A cross-sectional evaluation of community pharmacists’ perceptions of intermediate care and medicines management across the healthcare interface

Background Despite the importance placed on the concept of the multidisciplinary team in relation to intermediate care (IC), little is known about community pharmacists’ (CPs) involvement. 
Objective To determine CPs’ awareness of and involvement with IC services, perceptions of the transfer of patients’ medication information between healthcare settings and views of the development of a CP–IC service. 
Setting Community pharmacies in Northern Ireland. 
Methods A postal questionnaire, informed by previous qualitative work was developed and piloted. 
Main outcome measure CPs’ awareness of and involvement with IC. Results The response rate was 35.3 % (190/539). Under half (47.4 %) of CPs ‘agreed/strongly agreed’ that they understood the term ‘intermediate care’. Three quarters of respondents were either not involved or unsure if they were involved with providing services to IC. A small minority (1.2 %) of CPs reported that they received communication regarding medication changes made in hospital or IC settings ‘all of the time’. Only 9.5 and 0.5 % of respondents ‘strongly agreed’ that communication from hospital and IC, respectively, was sufficiently detailed. In total, 155 (81.6 %) CPs indicated that they would like to have greater involvement with IC services. ‘Current workload’ was ranked as the most important barrier to service development.
Conclusion It was revealed that CPs had little awareness of, or involvement with, IC. Communication of information relating to patients’ medicines between settings was perceived as insufficient, especially between IC and community pharmacy settings. CPs demonstrated willingness to be involved with IC and services aimed at bridging the communication gap between healthcare settings.

Systematic evaluation of patient-reported outcome (PRO) protocol content and reporting in UK cancer clinical trials: the EPiC study protocol

Introduction Emerging evidence suggests that patient-reported outcome (PRO)-specific information may be omitted in trial protocols and that PRO results are poorly reported, limiting the use of PRO data to inform cancer care. This study aims to evaluate the standards of PRO-specific content in UK cancer trial protocols and their arising publications and to highlight examples of best-practice PRO protocol content and reporting where they occur. The objective of this study is to determine if these early findings are generalisable to UK cancer trials, and if so, how best we can bring about future improvements in clinical trials methodology to enhance the way PROs are assessed, managed and reported. Hypothesis: Trials in which the primary end point is based on a PRO will have more complete PRO protocol and publication components than trials in which PROs are secondary end points.

Methods and analysis Completed National Institute for Health Research (NIHR) Portfolio Cancer clinical trials (all cancer specialities/age-groups) will be included if they contain a primary/secondary PRO end point. The NIHR portfolio includes cancer trials, supported by a range of funders, adjudged as high-quality clinical research studies. The sample will be drawn from studies completed between 31 December 2000 and 1 March 2014 (n=1141) to allow sufficient time for completion of the final trial report and publication. Two reviewers will then review the protocols and arising publications of included trials to: (1) determine the completeness of their PRO-specific protocol content; (2) determine the proportion and completeness of PRO reporting in UK Cancer trials and (3) model factors associated with PRO protocol and reporting completeness and with PRO reporting proportion.

Ethics and dissemination The study was approved by the ethics committee at University of Birmingham (ERN_15-0311). Trial findings will be disseminated via presentations at local, national and international conferences, peer-reviewed journals and social media including the CPROR twitter account and UOB departmental website (http://www.birmingham.ac.uk/cpro0r).

