Att vara anhörigvårdare till en lungcancersjuk patient

Syftet med denna systematiska litteraturstudie är att undersöka upplevelser hos anhörigvårdare till lungcancerpatienter. Artikelsökningar har skett i Cinahl och Pubmed. Tiden för anhörigvårdaren kan se olika ut, kort och intensiv eller lång och utmattande. Upplevelser så som skräck är vanligt förekommande direkt efter lungcancerdiagnosen både för patient och vårdare. Detta för att de anhöriga ställs inför ett klart hot om en kommande förlust samt skrämmande tankar kring döden. Hälsan försämras för anhörigvårdaren under vårdtiden och vissa drabbas av depression. De social relationerna försämras, vissa upphör helt då anhörigvårdaren får en känsla av att de alltid måste vara tillgängliga för den sjuke. Vårdbördan kan vara tung och emotionellt stöd kan vara nödvändigt. Trots det väljer många att inte ta emot eller söka något stöd.Inte bara hälsan förändras under sjukdomstiden utan också mycket annat, den som tidigare haft en passiv roll i hushållet kan bli tvungen att ta en mer aktiv roll i skötseln av hem och ekonomi. Trots att anhörigvårdare ofta känner sig utanför och övergivna väljer de att inte uttrycka sina känslor när de blir tillfrågade eftersom det finns en rädsla att ta fokus från patienten.

Att vårda patienter i rättspsykiatrisk vård som uppvisar självskadebeteende : sjuksköterskors erfarenheter och upplevelser

Deliberate self harm as defined pathologically as well as socially is becoming an increasing phenomenon within forensic psychiatry. Nurses working with patients who have self harm behaviour and are confined to forensic psychiatry face different challenges which affect their feelings and attitudes in different ways, in their nursing practice. Purpose: To explore nurses’ experiences of caring for patients who suffer from deliberate self harm behaviour and are confined to forensic psychiatry. Method: Qualitative semi- structured interview s from eight nurses working within the forensic psychiatric clinic. Interviews were analysed by using a qualitative content analysis. Results: They worked strategically and emphasized the importance of teamwork, good communication and urged for the need to get necessary education, staff focused tutoring and patient focused therapy. Conclusion: Need for necessary education, patient focused therapy and staff focused tutor is needed to empower staff working with patients who are confined within forensic psychiatry and suffer from deliberate self harm behaviour.

Vad utforskar barnen i den fria leken utomhus? : Ett naturvetenskapligt perspektiv

Syftet med studien är att undersöka vilka naturvetenskapliga fenomen/begrepp barn i åldern 3-4 år utforskar i den fria leken på förskolegården samt hur de gör när de utforskar. Som metod för att undersöka barnens utforskande användes ostrukturerade observationer vilka dokumenterades med hjälp av ett protokoll (löpande). Observationerna tolkades med stöd från tidigare forskning och litteratur inom naturvetenskap som utgör grund för studien. Resultatet av studien visar att de platser där barnen vistades mest och utforskade flest fenomen/begrepp var rutschkanorna och sandlådan. Vanligast att utforska var materialets egenskaper, och de fysikaliska begreppen tyngdkraft och friktion. De mest använda sätten att utforska de fysikaliska begreppen på var att använda sin kropp i rutschkanan och olika lekmaterial. Materialets egenskaper undersöktes genom att t.ex. prova sandens hållfasthet i tillverkning av sandkakor och genom att hälla sand på olika sätt. Utifrån resultatet har ett observationsmaterial konstruerats som har till syfte att kunna synliggöra vilka fenomen/begrepp barn utforskar inom naturvetenskap. Syftet är att pedagoger på förskolan ska kunna använda det vid t.ex. observationer och dokumentationer.  

Litteratur i gränszonen : Transnationella litteraturer i översättning ur ett nordiskt perspektiv

Antologin Litteratur i gränszonen analyserar texter som uppstått i sammanhang där olika språk mer eller mindre frivilligt samexisterar och ställer frågan om vad som händer när verk vandrar från ett språk till ett annat, från en kontext till en annan. Boken stammar ur ett antal workshopar kring översättning och reception av utomeuropeiska litteraturer i Norden och samlar forskningsrapporter från tio forskare från olika ämnen som kritiskt diskuterar olika aspekter av transnationalism i litteraturen. Uppsatserna bidrar inte bara till att belysa hur vi genom litteraturen bemöter det främmande utan har också som syfte att synliggöra och problematisera Nordens plats på det världslitterära fältet.

