Trabajar en la niñez : ¿Marcas o cicatrices?

En esta presentación se aborda la cuestión del Trabajo Infantil en dos comunidades vulnerables de la ciudad de La Plata. Las reflexiones y cuestionamientos que se formulan son el resultado de un Proyecto de Investigación, aún en curso. El objetivo principal es indagar las producciones subjetivas que el trabajo de niños y niñas inscribe en ellos y en adultos del barrio. A este fin, se empleó metodología cualitativa; y se utilizaron como técnicas, entrevistas semiestructuradas, focus group con niños, asociación libre de palabras. Entre las conclusiones a las que hemos arribado hasta aquí, señalamos la necesidad de abordar esta cuestión desde las condiciones que habilitan el trabajo infantil como estrategia de supervivencia. También, hemos observado el registro de estos niños y niñas acerca del futuro como una prolongación del presente, sin posibilidad de transformación.

A model to develop a platform for personalised health applications

Antecedentes Europa vive una situación insostenible. Desde el 2008 se han reducido los recursos de los gobiernos a raíz de la crisis económica. El continente Europeo envejece con ritmo constante al punto que se prevé que en 2050 habrá sólo dos trabajadores por jubilado [54]. A esta situación se le añade el aumento de la incidencia de las enfermedades crónicas, relacionadas con el envejecimiento, cuyo coste puede alcanzar el 7% del PIB de un país [51]. Es necesario un cambio de paradigma. Una nueva manera de cuidar de la salud de las personas: sustentable, eficaz y preventiva más que curativa. Algunos estudios abogan por el cuidado personalizado de la salud (pHealth). En este modelo las prácticas médicas son adaptadas e individualizadas al paciente, desde la detección de los factores de riesgo hasta la personalización de los tratamientos basada en la respuesta del individuo [81]. El cuidado personalizado de la salud está asociado a menudo al uso de las tecnologías de la información y comunicación (TICs) que, con su desarrollo exponencial, ofrecen oportunidades interesantes para la mejora de la salud. El cambio de paradigma hacia el pHealth está lentamente ocurriendo, tanto en el ámbito de la investigación como en la industria, pero todavía no de manera significativa. Existen todavía muchas barreras relacionadas a la economía, a la política y la cultura. También existen barreras puramente tecnológicas, como la falta de sistemas de información interoperables [199]. A pesar de que los aspectos de interoperabilidad están evolucionando, todavía hace falta un diseño de referencia especialmente direccionado a la implementación y el despliegue en gran escala de sistemas basados en pHealth. La presente Tesis representa un intento de organizar la disciplina de la aplicación de las TICs al cuidado personalizado de la salud en un modelo de referencia, que permita la creación de plataformas de desarrollo de software para simplificar tareas comunes de desarrollo en este dominio. Preguntas de investigación RQ1 >Es posible definir un modelo, basado en técnicas de ingeniería del software, que represente el dominio del cuidado personalizado de la salud de una forma abstracta y representativa? RQ2 >Es posible construir una plataforma de desarrollo basada en este modelo? RQ3 >Esta plataforma ayuda a los desarrolladores a crear sistemas pHealth complejos e integrados? Métodos Para la descripción del modelo se adoptó el estándar ISO/IEC/IEEE 42010por ser lo suficientemente general y abstracto para el amplio enfoque de esta tesis [25]. El modelo está definido en varias partes: un modelo conceptual, expresado a través de mapas conceptuales que representan las partes interesadas (stakeholders), los artefactos y la información compartida; y escenarios y casos de uso para la descripción de sus funcionalidades. El modelo fue desarrollado de acuerdo a la información obtenida del análisis de la literatura, incluyendo 7 informes industriales y científicos, 9 estándares, 10 artículos en conferencias, 37 artículos en revistas, 25 páginas web y 5 libros. Basándose en el modelo se definieron los requisitos para la creación de la plataforma de desarrollo, enriquecidos por otros requisitos recolectados a través de una encuesta realizada a 11 ingenieros con experiencia en la rama. Para el desarrollo de la plataforma, se adoptó la metodología de integración continua [74] que permitió ejecutar tests automáticos en un servidor y también desplegar aplicaciones en una página web. En cuanto a la metodología utilizada para la validación se adoptó un marco para la formulación de teorías en la ingeniería del software [181]. Esto requiere el desarrollo de modelos y proposiciones que han de ser validados dentro de un ámbito de investigación definido, y que sirvan para guiar al investigador en la búsqueda de la evidencia necesaria para justificarla. La validación del modelo fue desarrollada mediante una encuesta online en tres rondas con un número creciente de invitados. El cuestionario fue enviado a 134 contactos y distribuido en algunos canales públicos como listas de correo y redes sociales. El objetivo era evaluar la legibilidad del modelo, su nivel de cobertura del dominio y su potencial utilidad en el diseño de sistemas derivados. El cuestionario incluía preguntas cuantitativas de tipo Likert y campos para recolección de comentarios. La plataforma