A Family Booklet About Comfort Care in Advanced Dementia:Three-Country Evaluation

Objectives: To evaluate a booklet on comfort care in dementia from the perspective of family with relevant experience, and assess nursing home resident and family factors associated with evaluations. Design: Retrospective study. Setting: Long term care facilities in French-speaking Canada, and the Netherlands and Italy. <br/>Participants: Bereaved family (n = 138). <br/>Measurements: An 8-item scale assessed the booklet's acceptability. Usefulness was rated on a 0 to 10 scale, and perceived usefulness referred to usefulness if family had had the booklet during the resident's stay. Families indicated preferred ways of obtaining, and the most appropriate time to get the booklet. <br/>Results: Almost all families (94%) perceived the booklet as useful. Canadian and Dutch families evaluated the booklet's contents and format favorably, whereas Italian families' evaluations were less favorable. Almost all families endorsed roles for physicians or nurses and about half additionally accepted availability through own initiative, in print or through the Internet. Preference of timing was highly variable. Better acceptability, usefulness, and availability through own initiative were independently associated with non-Italian nationality, presence of more physical signs discussed in the booklet, feeling ill-prepared, and higher satisfaction with care. A preference of receiving the booklet early was more likely in Italian families, those without university education, and those involved with older residents. <br/>Conclusion: The booklet is suitable to inform Dutch and Canadian families on comfort care in dementia, but implementation in Italy requires further consideration. The booklet may be integrated in advance care planning in long term care, and made available outside long term care settings to serve families who wish to be informed early. �� 2012 American Medical Directors Association, Inc.<br/>Keywords: Decision aid; decision making; advance care planning; palliative care; nursing homes; dementia.

Physicians' and Nurses' Perceived Usefulness and Acceptability of a Family Information Booklet about Comfort Care in Advanced Dementia

Background: Families of patients with advanced dementia need to be informed about the course of the dementia and comfort care. Conditional for health care providers educating families is their knowledge and comfort in family education. Methods: Perceived usefulness and acceptability of a Canadian family booklet explaining possible complications and comfort care in dementia was assessed by physicians and nurses caring for dementia patients in 14 nursing homes in Lombardy, Italy and 21 in the Netherlands. The practitioners received a questionnaire and translated versions adapted to local practice where needed. In 10 of 21 Dutch homes, physicians evaluated only the original Canadian version in English. A 15-item scale assessed the booklet's acceptability, for example, to inform families, or for educational purposes. Perceived usefulness referred to proportion of families of dementia patients for whom the booklet would be useful. A total of 168 evaluations were available for multivariable regression analyses. Results: The practitioners anticipated that the booklet would be useful for most families. Evaluation of the Dutch translation of the booklet was similar to the English version. Country (Netherlands) and profession (nurses) were independently associated with better acceptability. Usefulness was perceived as better by Italian respondents and nurses, but only in analyses unadjusted for the higher educational needs of these respondents. Conclusion: Overall, the concept of written information on comfort care was appreciated by practitioners of European countries differing in attitudes toward end-of-life care. A booklet may help practitioners, and in particular nurses, in providing comfort care for dementia patients and their families. �� Copyright 2011, Mary Ann Liebert, Inc. 2011.

Educating families about end-of-life care in advanced dementia:Acceptability of a Canadian family booklet to nurses from Canada, France, and Japan

Background: The families of people with late-stage dementia need to be informed about the course of the dementia and the comfort/ palliative care option. A booklet was written for that purpose and can be provided to family members by physicians and nurses. Methods: The acceptability of the booklet for nurses was tested in Canada (French and English version), France (French Canadian version) and Japan (translated and adapted version). Results: Overall, 188 nurses completed a survey questionnaire. The booklet was accepted best in Canada and less so in France and Japan. Despite regional variation, the majority of the nurses perceived the booklet as useful for families. The French and Japanese nurses also reported a greater need for palliative care education in advanced dementia. Conclusion: The booklet may help nurses educate families about end-of-life issues in dementia palliative care, but local adaptation of the booklet content and physician engagement are necessary.

Developing an information booklet to meet the needs of intensive care patients and relatives

Changes in the economic climate and the delivery of health care require that pre-operative information programmes are effective and efficiently implemented. In order to be effective the pre-operative programme must meet the information needs of intensive care unit (ICU) patients and their relatives. Efficiency can be achieved through a structured pre-operative programme which provides a framework for teaching. The need to develop an ICU information booklet in a large teaching hospital in Northern Ireland has become essential to provide relevant information and improve the quality of service for patients and relatives, as set out in the White Paper, ���Working for Patients���, (DoH, 1989). The first step in establishing a patient education programme was to ascertain patients' and relatives' informational needs. A ���needs assessment��� identified the pre-operative information needs of ICU patients and their relatives (McGaughey, 1994) and the findings were used to plan and publish an information booklet. The ICU booklet provides a structure for pre-operative visits to ensure that patients and relatives information needs are met.

