Measuring parent satisfaction with a neonatal hearing screening program

The primary aim of the present study was to investigate parent satisfaction with a neonatal hearing screening program through use of a valid and reliable questionnaire developed for this purpose (Parent Satisfaction Questionnaire with Neonatal Hearing Screening Program; PSQ-NHSP). Eighty parents whose children had received hearing screening participated in this study. High levels of satisfaction were reported with more than 90% of parents satisfied with all aspects of the program. The PSQ-NHSP was analyzed for validity and reliability and demonstrated excellent internal consistency reliability (sigma = 0.94) and excellent test-retest reliability (rho = 0.97). Content validity of the PSQ-NHSP was partially established by reviewing available literature on parent satisfaction studies in other pediatric health-care service programs. Construct validity of the PSQ-NHSP was indicated by a significant positive relationship between overall satisfaction and the three specific dimensions in the questionnaire. The satisfaction questionnaire was found to be a useful instrument for identifying service shortfalls, and routine use of the PSQ-NHSP in other neonatal hearing screening programs is recommended.

Advanced Asia's health systems in comparison

There is growing interest in comparing patterns of social and health service development in advanced Asian economies. Most publications concentrate broadly on a range of core social services such as education, housing, social security and health care. In terms of those solely focused on health, most discuss arrangements in specific countries and territories. Some take a comparative approach, but are focused on presentation and discussion of expenditure, resourcing and service utilization data. This article extends the comparative analysis of advanced Asian health systems, considering the cases of Japan, South Korea, Taiwan, Hong Kong and Singapore. The article provides basic background information, and delves into common concerns among the world's health systems today including primary care organization, rationing and cost containment, service quality, and system integration. Conclusions include that problems exist in 'classifying' the five diverse systems; that the systems face common pressures; and that there are considerable opportunities to enhance primary care, service quality and system integration. (c) 2006 Elsevier Ireland Ltd. All rights reserved.

Cholinesterase inhibitors for Parkinson's disease dementia

Background - The loss of cholinergic, dopaminergic and noradrenergic innervations seen in Parkinson's Disease Dementia (PDD) suggest a potential role for cholinesterase inhibitors. Concerns have been expressed about a theoretical worsening of Parkinson's disease related symptoms, particularly movement symptoms. Objectives - To assess the efficacy, safety, tolerability and health economic data relating to the use of cholinesterase inhibitors in PDD. Search methods - The trials were identified from the Specialized Register of the Cochrane Dementia and Cognitive Improvement Group on 19 April 2005 using the search term parkinson*. This register contains records from major health care databases and many ongoing trial databases and is updated regularly. Comprehensive searches of abstracts from major scientific meetings were performed. Pharmaceutical companies were approached for information regarding additional and ongoing studies. Selection criteria - Randomized, double-blind, placebo-controlled studies assessing the effectiveness of cholinesterase inhibitors in PDD. Inclusion and exclusion criteria were stated to limit bias. Data collection and analysis - Two reviewers (IM, CF) independently reviewed the quality of the studies utilizing criteria from the Cochrane Collaboration Handbook. Medications were examined separately and as a group. The outcome measures assessed were in the following domains: neuropsychiatric features, cognition, global impression, daily living activities, quality of life, burden on caregiver, Parkinsonian related symptoms, treatment acceptability as determined by withdrawal from trials, safety as determined by the frequency of adverse events, institutionalisation, death and health economic factors. Main results - A detailed and systematic search of relevant databases identified one published randomized, double-blind, placebo-controlled study (Emre 2004) involving 541 patients that compared rivastigmine with placebo. Rivastigmine produced statistically significant improvements in several outcome measures. On the primary cognitive measure, the ADAS-Cog, rivastigmine was associated with a 2.80 point ADAS-Cog improvement [WMD -2.80, 95% Cl -4.26 to -1.34, P = 0.0002] and a 2.50 point ADCS-ADL improvement [95% Cl 0.43 to 4.57, P = 0.02] relative to placebo. Clinically meaningful (moderate or marked) improvement occurred in 5.3% more patients on rivastigmine, and meaningful worsening occurred in 10.1% more patients on placebo. Tolerability appeared to be a significant issue. Significantly more patients on rivastigmine dropped out of the study due to adverse events [62/362 versus 14/179, OR 2.44, 95% Cl 1.32 to 4.48, P = 0.004]. Nausea [20/179 versus 105/362, OR 3.25, 95% Cl 1.94 to 5.45, P < 0.00001], tremor [7/179 versus 37/362, OR 2.80, 95% Cl 1.22 to 6.41, P = 0.01] and in particular vomiting [3/179 versus 60/362, OR 11.66, 95% Cl 3.60 to 37.72, P < 0.0001] were significantly more common with rivastigmine. However, significantly fewer patients died on rivastigmine than placebo [4/362 versus 7/179, OR 0.27, 95% CI 0.08 to 0.95, P = 0.04] Authors' conclusions - Rivastigmine appears to improve cognition and activities of daily living in patients with PDD. This results in clinically meaningful benefit in about 15% of cases. There is a need for more studies utilising pragmatic measures such as time to residential care facility and both patient and carer quality of life assessments. Future trials should involve other cholinesterase inhibitors, utilise tools to analyse the data that limit any bias and measure health economic factors. It is unlikely that relying solely on the last observation carried forward (LOCF) is sufficient. Publication of the observed case data in the largest trial would assist (Emre 2004). Adverse events were associated with the cholinergic activity of rivastigmine, but may limit patient acceptability as evidenced by the high drop out rate in the active arm.

