Use of cognitive interviewing in the development of a Spanish language genetic knowledge instrument

Study purpose. Genetic advances are significantly impacting healthcare, yet recent studies of ethnic group participation in genetic services demonstrate low utilization rates by Latinos. Limited genetic knowledge is a major barrier. The purpose of this study was to field test items in a Spanish-language instrument that will be used to measure genetic knowledge relevant to type 2 diabetes among members of the ethnically heterogeneous U.S. Latino community. Accurate genetic knowledge measurement can provide the foundation for interventions to enhance genetic service utilization. ^ Design. Three waves of cognitive interviews were conducted in Spanish to field test 44 instrument items Thirty-six Latinos, with 12 persons representative of Mexican, Central and South American, and Cuban heritage participated, including 7 males and 29 females between 22 and 60 years of age; 17 participants had 12 years or less of education. ^ Methods. Text narratives from transcriptions of audiotaped interviews were qualitatively analyzed using a coding strategy to indicate potential sources of response error. Through an iterative process of instrument refinement, codes that emerged from the data were used to guide item revisions at the conclusion of each phase; revised items were examined in subsequent interview waves. ^ Results. Inter-cultural and cross-cultural themes associated with difficulties in interpretation and grammatical structuring of items were identified; difficulties associated with comprehension reflected variations in educational level. Of the original 44 items, 32 were retained, 89% of which were revised. Six additional items reflective of cultural knowledge were constructed, resulting in a 38-item instrument. ^ Conclusions. Use of cognitive interviewing provided a valuable tool for detecting both potential sources of response error and cultural variations in these sources. Analysis of interview data guided successive instrument revisions leading to improved item interpretability and comprehension. Although testing in a larger sample will be essential to test validity and reliability, the outcome of field testing suggests initial content validity of a Spanish-language instrument to measure genetic knowledge relative to type 2 diabetes. ^ Keywords. Latinos, genetic knowledge, instrument development, cognitive interviewing ^

Latino perceptions of and barriers to preventive healthcare maintenance in the southwest United States

Between the 1990 and 2000 Censuses, the Latino population accounted for 40% of the increase in the nation’s total population. The growing population of Latinos underscores the importance for understanding factors that influence whether and how Latinos take care of their health. According to the U.S. Department of Human Health Service’s Office of Minority Health (OMH), Latinos are at greater risk for health disparities (2003). Factors such as lack of health insurance and access to preventive care play a major role in limiting Latino use of primary health care (Institute of Medicine, 2005). Other significant barriers to preventive health care maintenance behaviors have been identified in current literature such as primary care physician interaction, self-perceived health status, and socio-cultural beliefs and traditions (Rojas-Guyler, King, Montieth and 2008; Meir, Medina, and Ory, 2007; Black, 1999). Despite these studies, there remains less information regarding interpersonal perceptions, environmental dynamics and individual and cultural attitudes relevant to utilization of healthcare (Rojas-Guyler, King, Montieth and 2008; Aguirre-Molina, Molina and Zambrana, 2001). Understanding the perceptions of Latinos and the barriers to health care could directly affect healthcare delivery. Improved healthcare utilization among Latinos could reduce the long term health consequences of many preventable and manageable diseases. The purpose of this study was to explore Latino perceptions of U.S. health care and desired changes by Latinos in the U.S. healthcare system. The study had several objectives, including to explore perceived barriers to healthcare utilization and the resulting effects on health among Latinos, to describe culturally influenced attitudes about health care and use of health care services among Latinos, and to make recommendations for reducing disparities by improving healthcare and its utilization. The current study utilized data that were collected as part of a larger study to examine multidimensional, cross-cultural issues relevant to interactions between healthcare consumers and providers. Qualitative methods were used to analyze four Spanish-language focus group transcripts to interpret cultural influences on perceptions and beliefs among Latinos. Direct coding of transcript content was carried out by two reviewers, who conducted independent reviews of each transcript. Team members developed and refined thematic categories, positive and negative cases, and example text segments for each theme and sub-theme. Incongruities of interpretations were resolved through extensive discussion. Study participants included 44 self-identified Latino adults (16 male, 28 female) between age 18 and 64 years. Thirty seven (84.1%) of the participants were immigrants. The study population comprised eight ethnic subgroups. While 31% of the participants reported being employed on a full-time basis, only 18.4% had medical insurance that was private or employee sponsored. Five major themes regarding the perceptions and healthcare utilization behaviors of Latinos were consistent across all focus groups and were identified during the analysis. These were: (1) healthcare utilization, experience, and access; (2) organizational and institutional systems; (3) communication and interpersonal interactions between healthcare provider, staff, and patient; (4) Latinos’ perception of their own health status; (5) cultural influences on healthcare utilization, which included an innovation termed culturally-bound locus of control. Healthcare utilization was directly influenced by healthcare experience, access, current health status, and cultural factors and indirectly influenced by organizational systems. There was a strong interdependence among the main themes. The ability to communicate and interact effectively with healthcare providers and navigate healthcare systems (organizational and institutional access) significantly influenced the participant’s health care experience, most often (indirectly) impacting utilization negatively. ^ Research such as this can help to identify those perceptions and attitudes held by Latinos concerning utilization or underutilization of healthcare systems. These data suggest that for healthcare utilization to improve among Latinos, healthcare systems must create more culturally competent environments by providing better language services at the organizational level and more culturally sensitive providers at the interpersonal level. Better understanding of the complex interactions between these impediments can aid intervention developments, and help health providers and researchers in determining appropriate, adequate, and effective measurers of care to better increase overall health of Latinos.^