de desarrollo fue validada en dos etapas. En la primera etapa se utilizó la plataforma en un experimento a pequeña escala, que consistió en una sesión de entrenamiento de 12 horas en la que 4 desarrolladores tuvieron que desarrollar algunos casos de uso y reunirse en un grupo focal para discutir su uso. La segunda etapa se realizó durante los tests de un proyecto en gran escala llamado HeartCycle [160]. En este proyecto un equipo de diseñadores y programadores desarrollaron tres aplicaciones en el campo de las enfermedades cardio-vasculares. Una de estas aplicaciones fue testeada en un ensayo clínico con pacientes reales. Al analizar el proyecto, el equipo de desarrollo se reunió en un grupo focal para identificar las ventajas y desventajas de la plataforma y su utilidad. Resultados Por lo que concierne el modelo que describe el dominio del pHealth, la parte conceptual incluye una descripción de los roles principales y las preocupaciones de los participantes, un modelo de los artefactos TIC que se usan comúnmente y un modelo para representar los datos típicos que son necesarios formalizar e intercambiar entre sistemas basados en pHealth. El modelo funcional incluye un conjunto de 18 escenarios, repartidos en: punto de vista de la persona asistida, punto de vista del cuidador, punto de vista del desarrollador, punto de vista de los proveedores de tecnologías y punto de vista de las autoridades; y un conjunto de 52 casos de uso repartidos en 6 categorías: actividades de la persona asistida, reacciones del sistema, actividades del cuidador, \engagement" del usuario, actividades del desarrollador y actividades de despliegue. Como resultado del cuestionario de validación del modelo, un total de 65 personas revisó el modelo proporcionando su nivel de acuerdo con las dimensiones evaluadas y un total de 248 comentarios sobre cómo mejorar el modelo. Los conocimientos de los participantes variaban desde la ingeniería del software (70%) hasta las especialidades médicas (15%), con declarado interés en eHealth (24%), mHealth (16%), Ambient Assisted Living (21%), medicina personalizada (5%), sistemas basados en pHealth (15%), informática médica (10%) e ingeniería biomédica (8%) con una media de 7.25_4.99 años de experiencia en estas áreas. Los resultados de la encuesta muestran que los expertos contactados consideran el modelo fácil de leer (media de 1.89_0.79 siendo 1 el valor más favorable y 5 el peor), suficientemente abstracto (1.99_0.88) y formal (2.13_0.77), con una cobertura suficiente del dominio (2.26_0.95), útil para describir el dominio (2.02_0.7) y para generar sistemas más específicos (2_0.75). Los expertos también reportan un interés parcial en utilizar el modelo en su trabajo (2.48_0.91). Gracias a sus comentarios, el modelo fue mejorado y enriquecido con conceptos que faltaban, aunque no se pudo demonstrar su mejora en las dimensiones evaluadas, dada la composición diferente de personas en las tres rondas de evaluación. Desde el modelo, se generó una plataforma de desarrollo llamada \pHealth Patient Platform (pHPP)". La plataforma desarrollada incluye librerías, herramientas de programación y desarrollo, un tutorial y una aplicación de ejemplo. Se definieron cuatro módulos principales de la arquitectura: el Data Collection Engine, que permite abstraer las fuentes de datos como sensores o servicios externos, mapeando los datos a bases de datos u ontologías, y permitiendo interacción basada en eventos; el GUI Engine, que abstrae la interfaz de usuario en un modelo de interacción basado en mensajes; y el Rule Engine, que proporciona a los desarrolladores un medio simple para programar la lógica de la aplicación en forma de reglas \if-then". Después de que la plataforma pHPP fue utilizada durante 5 años en el proyecto HeartCycle, 5 desarrolladores fueron reunidos en un grupo de discusión para analizar y evaluar la plataforma. De estas evaluaciones se concluye que la plataforma fue diseñada para encajar las necesidades de los ingenieros que trabajan en la rama, permitiendo la separación de problemas entre las distintas especialidades, y simplificando algunas tareas de desarrollo como el manejo de datos y la interacción asíncrona. A pesar de ello, se encontraron algunos defectos a causa de la inmadurez de algunas tecnologías empleadas, y la ausencia de algunas herramientas específicas para el dominio como el procesado de datos o algunos protocolos de comunicación relacionados con la salud. Dentro del proyecto HeartCycle la plataforma fue utilizada para el desarrollo de la aplicación \Guided Exercise", un sistema TIC para la rehabilitación de pacientes que han sufrido un infarto del miocardio. El sistema fue testeado en un ensayo clínico randomizado en el cual a 55 pacientes se les dio el sistema para su uso por 21 semanas. De los resultados técnicos del ensayo se puede concluir que, a pesar de algunos errores menores prontamente corregidos durante el estudio, la plataforma es estable y fiable. Conclusiones La investigación llevada a cabo en esta Tesis y los resultados obtenidos proporcionan las respuestas a las tres preguntas de investigación que motivaron este trabajo: RQ1 Se ha desarrollado un modelo para representar el dominio de los sistemas personalizados de salud. La evaluación hecha por los expertos de la rama concluye que el modelo representa el dominio con precisión y con un