Resili��ncia e autoconceito de compet��ncia: jovens a viver em centros de acolhimento e jovens a viver com as fam��lias

O presente estudo tem como objetivo analisar a resili��ncia e o autoconceito de compet��ncia em jovens institucionalizados, comparando-os com um grupo de jovens a viverem com as suas fam��lias. Atendendo a que, segundo diversos autores, a fase da adolesc��ncia pode ser considerada como uma fase de algum risco e vulnerabilidade, interessa-nos ainda averiguar o estatuto de risco nos jovens n��o institucionalizados, para se poder aferir tamb��m da presen��a de resili��ncia neste grupo amostral. Participaram neste estudo descritivo-correlacional, 133 jovens com idades compreendidas entre os 15 e os 18 anos de idade (M = 16,36; DP = 1,13). A amostra �� constitu��da por dois grupos amostrais, sendo que 51 est��o institucionalizados e os restantes 82 vivem com as suas fam��lias. Os instrumentos utilizados foram um question��rio sociodemogr��fico constru��do pela investigadora, a Escala Healthy Kids Resilience Assessment Module (vers��o 6.0) adaptada por Martins (2005), a Escala de Autoconceito de Compet��ncia (EACC) adaptada �� popula����o portuguesa por Faria e Santos (1998) e a Lista de Verifica����o do Estatuto de Risco, adaptada por Abreu e Xavier (2006). Os resultados gerais demonstram: (i) que relativamente �� resili��ncia n��o parecem existir diferen��as significativas entre os inquiridos institucionalizados e os n��o institucionalizados, n��o obstante os ��ltimos apresentem valores um pouco mais elevados; (ii) no que diz respeito �� vari��vel autoconceito de compet��ncia observam-se diferen��as significativas nos dois grupos amostrais, sendo que os n��o institucionalizados apresentam uma m��dia mais elevada; (iii) que existe uma correla����o positiva, de magnitude forte, entre a resili��ncia e o autoconceito de compet��ncia nos jovens institucionalizados; (iv) que nos jovens n��o institucionalizados n��o existem evid��ncias de que o "Estatuto de Risco" possa ter qualquer associa����o com a resili��ncia e com o autoconceito de compet��ncia, pelo menos na presente amostra.

Viver a leitura : a dinamiza����o da leitura na Biblioteca Qe

Trabalho de projecto de mestrado, Ci��ncias da Educa����o (Forma����o de Adultos), Universidade de Lisboa, Instituto de Educa����o, 2011

K'cidade : um modo de viver a interven����o comunit��ria

Relat��rio de est��gio de mestrado, Ci��ncias da Educa����o (Forma����o de Adultos), Universidade de Lisboa, Instituto de Educa����o, 2011

Contributos da educa����o : (re)viver na pris��o

Relat��rio de est��gio de mestrado, Ci��ncias da Educa����o (Educa����o Intercultural), Universidade de Lisboa, Instituto de Educa����o, 2011

Migra����es : novas realidades : viver num mundo em movimento

Supervisionada, Educa����o (Mestrado em Ensino de Hist��ria e Geografia no 3�� Ciclo do Ensino B��sico e Ensino Secund��rio), Universidade de Lisboa, Instituto de Educa����o, 2014

Viver sobrevivendo : emo����es e din��micas socioculturais nos processos de manuten����o das rela����es conjugais violentas

Atrav��s da desconstru����o e an��lise das din��micas da viol��ncia de g��nero, particularmente das rela����es conjugais violentas, tenta-�����se perceber os motivos que levam as mulheres v��timas a permanecer em longos ciclos de viol��ncia conjugal. Exploram-�����se as din��micas e interac����es sociais entre todos os intervenientes das rela����es conjugais violentas e identificam-�����se as l��gicas que contribuem para a manuten����o dos ciclos de viol��ncia, que adv��m dessa interac����o. Ao mesmo tempo analisam-�����se os contextos da experiencia emocional vivida pelas v��timas, em particular atrav��s de emo����es socais como a vergonha e culpa que aprisionam as mulheres na rela����o violenta. A an��lise desse contexto emocional faz-�����se, ainda, atrav��s do recurso a determinados indicadores de express��o emocional, em situa����o de entrevista, e que permitem explorar, de forma mais profunda, as din��micas emocionais por vezes n��o reconhecidas pelas pr��prias mulheres v��timas.

Inniskillin Promotional Booklet

A brochure produced by Inniskillin that outlines the history and development of the winery. Also described is the Inniskillin Okanagan, British Columbia winery and its production of high quality wine.

Inniskillin Colour Promotional Booklet

A colour printed promotional booklet for Inniskillin winery. The cover features Donald Ziraldo and Karl Kaiser in the vineyard and the inside of booklet describes the wines available and a brief description of the winery locations.