Ser cuidador de paciente com acidente vascular cerebral: histórias não contadas

The present study aimed to understand the experience of being a family caregiver of a patient with Cerebrovascular Accident (CVA). The relevance of the study is to prove existence of a large number of caregivers of incapacitated patients, due to the CVA and it is not an academic research object, according to the literature. It is a qualitative research, which the guiding principle is the oral history of life, according to the theoretical foundation and operating of Meihy. Therefore, the following steps were highlighted: the target community, composed of all family caregivers of CVA patients; the colony, composed by family caregivers of CVA patients assisted by Home Care Service (HCS) of the Hospital José Pedro Bezerra (HJPB), in the city of Natal/RN; the network was composed of six caregivers who met the criteria for inclusion, and as zero point the first volunteer group. The population was composed of all family caregivers of patients attended by the HCS, of the HJPB having been addressed through interviews. For the empirical research there was the consent of that institution and approval by the Ethics Committee in Research of the Federal University of Rio Grande do Norte as CAAE 24569413.0.0000.5537 and, above all, with the acquiescence of employees in participating in the investigation, signing an informed consent. Of the empirical material, five categories of analysis were identified: the sense of being a caregiver; what has changed in the life of the caregiver; the feelings emerge in the relationship of care; the distance from family and friends; difficulties faced by the caregiver. The results show that the caregiver's life goes through profound transformations within the family as well as in all spheres of life. For the caregivers, assuming the care of a relative with CVA means renunciation and donation, compromising sometimes the individual projects and the family as a whole. In addition, they point out the confrontation of difficulties within the the assistance and humanization in healthcare, information, physical and emotional overload, as well as financial problems. Despite all the adversities that compromise the caregiver's life, it was possible to identify attitudes of resilience among caregivers, making them their daily life less strenuous and with more lightness. It is expected, therefore, that this research can contribute to a better orientation of professionals with the caregivers

A reforma psiquiátrica e a política de saúde mental do Rio Grande do Norte: papéis e funções de profissionais e gestores