Patient participation : what it is and what it is not

In general, patient participation is regarded as being informed and partaking in decision making regarding one’s care and treatment. This interpretation is common in legislation throughout the Western world and corresponding documents guiding health care professionals, as well as in scientific studies. Even though this understanding of the word participation can be traced to a growing emphasis on individuals’ autonomy in society and to certain dictionary defi nitions, there are other ways of understanding participation from a semantic point of view, and no trace of patients’ descriptions of what it is to participate can be found in these definitions. Hence, the aim of this dissertation was to understand patients’ experience of the phenomenon of patient participation. An additional aim was to understand patients’ experience of non-participation and to describe the conditions for patient participation and non-participation, in order to understand the prerequisites for patient participation. The dissertation comprises four papers. The philosophical ideas of Ricoeur provided a basis for the studies: how communication can present ways to understand and explain experiences of phenomena through phenomenological hermeneutics. The first and second studies involved a group of patients living with chronic heart failure. For the fi rst study, 10 patients were interviewed, with a narrative approach, about their experience of participation and non-participation, as defi ned by the participants. For the second study, 11 visits by three patients at a nurse-led outpatient clinic were observed, and consecutive interviews were performed with the patients and the nurses, investigating what they experience as patient participation and non-participation. A triangulation of data was performed to analyse the occurrence of the phenomena in the observed visits. For paper 3 and 4, a questionnaire was developed and distributed among a diverse group of people who had recent experience of being patients. The questionnaire comprised respondent’s description of what patient participation is, using items based on findings in Study 1, along with open-ended questions for additional aspects and general issues regarding situations in which the respondent had experienced patient participation and/or non-participation. The findings show additional aspects to patient participation: patient participation is being provided with information and knowledge in order for one to comprehend one’s body, disease, and treatment and to be able to take self-care actions based on the context and one’s values. Participation was also found to include providing the information and knowledge one has about the experience of illness and symptoms and of one’s situation. Participation occurs when being listened to and being recognised as an individual and a partner in the health care team. Non-participation, on the other hand, occurs when one is regarded as a symptom, a problem to be solved. To avoid non-participation, the information provided needs to be based on the individual’s need and with recognition of the patient’s knowledge and context. In conclusion, patient participation needs to be reconsidered in health care regulations and in clinical settings: patients’ defi nitions of participation, found to be close to the dictionaries’ description of sharing, should be recognised and opportunities provided for sharing knowledge and experience in two-way-communication.

CALL FOR PAPERS Sociologisk Forskning: Temanummer : Samhällsvetenskapliga perspektiv på neuropsykiatriska funktionsnedsättningar

Sociologisk Forsknings digitala arkiv

Ricoeur och narrativen ur ett utbildningsvetenskapligt perspektiv

Inom ramen för denna text frågar jag mig hur Ricoeurs sätt att se på narrativen (livsberättelsen) kan användas i ett projekt om pedagogiskt ledarskap där livsberättelsen är central. Projektet, som delas med tre kollegor inom forskningsprofilen Utbildning och lärande vid Högskolan Dalarna, ifråga är ett empiriskt skolforskningsprojekt där ledmotiven pedagogiskt ledarskap och meningsfullt mångfaldsfrämjande är centrala och vars syfte är att belysa på vilka sätt lärares ledarskap kan leda till meningsfullt mångfaldsfrämjande av klassrummets mångfald. Metodologiskt tar denna ansats sin utgångspunkt i den forskningskontext som projektet skriver fram som ”ett normkritiskt förhållningssätt” och ”ifrågasättande av förgivettagna föreställningar”. Datainsamlingen baseras förutom observationer på livsberättelser från lärare i en vardagsnära skolkontext.

Bortom skolframgång : En analys av PISA 2006 ur ett intersektionellt perspektiv

Beyond school performance An analysis of PISA 2006 from an intersectional perspective One of the central questions in recent discussions about Swedish schools is which factors that influence school performance. Socio-economic background, gender, ethnicity, country of birth are some aspects that are mentioned in many international and national studies. Sweden is one of the participants in the Programme for International Student Assessment (PISA) and the results of PISA since 2000 show deteriorated results for Sweden in reading performance, mathematics and science among 15-year-old students. In order to set school performance in a broader context we analyzed data for the Swedish part of PISA 2006, in which 57 countries participated (of which 30 OECD-countries), with multivariate methods from an intersectional perspective. Our analysis of PISA 2006 shows a complexity of different social, economic and cultural factors behind students’ school performance. This intersectional result is also strengthened by the results from PISA 2009, not analysed here. Further, our results show that students’ school performance vary with immigration status but that this variation increases by the factor of social inequality in the Swedish society.

