Les métamorphoses du rapport politique à la mort (recherche de pivots structurant la réflexion en médecine palliative)

Notre recherche explore quelques moments forts des métamorphoses du rapport politique à la mortalité sous examen des thèmes de l’interdit, de la dignité, de l’autonomie et de l’altérité. Nous dégageons des ancrages propices à nourrir la pensée actuelle en médecine palliative. Ainsi, nous livrons une enquête philosophique, appréciant pour nous Occidentaux, les influences marquantes des pensées gréco-romaine, chrétienne et moderne. Ces bases, édifiant notre monde politique, ont suscité l’émergence de la médecine palliative. C’est pourquoi, nous tentons de caractériser et de comprendre les problématiques nouvelles, dans leurs aspects politique et éthique, envisagées à l’aune des formes contemporaines d’accompagnement des mourants. Notre effort tente de discerner les aspirations et les impasses. L’étude de la métamorphose des repères fait ressortir une dissociation accentuée au fil du temps. En effet, au fur et à mesure, notre entreprise d’interprétation du fondement de ces questions politiques dévoilait : une reconnaissance universelle de l’interdit d’homicide, mais accusant une perte du lien moral au profit d’une visée amorale ; un aval unanime du respect de la dignité, mais manifestant une confusion et une division ostensible entre conceptions intrinsèque et extrinsèque ; une affirmation péremptoire de l’autonomie, mais avec une distanciation marquée au regard de la façon d’envisager la part de l’autre ; une déclinaison de liens humains reconnus de tous, mais exacerbés dans une tension artificielle entre individualisme et altruisme. Au surplus, en constatant la distance et la dislocation entre le public et le privé, entre la réclamation de fraternité et la recherche d’amicalité signifiante, nous avons envisagé la communauté palliative comme un lieu de résistance à cette décomposition menaçante au sein de la communauté politique. À terme de l’analyse, nous avons fondé les concepts « d’allonomie » et de « suspension éthique ». Il s’agit de contributions originales destinées à donner à la philosophie toute sa dimension sapientielle au service de l’accompagnement palliatif.

Prosocial Behaviour in Palliative Nurses: Psychometric Evaluation of the Prosociality Scale

Aim: The aim of this study was to examine the psychometric properties of a prosociality scale within the palliative nursing context, and then examine the impact of prosocial behaviour in relation to job and educational satisfaction among palliative nurses. Methods: An online cross-sectional survey was conducted in 25 Italian palliative care centres, with a total of 107 nurses completing the prosociality scale by Caprara et al (2005). Exploratory and confirmatory factor analyses were examined to evaluate a multidimensional model of prosociality. Results: A three-factor solution with a second order factor fitted the data well. The three dimensions extracted were labelled as helping, empathy, and sharing. Participants reported high levels of prosociality. In addition, prosociality was positively associated with job and educational satisfaction. Conclusions: The prosociality scale was valid and reliable when tested with palliative nurses. Although prosociality may be embedded in nurses’ personalities, this quality should be actively promoted to expand and improve the culture and the ethics of nursing.

Ivar Refsdals skoleatlas. Atlasets innhold og betydning for samtiden

Ivar Refsdal’s school atlases were the most used school atlases in Norway for most of the 20th century. The article shows that his maps where highly appreciated by his contemporary citizens as a new mean for geography education in Norwegian schools. Making maps always means choices of content and mapmaking technique. Therefor the article is discussing some of the map making choices made by Refsdal to display the world for the students.

Förskolans nya kostym : Omsorg i termer av lärande och kunskap

Den här artikeln är en del av ett projekt som studerar förändringar i förskollärarprofessionen i den svenska förskolan. Projektet tar avstamp i kravet på lärarna att arbeta med att dokumentera förskolans kvalitetsarbete. De övergripande frågor som ställs handlar om hur förskollärarna i relation till arbetet med dokumentation visar upp sin verksamhet och i samband med detta vilka delar som visas upp och vilka delar som tystas och osynliggörs.   Som en del av projektet studerar vi särskilt innebörder i begreppet omsorg i relation till dokumentationsarbetet. Tidigare studier inom projektet visar att omsorg är ett otydligt begrepp i dokument om förskolans verksamhet. Den här artikelns empiriska material består av observationer från personalmöten på förskolan samt intervjuer med förskolechefer och förskollärare när de diskuterar arbetet med att dokumentera kvalitetsarbetet i förskolan. Specifika analytiska redskap har hämtats dels från utbildningspolitiska teorier samt från teorier om lärarprofessionalism där mjuka värden som omsorg och närhet lyfts fram som viktiga kännetecken i förskollärares profession.   Resultaten visar att förskollärare och deras chefer inte talar om omsorg i särskilt stor utsträckning och när begreppet nämns så framhålls svårigheter med att beskriva och dokumentera innebörder av omsorg. För att hantera dessa svårigheter utvecklas skilda professionella strategier som handlar om att fly undan utmaningarna på olika vis och att omsorg som begrepp i förskolans verksamhet ges nya innebörder i termer av lärande och kunskap.  