balance apropiado entre abstracción y detalle. RQ2 Se ha desarrollado, con éxito, una plataforma de desarrollo basada en el modelo. RQ3 Se ha demostrado que la plataforma es capaz de ayudar a los desarrolladores en la creación de software pHealth complejos. Las ventajas de la plataforma han sido demostradas en el ámbito de un proyecto de gran escala, aunque el enfoque genérico adoptado indica que la plataforma podría ofrecer beneficios también en otros contextos. Los resultados de estas evaluaciones ofrecen indicios de que, ambos, el modelo y la plataforma serán buenos candidatos para poderse convertir en una referencia para futuros desarrollos de sistemas pHealth. ABSTRACT Background Europe is living in an unsustainable situation. The economic crisis has been reducing governments' economic resources since 2008 and threatening social and health systems, while the proportion of older people in the European population continues to increase so that it is foreseen that in 2050 there will be only two workers per retiree [54]. To this situation it should be added the rise, strongly related to age, of chronic diseases the burden of which has been estimated to be up to the 7% of a country's gross domestic product [51]. There is a need for a paradigm shift, the need for a new way of caring for people's health, shifting the focus from curing conditions that have arisen to a sustainable and effective approach with the emphasis on prevention. Some advocate the adoption of personalised health care (pHealth), a model where medical practices are tailored to the patient's unique life, from the detection of risk factors to the customization of treatments based on each individual's response [81]. Personalised health is often associated to the use of Information and Communications Technology (ICT), that, with its exponential development, offers interesting opportunities for improving healthcare. The shift towards pHealth is slowly taking place, both in research and in industry, but the change is not significant yet. Many barriers still exist related to economy, politics and culture, while others are purely technological, like the lack of interoperable information systems [199]. Though interoperability aspects are evolving, there is still the need of a reference design, especially tackling implementation and large scale deployment of pHealth systems. This thesis contributes to organizing the subject of ICT systems for personalised health into a reference model that allows for the creation of software development platforms to ease common development issues in the domain. Research questions RQ1 Is it possible to define a model, based on software engineering techniques, for representing the personalised health domain in an abstract and representative way? RQ2 Is it possible to build a development platform based on this model? RQ3 Does the development platform help developers create complex integrated pHealth systems? Methods As method for describing the model, the ISO/IEC/IEEE 42010 framework [25] is adopted for its generality and high level of abstraction. The model is specified in different parts: a conceptual model, which makes use of concept maps, for representing stakeholders, artefacts and shared information, and in scenarios and use cases for the representation of the functionalities of pHealth systems. The model was derived from literature analysis, including 7 industrial and scientific reports, 9 electronic standards, 10 conference proceedings papers, 37 journal papers, 25 websites and 5 books. Based on the reference model, requirements were drawn for building the development platform enriched with a set of requirements gathered in a survey run among 11 experienced engineers. For developing the platform, the continuous integration methodology [74] was adopted which allowed to perform automatic tests on a server and also to deploy packaged releases on a web site. As a validation methodology, a theory building framework for SW engineering was adopted from [181]. The framework, chosen as a guide to find evidence for justifying the research questions, imposed the creation of theories based on models and propositions to be validated within a scope. The validation of the model was conducted as an on-line survey in three validation rounds, encompassing a growing number of participants. The survey was submitted to 134 experts of the field and on some public channels like relevant mailing lists and social networks. Its objective was to assess the model's readability, its level of coverage of the domain and its potential usefulness in the design of actual, derived systems. The questionnaires included quantitative Likert scale questions and free text inputs for comments. The development platform was validated in two scopes. As a small-scale experiment, the platform was used in a 12 hours training session where 4 developers had to perform an exercise consisting in developing a set of typical pHealth use cases At the end of the session, a focus group was held to identify benefits and drawbacks of the platform. The second validation was held as a test-case study in a large scale research project called HeartCycle the aim of which was to develop a closed-loop disease management system for heart failure and coronary heart disease patients [160]. During this project three applications were developed by a team of