Parental influence on adolescent smoking initiation among Mexican origin youth

Smoking is often initiated in adolescence through trying or experimenting with cigarettes. Smoking initiation is the beginning critical stage in the smoking trajectory often resulting in addiction. This dissertation examined the effect of parenting variables on smoking initiation behavior among 11–14 year old Mexican origin adolescents, a largely understudied group. The participants in this study were part of a population-based cohort of Mexican origin adolescents residing in Houston, Texas. ^ Aim 1 of this study assessed the appropriateness of the Family Life Questionnaire (FLQ) among Mexican origin adolescents. Second order confirmatory factor analysis (CFA) was performed to examine the factor structure of the FLQ and measurement invariance testing was conducted to evaluate the cross-cultural validity of this scale. Aim 2 analyzed cross-sectional associations between parenting variables and adolescent ever tried smoking behavior while aim 3 focused on prospective examination of changes in parenting variables from baseline to final follow-up on ever tried smoking behavior among never smokers. ^ Overall, the results of the CFA indicated that the original factor structure of the FLQ, with alterations, was a good fit for the Mexican origin adolescents. The measurement invariance analysis of the modified FLQ scale indicated adequate measurement invariance. The aim 2 cross-sectional analyses indicated that family cohesion was significantly associated with lower odds of ever tried smoking. Authoritarian parenting was significantly associated with smoking initiation only at the baseline while family conflict was significantly associated with smoking initiation only at the two-year final home visit. The findings from the aim 3 prospective analysis indicated that changes in levels of family cohesion and conflict are important predictors of smoking initiation among those who have never tried smoking. Specifically, perceiving low levels of family cohesion and a decrease in the family cohesion over two years, as well as perceiving high levels of family conflict and an increase in conflict over two years was associated with smoking initiation among never smokers. ^ In general, the findings of this study provide important insights on the links between parenting and adolescent smoking and assist in designing prevention and intervention programs that emphasize the role of family bonding to prevent adolescent smoking behavior. Family education programs for Mexican culture could also highlight the positive effects of authoritarian practices and good family communication to prevent family conflict and subsequent smoking behavior.^

Decisiones estratégicas en el campo del arte : análisis del discurso : a partir del texto de Justo Pastor Mellado, curador independiente latinoamericano

En el trabajo que sigue presento un ejercicio de aproximación al análisis del discurso, en este caso el ejercido por el crítico curador chileno Justo Pastor Mellado. El objetivo del mismo es sintetizar los puntos clave de sus aportes teóricos para la construcción del campo crítico actual, en particular: la gestión de las artes visuales contemporáneas. La labor del autor se enmarca en un esfuerzo por sumarse, junto al trabajo de otros intelectuales coetáneo,s al ejercicio de una teoría crítica (acerca de la praxis de gestión cultural, en el ejemplo que nos ocupa) que instale una producción de sentido del “nosotros", propia del campo cultural latinoamericano a partir de formatos y herramientas teóricas que posibilitan comprender la situación que se afronta y sus desafíos, en el marco del desarrollo descomunal de la llamada industria cultural neoliberal, que sin duda afecta nuestras prácticas diarias.

