Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration

Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumatic diseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likely be applicable to children with systemic inflammatory diseases.Findings: We adapted Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY (c)) to Simple Measure of Impact of Illness in Youngsters (SMILY (c)-Illness) and had it reviewed by pediatric rheumatologists for its appropriateness and cultural suitability. We tested SMILY (c)-Illness in patients with inflammatory rheumatic diseases and then translated it into 28 languages. Nineteen children (79% female, n= 15) and 17 parents participated. The mean age was 12 +/- 4 years, with median disease duration of 21 months (1-172 months). We translated SMILY (c)-Illness into the following 28 languages: Danish, Dutch, French (France), English (UK), German (Germany), German (Austria), German (Switzerland), Hebrew, Italian, Portuguese (Brazil), Slovene, Spanish (USA and Puerto Rico), Spanish (Spain), Spanish (Argentina), Spanish (Mexico), Spanish (Venezuela), Turkish, Afrikaans, Arabic (Saudi Arabia), Arabic (Egypt), Czech, Greek, Hindi, Hungarian, Japanese, Romanian, Serbian and Xhosa.Conclusion: SMILY (c)-Illness is a brief, easy to administer and score HRQOL scale for children with systemic rheumatic diseases. It is suitable for use across different age groups and literacy levels. SMILY (c)-Illness with its available translations may be used as useful adjuncts to clinical practice and research.

As atividades circenses e a formação continuada de professores: análise de um processo

Circus activities have formed over the years as an important content to be exploited by the teachers in the school environment, and current projections, the inclusion of circus activities in physical education classes has been presented and defended by several authors. That being so, the objective was to offer a continuing education program thematising circus activities having as research focused on the analysis of this training process, as well as their implications, contributions, opportunities and challenges for teacher pedagogical practice. The research, qualitative, was developed in two phases: a questionnaire for physical education teachers working in public schools in order to highlight the reasons for the absence of most of the teachers in the training program. The second phase included the development of the continuing education program content circus activities in the continuing education of physical education teachers, the two teachers in the school environment, as well as analysis and reflection of teacher participation in the training program, described in daily class and daily meetings ending this step with a final interview. Participated in the study, 13 physical education teachers of the municipal school system of a city of São Paulo, of which only two teachers participated in the development of the training program in schools. The teachers manifestations through the questionnaire and participation in the training program showed that teachers make themselves available to participate in continuing education programs, however, the priorities of each teacher (such as family, leisure or other chores) can demarcate difficulties in establishing common to all teachers moments, preventing the effective participation of teachers within the continuing education programs. On the other hand, the school is set up as a rich space of experiences and exchanges of experience, contributing to the development of continuing education programs

Transconversações queer: sussurros e gemidos lusófonos Quatro cadelas mirando a(s) Psicologia(s)

To follow the cartographies’ path throughout pernicious (dis)courses of the capitalized Psychology. Com/positions both around desires and binary desires raised from binary norms, followed by (un)folding the beds, the “family”, the clinical thought and practice, the research, the geni(t)ality. Profane writing. Epistemic micro-rebellion promised and incorporated by the ass, because in the beginning it was and it (also) is the ass. A distorted and a trans-barked way of writing by four female dogs looking at Psychology. To (d)enounce the ménage that psychologists, supported by a history without history, intent to build over their empty beds which are blemished by modern Truth(s). Towards a minor psychology, this is a schizo-queer-analytic manifesto on desires-pleasures-senses within the lusophone transcontemporaneity. In the absence of a conclusion, we propose rather the provocative state that only a bitchy-psychology-to-come could edify the visibility of the invisible human. Otherwise, we believe it is in the promising barks that Psychology can be withdrawn from its betraying and betrayed contention of multitudes

A influência da música nas atividades físicas e sua impressão no corpo e nos estados de ânimo

Numerous studies in physical education and music's area have been conducted to improve the quality of life and health of people, all of them under physiological, psychological and social fields. Thus, when properly analyzed, both Areas are connected, because the movement itself, main subject of physical education, has a close proximity to the rhythm, an essential element of music. That's why it is important to discover the benefits of this relationship, because, in many of its practices, physical education makes use of music, for example, in aerobic gymnastic and dance classes. As a consequence, this study aims to investigate, through literature, the influence of music in physical activities and its imprinting in the states of mind and body of practitioners, as well as clarify the criteria for choice of songs that are used in such practice. This research occurred under literary explore, done through theoretical analysis of the thematic. At first place, a contextualization of the auditory system and its relationship with the music and the perception of sound were made, then the main theme was explored. The music, even before generate and influence motor and psychic movements in the human body, is already moving in space, because it is formed through vibrations of molecules. It is decoded first as a movement from the ears, and then decoded as sound, when in the brain. It is important to worry about sounds at high intensities and also with those which are outside the hearing thresholds within physical activities involving music, because they may be harmful to health and also to states of mind. As far as music and movement is concerned, they are closely linked, and the human being has an instinctive sense of rhythm that can be seen when listening to music, because the motor cortex is also activated. Therefore, it is important to work the sound and body movement together, because in practice they are inseparable and they contribute greatly to...