programmers and designers. One of these applications was tested in a clinical trial with actual patients. At the end of the project, the team was interviewed in a focus group to assess the role the platform had within the project. Results For what regards the model that describes the pHealth domain, its conceptual part includes a description of the main roles and concerns of pHealth stakeholders, a model of the ICT artefacts that are commonly adopted and a model representing the typical data that need to be formalized among pHealth systems. The functional model includes a set of 18 scenarios, divided into assisted person's view, caregiver's view, developer's view, technology and services providers' view and authority's view, and a set of 52 Use Cases grouped in 6 categories: assisted person's activities, system reactions, caregiver's activities, user engagement, developer's activities and deployer's activities. For what concerns the validation of the model, a total of 65 people participated in the online survey providing their level of agreement in all the assessed dimensions and a total of 248 comments on how to improve and complete the model. Participants' background spanned from engineering and software development (70%) to medical specialities (15%), with declared interest in the fields of eHealth (24%), mHealth (16%), Ambient Assisted Living (21%), Personalized Medicine (5%), Personal Health Systems (15%), Medical Informatics (10%) and Biomedical Engineering (8%) with an average of 7.25_4.99 years of experience in these fields. From the analysis of the answers it is possible to observe that the contacted experts considered the model easily readable (average of 1.89_0.79 being 1 the most favourable scoring and 5 the worst), sufficiently abstract (1.99_0.88) and formal (2.13_0.77) for its purpose, with a sufficient coverage of the domain (2.26_0.95), useful for describing the domain (2.02_0.7) and for generating more specific systems (2_0.75) and they reported a partial interest in using the model in their job (2.48_0.91). Thanks to their comments, the model was improved and enriched with concepts that were missing at the beginning, nonetheless it was not possible to prove an improvement among the iterations, due to the diversity of the participants in the three rounds. From the model, a development platform for the pHealth domain was generated called pHealth Patient Platform (pHPP). The platform includes a set of libraries, programming and deployment tools, a tutorial and a sample application. The main four modules of the architecture are: the Data Collection Engine, which allows abstracting sources of information like sensors or external services, mapping data to databases and ontologies, and allowing event-based interaction and filtering, the GUI Engine, which abstracts the user interface in a message-like interaction model, the Workow Engine, which allows programming the application's user interaction ows with graphical workows, and the Rule Engine, which gives developers a simple means for programming the application's logic in the form of \if-then" rules. After the 5 years experience of HeartCycle, partially programmed with pHPP, 5 developers were joined in a focus group to discuss the advantages and drawbacks of the platform. The view that emerged from the training course and the focus group was that the platform is well-suited to the needs of the engineers working in the field, it allowed the separation of concerns among the different specialities and it simplified some common development tasks like data management and asynchronous interaction. Nevertheless, some deficiencies were pointed out in terms of a lack of maturity of some technological choices, and for the absence of some domain-specific tools, e.g. for data processing or for health-related communication protocols. Within HeartCycle, the platform was used to develop part of the Guided Exercise system, a composition of ICT tools for the physical rehabilitation of patients who suffered from myocardial infarction. The system developed using the platform was tested in a randomized controlled clinical trial, in which 55 patients used the system for 21 weeks. The technical results of this trial showed that the system was stable and reliable. Some minor bugs were detected, but these were promptly corrected using the platform. This shows that the platform, as well as facilitating the development task, can be successfully used to produce reliable software. Conclusions The research work carried out in developing this thesis provides responses to the three three research questions that were the motivation for the work. RQ1 A model was developed representing the domain of personalised health systems, and the assessment of experts in the field was that it represents the domain accurately, with an appropriate balance between abstraction and detail. RQ2 A development platform based on the model was successfully developed. RQ3 The platform has been shown to assist developers create complex pHealth software. This was demonstrated within the scope of one large-scale project, but the generic approach adopted provides indications that it would offer benefits more widely. The results of these evaluations provide indications that both the model and the platform are good candidates for being a reference for future pHealth developments.

