Quality of Life in Swiss Paediatric Inflammatory Bowel Disease Patients: Do Patients and Their Parents Experience Disease in the Same Way?

BACKGROUND AND AIMS Inflammatory bowel diseases (IBDs) may impair quality of life (QoL) in paediatric patients. We aimed to evaluate in a nationwide cohort whether patients experience QoL in a different way when compared with their parents. METHODS Sociodemographic and psychosocial characteristics were prospectively acquired from paediatric patients and their parents included in the Swiss IBD Cohort Study. Disease activity was evaluated by the Paediatric Crohn's Disease Activity Index (PCDAI) and the Paediatric Ulcerative Colitis Activity Index (PUCAI). We assessed QoL using the KIDSCREEN questionnaire. The QoL domains were analysed and compared between children and parents according to type of disease, parents' age, origin, education and marital status. RESULTS We included 110 children and parents (59 Crohn's disease [CD], 45 ulcerative colitis [UC], 6 IBD unclassified [IBDU]). There was no significant difference in QoL between CD and UC/IBDU, whether the disease was active or in remission. Parents perceived overall QoL, as well as 'mood', 'family' and 'friends' domains, lower than the children themselves, independently of their place of birth and education. However, better concordance was found on 'school performance' and 'physical activity' domains. Marital status and age of parents significantly influenced the evaluation of QoL. Mothers and fathers being married or cohabiting perceived significantly lower mood, family and friends domains than their children, whereas mothers living alone had a lower perception of the friends domain; fathers living alone had a lower perception of family and mood subscores. CONCLUSION Parents of Swiss paediatric IBD patients significantly underestimate overall QoL and domains of QoL of their children independently of origin and education.

Ralston gardens of life : a study of health and the best way of living, including the natural cure of disease and the perfecting of the faculties : also private walks and talks with the author and a complete presentation of diets in health and disease and foods of the Ralstonites /

Includes index.

Rudolf Eucken's philosophy of life /

"Originally delivered as inter-collegiate lectures, Westfield college, University of London, during the Michaelmas term, 1905."--Pref.

The sunny side of life book : to keep happy, keep well, a new way of living.

Cover title.

A new way of living : come over to the sunny side of life.

"No 233."

An introduction to theosophy, or the science of the "Mystery of Christ", that is, of deity, nature, and creature : embracing the philosophy of all the working powers of life, magical and spiritual ... Vol. I. complete in itself

Los vols. proyectados no se publicaron.

Proverbs of Japan; a little picture of the Japanese philosophy of life as mirrored in their proverbs.

Mode of access: Internet.

Thoreau's philosophy of life, with special consideration of the influence of Hindoo philosophy /

Lebenslauf.

The philosophy of spiritual activity; a modern philosophy of life developed by scientific methods,

"Edited by H. Collison."

The baptistery, or, The way of eternal life.

Paging irregular: leaves following p. V and 7 not included in paging.

Wells's natural philosophy : for the use of schools, academies, and private students. Introducing the latest results of scientific discovery and research; arranged with special reference to the practical application of physical science to the arts and the experiences of every-day life. With three hundred and seventy-five engravings /

Mode of access: Internet.

Philosophy by way of the sciences; an introductory textbook,

Includes bibliographies.

Outlines of Mormon philosophy; or, The answers given by the gospel, as revealed through the Prophet Joseph Smith, to the questions of life.

Mode of access: Internet.

The problem of human life : containing the fundamental principles of the substantial philosophy; with a review of the six great modern scientists: Darwin, Tyndall, Huxley, Haeckel, Helmholtz, and Mayer ... /

Printed in two columns.