Viktordningen : ett analytiskt perspektiv

The weight order – an analytical perspective This article is an outline of a critically oriented and empirically grounded theory of the weight order, as a complement to theories of more widely recognized and studied ordering systems. We 1) expose the weight orders “absent presence” in humanistic and social science-oriented research treating overweight and fatness as a personal or social problem, 2) outline the contours and characteristics of this specific ordering system, and 3) suggest a set of sensitizing concepts for analysis of this ordering system. Two primary forms of activity, maintaining order and putting in order, are analysed. The first is making thin people into order and overweight people into disorder, and thus maintains order in the weight order. The other, putting in order, covers different activities supposed to make sure that people keep their bodies thin or try to become thin. These ordering activities meet resistance when overweight people stop dieting and/or define overweight as a personal choice and themselves as good enough, or even healthy and beautiful. We call these forms of resistance alternative weight-doings.  

Genrestratifiering och massmedias neutralisering av kritiken mot ADHD : Ett kunskapssociologiskt perspektiv

Genre stratification and the mass media’s neutralization of the critique of ADHD: A sociology of knowledge perspective This study examines how the Swedish mass media has dealt with the opposition against the neuropsychiatric diagnosis ADHD (Attention Deficit Hyperactivity Disorder). Drawing on empirical data from eight of the largest newspapers in Sweden (n=778 articles) the study focuses on the scientific controversy of DAMP, 2000–2006. DAMP (Dysfunction in Attention, Motor Control and Perception) is a diagnostic term denoting difficulties similar to ADHD, and which was used in Sweden at the time of the controversy. The study uncovers the ideological role played by the mass media during the DAMP-controversy, and demonstrates the significance of genre. While the spokespersons for DAMP/ADHD were given exclusive and systematic access to the news genre, the forum of fact-production in the mass media, the critics of DAMP/ADHD were confined to arguing and expressing their opinions in the debate genre. Based on the various effects of genre differences a comprehensive analytical tool for the sociology of knowledge, called genre stratification, is developed in the study 

Integration eller illusion : et deviance-perspektiv

Integration or illusion – a deviance perspective Denmark experienced one of its most successful periods of economic growth in 2004– 2008 with a tremendous reduction of unemployment, which in June 2008 was around. 1.5 percent, far below the expected level of structural unemployment. In the wake of this development the lack of utilization of migrants’ educations and skills became, once again, a core concern. The political, societal and academic debate followed to a great extent the traditional top-down approach to the problem and revolved around two axes: 1. How effective the labour market was/is to make use of migrants’ skills. 2. Whether there were patterns of over-education as expression of institutional and societal discrimination. The focus of the present study is, however, quite different: We examine the pattern of deviance in relation to labour market participation (not integration), and instead of searching for explanations for the lack of integration, we attempt to identify and explain the deviance pattern as a product of institutionally inherent possibilities and barriers on the one hand and articulating immigrants as rational actors (not victims) on the other. We argue that deviance is not only a more fruitful theoretical and analytical framework than integration and discrimination. Taking departure in empirical evidence on immigrants’ preferences and behaviour as bounded rational actors, and how they actually articulate their everyday life practical experiences, including adjustment of what they want and what they can, the deviance perspective, we believe, also reduces the theoretical and normative biases, that characterises the discrimination and integration framework, and provide more reliable explanations. 

Perspektiv på ålder i vardagslivets interaktioner

Perspective on age in everyday interactions The aim of the article is to discuss how ethnomethodology and (symbolic) interactionism may contribute to sociological studies on age in everyday interactions. A theoretical framework on age, ‘age-as-accomplished’, inspired by ethnomethodology and symbolic interactionist approach has been proposed by Laz (1998; 2003). Our comparison of these approaches show, that the perspectives are incompatible, for example with regard to the definitions of culture, interaction and meaning. As such issues are not discussed by Laz, the theoretical framework is lacking in transparency and clarity. Ultimately the definition of ‘age as accomplished’ is not congruent with the notions of meaning and interpretation as used by Laz. In some respects the perspectives may though be complementary and valuable in age studies, for example the detailed study of situated norms in ethnomethodology, as well as some new developments within (symbolic) interactionist perspectives focusing on social status, and issues of subordination and superordination as relational processes.