La competencia lingüística en el uso de los grupos nominales en inglés académico y profesional y su didáctica: estudio empírico

Esta tesis doctoral consiste en un estudio empírico de la competencia lingüística del alumnado de la Escuela Técnica Superior de Ingenieros Industriales (ETSII), de la Universidad Politécnica de Madrid (UPM) en el uso de los grupos nominales (GN) en inglés profesional y académico (IPA). Mediante el análisis estadístico de los datos de las pruebas de nivel de inglés general y de conocimiento de los rasgos lingüísticos diferenciadores del IPA, se ha buscado constatar que los GN, tan presentes en los textos ingleses de carácter científico-técnico, son uno de los rasgos IPA que más dificultad presenta para el alumnado de ingeniería de habla española, cuya enseñanza es necesario abordar de forma diferenciada para que se puedan usar correctamente. El trabajo comienza presentando las características lingüísticas generales del IPA, entre las que destaca la frecuente presencia de los GN en las comunicaciones de carácter científico y técnico. Comprueba la hipótesis de que la comprensión y el uso de los GN es el rasgo lingüístico que ofrece mayor dificultad para esta población. Se detiene en explicar las propiedades de los GN en inglés y de las palabras que lo forman; es decir, muestra clases de palabras, regularidades y excepciones que están presentes en los textos científico-técnicos. También expone y razona el comportamiento de las distintas categorías gramaticales que pueden figurar como premodificadoras y se centra en ejemplos reales y datos objetivos, para llegar a conclusiones cuantitativas sobre el uso y la frecuencia de los GN en el discurso científico-técnico, así como en los diferentes grados de dificultad que dichas construcciones presentan al alumnado. El método de investigación seguido consiste en la recopilación y análisis estadístico de los datos procedentes de una muestra de población de alumnos de 5º curso de la ETSII de la UPM utilizando el análisis de la varianza ANOVA. Los datos se han tratado teniendo en cuenta el nivel general de inglés de cada alumno, según el Marco Común Europeo de Referencia para las Lenguas (MCERL), que oscila entre el nivel A2 y el C1, con una mayor frecuencia de B1 y B2. Las conclusiones se basan en el análisis de los datos empíricos obtenidos, que nos permiten deducir unos principios generales relevantes respecto al uso de los GN –simples y complejos- en el inglés para la ciencia y la tecnología (ICT) y al grado de dificultad que sus distintos tipos presentan al alumnado, con un grado de confianza superior al 95%. A partir de estos datos se ofrece un planteamiento didáctico que facilite la comprensión y elaboración de los distintos tipos de GN. La estructura general de la tesis se divide en seis capítulos. El capítulo 1 es una introducción en la que se presentan las razones que han motivado esta tesis, las hipótesis, los objetivos y la metodología de la misma. En el capítulo 2 se recogen los rasgos lingüísticos distintivos del ICT, incidiendo en la relación competencia comunicativa/competencia lingüística. En el capítulo 3 se analizan los GN profundizando en aspectos lingüísticos. El capítulo 4 se centra en el estudio empírico propiamente dicho y en el análisis estadístico de los datos. Del análisis se extraen las conclusiones objetivas sobre la dificultad que presentan los diferentes rasgos IPA analizados, con detenimiento en los GN simples y complejos. El capítulo 5 ofrece un planteamiento didáctico práctico sobre la enseñanza de los GN en el contexto del ICT, con una investigación sobre el terreno y el análisis estadístico de los resultados obtenidos antes y después de la aplicación didáctica. En el capítulo 6 se comentan los resultados obtenidos a lo largo del estudio, aportando las conclusiones, las limitaciones y las recomendaciones para futuros trabajos de investigación sobre el tema de la tesis. ABSTRACT This doctoral thesis consists of an empirical study of the linguistic competence of the Technical University of Madrid (UPM) industrial engineering students on the use of nominal groups (NG) in English for Academic and Professional Purposes (EAPP). In order to confirm that NG is the EAPP linguistic feature that presents the greatest difficulty to Spanish engineering students, a statistical analysis of the data obtained from the application of a general English test and the EAPP linguistic features tests -developed for this purpose- was carried out. Consequently, this linguistic feature needs to be specifically taught in order to be used correctly by Spanish engineering students. The study begins by presenting the general language characteristics of EAPP, among which the frequent presence of NG in scientific and technical writings stands out. It verifies the hypothesis that the understanding and use of NG in English is the most difficult linguistic feature for Spanish engineering students. It explains the features of English NG analyzing the words they are composed of by depicting the types of words, regularities and exceptions that are present in technical and scientific English. It also explains the behavior of the different grammar categories that act as pre-modifiers of the noun and focuses on real examples taken from authentic publications and quantitative data, to reach objective conclusions about the use and degree of difficulty of the NG for the students. The research methodology includes the gathering of data from the 5th year industrial engineering students´ tests and analyzing them by means of the ANOVA statistical application. The data have been treated in relation to the students’ Common European Framework of Reference for Languages (CEFRL) levels, which range from A2 to C1, although the majority lye between B1 and B2 levels. The conclusions are based on the results, which allow us to obtain relevant information about the understanding and use of NG –simple and complex- by the focus group, with a 95% confidence level. From these data, a methodological approach to NG teaching has been tested to help students to acquire such linguistic feature. The general structure of this thesis is divided into six chapters. The first is an introduction containing the reasons that have motivated this piece of research, the hypotheses, objectives and methodology employed. The second deals with the distinctive linguistic features of EST underlying the concepts of linguistic and communicative competence. Chapter three focuses on the grammar aspects of NG. Chapter four contains the empirical study and the statistical analysis of the data. Results allow us to reach objective conclusions about the degree of difficulty of the EAPP linguistic features studied, focusing on simple and complex NG. Chapter five discusses a methodological approach to the teaching of NG in an EST context, comparing students’ test results before and after the NG teaching application. Finally, chapter six discusses the findings obtained along the study, presenting the conclusions, limitations and recommendations for future research in this area.