This study arose from an interest in knowing the reality of mental health care in Rio Grande do Norte (RN) on the advances and challenges in the intersectoral agreements paths and consolidation of the Psychosocial Care Network (RAPS) from the state. Considering problematic and concerns were defined as objectives: Identify the knowledge of managers of Rio Grande do Norte on the National Mental Health Policy (PNSM) in the RN State; Describe the activities developed by health professionals in the individual service offered in the CAPS from RN; Understanding the relationship of managers’ knowledge on national mental health policy in professionals’ practice working in the the CAPS from the countryside. It is a descriptive study with a quantitative and qualitative approach, carried out in 30 CAPS from RN’s countryside, where 183 professionals answered a structured questionnaire with closed questions about the activities they do in individual care; and 19 mental health coordinators of municipalities and the state coordinator of RAPS were interviewed about their knowledge on the Mental Health Policy. Data were collected after approval by the Research Ethics Committee of the Federal University of Rio Grande do Norte, with the number 508.430 CAAE: 25851913.7.0000.5537 from August through October of 2014 in 26 municipalities with CAPS from the state. Quantitative data were tabulated and analyzed using a descriptive statistics aided by the software Statistical Package for the Social Scienses (SPSS) version 20.0. The qualitative data were prepared in a corpus and analyzed through software Analyse Lexicale par Contexte d’um Ensemble de Segments de Texte (ALCESTE) that allow to perform textual statistical analysis and categorization from their comments, submitted to Bardin content analysis. Five categories were generated approaching the managers’ knowledge, namely: Back to society: leadership and users’ role and autonomy; The gap between policy and practice; Barriers that affect the service; Structuring the Psychosocial Care Network; Multidisciplinary team: attribuitios and activities. The CAPS professionals’ ages ranged from 20 to 58 years, prevailing females, with 76.5% of the total, the majority were social workers (16.8%), psychologists (15.3%), nurses (14.8%) and nursing technicians (14.8%). The results showed precariousness in care associated with physical workload regard to high workload and low wages of the CAPS professionals' and, also, it was possible to observe a large involvement of professionals in care delivery, despite the difficulties encountered in services. It was found little knowledge in managers regarding the National Mental Health Policy having as causes of this reality the poor education and training of these professionals. The responses of professionals working in care reveals strong consistency with what is expected of a psychosocial care service. Points up as a thesis of this study that the psychiatric reform and mental health policy in Rio Grande do Norte is following a structural expansion process, but with precariousness of services from a still unprepared management to act in a psychosocial context.

Acompanhamento coletivo do crescimento e desenvolvimento infantil: participação de mães/cuidadores

This study aimed to analyze the participation of mothers/caregivers from the perspective of the health care model that directs the collective monitoring of child growth and development. This is an exploratory and descriptive research with qualitative approach, carried out in two Family Health Units located in the city of Natal/RN. Data were collected between August and September 2014, through participant observation and semi-structured interview technique, with mothers of infants seen at follow-up visits collective child growth and development. A total of 13 mothers were included who met the following inclusion criteria: being a mother/caregiver responsible for the care of children who have attended one or more meeting of collective monitoring of child growth and development. Exclusion criteria was established: users outside the area covered by the Health Unit Family and who did not use the National Health System as the primary health care service. For the treatment of the collected material, the content analysis was used, thematic Bardin. The study followed the ethical and legal principles governing the scientific research on human subjects recommended by Resolution nº. 466/2012 of the National Health Council and its realization occurred with the approval of the project in the Research Ethics Committee of the Federal University of Rio Grande do North, which was approved by Opinion Embodied nº. 719 949, of June 27, 2014, and Certificate Presentation of Findings Ethics No 32510514.7.0000.5537. Although not conceptualize theoretically mothers demonstrated that collective consultations of child growth and development are actions aimed at health surveillance model, since most pointed monitoring your child to actions that can be measured. Even with that, it was established the existence of health promotion actions by reporting the exchange of experience and leadership of the subjects in collective action, factor facilitated by the link established between users and professionals and users. In this action there is the induction of permanent horizontal relationship where we seek to combine popular knowledge to scientific knowledge in order to promote the integral care for the child. However, it is still possible to find professionals who directs its assistance only to pathological processes and fail to create comprehensive care alternatives. In addition, there is still embezzlement in multi that should provide care to the child population. This factor may be related to their professional training, and thus an issue that can last for a few years. We conclude that it is necessary to incorporate alternatives and models of care that support overcoming limitations and enhancing the health of the population, involving it in the prospect of a better quality of life and therefore health.