Patienters erfarenheter vid behandling av svårläkta bensår : En litteraturstudie

Introduktion: I Sverige är svårläkta bensår ett utbrett problem som ofta kräver långvarig behandling. För att behandla bensår krävs att sjuksköterskan och patient samarbetar. Syfte: Syftet med litteraturstudien var att belysa erfarenheter hos patienter som lever med behandling av svårläkta sår. Metod: Metoden som använts är en litteraturstudie vilken baseras på en sammanställning av befintlig forskning. Sökningar efter vetenskapliga artiklar gjordes i databaserna Cinahl och PubMed och resulterade i 11 artiklar vilka granskats utifrån Polit och Becks kvalitetsgranskningsmallar. Alla artiklars resultat lästes igenom flera gånger och viktiga delar ströks under och klipptes ut. De urklippta delarna skapade tre kategorier med vardera två underkategorier. Resultat: I litteraturstudien framkom att patienter ofta fokuserade mycket på hur relationen till sjuksköterskan såg ut.  Det framkom att smärta var det patienterna oftast tog upp angående sitt fysiska mående och att de upplevde att de sällan fick tillräckligt gehör från sjuksköterskan angående sin smärta. Slutsats:  De flesta patienterna uttryckte negativa erfarenheter av hur själva sårbehandlingen kändes men att en god relation till sjuksköterskan var det som kändes mest värdefullt.

Outcome of childhood malignancies at the University of Port Harcourt Teaching Hospital: a call for implementation of palliative care.

Background: Cancers in children are yet to be recognised as an important cause of childhood morbidity and mortality in developing countries where more than 70% of the world annual cases occur. Despite the limited resources and whatever the projected outcome, children with cancer need treatment, be it curative or palliative. Objectives: To determine outcome of cancers in children at the UPTH; identify factors that influence outcome, highlight the need for palliative care. Method: A retrospective study of cases of childhood malignancies admitted into Paediatric Oncology unit of UPTH over a two year period. Clinical profile of patients and outcome were analyzed using SPSS version 20.0. Results: Sixty cases were analysed: 35(58.3%) males, 25(41.7%) females giving a M:F ratio of 1.4:1. Under-fives constituted 55%. Twenty-seven (45%) patients presented within 4 weeks of onset of symptoms. Median duration of symptoms before presentation was 8 weeks while 36 (60%) had metastatic disease at diagnosis. Twenty patients (33.3%) defaulted with or without specific treatment. Mortality was recorded in 26(43.4%) of cases. Conclusion: There were more cases of cancer amongst under-fives with male preponderance. Late presentation, financial constraints and high default rate were contributory factors to poor outcome in most cases. Lack of palliative care left many families to face their sufferings.

A review of patients with advanced cervical cancer presenting to palliative care services at Queen Elizabeth Central Hospital in Blantyre, Malawi

Background Cervical cancer is the commonest cancer affecting women in Malawi, which has the highest rate of this disease in the world. Most cases are diagnosed at an advanced stage. Aim To describe the symptom burden, palliative care interventions, and outcomes of cervical cancer patients who entered care at Tiyanjane Clinic in Blantyre, Malawi, between January and December 2012. Methods We reviewed the case files of 72 patients presenting to our hospital-based palliative care service over one year. Results The mean age was 49.5 years. Twenty-six patients (36%) were HIVpositive and the majority of these (n = 22; 85%) were on antiretroviral medication at presentation to palliative care. Pain (n = 66; 92%), vaginal discharge (n = 44; 61%), and unpleasant odour (n = 37; 51%) were commonly reported. Over a third of patients (n = 26; 36%) reported pain in two or more sites. Fourteen patients (19%) reported vaginal bleeding. Spousal breakdown (through widowhood or divorce) was noted in over half (n = 41; 57%) of all cases. Pain relief was provided to 69 (96%) of the patients (morphine to 40 patients; 56%). Common interventions provided included metronidazole tablets (used vaginally), sanitary items, and counselling. At the end of the study period, 18 patients (25%) were still under the care of palliative services. Conclusions Access to medications such as morphine, metronidazole and tranexamic acid can improve quality of life, even when radiotherapy is limited. Health care teams require necessary skills and training, including how to perform a comprehensive assessment, with an emphasis on the provision of psychosexual counselling, to assist with the complexity of symptoms occurring in this vulnerable group.

Palliative care team visits. Qualitative study through participant observation

Objectives: To describe the clinical encounters that occur when a palliative care team provides patient care and the features that influence these encounters and indicate whether they are favorable or unfavorable depending on the expectations and feelings of the various participants. Methods: A qualitative case study conducted via participant observation. A total of 12 observations of the meetings of palliative care teams with patients and families in different settings (home, hospital and consultation room) were performed. The visits were follow-up or first visits, either scheduled or on demand. Content analysis of the observation was performed. Results: The analysis showed the normal follow-up activity of the palliative care unit that was focused on controlling symptoms, sharing information and providing advice on therapeutic regimens and care. The environment appeared to condition the patients\' expressions and the type of patient relationship. Favorable clinical encounter conditions included kindness and gratitude. Unfavorable conditions were deterioration caused by approaching death, unrealistic family objectives and limited resources. Conclusion: Home visits from basic palliative care teams play an important role in patient and family well-being. The visits seem to focus on controlling symptoms and are conditioned by available resources.