Planificación Participativa en la gestión urbana local, identificación de factores claves y nuevas formas de participación? Seguimiento a 13 Alcaldías del Área Metropolitana de Santiago, Chile

La presente tesis se presenta como un continuo de investigaciones realizadas durante el proceso de desarrollo del Doctorado en torno al tema de la Participación Ciudadana en la Gestión Urbana Local. El Objetivo general de la tesis es verificar y evaluar la existencia de una planificación participativa en la gestión urbana local en Chile. Los objetivos específicos abordan los factores clave que facilitan y restringen los procesos participativos en la gestión urbana local, la factibilidad de desarrollar nuevas formas de participación en el medio local y los avances que se han registrado o no en materia de planificación y gestión participativa en Chile. La Metodología planteada es de tipo cualitativa y se centra en el estudio del caso: la RED de Alcaldías Pro-Participación del Área Metropolitana de Santiago. Se utilizan diversos instrumentos metodológicos básicamente cualitativos donde destaca la utilización de la Transparencia Activa con 2 consultas a los 13 municipios, entrevistas a los Directores de la Secretaría de Planificación, SECPLA, a Encargados de las Unidades de Participación y con algunos Asesores Urbanos. Paralelamente en el segundo semestre del año 2013 se llevo a cabo una observación directa de los cabildos territoriales realizados en el marco del proceso de actualización del Plan de Desarrollo Comunal. Por último se realizó un Focus Group con integrantes de los Consejos de la Sociedad Civil de modo de complementar los resultados de las entrevistas y las consultas a los municipios. Todo lo anterior complementado con una revisión documental en relación a la conceptualización de la participación, los tipos de participación, los actores que intervienen en el proceso y los mecanismos o herramientas que hacen posible el desarrollo de estos procesos. Finalmente los resultados esperados, en el marco de los objetivos y las hipótesis planteadas estaban básicamente enfocados en los desafíos que impone llevar adelante una gestión más participativa y transparente. ABSTRACT This thesis is presented as a continuum of the research conducted during the development of the doctorate process on the subject of Citizen Participation in Local Urban Management. Initially referring to the more specific field of urban planning and in this case in the more general context of local planning. The overall aim of the thesis is to verify and assess the existence of participatory planning in local urban management in Chile. The specific objectives address the key factors that facilitate and constrain participatory processes in local urban management, the feasibility of developing new forms of participation in the local environment and the progress that has been registered or not in participatory planning and management in Chile. The proposed methodology is a qualitative approach and focuses on the case study: A Pro-Participation mayors of Greater Santiago. Basically using different qualitative methodological tools which highlights the use of Active Transparency with 2 consultations to the 13 municipalities, interviews with the directors of the Planning Office, SECPLAN, directors or managers of Participation Units in those municipalities that had created one and some professionals in charge of the Urban Office. Parallel to those methodological tools in the second half of 2013 was held a direct observation of the territorial councils (Caboildos Territoriales) made under the PLADECO update process. Finally, a focus group was held with members of the Civil Society Council, COSOC that will complement the results of interviews and consultations with municipalities. All this with tools in the context of a review of documents related to the conceptualization of participation, types of participation, the actors involved in the process and the mechanisms and tools that make possible these participatory processes. Finally the expected results within the framework of the objectives and hypotheses were basically focused on identifying the elements that facilitate or constrain participatory processes and identify accordingly the challenges posed pursue a more participatory and transparent management.

Are We Family? Lesbian Mothers and the Decision to Make Contact with Their Children's Donor Siblings

The current study examines the experiences of three lesbian families who have made contact with their children's donor siblings: a single mother by choice, a couple and a mother who had children in the context of a relationship that has since ended. It builds on prior research that has addressed this topic, but has primarily utilized survey methodology. Participants of the current study shared their experiences via focus group and individual interviews. A narrative research approach was used to analyze and present the findings.

