Biliary atresia: Swiss national study, 1994-2004.

OBJECTIVES: To determine the epidemiology of biliary atresia (BA) in Switzerland, the outcome of the children from diagnosis, and the prognostic factors. PATIENTS AND METHODS: The records of all patients with BA born in Switzerland between January 1994 and December 2004 were analyzed. Survival rates were calculated with the Kaplan-Meier method, and prognostic factors evaluated with the log rank test. Median follow up was 58 months (range, 5-124). RESULTS: BA was diagnosed in 48 children. Incidence was 1 in 17,800 live births (95% confidence interval 1/13,900-1/24,800), without significant regional, annual, or seasonal variation. Forty-three children underwent a Kasai portoenterostomy (PE) in 5 different Swiss pediatric surgery units. Median age at Kasai PE was 68 days (range, 30-126). Four-year survival with native liver after Kasai PE was 37.4%. Liver transplantation (LT) was needed in 31 in 48 children with BA, including 5 patients without previous Kasai PE. Four patients (8%, all born before 2001) died while waiting for LT, and 29 LT were performed in 27 patients (28 in Geneva and 1 in Paris). All of the transplanted patients are alive. Four-year overall BA patient survival was 91.7%. Four-year survival with native liver was 75% in patients who underwent Kasai PE before 46 days, 33% in patients operated on between 46 and 75 days, and 11% in patients operated on after 75 days (P = 0.02). CONCLUSIONS: Overall survival of patients with BA in Switzerland compares favorably with current international standards, whereas results of the Kasai operation could be improved to reduce the need for LTs in infancy and early childhood.

Iowa’s Historic Automobile Roads A National Register Study of Pre-1948 Arterial Highways, 2009

This study of Iowa’s Historic Automobile Roads has been prepared by the Highway Archaeology Program under the terms of an annual cultural resource surveys contract between the Iowa DOT and The University of Iowa. Under this agreement, state transportation funds are appropriated by the Iowa DOT for The University of Iowa Highway Archaeology Program to locate and determine the significance of cultural resources in the area of proposed highway and transportation improvement work. Cultural resources include archaeological, historical, and architectural sites. The study of Iowa’s Historic Automobile Roads reported herein, including archival research and survey, was conducted between June 2002 and June 2007, by Marlin R. Ingalls and Maria F. Schroeder. The University of Iowa Highway Archaeology Program is solely responsible for the content and accuracy of these reports with respect to site location description, interpretation, and recommendations. Duplicate project reports are filed at the State Historic Preservation Office (SHPO), Community Programs Bureau in Des Moines. Illustrations in this report may have been altered for clarity and sized to fit the page.

Audit report on America’s Agricultural Industrial Heritage Landscape, Inc., d/b/a Silos and Smokestacks National Heritage Area (Silos and Smokestacks), in Waterloo, Iowa for the years ended December 31, 2009 and 2008

Audit report on America’s Agricultural Industrial Heritage Landscape, Inc., d/b/a Silos and Smokestacks National Heritage Area (Silos and Smokestacks), in Waterloo, Iowa for the years ended December 31, 2009 and 2008

DOI: The "Big Brother" in the dissemination of scientific documentation

Rapid growth in the availability and use of digital documents has prompted the development of instruments to handle them. A most important example of these instruments are digital identifiers, which provide a codification system that allows digital items, usually up to the level of a computer file, to be singled out and located. Digital identifiers make up standardized global systems applied to specific products or areas. They are part of the very many identifiers developed to handle large numbers of items and large amounts of information for transactional purposes, which often have a global span. Digital identifiers include the ubiquitous Global Trade Item Number (GTIN), a code that unequivocally identifies trade items all around the world. The GTIN can take on several configurations depending on its application. These include: EAN-13, EAN-8, EAN-14, and UCC-12. EAN-13 is the code used for retail products in order to facilitate trade at the point of sale; its widely known symbol or graphical form is the EAN/UPC-13 bar code...

Webs sempre accessibles: les biblioteques nacionals i els dipòsits digitals nacionals

Information and communication technologies enabled cultural and scientific patrimony -and information in general- to be presented in digital format, as well as in traditional analogical formats. The response was immediate and since the decade of the 1990s different projects have been designed to guarantee permanent access to the digital production -retrieval, storage, handling, preservation and dissemination. This article presents an international overview of existing models of national digital repositories, a name given to these projects that are normally generated by national libraries with a common objective: ensuring that web pages are always accessible.

Webs siempre accesibles: las bibliotecas nacionales y los depósitos digitales nacionales

Information and communication technologies enabled cultural and scientific patrimony -and information in general- to be presented in digital format, as well as in traditional analogical formats. The response was immediate and since the decade of the 1990s different projects have been designed to guarantee permanent access to the digital production -retrieval, storage, handling, preservation and dissemination. This article presents an international overview of existing models of national digital repositories, a name given to these projects that are normally generated by national libraries with a common objective: ensuring that web pages are always accessible.