Pharmaceuticals and the consumer movement: the ambivalences of 'patient power'

Consumer and patient advocacy groups (PAGs) are important participants in the politics of pharmaceuticals. Yet very little is known about the precise nature and extent of their influence. It is argued in this article that PAGs fulfil a mixed role within the health system at national and transnational levels, and that they are at times fully incorporated into economic and political power structures. Their frequent dependence on pharma industry funding is of particular concern. PAGs provide a means of direct industry interaction with the final customer, thereby partially bypassing and putting additional pressure on doctors and regulators. The article presents the case for research to establish a better empirical base for discussions about the role of PAGs within contemporary neo-liberal governance structures.

Mystery and movement: doing more with dominoes

John Gough explains how to turn an ordinary set of dominoes into games of mystery, movement and strategy.

Social-movement unionism in theory and in Sweden

Many union leaders and observers of unionism in industrially advanced countries have recently argued for stronger links between unions and social movements but their arguments leave the nature of social movements underspecified. This article reviews the literature on social movements and argues in favour of a minimalist theory of the social actor rather than choose between American and European approaches to studying social movements. Both Melucci's European approach and McAdam, Tarrow, and Tilly's American approach to integrating the European and American schools of thought on social movements are inadequate to the task of specifying social-movement unionism. Hindess's minimalist theory of the social actor and articulated arenas of conflict offers a stronger approach to understanding social-movement unionism and appreciating its strategic pertinence in particular times and places. Two episodes of contention in Sweden illustrate the advantages of a minimalist theory of articulated social-movement unionism.

Social movement unionism and networked technology

From a European perspective, the wide-ranging social, economic, and political effects of networked computers have generated tensions between 'new' social movements and the 'old' labour movement. From an American perspective on social movements, there is no such tension between old and new social movements. A study of social-movement unionism in Sweden offers a interesting means of testing this emerging American perspective against the European perspective because the labour movement has long been particularly effective and networked technology has been embraced whole-heartedly throughout all aspects of the society, the economy, and the polity. The paper introduces the contrasting European and American perspectives on social movements and presents examples of the practice of social-movement unionism among Swedish social democrats, unionists, and diverse local activists. These examples support conclusions that eschew utopian theories of 'cyberunionism' in favour of developing a theory of articulated unionism in which local unions branches articulate vertically with national and global union bodies, and articulate horizontally with social movements in other arenas of conflict.

Mega-events and the "Showcase" effect: investigating the moderating influence of exposure to the 2004 Olympic games telecast and interest in the Olympic movement- an Australian perspective

Survey-based research explored the moderating effects of "exposure" to the Australian free-to-air telecast of Athens 2004 and "interest" in Olympic Games in developing behavioral intentions to visit Greece in the future. Differences were found between groups with low and high levels of exposure to the telecast, and also between groups with high levels of interest in the Olympic Games, but these were only marginal. When the combinatorial influences of these two variables were considered simultaneously, their effects were generally synergistic. The article calls for further research on this area of mega-events, as the results, while of significance, provide food to continue the broader debate on the role of mega-events in developing tourism to their host destinations after their staging.

A structural events approach to examining long-term change in the Australian trade union movement, 1969-1996

Traditional studies of long-term change in trade union structure have predominantly focused on aggregate trends in union merger activity, in constructing explanations of change. This paper argues that our understanding of structural change in the Australian trade union movement would be better served by a structural events approach that examines the incidence of union formations, dissolutions, and breakaways, in addition to that of union mergers. In doing so, it outlines how these structural events can be identified and measured, and presents the preliminary findings from the methods application.

Moving from voluntary euthanasia to non-voluntary euthanasia: equality and compassion

The recent Dutch law legalising active voluntary euthanasia will reignite the euthanasia debate. An illuminating method for evaluating the moral status of a practice is to follow the implications of the practice to its logical conclusion. The argument for compassion is one of the central arguments in favour of voluntary active euthanasia. This argument applies perhaps even more forcefully in relation to incompetent patients. If active voluntary euthanasia is legalised, arguments based on compassion and equality will be directed towards legalising active non-voluntary euthanasia in order to make accelerated termination of death available also to the incompetent. The removal of discrimination against the incompetent has the potential to become as potent a catch-cry as the right to die. However, the legalisation of non-voluntary euthanasia is undesirable. A review of the relevant authorities reveals that there is no coherent and workable "best interests" test which can be invoked to decide whether an incompetent patient is better off dead. This provides a strong reason for not stepping onto the slippery path of permitting active voluntary euthanasia.

Internal representation of movement in children with developmental coordination disorder : a mental rotation task

Recent studies show that children with developmental coordination disorder (DCD) have difficulties in generating an accurate visuospatial representation of an intended action, which are shown by deficits in motor imagery. This study sought to test this hypothesis further using a mental rotation paradigm. It was predicted that children with DCD would not conform to the typical pattern of responding when required to imagine movement of their limbs. Participants included 16 children with DCD and 18 control children; mean age for the DCD group was 10 years 4 months, and for controls 10 years. The task required children to judge the handedness of single-hand images that were presented at angles between 0° and 180° at 45° intervals in either direction. Results were broadly consistent with the hypothesis above. Responses of the control children conformed to the typical pattern of mental rotation: a moderate trade-off between response time and angle of rotation. The response pattern for the DCD group was less typical, with a small trade-off function. Response accuracy did not differ between groups. It was suggested that children with DCD, unlike controls, do not automatically enlist motor imagery when performing mental rotation, but rely on an alternative object-based strategy that preserves speed and accuracy. This occurs because these children manifest a reduced ability to make imagined transformations from an egocentric or first-person perspective.

The free Aceh movement : Islam and democratisation

The Free Aceh Movement (GAM) has been characterised by some observers and the Indonesian government as being a radical Islamic organisation intent on establishing an Islamic state in northern Sumatra. This article explores GAM's relationship with Islam and shows that while GAM members are devout Muslims and that Islam pervades their political thinking, the organisation and its members are explicitly opposed to the creation of an Islamic state or the imposition of Islamic law. The article reports how senior members of GAM's hierarchy discuss their personal relationship with Islam, noting consistencies and differences in their approaches. A common theme is that Islam provides a motive for the struggle, based on notions of justice and equality, and that these and related aspects of Acehnese political organisation provide the groundwork for a functional form of democracy in Aceh's post-peace settlement environment.

Organisational decline and renewal in an Australian voluntary association

Voluntary associations are an integral fonn of social capital in democratic societies. These associations make vital contributions to community life. Many associations are successful in meeting the needs of their constituency and thrive over many decades. These long serving associations are not static vehicles, like all organisations, they are subject to internal and external pressures for change. It is a significant challenge for volunteer associations to maintain 'a watch' on the external environment whilst responding to the needs of their stakeholders. Previously vibrant associations may experience a decline in membership and social standing as a result of significant changes in society and technology. We track a nonprofit voluntary association from its inception in the 1960s through it responses to major environmental turbulence during the late 1980s, 1990s, and early 2000s when the survival of
the organisation was in doubt. We outline the changes that took place from 2003 that reorientated, revitalised and reshaped the association including a major shift in focus from services to members to services to the community. This study provides academics and practitioners with an appreciation of the forces of organisational decline and a case study of successful change in a voluntary association.