Revisando el uso de grupos focalizados en la investigación social

Las reflexiones metodológicas sobre grupos focalizados (GF) de este artículo tienen como punto de partida una investigación con sectores medios del Área Metropolitana de Buenos Aires. El estudio de referencia aborda los discursos y prácticas de cuidado de la salud en el escenario contemporáneo caracterizado por la diversificación de especialistas, la creciente cobertura mediática de recomendaciones sobre la vida sana y el bienestar, la implementación de políticas públicas de promoción de la salud, y el crecimiento de la industria de productos y servicios vinculados con la temática. El objetivo del artículo es reflexionar, a partir de nuestra experiencia de investigación, sobre dos aspectos que han recibido especial atención en la literatura metodológica más reciente: los criterios para componer los grupos y sus consecuencias para la dinámica de las conversaciones grupales, y las estrategias para dar cuenta de la interacción grupal en el análisis de los datos. En este último eje exploramos el potencial de los GF para observar el trabajo identitario vinculado con el cuidado de la salud. Enmarcamos nuestro estudio y las decisiones metodológicas tomadas en los debates actuales sobre la variedad de usos de los GF.

Swedish Match : En kvalitativ studie om butikskonceptet

Title: Swedish Match-En kvalitativ studie om butikskonceptet  Author: Adam Waernér/Erik Rehnberg  Supervisor: Jonas Jonasson  Key Words: Communication, Branding, Culture, PR, Advertisement  Purpose: The purpose of this research is to understand the background of the launch of Swedish Match´s stores. Because of the strict laws against marketing of tobacco products in Sweden, we believe that the stores are an interesting way of approaching a new branding and communication strategy in the tobacco industry.  Research questions: What´s the background to the launch of Swedish Match Stores? What´s the stores impact on Swedish Match image? How do Swedish Match Stores impact the cultural status of snus? In what ways do the cultural trends impact the snus market?  Theory: In this study we have applied theories concerning culture, communication, branding, PR and advertisement. Methodology: We have chosen to apply a qualitative method on this research. The method consists of three different methods: one focus group, one observation study which consists of two different observations both in the Gothenburg store and the store in Stockholm, the last method is an online interview with the public relations officer of Swedish Match in Sweden. Because of the chosen method´s we hope to bring three different perspectives to the  study: From the customers perspective, from our own perspective and finally from the company´s perspective.  Findings: Through this research we discovered that the stores do not only work as a communication strategy for Swedish Match. The store as a phenomenon also works in the aspect of branding, PR and also gives a higher cultural status to snus. Through our own observation and the focus group we came to the conclusion that the stores in terms of image of Swedish Match implements a cultural aspect of swedishness to the company, as well as a more modern and new take on snus. We also came to the conclusion that snus is a cultural phenomenon that is impacted of other contemporary trends, such as gastronomic trends and the increased popularity of small scale exclusivity.

Supervision Practice for Allied Health Professionals Within a Large Mental Health Service: Exploring the Phenomenon

This paper reports on an exploration of the concept of 'supervision' as applied to allied health professionals within a large mental health service in one Australian State. A two-part methodology was used, with focus group interviews conducted with allied health professionals, and semi-structured telephone interviews with service managers. Fifty-eight allied health professionals participated in a series of seven focus groups. Semi-structured interviews were conducted with the Directors or Managers of mental health services in all 21 regions in the state. Allied health professionals and service managers both considered supervision to be an important mechanism for ensuring staff competence and best practice outcomes for consumers and carers. There was strong endorsement of the need for clarification and articulation of supervision policies within the organization, and the provision of appropriate resourcing to enable supervision to occur. Current practice in supervision was seen as ad hoc and of variable standard; the need for training in supervision was seen as critical. The supervision needs of newly graduated allied health professionals and those working in rural and regional areas were also seen as important. The need for a flexible and accessible model of supervision was clearly demonstrated.

Dimensions of quality of life and psychosocial variables most salient to colorectal cancer patients

Colorectal cancer is one of the most common invasive cancers, and is responsible for considerable physical and psychosocial morbidity. Understanding the quality of life experienced by colorectal cancer patients is essential for evaluating the full impact of the disease on individuals, their families and their communities. Patient perspective is essential in establishing a proper understanding of the quality of life of colorectal cancer patients. Despite this, few studies have employed a qualitative methodology to explore quality of life issues for colorectal cancer patients. A review of the literature identified only seven qualitative studies pertaining to quality of life issues for colorectal cancer patients, a surprising finding given the prevalence of this cancer. Accordingly, this study sought to build on the findings of previous qualitative research by providing descriptive data on the quality of life and psychosocial variables most salient to colorectal cancer patients. Six core themes emerged from interview and focus group data: Satisfaction with diagnosis and treatment; support (including information provision); quality of life; benefits of diagnosis; making sense of the cancer experience; and coping strategies. The information derived from this study will help inform the development of supportive care services to address the needs of the increasing number of people diagnosed with colorectal cancer. Copyright (c) 2005 John Wiley & Sons, Ltd.

