"Ho cominciato a perdere le scarpe". La ridefinizione del mondo nelle narrazioni di pazienti affetti da sclerosi multipla

Il lavoro di tesi analizza da un punto di vista metodologico e concettuale le narrazioni di malattia delle persone affette da sclerosi multipla. Lo scopo della ricerca è duplice: da un lato quello di indagare quali siano le trame narrative di coloro che raccontano la diagnosi della loro malattia, e dall’altro di analizzare i vissuti di malattia attraverso le categorie della sociologia della salute e della medicina e dell’antropologia medica.

Transnational Marriage: Modern Imaginings, Relational Realignments, and Persistent Inequalities

In the context of shifting cultural anchors as well as unstable global economic conditions, new practices of intimacy and sexuality may become tactics in an individual’s negotiation of conflicting desires and potentials. This article offers reflection on the interface between global forces, powerful transcultural narratives, and state policies, on the one hand, and local, even individual, constructions and tactics in regard to sexuality, marriage, migration, and work, on the other. The article focuses on the life trajectory of Gudiya, an ambitious young Hindu woman who started out life with little social capital and few economic resources in a dusty corner of what was then the tiny kingdom of Nepal. Gudiya’s story highlights the ways in which she has engaged in relational realignments aimed at bringing her closer to the life she imagines, even as she has encountered new and persistent forms of inequality both local and transnational in scale.

Klimawandel als soziale Konstruktion?

Die Autoren gehen davon aus, dass es soziale und kulturräumliche Unterschiede in den Wahrnehmungsweisen von zukünftigen Klimarisiken gibt und begründen ihre Annahme in theoretischer Hinsicht unter Hinzuziehung der sozialen Konstruktion der Wirklichkeit. Berichtet wird aus einem Forschungsprojekt, das die gesellschaftliche Verarbeitung von Klimarisiken in Küstenstädten der südlichen Nord- und Ostsee im Hinblick darauf untersucht, welche Vorstellungen von einer Vulnerabilität und Resilienz vorliegen. Ausführlich wird das methodische Design der Studie dargestellt. Im Rahmen einer Methodentriangulation wird eine standardisierte Delphi-Expertenbefragung mit einer wissenssoziologischen Diskursanalyse verbunden, um sowohl bisherige als auch zukünftige Vorstellungen von Vulnerabilität und Resilienz zu erheben. Am Beispiel ausgewählter Ergebnisse wird empirisch nachgewiesen, dass Wahrnehmungsunterschiede von Klimarisiken größer sind als angenommen. Die Ergebnisse sind allein aus den Delphi-Daten nicht erklärbar. Ein möglicher Erklärungsansatz ergibt sich ergänzend aus den Erkenntnissen der wissenssoziologischen Diskursanalyse.

Das Verhältnis zwischen Urheberrecht und Wissenschaft: Auf die Perspektive kommt es an!

Since the advent of digital network technologies, copyright has become a highly contentious political matter. This is also true in the area of scientific works and the scholarly communication system in general. However, whether the relationship between copyright and scholarship is considered problematic and which, if any, alternative approaches to the current system are preferred, depends upon the perspective. In that regard, the article distinguishes a copyright perspective from a perspective that takes as its starting point the philosophy and sociology of science. The article shows that only the latter, scientific perspective is capable of explaining and adequately regulating the current, fundamental change taking place in the scholarly communication system.

Environmental justice and health practices: understanding how health inequities arise at the local level

While empirical evidence continues to show that people living in low socio-economic status neighbourhoods are less likely to engage in health-enhancing behaviour, our understanding of why this is so remains less than clear. We suggest that two changes could take place to move from description to understanding in this field; (i) a move away from the established concept of individual health behaviour to a contextualised understanding of health practices; and (ii) a switch from focusing on health inequalities in outcomes to health inequities in conditions. We apply Pierre Bourdieu's theory on capital interaction but find it insufficient with regard to the role of agency for structural change. We therefore introduce Amartya Sen's capability approach as a useful link between capital interaction theory and action to reduce social inequities in health-related practices. Sen's capability theory also elucidates the importance of discussing unequal chances in terms of inequity, rather than inequality, in order to underscore the moral nature of inequalities. We draw on the discussion in social geography on environmental injustice, which also underscores the moral nature of the spatial distribution of opportunities. The article ends by applying this approach to the 'Interdisciplinary study of inequalities in smoking' framework.