Ação relacional: ação como experiência de interação sob a perpectiva do agente implicado pelo sensível

Fundação de Amparo à Pesquisa do Estado de São Paulo (FAPESP)

Interfaces da construção da prática docente no ensino de ciências naturais nos anos iniciais da escola pública municipal de Manaus - AM

Pós-graduação em Educação - FCT

Odontologia baseada em evidências: otimizando a prática e a pesquisa

Clinical decisions in dentistry are often based on the knowledge obtained during graduation, clinical experience, information shared with colleagues and professor, textbooks, seminars, conferences and continuing education courses. However, it is necessary to know if this information is derived from scientifically validated researches since too much information may complicate this process. Initially in medicine and later in other health areas a method which enables a critical evaluation of scientific papers related to a specific issue and also, whenever it is possible, an evaluation of the results by meta-analysis,was developed by Cochrane in order to reduce the bias towards all information obtained. The aim of this work is to present some aspects of the Evidence Based Dentistry (EBD) and to show how this methodology can be used to better substantiate scientifically the clinical decision of the dentist and improve researches design with scientific validity. The paper discusses editorial trends focused on the EBD, shows the differences between a systematic and a conventional review, describes data about Cochrane and the advantages of scientific evidence synthesis and the implications of EBD for clinical practice and research as well as recommendation grades and evidence levels of general scientific studies.

Interpretando reflexões de futuros professores de Física sobre sua prática profissional durante a formação inicial: a busca pela construção da autonomia docente

Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq)

O estudo das novas legislações de estágio e o contexto no curso de serviço social da FCHS - UNESP- Campus de Franca

Pós-graduação em Serviço Social - FCHS

O uso da atividade guia (brincar) como catalisadora do desenvolvimento do pensamento e da linguagem

To select pedagogical practices that allow the development of psychic function thinking and psychic function language. It's necessary understanding the whole psyche human, postulated by Vygotsky. The action of playing, the main activity of the children in the childhood education, can enhance the resilience of the psychic functions, once it provides stimulus and may include teacher's intervention during its deployment. For a better intervention, this planning in light of a theory is primordial, as well as the reflection on this practice. This research aimed to find the moment of the activities that took place the development of these functions, language and thought, in children who are in the early years of the childhood education. The survey was conducted through a qualitative interpretation approach, as action research. Data analysis allowed us to observe planned teaching practices in which enabled the development of language and thought and consequently a qualitative leap in the other psychic functions

O uso da atividade guia (brincar) como catalisadora do desenvolvimento do pensamento e da linguagem

To select pedagogical practices that allow the development of psychic function thinking and psychic function language. It's necessary understanding the whole psyche human, postulated by Vygotsky. The action of playing, the main activity of the children in the childhood education, can enhance the resilience of the psychic functions, once it provides stimulus and may include teacher's intervention during its deployment. For a better intervention, this planning in light of a theory is primordial, as well as the reflection on this practice. This research aimed to find the moment of the activities that took place the development of these functions, language and thought, in children who are in the early years of the childhood education. The survey was conducted through a qualitative interpretation approach, as action research. Data analysis allowed us to observe planned teaching practices in which enabled the development of language and thought and consequently a qualitative leap in the other psychic functions

Childbirth experience according to a group of Brazilian primiparas

Objective: to understand the meaning of the childbirth experience for Brazilian primiparas in the postpartum period. Design: a qualitative approach using semi-structured interviews. Content analysis was used to derive the two themes that emerged from the discourses. Setting: participants were recruited at four primary-level health-care units in Ribeirao Preto, Brazil. After providing written informed consent, an appointment was made for an interview at the participants' homes. Participants: 20 primiparas in the postpartum period, aged 15-26 years old, who attended the health-care units to vaccinate their infants and test for phenylketonuria. Findings: two thematic categories emerged from the interviews: the meaning attributed to childbirth (with four subcategories) and perceptions of care. Among the participants, the childbirth experience was marked by the 'fear of death' and 'losing the child'. The pain of giving birth was expected, and the moment of childbirth was associated with pain of high intensity. Key conclusions: childbirth is considered synonymous with physical and emotional suffering, pain, fear and risk of death. Implications for practice: this research indicates the need to break the current mechanistic model of care on which health professionals' actions are based. Care during childbirth must be guided by the foundation that women are the subjects of childbirth actions, in an attempt to emphasise actions that grant them with the autonomy and empowerment needed to experience the situation. (C) 2011 Elsevier Ltd. All rights reserved.