Kick'n'on: The design and evaluation of a group programme for young males with psychotic disorders

Young men with psychotic disorders have persistently poorer outcomes in social functioning when interventions aimed at arresting social isolation are not implemented. Recent literature has indicated that it is important to develop rehabilitation programmes that are based on areas of needs that are identified by the participants. To assist in the design of a group programme, a qualitative (focus group) investigation of the perceptions of young males concerning male roles and identity in today’s society was conducted. The participants were six young males with psychotic disorders who had been referred to an Australian regional rehabilitation service to address poor social functioning and social isolation. Three main themes emerged from the focus groups. These were role models, concept of what is a man, and societal expectations. The findings were used to develop a group programme called Kick’n’On.

MEMÓRIA TELEVISIVA COMO PRODUTO CULTURAL: um estudo de caso das telenovelas no Canal Viva

This research is aimed at studying the television memory, recovered and built by a pay-TV channel, Canal Viva, and the telenovelas from TV Globo displayed by the channel concerned, in order to verify its characteristics as a cultural product and its place in the plot of mediation and social interactions. In order to do so, the following theoretical bases are established, relating them to the concept of memory: culture, identity, imagination, history of TV and the Brazilian telenovelas, television reception (with a focus on mediation) and nostalgia. For this purpose, the methodology, as built-up, is divided into two steps: first, a bibliographic research and then a case study, on which techniques of documentary analysis are applied, guided interviews with representatives from the channel and, finally, a focus group with assiduous viewers of the Canal Viva telenovelas. The goal of this research is to contribute to studies on communication related to television memory, thus affirming its importance in social interactions.

Managing healthcare performance in analytical framework

Purpose – The purpose of the paper is to develop an integrated framework for performance management of healthcare services. Design/methodology/approach – This study develops a performance management framework for healthcare services using a combined analytic hierarchy process (AHP) and logical framework (LOGFRAME). The framework is then applied to the intensive care units of three different hospitals in developing nations. Numerous focus group discussions were undertaken, involving experts from the specific area under investigation. Findings – The study reveals that a combination of outcome, structure and process-based critical success factors and a combined AHP and LOGFRAME-based performance management framework helps manage performance of healthcare services. Practical implications – The proposed framework could be practiced in hospital-based healthcare services. Originality/value – The conventional approaches to healthcare performance management are either outcome-based or process-based, which cannot reveal improvement measures appropriately in order to assure superior performance. Additionally, they lack planning, implementing and evaluating improvement projects that are identified from performance measurement. This study presents an integrated approach to performance measurement and implementing framework of improvement projects.

Employer perceptions of skills gaps in retail:issues and implications for UK retailers

Purpose – This paper seeks to identify the skills gaps associated with retail employees in SME and multiple retail companies, and to investigate the potential training and business implications that arise from these skills gaps, from the point of view of retail employers. Design/methodology/approach – Research was conducted within one geographical region and across five counties within the UK. Telephone and face-to-face interviews and focus group workshops were conducted, resulting in responses from 52 retailers. Findings – The key issues and areas of concern to emerge were: the industry image and impact on recruitment and retention; employee and management skills gaps; and barriers to training. Research limitations/implications – The findings highlight the need for UK retail industry to raise the image of the sector, to identify the skills sets for specific roles, and to clarify the retail qualifications and training required delivering these. Originality/value – Succeeds in identifying the skills gaps associated with retail employees in SME and multiple retail companies and in investigating the potential training and business implications arising from these skills gaps.

Using grounded theory for theory building in operations management research:a study on inter-firm relationship governance

Purpose – Qualitative theory building approaches, such as grounded theory method (GTM), are still not very widespread and rigorously applied in operations management (OM) research. Yet it is agreed that more systematic observation of current industrial phenomena is necessary to help managers deal with their problems. The purpose of this paper is to provide an example to help guide other researchers on using GTM for theory building in OM research. Design/methodology/approach – A GTM study in the German automotive industry consisting of 31 interviews is followed by a validation stage comprising a survey (110 responses) and a focus group. Findings – The result is an example of conducting GTM research in OM, illustrated by the development of the novel collaborative enterprise governance framework for inter-firm relationship governance in the German automotive industry. Research limitations/implications – GTM is appropriate for qualitative theory building research, but the resultant theories need further testing. Research is necessary to identify the transferability of the collaborative enterprise governance concept to other industries than automotive, to other organisational areas than R&D and to product and service settings that are less complex and innovative. Practical implications – The paper helps researchers make more informed use of GTM when engaging in qualitative theory building research in OM. Originality/value – There is a lack of explicit and well-informed use of GTM in OM research because of poor understanding. This paper addresses this deficiency. The collaborative enterprise governance framework is a significant contribution in an area of growing importance within OM.