Audit report on County Social Services for the year ended June 30, 2015

Audit report on County Social Services for the year ended June 30, 2015

Perfis de Redes Sociais Pessoais de Idosos com e Sem Apoio de Respostas Sociais: um contributo para o desenvolvimento de tipologias no Diagnóstico Social

Sendo um dos objetivos do Serviço Social a promoção do bem-estar social, e considerando a relevância das redes sociais pessoais e do suporte social no bem-estar das pessoas idosas, o presente estudo analisa perfis de redes sociais pessoais de idosos, tendo em conta as suas características estruturais, funcionais e relacionais-contextuais, na perspectiva do Serviço Social sistémico. Na última etapa da vida identificam-se na rede social de um individuo vários determinantes com efeitos cumulativos que favorecem o estreitamento das redes sociais, sendo os contextos de vida, as necessidades de apoio de respostas sociais e a institucionalização, fatores relevantes para a investigação. A investigação quantitativa, utilizou um inquérito por questionário para caracterizar sociodemograficamente a amostra e o Instrumento de Análise de Rede Social Pessoal (Guadalupe, 2009) para caracterizar a rede nas suas dimensões e características, privilegiando-se uma análise bivariada das variáveis. A amostra é composta por 317 idosos com idade igual ou superior a 65 anos. Comparámos três subamostras: 209 idosos que não usufruem do apoio de respostas sociais (65,9%), sendo estes maioritariamente de sexo feminino, casado(a)s ou a viver em união de facto e com média de 75 anos; 71 idosos que usufruem de apoio de respostas sociais (22,4%), na sua maioria de sexo feminino, viúvo(a)s e com 80 anos de média de idade; 37 idosos institucionalizados em Lar (11,7%), mulheres na sua maioria, viúvo(a)s, com média de 83 anos. A hipótese inicial do nosso estudo era a existência de três perfis distintos nas redes sociais pessoais de idosos, conforme a sua relação com as respostas sociais, no entanto, concluiu-se que existe um padrão comum nas redes sociais destes idosos, quer a nível estrutural, como a nível funcional ou contextual. Todavia, identificamos algumas diferenças significativas (p < 0,041) entre os perfis explorados, na composição das redes, na reciprocidade de apoio, na satisfação da rede, na densidade, na frequência de contactos, na distância geográfica e na durabilidades das relações. O estudo constitui-se como um contributo para o Serviço Social, na medida em que oferece conhecimento sobre as redes sociais dos idosos em diferentes contextos de vida, não oferecendo, no entanto, uma categorização que possibilite a construção cabal de tipologias, mas antes, fornece uma base orientadora da avaliação das redes sociais pessoais e de suporte social de idosos para o diagnóstico social. / Being one of Social Work goals the promotion of social well-being, and considering the relevance of personal social networks and social support in the well-being of the elderly, the present study analyzes personal social network’s profiles of elderly people, taking into account their structural, functional and relational-contextual characteristics, in a Social Work systemic perspective. In the last stage of life are identified in an individual's various social network determinants with cumulative effects favouring the narrowing of social networks, being life contexts, the support needs of social responses and institutionalization, relevant factors to the investigation. Our quantitative research used a survey to characterize socially and demographically the sample and the Personal Social Network Analysis Tool (Guadalupe, 2009) to characterize the network in its dimensions and characteristics, using a bivariate analysis of the variables. The sample is composed of 317 elderly aged 65 years old or more. We compared three sub-samples: 209 seniors who do not have the support of social services (65.9%), mostly female, married or cohabiting and with an average of 75 years old; 71 seniors who have support of social services (22.4%), mostly women, widowed and with 80 years of average age; 37 institutionalized elderly (11.7%), mostly women, widowed, with an average age of 83 years. The initial hypothesis of our study was the existence of three distinct personal profiles on social networks, according to their relationship to the social services, however, we have concluded that there is a common pattern in social networks of these elderly, at their structural, functional or contextual level. However, we identified some significant differences (p < 0.041) between the explored profiles, in the composition of networks, support reciprocity, network satisfaction, density, frequency of contacts, geographical distance and durability of relations. The study is a contribution to Social Work, insofar as it provides knowledge about personal social networks of the elderly in different life contexts, not offering, however, a fully categorization that allows the construction of typologies, but rather, provides guidance lines in the evaluation of personal social networks and social support of the elderly to the social diagnosis.