Traductología : Exploración de un enfoque feminista de la traducción

Este trabajo se propone presentar la transformación de la Traductología desde la perspectiva de los Estudios de Género, dos campos del conocimiento que reconocen una impronta multi e interdisciplinaria. En cuanto a la primera, el giro cultural de los ochenta marca el momento en que se incluye a la traducción dentro del conjunto de subsistemas culturales con intereses competitivos y sujetos a las ideologías predominantes (Molina Martínez, 2006: 37). Paralelamente se instala en Canadá un terreno de estudio que vincula los desarrollos transculturales y translingüísticos surgidos de los movimientos feministas de los años setenta con la producción y recepción de textos, temas que son abarcados por la investigación sobre género y traducción. En ese contexto surge la noción de traducción en femenino o reescritura en femenino cuya finalidad es subvertir el lenguaje patriarcal y reivindicar las ideas feministas (Lotbinière-Harwood, 1991). Las estrategias discursivas y textuales utilizadas para resolver los problemas de traducción relacionados con el género "suplementación o compensación, la metatextualidad, el secuestro y el pacto especular" suelen recurrir al empleo de un lenguaje con alteraciones semánticas, neologismos o innovaciones lingüísticas, cuyo propósito es cuestionar la lengua actual y, a su vez, visibilizar la presencia femenina (Castro Vázquez, 2008: 296-298). En esta ponencia, nos detendremos en discutir y ejemplificar las estrategias citadas

Re-pensando el orden colonial: los intercambios hispano-indígenas en el fuerte del río Negro.

El estudio de los procesos de contacto cultural en las fronteras coloniales de América ofrece claves para explicar la dinámica de las relaciones interétnicas, las experiencias de aculturación y la construcción de identidades. Asimismo, permite observar el funcionamiento del orden colonial a partir de los modos en que se estructuraron las relaciones de poder en las áreas donde los indígenas conservaron su autonomía y el control sobre sus territorios y recursos. Desde este horizonte referencial, se analizan las relaciones hispano-indígenas en uno de los últimos frentes en los que se proyectó la expansión hispana desde los imperativos de la política borbónica: los territorios meridionales del Río de la Plata. La aproximación a la problemática del fuerte del río Negro posibilitó identificar las estrategias de unos y otros y reconocer la estabilización de un conjunto de transacciones que definieron un particular régimen de intercambios basado en la reciprocidad. Estas prácticas de naturaleza política y económica favorecieron el mantenimiento de cierto equilibrio de fuerzas que se trasunta en la disminución de la conflictividad fronteriza durante las últimas décadas del período colonial.

Re-pensando el orden colonial: los intercambios hispano-indígenas en el fuerte del río Negro.

El estudio de los procesos de contacto cultural en las fronteras coloniales de América ofrece claves para explicar la dinámica de las relaciones interétnicas, las experiencias de aculturación y la construcción de identidades. Asimismo, permite observar el funcionamiento del orden colonial a partir de los modos en que se estructuraron las relaciones de poder en las áreas donde los indígenas conservaron su autonomía y el control sobre sus territorios y recursos. Desde este horizonte referencial, se analizan las relaciones hispano-indígenas en uno de los últimos frentes en los que se proyectó la expansión hispana desde los imperativos de la política borbónica: los territorios meridionales del Río de la Plata. La aproximación a la problemática del fuerte del río Negro posibilitó identificar las estrategias de unos y otros y reconocer la estabilización de un conjunto de transacciones que definieron un particular régimen de intercambios basado en la reciprocidad. Estas prácticas de naturaleza política y económica favorecieron el mantenimiento de cierto equilibrio de fuerzas que se trasunta en la disminución de la conflictividad fronteriza durante las últimas décadas del período colonial.

Traductología : Exploración de un enfoque feminista de la traducción

Este trabajo se propone presentar la transformación de la Traductología desde la perspectiva de los Estudios de Género, dos campos del conocimiento que reconocen una impronta multi e interdisciplinaria. En cuanto a la primera, el giro cultural de los ochenta marca el momento en que se incluye a la traducción dentro del conjunto de subsistemas culturales con intereses competitivos y sujetos a las ideologías predominantes (Molina Martínez, 2006: 37). Paralelamente se instala en Canadá un terreno de estudio que vincula los desarrollos transculturales y translingüísticos surgidos de los movimientos feministas de los años setenta con la producción y recepción de textos, temas que son abarcados por la investigación sobre género y traducción. En ese contexto surge la noción de traducción en femenino o reescritura en femenino cuya finalidad es subvertir el lenguaje patriarcal y reivindicar las ideas feministas (Lotbinière-Harwood, 1991). Las estrategias discursivas y textuales utilizadas para resolver los problemas de traducción relacionados con el género "suplementación o compensación, la metatextualidad, el secuestro y el pacto especular" suelen recurrir al empleo de un lenguaje con alteraciones semánticas, neologismos o innovaciones lingüísticas, cuyo propósito es cuestionar la lengua actual y, a su vez, visibilizar la presencia femenina (Castro Vázquez, 2008: 296-298). En esta ponencia, nos detendremos en discutir y ejemplificar las estrategias citadas