Open source intelligence applicata all'analisi criminologica del terrorismo

A partire dagli anni '70, si è assistito ad un progressivo riassetto geopolitico a livello mondiale Grazie anche all’evoluzione tecnologica ed alla sua diffusione di massa, il tempo e lo spazio si contraggono nel processo di globalizzazione che ha caratterizzato le società contemporanee ove l'informazione e la comunicazione assumono ormai un ruolo centrale nelle dinamiche di conoscenza. Il presente studio, intende far luce in primis sulla disciplina dell'intelligence, così come enunciata in ambito militare e "civile", in particolare nel contesto USA, NATO ed ONU, al fine quindi di evidenziare le peculiarità di una nuova disciplina di intelligence, cosiddetta Open Source Intelligence, che ha come elemento di innovazione l'utilizio delle informazioni non classificate. Dopo aver affrontato il problema della concettualizzazione ed evoluzione del fenomeno terroristico, sarà posto il focus sull’espressione criminale ad oggi maggiormente preoccupante, il terrorismo internazionale di matrice islamica, in prospettiva multidimensionale, grazie all’adozione di concetti criminologici interdisciplinari. Sotto il profilo della sperimentazione, si è, quindi, deciso di proporre, progettare e sviluppare l’architettura della piattaforma Open Source Intellicence Analysis Platform,un tool operativo di supporto per l’analista Open Source Intelligence, che si pone quale risorsa del’analisi criminologica, in grado di fornire un valido contributo, grazie al merge tra practice e research, nell’applicazione di tale approccio informativo al fenomeno terroristico.

An AMSTAR assessment of the methodological quality of systematic reviews of oral healthcare interventions published in the Journal of Applied Oral Science (JAOS)

Systematic reviews are not an assembly of anecdotes but a distillation of current best available evidence on a particular topic and as such have an important role to play in evidence-based healthcare. A substantial proportion of these systematic reviews focus on interventions, and are able to provide clinicians with the opportunity to understand and translate the best available evidence on the effects of these healthcare interventions into clinical practice. The importance of systematic reviews in summarising and identifying the gaps in evidence which might inform new research initiatives is also widely acknowledged. Their potential impact on practice and research makes their methodological quality especially important as it may directly influence their utility for clinicians, patients and policy makers. The objectives of this study were to identify systematic reviews of oral healthcare interventions published in the Journal of Applied Oral Science (JAOS) and to evaluate their methodological quality using the evaluation tool, AMSTAR.

Chapter V: Diabetic foot

Ulcerated diabetic foot is a complex problem. Ischaemia, neuropathy and infection are the three pathological components that lead to diabetic foot complications, and they frequently occur together as an aetiologic triad. Neuropathy and ischaemia are the initiating factors, most often together as neuroischaemia, whereas infection is mostly a consequence. The role of peripheral arterial disease in diabetic foot has long been underestimated as typical ischaemic symptoms are less frequent in diabetics with ischaemia than in non-diabetics. Furthermore, the healing of a neuroischaemic ulcer is hampered by microvascular dysfunction. Therefore, the threshold for revascularising neuroischaemic ulcers should be lower than that for purely ischaemic ulcers. Previous guidelines have largely ignored these specific demands related to ulcerated neuroischaemic diabetic feet. Any diabetic foot ulcer should always be considered to have vascular impairment unless otherwise proven. Early referral, non-invasive vascular testing, imaging and intervention are crucial to improve diabetic foot ulcer healing and to prevent amputation. Timing is essential, as the window of opportunity to heal the ulcer and save the leg is easily missed. This chapter underlines the paucity of data on the best way to diagnose and treat these diabetic patients. Most of the studies dealing with neuroischaemic diabetic feet are not comparable in terms of patient populations, interventions or outcome. Therefore, there is an urgent need for a paradigm shift in diabetic foot care; that is, a new approach and classification of diabetics with vascular impairment in regard to clinical practice and research. A multidisciplinary approach needs to implemented systematically with a vascular surgeon as an integrated member. New strategies must be developed and implemented for diabetic foot patients with vascular impairment, to improve healing, to speed up healing rate and to avoid amputation, irrespective of the intervention technology chosen. Focused studies on the value of predictive tests, new treatment modalities as well as selective and targeted strategies are needed. As specific data on ulcerated neuroischaemic diabetic feet are scarce, recommendations are often of low grade.