on the screen. The main argument is that TeZukA makes visible, demonstrates and reflects upon different ways of delivering, reading and interacting with digital comics. In order to verify this argument, the paper uses ideas developed in comics and theatre studies to draw more specifically on the use of digital comics in this particular performance.

Displaced Stories: The Interplay of Telling and Being in the Face of Displacement

Throughout the last decades, narrative approaches have become quintessential tools for understanding crisis and displacement. While a focus on individual stories allows for a deep look into the particularity of being-displaced, it simultaneously runs the risk of romanticising the outcome (the life story) of what is indeed the product of a rather complex process (the telling of the life story). In this paper I will discuss a change of perspectives: Rather than laying the focus on life stories as texts, I will suggest to shift the attention towards the existential dynamics of storytelling. By zooming in on my longstanding collaboration with a Somali woman in Melbourne, Australia, I will map out the interplay of telling and being that marked this process. Focusing on one particular storytelling moment, I will suggest the importance of appreciating the intersubjective force of storytelling. Rather than melting the set of stories into a coherent “life story”, I will look at the storytelling moment in its lived messiness. In doing so, I will sketch out its potential to shed light both on the teller’s hopes, imaginations and ambitions, and on the reality of being part of a wider world that often contradicts and shatters these hopes.

Sibling relationships in the family of a child with a burn injury

Purpose. Understanding siblings' experiences after a major childhood burn injury was the purpose of this mixed method, qualitative dominant study. The following research questions guided this project: How do siblings describe the impact of a major childhood burn injury experience? How do sibling relationship factors of warmth/closeness, relative status/power, conflict, and rivalry further clarify their relationship and their experience after a major burn injury? ^ Methods. A mixed method, qualitative dominant, design was implemented to understand the sibling experiences in a family with a child suffering from a major burn injury. Informants were selected from patients with childhood burn injuries attending the reconstructive clinic at a Gulf coast children's specialty hospital. The qualitative portion used the life story method, a narrative process, to portray the long-term impact on sibling relationships. A "case" represents a family unit and could be composed of one or multiple family members. Participants from 22 cases (N = 40 participants) were interviewed. Interviews were conducted in person and via telephone. The quantitative portion, or the embedded part of this mixed method design, used the Sibling Relationship Questionnaire Revised (SRQ-R) to conduct an additional structured interview and acquire scoring data. It was postulated that the SRQ-R would provide another perspective on the sibling experience and expand the qualitative data analysis. Thematic analysis was implemented on the qualitative interview data including the qualitative data from the interviews structured on the SRQ-R. Additionally, scores on the SRQ-R were tabulated to further describe the cases. ^ Results. The overall thematic pattern for the sibling relationship in families having a child with a major burn injury was that of normalization. Areas of normalization as well as the process of adjustment were the major themes. Areas of normalization were found in play and other activities, in school and work, and in family relations with their siblings and their parents. The process of adjustment in the sibling relationship was described as varied, involved school and work re-entry, and might even change their life perspective. Further analysis included an examination of the cases in which more than one person were interviewed and completed the SRQ-R. Participants from five ( n = 11) of six cases (n = 14), scored above 3.0 on the five-point scale on the Warmth/Closeness construct, indicating they perceived the sibling relationship as close. Five participants scored high on the Conflict construct and four participants scored high on the Rivalry construct. Finally, Relative Status/Power was low or negative in the six cases (n = 13). ^ Conclusions/implications. These findings suggest the importance of returning to normalcy for many of the families and the significance of sibling relationships on the process. Some of these families were able to use this major life event in a positive way to promote normalization. ^

La puñalada de Amelia (o cómo se extinguió la discriminación de las mujeres casadas del servicio telefónico en la Argentina)

Esta comunicación ilumina las huellas de Amelia C. Su historia de vida como telefonista es relevante para comprender la discriminación de las mujeres en el mercado laboral en los comienzos del siglo XX. Este artículo se enfocará en el estado conyugal como pauta de exclusión femenina. La estrategia utilizada por Amelia contra dicha pauta, si bien individual e incluso desesperada, detonó una serie de revisiones de la legislación existente que fueron apoyadas por distintos grupos de la sociedad. El corpus está basado en expedientes de la compañía telefónica en la que Amelia se desempeñó como empleada durante varios años y en el impacto que sus estrategias tuvieron en la prensa local.

Ezequiel: Relato de vida

El abordaje del presente relato despliega la situación de vida de un sujeto adolescente que desde temprana edad se relaciona con un docente de Educación Física. Interactuando por los distintos niveles educativos, y casi por azar, la vida de los dos se entrelazará y se relacionará en diferentes contextos de pobreza, indigencia y sometimiento. La narración pretende así recrear con crudeza las sensaciones que acompañan a la orfandad y la vulnerabilidad producto de la marginalidad, así como las consecuencias de teorizaciones pedagógicas vacías y de una escuela sin sentido, donde el devenir del maestro concurrirá para persuadir a su alumno de realizar una mejor vida. El objetivo final de este relato es intentar, humildemente, reflejar algo de la subsistencia de incontables niños y adolescentes de nuestro sistema educativo.