Traductología : Exploración de un enfoque feminista de la traducción

Este trabajo se propone presentar la transformación de la Traductología desde la perspectiva de los Estudios de Género, dos campos del conocimiento que reconocen una impronta multi e interdisciplinaria. En cuanto a la primera, el giro cultural de los ochenta marca el momento en que se incluye a la traducción dentro del conjunto de subsistemas culturales con intereses competitivos y sujetos a las ideologías predominantes (Molina Martínez, 2006: 37). Paralelamente se instala en Canadá un terreno de estudio que vincula los desarrollos transculturales y translingüísticos surgidos de los movimientos feministas de los años setenta con la producción y recepción de textos, temas que son abarcados por la investigación sobre género y traducción. En ese contexto surge la noción de traducción en femenino o reescritura en femenino cuya finalidad es subvertir el lenguaje patriarcal y reivindicar las ideas feministas (Lotbinière-Harwood, 1991). Las estrategias discursivas y textuales utilizadas para resolver los problemas de traducción relacionados con el género "suplementación o compensación, la metatextualidad, el secuestro y el pacto especular" suelen recurrir al empleo de un lenguaje con alteraciones semánticas, neologismos o innovaciones lingüísticas, cuyo propósito es cuestionar la lengua actual y, a su vez, visibilizar la presencia femenina (Castro Vázquez, 2008: 296-298). En esta ponencia, nos detendremos en discutir y ejemplificar las estrategias citadas

Re-pensando el orden colonial: los intercambios hispano-indígenas en el fuerte del río Negro.

El estudio de los procesos de contacto cultural en las fronteras coloniales de América ofrece claves para explicar la dinámica de las relaciones interétnicas, las experiencias de aculturación y la construcción de identidades. Asimismo, permite observar el funcionamiento del orden colonial a partir de los modos en que se estructuraron las relaciones de poder en las áreas donde los indígenas conservaron su autonomía y el control sobre sus territorios y recursos. Desde este horizonte referencial, se analizan las relaciones hispano-indígenas en uno de los últimos frentes en los que se proyectó la expansión hispana desde los imperativos de la política borbónica: los territorios meridionales del Río de la Plata. La aproximación a la problemática del fuerte del río Negro posibilitó identificar las estrategias de unos y otros y reconocer la estabilización de un conjunto de transacciones que definieron un particular régimen de intercambios basado en la reciprocidad. Estas prácticas de naturaleza política y económica favorecieron el mantenimiento de cierto equilibrio de fuerzas que se trasunta en la disminución de la conflictividad fronteriza durante las últimas décadas del período colonial.

Suplementação luminosa no tomateiro cultivado em diferentes sistemas de condução em ambiente protegido