Participação Social e Redes Sociais Pessoais de Idosos

Objetivo: O objetivo central deste estudo é caracterizar as redes sociais pessoais de indivíduos com idade igual ou superior a 65 anos, a nível estrutural, funcional e relacional-contextual, analisando-as segundo o nível de participação social dos idosos ao longo da sua vida em estruturas comunitárias ligadas ao lazer, cultura, desporto, religião e voluntariado. Metodologia: Para a avaliação das variáveis em estudo foram utilizados o Instrumento de Análise da Rede Social Pessoal, versão para idosos (IARSP – Idosos) (Guadalupe, 2010; Guadalupe & Vicente, 2012) para avaliar as dimensões da rede social pessoal, um questionário para caracterizar as variáveis sociodemográficas e a participação social e a Satisfaction With Life Scale – SWLS (Diener, 1985) que permite avaliar o grau de satisfação com a vida. Participantes: A amostra é constituída por 567 idosos, com uma média de idades de 75 anos (DP=7,6), entre os 65 anos e os 98 anos, maioritariamente do sexo feminino (63,0%), casados ou em união de facto (53,7%) e com escolaridade (69,8%), sobretudo ao nível do quarto ano (51,3%). A maioria dos idosos inquiridos não vive só (79,4%) numa zona de residência maioritariamente inserida em aglomerado populacional em região rural (57,0%) e não usufrui de qualquer tipo de apoio de resposta social (75,5%). Resultados: A amostra divide-se entre os que participaram comunitariamente ao longo da vida (47,8%; n = 271) e os que não participaram (52,2%; n = 296), sendo que entre os que participam 16,7% fazem-no com elevada frequência. Os idosos do sexo feminino, com idade igual ou inferior a 75 anos, casados, com habilitações literárias e que vivem acompanhados, são os que têm uma maior probabilidade de ter uma participação social mais ativa. Os idosos que apresentam participação social têm uma rede maior, com um membro a mais em média (M = 8,52 vs. 7,51, p = 0,027), e uma composição distinta dos que não participam, com menor peso das relações familiares (M = 72,61% vs. 80,81%, p < 0,001), maior peso e mais relações de amizade (M = 15,43% vs. M = 9,24%, p < 0,001) e maior presença de relações de trabalho (M = 1,11% vs. 0,13%, p = 0,006). Relativamente às características funcionais, podemos constatar que a reciprocidade de apoio é percebida como maior (p = 0,010) entre os idosos que participam comunitariamente, não se verificando diferenças noutras variáveis funcionais e relacionais-contextuais. O nível de participação e a satisfação com o nível de participação correlacionam-se positivamente com a satisfação percebida com a vida (p < 0,001). Conclusão: As conclusões apontam para um efeito da participação social ao longo da vida em estruturas comunitárias nas características estruturais das redes sociais pessoais dos idosos, não se verificando interferência na maioria das características funcionais e nas relacionais-contextuais. Verificámos ainda que há uma associação entre a participação social e a satisfação com a vida, sendo mais satisfeitos os que participam em estruturas comunitárias. É possível constatar que a rede daqueles que referem ter participação social é tendencialmente maior e heterogénea na composição, quando comparada com as redes dos sem participação social, assumindo, assim, relevância na estruturação de uma rede mais diversa e ampla, devendo ser estimulada no sentido de promover uma rede com recursos potencialmente positivos e um envelhecimento mais ativo. / Objectives: The central objective of this study is to characterize the personal social networks of the elderly, aged 65 years or more, analyzing them according to the level of social participation throughout their life in community structures related to leisure, culture, sports, religion and volunteering. Methodology: For the evaluation of the variables we used the Social Network Analysis Tool (IARSP-elderly) (Guadalupe, 2010; Guadalupe Vicente, 2012) to assess the dimensions of the social network; a questionnaire to evaluate social participation; and the Satisfaction With Life Scale SWLS – (Diener, 1985) to acess the degree of satisfaction with life. Participants: The sample consists of 567 elderly, with an average age of 75 years old (SD = 7,595), between 65 and 98 years old, mostly female (63.0 %), married (53.7%) with education (69.8%), mainly with the 4th grade (51.3%). Most of the respondents do not live alone (79.4%) in agglomerations in rural region (57.0%) and are not users of social services (75.5%). Results: The sample is divided between those who had community participation throughout life (47.8 %; n = 271) and those who did not participated (52,2%; n = 296). Between the first, 16.7% do it with high frequency. The elderly women, aged less than 75 years old, married, with educational qualifications and living not alone, are those who have a higher likelihood of having a more active social participation. The elderly that present social participation have a larger network, with one more member (M = 8,52 vs. 7,51, p = 0,027), and a composition distinct from not participating, with less proportion of family relations (M = 72,61% vs. 80,81%, p < 0,001), greater proportion and more friendships (M = 15,43% vs. M = 9,24%, p < 0,001) and greater presence of working relations (M = 1,11% vs. 0,13%, p = 0,006). Regarding the functional dimension, the reciprocity of support is perceived as higher (p = 0.010) among seniors participating in community and there were no differences in other functional and relational-contextual variables. The level of participation and satisfaction with the level of participation correlate positively with perceived satisfaction with life (p <0.001). Conclusion: The findings point to an effect of lifelong social participation in community in structural characteristics of personal social networks of the elderly, not verifying interference in most of the functional and the contextual-relational characteristics. We have also found that there is an association between social participation and life satisfaction, being more satisfied when they participate in community structures. The social network of the elderly who reported having social participation tends to be larger and heterogeneous in composition compared with those without social participation, thus assuming importance in structuring a more diverse and extensive network, should be encouraged in order to promote a network with potentially positive resources and a more active aging.