« Utilisation des services de santé chez les personnes âgées : association avec la maladie chronique et l’incapacité »

Diverses publications soulignent l'augmentation de l'espérance de vie et avec elle, le vieillissement mondial de la population. Ce processus se poursuivra à l'avenir, ainsi que son influence sur l’incidence et la prévalence de l'incapacité. Chez les personnes âgées, l’incapacité, les maladies chroniques et leur association constituent un sujet important dans le domaine de la santé publique en raison de l'effet qu'ils ont sur la demande des services de santé. Le but de ce mémoire est d’examiner quelle est la contribution respective des maladies chroniques et de l'incapacité dans l'utilisation des services de santé chez les personnes âgées et de leur interaction. Il s’agit de savoir si l'association entre la maladie chronique et l'utilisation des services de santé est modifiée par l’incapacité prenant en compte les caractéristiques de l'individu et son environnement. Ce travail est basé sur le modèle comportemental proposé par Andersen et Newman et le modèle du processus d’incapacité de Verbrugge et Jette. Pour répondre à l’objectif, nous utilisons les données du projet de recherche “ FRéLE ” (Fragilité, une étude longitudinale de ses expressions), réalisé durant la période 2010 -2013 auprès d’un échantillon de 1643 personnes âgées vivant dans la communauté au Québec. L’incapacité est évaluée à l’aide de deux indicateurs : les AVQ et les AVD. Les maladies chroniques sont mesurées par l’indice fonctionnel de comorbidité (IFC). La dépression est évaluée selon les critères de l’échelle de dépression gériatrique (EDG). L’état cognitif est mesuré par l'évaluation cognitive de Montréal (MoCA). Les facteurs de prédisposition comportent l’âge, le sexe, l’ethnicité et le niveau scolaire. Les facteurs facilitateurs incluent le revenu et le réseau social, ce dernier étant mesure par la présence ou non d’une personne de soutien et son lien avec la personne âgée. Divers modèles de régression sont adoptés pour identifier les facteurs statistiquement significatifs du modèle comportemental d’Andersen et Newman et du modèle du processus d’incapacité de Verbrugge et Jette. Nos résultats ont montré que, si le rôle des prédicteurs de l’utilisation varie en fonction du type de services de santé utilisé, l’utilisation s’accroît principalement avec le nombre de maladies chroniques. En ce qui concerne l’interaction entre la maladie chronique et l’incapacité, nos résultats ont révélé que l’interaction n’est statistiquement significative pour aucun des services analysés. Compte tenu de la diversité et les besoins de la population âgée, caractérisée par une prévalence élevée de maladies chroniques et d'incapacités, l’étude des facteurs impliqués dans l'utilisation des services de santé sera utile pour la mise en œuvre d’une offre de services, plus conforme aux besoins de cette population

« Utilisation des services de santé chez les personnes âgées : association avec la maladie chronique et l’incapacité »