Historias y viñetas, una versión del pasado traumático : Carlos Giménez: variaciones entre España y Argentina

El artículo focalizará especialmente en el trabajo gráfico de Carlos Giménez, historietista madrileño que ha utilizado sus viñetas para representar la vida española desde la Guerra Civil hasta el fin del franquismo, atravesado por su experiencia vital. 36-39 Malos tiempos, pero sobre todo Paracuellos y Barrio forman parte de su historia personal durante la Guerra Civil y el franquismo. En Argentina, los casos de autores como Mariano Grassi o María Delia Lozupone y Rafael Cippolini plantean desde otro enfoque generacional y estilístico la misma mirada intimista frente a la dictadura argentina. Este trabajo buscará establecer un diálogo entre estas manifestaciones tratando de analizar el entramado entre la historia y su representación en viñetas.

Transformaçoes ocorridas na vida de atingidos pela barragem de Irapé : O caso do Quilombo de Porto Corís

This article aims to point out the changes occured in the life story of the resettled Irapé Hydroelectric Power Plant in Jequitinhonha Vale, Minas Gerais. The study was conducted in the Community Reminiscent of Porto Coris Quilombo in Leme do Prado - MG. For this, we used as the main method the case-study, with information collected from written documents, interviews, participant observation and participation in meetings of neighborhood associations that form the resettlement. Through this study, confirmed that the life trajectory of these resettled populations at Irapé is marked by the inevitability that a forced resettlement process has. Vale do Jequitinhonha. trajectory, resettlement.

Historias y viñetas, una versión del pasado traumático : Carlos Giménez: variaciones entre España y Argentina

El artículo focalizará especialmente en el trabajo gráfico de Carlos Giménez, historietista madrileño que ha utilizado sus viñetas para representar la vida española desde la Guerra Civil hasta el fin del franquismo, atravesado por su experiencia vital. 36-39 Malos tiempos, pero sobre todo Paracuellos y Barrio forman parte de su historia personal durante la Guerra Civil y el franquismo. En Argentina, los casos de autores como Mariano Grassi o María Delia Lozupone y Rafael Cippolini plantean desde otro enfoque generacional y estilístico la misma mirada intimista frente a la dictadura argentina. Este trabajo buscará establecer un diálogo entre estas manifestaciones tratando de analizar el entramado entre la historia y su representación en viñetas.

La puñalada de Amelia (o cómo se extinguió la discriminación de las mujeres casadas del servicio telefónico en la Argentina)

Esta comunicación ilumina las huellas de Amelia C. Su historia de vida como telefonista es relevante para comprender la discriminación de las mujeres en el mercado laboral en los comienzos del siglo XX. Este artículo se enfocará en el estado conyugal como pauta de exclusión femenina. La estrategia utilizada por Amelia contra dicha pauta, si bien individual e incluso desesperada, detonó una serie de revisiones de la legislación existente que fueron apoyadas por distintos grupos de la sociedad. El corpus está basado en expedientes de la compañía telefónica en la que Amelia se desempeñó como empleada durante varios años y en el impacto que sus estrategias tuvieron en la prensa local.

Ezequiel: Relato de vida

El abordaje del presente relato despliega la situación de vida de un sujeto adolescente que desde temprana edad se relaciona con un docente de Educación Física. Interactuando por los distintos niveles educativos, y casi por azar, la vida de los dos se entrelazará y se relacionará en diferentes contextos de pobreza, indigencia y sometimiento. La narración pretende así recrear con crudeza las sensaciones que acompañan a la orfandad y la vulnerabilidad producto de la marginalidad, así como las consecuencias de teorizaciones pedagógicas vacías y de una escuela sin sentido, donde el devenir del maestro concurrirá para persuadir a su alumno de realizar una mejor vida. El objetivo final de este relato es intentar, humildemente, reflejar algo de la subsistencia de incontables niños y adolescentes de nuestro sistema educativo.

Historias y viñetas, una versión del pasado traumático : Carlos Giménez: variaciones entre España y Argentina

El artículo focalizará especialmente en el trabajo gráfico de Carlos Giménez, historietista madrileño que ha utilizado sus viñetas para representar la vida española desde la Guerra Civil hasta el fin del franquismo, atravesado por su experiencia vital. 36-39 Malos tiempos, pero sobre todo Paracuellos y Barrio forman parte de su historia personal durante la Guerra Civil y el franquismo. En Argentina, los casos de autores como Mariano Grassi o María Delia Lozupone y Rafael Cippolini plantean desde otro enfoque generacional y estilístico la misma mirada intimista frente a la dictadura argentina. Este trabajo buscará establecer un diálogo entre estas manifestaciones tratando de analizar el entramado entre la historia y su representación en viñetas.