Evaluation of a Quality Improvement (QI) Intervention for Maternal, Newborn, and Child Health (MNCH) in Colombia: The Mil Días Intervention of SINERGIAS in the Department of Bolívar

Thesis (Master's)--University of Washington, 2016-06

Developing leadership in managers to facilitate the implementation of national guideline recommendations : a process evaluation of feasibility and usefulness

Background: Previous research supports the claim that managers are vital players in the implementation of clinical practice guidelines (CPGs), yet little is known about interventions aiming to develop managers’ leadership in facilitating implementation. In this pilot study, process evaluation was employed to study the feasibility and usefulness of a leadership intervention by exploring the intervention’s potential to support managers in the implementation of national guideline recommendations for stroke care in outpatient rehabilitation. Methods: Eleven senior and frontline managers from five outpatient stroke rehabilitation centers participated in a four-month leadership intervention that included workshops, seminars, and teleconferences. The focus was on developing knowledge and skills to enhance the implementation of CPG recommendations, with a particular focus on leadership behaviors. Each dyad of managers was assigned to develop a leadership plan with specific goals and leadership behaviors for implementing three rehabilitation recommendations. Feasibility and usefulness were explored through observations and interviews with the managers and staff members prior to the intervention, and then one month and one year after the intervention. Results: Managers considered the intervention beneficial, particularly the participation of both senior and frontline managers and the focus on leadership knowledge and skills for implementing CPG recommendations. All the managers developed a leadership plan, but only two units identified goals specific to implementing the three stroke rehabilitation recommendations. Of these, only one identified leadership behaviors that support implementation. Conclusion: Managers found that the intervention was delivered in a feasible way and appreciated the focus on leadership to facilitate implementation. However, the intervention appeared to have limited impact on managers’ behaviors or clinical practice at the units. Future interventions directed towards managers should have a stronger focus on developing leadership skills and behaviors to tailor implementation plans and support implementation of CPG recommendations.