Diverses publications soulignent l'augmentation de l'espérance de vie et avec elle, le vieillissement mondial de la population. Ce processus se poursuivra à l'avenir, ainsi que son influence sur l’incidence et la prévalence de l'incapacité. Chez les personnes âgées, l’incapacité, les maladies chroniques et leur association constituent un sujet important dans le domaine de la santé publique en raison de l'effet qu'ils ont sur la demande des services de santé. Le but de ce mémoire est d’examiner quelle est la contribution respective des maladies chroniques et de l'incapacité dans l'utilisation des services de santé chez les personnes âgées et de leur interaction. Il s’agit de savoir si l'association entre la maladie chronique et l'utilisation des services de santé est modifiée par l’incapacité prenant en compte les caractéristiques de l'individu et son environnement. Ce travail est basé sur le modèle comportemental proposé par Andersen et Newman et le modèle du processus d’incapacité de Verbrugge et Jette. Pour répondre à l’objectif, nous utilisons les données du projet de recherche “ FRéLE ” (Fragilité, une étude longitudinale de ses expressions), réalisé durant la période 2010 -2013 auprès d’un échantillon de 1643 personnes âgées vivant dans la communauté au Québec. L’incapacité est évaluée à l’aide de deux indicateurs : les AVQ et les AVD. Les maladies chroniques sont mesurées par l’indice fonctionnel de comorbidité (IFC). La dépression est évaluée selon les critères de l’échelle de dépression gériatrique (EDG). L’état cognitif est mesuré par l'évaluation cognitive de Montréal (MoCA). Les facteurs de prédisposition comportent l’âge, le sexe, l’ethnicité et le niveau scolaire. Les facteurs facilitateurs incluent le revenu et le réseau social, ce dernier étant mesure par la présence ou non d’une personne de soutien et son lien avec la personne âgée. Divers modèles de régression sont adoptés pour identifier les facteurs statistiquement significatifs du modèle comportemental d’Andersen et Newman et du modèle du processus d’incapacité de Verbrugge et Jette. Nos résultats ont montré que, si le rôle des prédicteurs de l’utilisation varie en fonction du type de services de santé utilisé, l’utilisation s’accroît principalement avec le nombre de maladies chroniques. En ce qui concerne l’interaction entre la maladie chronique et l’incapacité, nos résultats ont révélé que l’interaction n’est statistiquement significative pour aucun des services analysés. Compte tenu de la diversité et les besoins de la population âgée, caractérisée par une prévalence élevée de maladies chroniques et d'incapacités, l’étude des facteurs impliqués dans l'utilisation des services de santé sera utile pour la mise en œuvre d’une offre de services, plus conforme aux besoins de cette population

Denkstijl, Responsstijl en Comorbiditeit bij Jongeren met Externaliserende Problematiek in Residentiële Behandelcentra

Veel jongeren met gedragsproblemen in residentiële behandelcentra hebben daarnaast te maken met depressieve symptomen. Deze comorbiditeit van externaliserende problematiek en depressieve symptomen is geassocieerd met belemmeringen in het functioneren op vele gebieden. Het is bekend dat de manier van denken (denkstijl) en de manier van reageren (responsstijl) op stressvolle gebeurtenissen invloed hebben op het ontstaan en in stand houden van depressie bij jongeren. De vraag is welke invloed de denkstijl en de responsstijl hebben op de ernst van de depressieve symptomen bij jongeren met comorbide problematiek in residentiële behandelcentra. Het doel van het onderzoek is meer inzicht te verwerven in de cognities en het gedragsmatig handelen van jongeren met comorbiditeit van externaliserende problematiek en depressieve symptomen in residentiële behandelcentra. Jongeren en hun ouders van zeven leefgroepen van De Hoenderloo groep, acht leefgroepen van Jan Pieter Heije en vier leefgroepen van Karakter werden uitgenodigd voor deelname aan het onderzoek. Na een mondelinge toelichting gaven 90 jongeren (en hun ouders) toestemming. Bij alle deelnemende jongeren was er sprake van externaliserende problematiek. De onderzoeksgroep bevatte 60 jongens en 30 meisjes. De leeftijd van de jongeren varieerde van 9 jaar en 5 maanden tot 18 jaar en 1 maand (M = 169.79, SD = 19.29). Het totale IQ van de jongeren ligt tussen de 60 en 110 (M = 84.04, SD = 12.98). Er werd op de leefgroepen eenmalig, individueel en in interview-vorm een zelfrapportage vragenlijst afgenomen bij de jongeren. Om de ernst van de depressieve symptomen bij de jongeren te meten werd gebruik gemaakt van de Children´s Depression Inventory 2 (CDI 2; Kovacs, 2011). Cognitieve denkfouten werd gemeten met de Children’s Negative Cognitive Error Questionnaire- Revised (CNCEQ-R; Maric, Heyne, Widenfelt, & Westenberg, 2011) en de responsstijl werd gemeten met de Children’s Response Styles Questionnaire (CRSQ; Abela, Rochon, & Vanderbilt, 2000). De resultaten lieten zien dat er geen significant verband bestaat tussen het gebruik van afleiding zoeken en probleem oplossen enerzijds en depressieve symptomen anderzijds. Wel kwam uit de resultaten naar voren dat jongeren die meer rumineren in stressvolle situaties, meer last hebben van depressieve symptomen. Deze samenhang tussen rumineren en depressieve symptomen wordt voor een deel verklaard door overgeneralisatie. Selectieve abstractie bood geen verklaring voor de samenhang tussen rumineren en depressieve symptomen. Uit de bevindingen van dit onderzoek kan worden geconcludeerd dat rumineren en overgeneralisatie van invloed kunnen zijn op de ernst van de depressieve symptomen bij residentiële jongeren met externaliserende problematiek. Voor het uitblijven van verwachte verbanden worden mogelijke verklaringen besproken. Dit onderzoek kan, rekening houdend met de beperkingen van en aanbevelingen in dit onderzoek, worden gezien als een aanzet tot toekomstig onderzoek naar de denkstijl en responsstijl bij jongeren met comorbide problematiek in residentiële behandelcentra.