O auto sombreamento das folhas posicionadas nas porções inferiores do dossel de plantas pode limitar a produtividade em cultivos tutorados. Assim, a produtividade do tomateiro pode ser aumentada por meio da suplementação luminosa posicionada no interior do dossel, técnica conhecida como interlighting. O sistema de condução do tomateiro também interfere na distribuição da radiação solar, além de afetar os tratos culturais, a competição intra e entre plantas e a relação entre as partes vegetativas e reprodutivas. Desta forma, o objetivo deste trabalho foi avaliar a influência do sistema de condução de minitomate cultivar \'Sweet Grape\' em diferentes números de hastes por planta (duas, três e quatro hastes) e da suplementação luminosa com módulos de LED na produtividade e qualidade dos frutos, na eficiência do uso de água e nutrientes, além da morfologia das plantas e fatores relacionados ao manejo cultural, em ambiente protegido nas condições climáticas do sudeste brasileiro. Ao longo do ciclo de cultivo foram avaliados os seguintes parâmetros: volume irrigado, pH, condutividade elétrica, porcentagem e volume da solução drenada pelos vasos. As colheitas foram realizadas semanalmente, a partir de 90 dias após o transplante. Os frutos colhidos foram classificados, contados e pesados para a obtenção do número e massa de frutos grandes, médios, pequenos, comercial, não comercial e total. Amostras de frutos e tecidos foliares foram coletadas em cinco períodos e avaliadas quanto ao teor de sólidos solúveis, pH, acidez titulável e concentração de ácido ascórbico nos frutos e teor de nutrientes nas folhas. Além disso, ao final do ciclo cultural, foram realizadas as medições dos seguintes parâmetros morfológicos nas plantas: comprimento de hastes, número de cachos normais e bifurcados por hastes e diâmetro apical, mediano e basal das hastes. A suplementação luminosa apresentou aumento no número e na massa de frutos grandes e médios, elevando a produtividade total em 12%. Plantas com duas e três hastes apresentaram maior acúmulo de massa total de frutos, porém plantas com três hastes apresentaram maior massa de frutos não comerciais, com redução na massa de frutos comerciais. A maior eficiência no uso de água e nutrientes foi alcançada em plantas cultivadas com duas hastes. Plantas com quatro hastes demandaram mais solução nutritiva comparada às plantas com duas e três hastes. Esta maior demanda de solução, acarretou em aumento da condutividade elétrica da solução drenada. Plantas com quatro hastes apresentaram maiores teores de sólidos solúveis nos frutos. A suplementação luminosa também resultou em aumento do teor de sólidos solúveis e ligeiro aumento no teor de ácido ascórbico nos frutos. A suplementação luminosa favoreceu o acúmulo de nitrogênio, fósforo e potássio nas folhas do tomateiro. Desta forma, conclui-se que a suplementação luminosa é uma estratégia de manejo tecnicamente viável nas condições climática estudada. O sistema de condução de haste afeta a produtividade e qualidade dos frutos do tomateiro. Plantas com duas hastes além de apresentar maior produtividade de frutos comerciais, mostrou-se a estratégia mais eficiente no uso da água e nutrientes.

Missing mixed mode: elemental structures

One of the main concerns is the nature of the missing values. Let’s consider extremes for simplicity. If missing at random we have not to care about. But if missing shows structures that covariate with substantive variables we have to make decisions. There are, in fact, several options to take. We are speaking about one country, one mode. But if you go cross-cultural (or more precisely, cross-state nations) and mixed modes many questions raise. For example, the simple one. What are we comparing? Reports and books usually go straight into variables distributions and coefficient comparisons. This is possible because the annalist presume "tabula rasa" effect from data collections procedures. But this is not, frequently, the real situation. This paper will expose the mixed missing mode imprint in international surveys. This will help to evaluate how deal with this problem. Also, to consider the real meaning of observed cross-national differences.

Lost in Translation? Russian Media Portrayals and Laypersons’ Interpretations of Angelina Jolie’s Breast Cancer Discourse

In May 2013, Angelina Jolie revealed that because she had a family history of breast and ovarian cancer and carried a rare BRCA gene mutation, she had undergone a preventive double mastectomy. Media coverage has been extensive around the world, including in Russia, not an English-language country, where all global news is inevitably filtered by translation. After examining the reactions of Russian mass media and members of the public to Jolie’s disclosure, I consider what transformations have occurred with Jolie’s message in the process of cross-cultural transfer. I explore the mass media portrayal of Jolie’s announcement, laypersons’ immediate and prolonged reactions, and the reflections of patients involved directly in the field of hereditary breast cancer. To my knowledge, this multifaceted and bilingual project is the first conceptualization of Jolie’s story as it has been translated in a different sociocultural environment. I start with examination of offline and online publications that appeared in Russia within two months after Jolie’s announcement. In this part of my analysis, I conceptualize the representation of Jolie’s case in Russian mass media and grasp what sociocultural waves were generated by this case among general lay audiences. Another part of my study contains the results of qualitative in-depth interviews. Eight women with a family history of hereditary breast cancer were recruited to participate in the research. The findings represent Jolie’s case through the eyes of Russian women with the same gene mutation as Jolie. Consolidating my findings, I argue that Jolie’s announcement was misinterpreted and misrepresented by Russian mass media, as well as misunderstood by a considerable part of the media audience. Jolie’s perspective on hereditary breast cancer mostly remained unheard among members of the Russian public. I make suggestions about the reasons for such a phenomenon, and demonstrate how Jolie’s case is implicated in politics, economics, and the culture of contemporary Russia.

U.S. teens in our world : understanding the health of U.S. youth in comparison to youth in other countries /

"This chartbook is the product of the efforts of many authors and editors, including Mary Overpeck ... [et al.]"--P. 16.

A Guide for evaluating and selecting multicultural instructional materials /

Mode of access: Internet.