Om kategorisering og symbolskmagtudøvelse i det sociale arbejde : Myten om de ressourcestærke forældre til børn medneuro-psykiatriske diagnoser

On categorization and symbolic power in social work: The myth of the resourceful parents to children with neuro-psychiatric diagnoses Social workers often use the term resourceful about a certain group of parents to children with neuro-psychiatric diagnoses, e.g. autism spectrum disorder and ADHD. This paper discusses the consequences of this sort of stereotyping/categorization with particular regard to the collaboration between these parents and the social workers as they meet in the social services system, when the parents apply for help for their children. Drawing upon Pierre Bourdieu, it is suggested that the categorization resourceful is not only overly simplistic and a myth, but is straight out misguiding and complicates the interaction – in fact it represents an act of symbolic power. Based upon a six months long sociological field-work study it is shown, that even though social workers seem to acknowledge the difficult and grueling life-situation of the parents, they are first and foremost perceived as resourceful and knowledgeable but hence also as annoying, insufferable, demanding and basically unjustified, even though they have obvious legal rights. Parents and social workers alike described the collaboration as being conflictual and a struggle and the complex power-relations are discussed in the light of Bourdieu.

Impatto dell'uso dell'Edmonton Symptom Assessment System all'interno di un ambulatorio integrato di radioterapia e cure palliative sull'ottimizzazione della qualita di cura

I pazienti affetti da patologie oncologiche avanzate hanno un'esperienza di sintomi multipli spesso concomitanti tra loro. Lo scopo di questo progetto è quello di valutare come, nel contesto di un’ambulatorio integrato di Radioterapia e Cure Palliative (rep), sia possibile descrivere e quantificare i sintomi riportati dal paziente attraverso uno strumento di analisi convalidato, nello specifico l’Edmonton Symptom Assessment System (ESAS) al fine di costruire una proposta terapeutica ottimizzata per il singolo paziente. Da aprile 2016 ad aprile 2020, sono stati analizzati gli accessi al rep per un totale di 519 accessi, quindi abbiamo selezionato solo le visite dei pazienti che avevano completato totalmente lo strumento ESAS per la valutazione dei sintomi. La popolazione in studio era quindi composta da 212 pazienti, di questi 120 erano uomini, 92 erano donne, l'età media era di 72 anni, del totale il 36% era stato sottoposto a radioterapia. I principali risultati ottenuti dall'analisi dei dati relativi alla popolazione in studio sono stati i seguenti: 1) il 25% dei pazienti muore entro 2,2 mesi, il 60% entro 6 mesi; 2) la popolazione maschile ha un rischio di morte più elevato rispetto alla popolazione femminile; 3) Esiste una chiara differenza negli indici di correlazione tra la popolazione femminile e quella maschile 4) I principali sintomi correlati sono: dolore, mancanza di appetito, ansia, sonnolenza; 5) Il sintomo del dolore non è associato ad un aumento del rischio di morte, mentre la mancanza di appetito e sonnolenza sono associati ad un aumento del rischio di morte. In conclusione, i dati a nostra disposizione hanno dimostrato che un'analisi approfondita dei sintomi attraverso lo strumento ESAS è fattibile e necessaria portando informazioni fondamentali per una gestione ottimale del paziente, dandoci la possibilità di muoverci verso l'opportunità di trattamenti sempre più personalizzati e individualizzati in base alle caratteristiche dei singoli pazienti.

Increased Circulating Pedf And Low Sicam-1 Are Associated With Sickle Cell Retinopathy.

Sickle cell retinopathy (SCR) develops in up to 30% of sickle cell disease patients (SCD) during the second decade of life. Treatment for this affection remains palliative, so studies on its pathophysiology may contribute to the future development of novel therapies. SCR is more frequently observed in hemoglobin SC disease and derives from vaso-occlusion in the microvasculature of the retina leading to neovascularization and, eventually, to blindness. Circulating inflammatory cytokines, angiogenic factors, and their interaction may contribute to the pathophysiology of this complication. Angiopoietin (Ang)-1, Ang-2, soluble vascular cell adhesion molecule-1, intercellular adhesion molecule (ICAM)-1, E-selectin, P-selectin, IL1-β, TNF-α, pigment epithelium derived factor (PEDF) and vascular endothelial growth factor plasmatic levels were determined in 37 SCD patients with retinopathy, 34 without retinopathy, and healthy controls. We observed that sICAM-1 is significantly decreased, whereas PEDF is elevated in HbSC patients with retinopathy (P=0.012 and P=0.031, respectively). Ang-1, Ang-2 and IL1-β levels were elevated in SCD patients (P=0.001, P<0.001 and P=0.001, respectively), compared to controls, and HbSS patients presented higher levels of Ang-2 compared to HbSC (P<0.001). Our study supports the possible influence of sICAM-1 and PEDF on the pathophysiology of retinal neovascularization in SCD patients.