Responsibility and Well-being: Resource Integration under Responsibilization in Expert Services

Responsibilization, or the shift in functions and risks from providers and producers to the consumer, has become an increasingly common policy in service systems and marketplaces (e.g., financial, health, governmental). Responsibilization is often presented as synonymous with consumer agency and well-being. We take a transformative service research perspective and utilize the resource integration framework to investigate whether responsibilization is truly associated with well-being. We focus on expert services, where responsibilization concerns are particularly salient, and question whether this expanding policy is in the public interest. In the process, we develop a conceptualization of resource integration under responsibilization that includes three levels of actors (consumer, provider and service system), the identification of structural tensions to resource integration and three categories of resource integration practices (access, appropriation and management) necessary to negotiate responsibilization. Our findings have important implications for health care providers, public policy makers, and other service systems, all of which must pay more active attention to the challenges consumers face in negotiating responsibilization and the resulting well-being outcomes.

A organização da demanda em serviços públicos de saúde bucal: universalidade, eqüidade e integralidade em saúde bucal coletiva

RONCALLI, Angelo Giuseppe. A organização da demanda em serviços públicos de saúde bucal: universalidade, eqüidade e integralidade em Saúde Bucal Coletiva. raçatuba, 2000. 238p. Tese (Doutorado em Odontologia Preventiva e Social). Faculdade de Odontologia, Universidade Estadual Paulista “Júlio de Mesquita Filho”

Autonomia e Satisfação com a Vida em Jovens Institucionalizados: Lares de Infância e Juventude vs Apartamentos de Autonomização