Evaluation of Mobile Telephone Text Message Reminders for People with Antipsychotic Medication

Nonadherence to treatment is a worldwide problem among people with severe mental disorders. Patient treatment adherence may be supported with simple reminding methods e.g. text message reminders. However, there is limited evidence of its benefits. Intervention evaluation is essential in mHealth research. Therefore, this evaluative study was conducted. This study aimed to evaluate text message reminder use in encouraging patients’treatment adherence among people with antipsychotic medication. The data were collected between September 2011 and December 2013. First, a systematic literature review revealed that text message reminders were widely used in healthcare. However, its impacts were conflicting. Second, a sub-sample (n = 562) analysis showed that patients preferred humorous text message reminders and preferred to receive them in the morning, at the beginning of the week. Age, gender and marital status seemed to have different effects on the preferred amount and timing of the selected reminders. Third, a cross-sectional survey revealed that people with antipsychotic medication (n = 408) expressed overall satisfaction towards the reminder system. Finally, the evaluative design showed that patient recruitment for a randomized controlled trial concerning people with antipsychotic medication was challenging due to low rates of eligible participants. Follow-up drop-out rates varied depending on the data collection method. Participants’ demographic characteristics were associated with the risk of dropping out from the trial. This study suggests that text messages are a potential reminder system in healthcare services among people with antipsychotic medication. More research is needed to gain a comprehensive picture of the impacts and effectiveness of text message reminders.

Evaluation of Community-led Complementary Feeding and Learning Sessions

Thesis (Master's)--University of Washington, 2016-08

New Framework and Metrics for Economic Evaluation of Medical Technology in the Presence of Heterogeneity and Its Application to the Evaluation of Bariatric Surgery

Thesis (Ph.D.)--University of Washington, 2016-07

Preliminary Development and Psychometric Evaluation of the ACL Scale: Factor Structure, Measurement Invariance, Reliability, and Validity

Thesis (Master's)--University of Washington, 2016-08

PICTOAPRENDE: Design and evaluation of a tool that contributes to the personal autonomy of children and youth diagnosed with autism spectrum disorder in Ecuador

This paper presents the development and evaluation of PICTOAPRENDE, which is an interactive software designed to improve oral communication. Additionally, it contributes to the development of children and youth who are diagnosed with autism spectrum disorder (ASD) in Ecuador. To fulfill this purpose initially analyzes the intervention area where the general characteristics of people with ASD and their status in Ecuador is described. Statistical techniques used for this evaluation constitutes the basis of this study. A section that presents the development of research-based cognitive and social parameters of the area of intervention is also shown. Finally, the algorithms to obtain the measurements and experimental results along with the analysis of them are presented.

G181(P) Evaluation of a new e-health intervention in neonatal care : perspectives of parents and health professionals.

Aim This paper will report findings from the first phase of an evaluation of a new e-health intervention designed to allow mothers to ‘see’ their baby in neonatal care (NNU) when they are not able to be with them. The intervention, MyLittleOne, involves a web-camera being placed over the incubator in NNU, which transmits a real-time video wirelessly to a coupled tablet device at the mother’s bedside. Guided by the MRC Framework for the Development and Evaluation of Healthcare Interventions (MRC, 2008), the aim was to explore parent and professional views of the technology and make recommendations for its future development, use and evaluation. Methods A qualitative approach was adopted, guided by a critical realist perspective (McEvoy and Richards, 2003). The study took place in a Level 3 NNU in Scotland. Participants were recruited purposively and included parents (n = 33) and a range of health professionals working in neonatal and postnatal care (n = 21). The data were collected during semi-structured individual, paired and small group interviews and were analysed thematically using NVivo v10. Results The majority of parents and professionals spoke positively about MyLittleOne. Perceptions were that: use of the technology assisted bonding and responsiveness; it promoted the recovery process following birth; and, for mothers who wished to breast-feed, being able to see their baby on the tablet device encouraged the ‘let-down’ reflex. An additional benefit was that siblings and others who may not be able to visit the NNU were able to see the baby. In contrast, for a small number of mothers, viewing their baby remotely appeared to increase their levels of anxiety. Switching off the camera during a medical procedure and back on after the procedure was completed was found to be problematic, at times and in different ways, for both parents and professionals. Conclusions Findings from this preliminary evaluation will guide future developments of the technology, including its use in family homes following the mother’s discharge. The findings will also inform the design of a feasibility study and subsequent RCT to assess the impact of MyLittleOne on a range of psychological indicators of postnatal adjustment.

Supporting self-management: development and evaluation of a digital resource for adults with asthma

The problem: Around 300 million people worldwide have asthma and prevalence is increasing. Support for optimal self-management can be effective in improving a range of outcomes and is cost effective, but is underutilised as a treatment strategy. Supporting optimum self-management using digital technology shows promise, but how best to do this is not clear. Aim: The purpose of this project was to explore the potential role of a digital intervention in promoting optimum self-management in adults with asthma. Methods: Following the MRC Guidance on the Development and Evaluation of Complex Interventions which advocates using theory, evidence, user testing and appropriate modelling and piloting, this project had 3 phases. Phase 1: Examination of the literature to inform phases 2 and 3, using systematic review methods and focussed literature searching. Phase 2: Developing the Living Well with Asthma website. A prototype (paper-based) version of the website was developed iteratively with input from a multidisciplinary expert panel, empirical evidence from the literature (from phase 1), and potential end users via focus groups (adults with asthma and practice nurses). Implementation and behaviour change theories informed this process. The paper-based designs were converted to the website through an iterative user centred process (think aloud studies with adults with asthma). Participants considered contents, layout, and navigation. Development was agile using feedback from the think aloud sessions immediately to inform design and subsequent think aloud sessions. Phase 3: A pilot randomised controlled trial over 12 weeks to evaluate the feasibility of a Phase 3 trial of Living Well with Asthma to support self-management. Primary outcomes were 1) recruitment & retention; 2) website use; 3) Asthma Control Questionnaire (ACQ) score change from baseline; 4) Mini Asthma Quality of Life (AQLQ) score change from baseline. Secondary outcomes were patient activation, adherence, lung function, fractional exhaled nitric oxide (FeNO), generic quality of life measure (EQ-5D), medication use, prescribing and health services contacts. Results: Phase1: Demonstrated that while digital interventions show promise, with some evidence of effectiveness in certain outcomes, participants were poorly characterised, telling us little about the reach of these interventions. The interventions themselves were poorly described making drawing definitive conclusions about what worked and what did not impossible. Phase 2: The literature indicated that important aspects to cover in any self-management intervention (digital or not) included: asthma action plans, regular health professional review, trigger avoidance, psychological functioning, self-monitoring, inhaler technique, and goal setting. The website asked users to aim to be symptom free. Key behaviours targeted to achieve this include: optimising medication use (including inhaler technique); attending primary care asthma reviews; using asthma action plans; increasing physical activity levels; and stopping smoking. The website had 11 sections, plus email reminders, which promoted these behaviours. Feedback during think aloud studies was mainly positive with most changes focussing on clarification of language, order of pages and usability issues mainly relating to navigation difficulties. Phase 3: To achieve our recruitment target 5383 potential participants were invited, leading to 51 participants randomised (25 to intervention group). Age range 16-78 years; 75% female; 28% from most deprived quintile. Nineteen (76%) of the intervention group used the website for an average of 23 minutes. Non-significant improvements in favour of the intervention group observed in the ACQ score (-0.36; 95% confidence interval: -0.96, 0.23; p=0.225), and mini-AQLQ scores (0.38; -0.13, 0.89; p=0.136). A significant improvement was observed in the activity limitation domain of the mini-AQLQ (0.60; 0.05 to 1.15; p = 0.034). Secondary outcomes showed increased patient activation and reduced reliance on reliever medication. There was no significant difference in the remaining secondary outcomes. There were no adverse events. Conclusion: Living Well with Asthma has been shown to be acceptable to potential end users, and has potential for effectiveness. This intervention merits further development, and subsequent evaluation in a Phase III full scale RCT.