O principal objectivo deste estudo centra-se na compreensão das relações entre autonomia, satisfação com a vida e a satisfação com a instituição em jovens institucionalizados. Analisaram-se estes três conceitos nas suas relações com a idade, sexo e tipo de resposta social, incidindo a atenção nas diferenças existentes num acolhimento em lar de infância e juventude [LIJ] e apartamento de autonomização [AA]. Participaram neste estudo 181 jovens, de ambos os sexos, com idades compreendidas entre os 13 e os 21 anos. Em LIJ estavam acolhidos 155 jovens e 26 em AA. Para avaliar a autonomia utilizou-se o Questionário de Autonomia dos Adolescentes e para a satisfação com a vida a Escala de Satisfação com a Vida. Foi elaborado um questionário com o intuito de avaliar a satisfação com a instituição. De uma forma geral, os resultados indicam-nos que a satisfação com a vida está relacionada positivamente com a autonomia, na sua forma geral, com a dimensão autonomia funcional e com a satisfação com a instituição. A autonomia funcional encontra-se igualmente relacionada positivamente com a satisfação com a instituição. Os rapazes manifestam-se mais satisfeitos com a vida e com a instituição, assim como se sentem mais autónomos do que as raparigas. Os jovens mais velhos mostram-se mais autónomos que os mais novos, e a nível da resposta social é nos AA que se verifica maior autonomia, satisfação com a vida e com a instituição. Podemos salientar que os jovens institucionalizados apresentam níveis de satisfação com a vida baixos, sejam eles jovens mais novos ou mais velhos. Verificámos também que a satisfação com a vida destes jovens é influenciada positivamente pela percepção de competência face à escolha de uma estratégia e sua concretização para atingir um objectivo. Finalmente, podemos perceber que os jovens acolhidos em AA se mostram menos insatisfeitos com a vida e com a instituição, assim como manifestam uma percepção de autonomia superior, aos acolhidos em LIJ. / The main objective of this study focuses on understanding the relationship between autonomy, life satisfaction and institution satisfaction for institutionalized youngters. The analysis was based in these three concepts related to their age relations, sex and type of social care, focuses the attention on the differences between residential care and apartment care. In this study participated 181 youngsters, of both sexes, aged between 13 and 21 years old. Of the 181 youngsters, 155 were placed in residential care and 26 in the apartments care (apartments focused in autonomy development). In order to evaluate autonomy was used the Adolescent Autonomy Questionnaire, for evaluate life satisfaction was used the Students’ Life Satisfaction Scale. To access satisfaction with the institution, was developed a questionnaire, Satisfaction with the Institution Scale. In a general way, the results indicate that life satisfaction is positively related to autonomy, in its general form, with functional autonomy dimension and satisfaction with the institution. Functional autonomy is also positively related to satisfaction with the institution. The boys manifest, themselves, more satisfied with life and the institution as well as feel more autonomous than girls. The older youngsters appear to be more autonomous than younger ones. Analyzing the type of care, is in the apartment care that appear to be greater autonomy, satisfaction with life and with the institution. We point out that institutionalized youngsters have low life satisfaction, low levels whether they be younger or older youngsters. We also observed that life satisfaction of these youngsters is positively influenced by the perception of competence given the choice of a strategy and its implementation to achieve a goal. Finally, we can observe that youngsters in apartment care are less dissatisfied with life and the institution as well as express a greater sense of autonomy to those living in residential care.

Relações de Vinculação dos Jovens Institucionalizados com os Cuidadores Formais

No quadro da teoria da vinculação, é possível estabelecer relações de vinculação ao longo de toda a vida, sendo que, apesar dos jovens institucionalizados rejeitarem estabelecer novas relações de vinculação numa fase inicial, acabam por procurá-las, desde que essa figura desempenhe funções de cuidador responsivo, de modo estável e apoiante. Este estudo tem como objetivo principal perceber se as crianças e jovens acolhidos em Lares de Infância e Juventude (LIJ) estabelecem relações de vinculação com os cuidadores formais e compreender como essa relação foi construída. Foram utilizados os questionários Important People Interview (IPI; Kobak e Rosenthal, 2010) e Hierarquização das Figuras Significativas por Campos de Vida (HFSCV), criado para incluir os jovens que consideram não terem desenvolvido relações de vinculação com os cuidadores formais do LIJ. Foi, ainda, realizada uma entrevista semiestruturada. Apesar de usarmos uma metodologia quantitativa para análise dos resultados dos dois primeiros questionários, esta investigação prima sobretudo pela abordagem qualitativa, através do recurso à técnica de análise conteúdo das entrevistas. O estudo foi realizado no LIJ “Comunidade Juvenil de São Francisco de Assis”, localizado em Coimbra, contando com a participação de 16 jovens de ambos os géneros, com idades entre os 13 e os 19 anos (M=16; DP=1,8), com tempo de permanência no LIJ igual ou superior a 2 anos contínuos. Estes 16 jovens constituem a amostra total da investigação, sobre a qual incidiu a primeira parte do estudo (abordagem quantitativa), ao que se seguiu a segunda parte do estudo (abordagem qualitativa), que contou com a participação de uma subamostra de 11 jovens, pertencentes à amostra total. Os resultados sugerem que a maioria dos jovens estabeleceu relações de vinculação com os cuidadores formais do LIJ, sendo que a maioria das hierarquias das figuras de vinculação foram constituídas com base nos laços de familiaridade e na ligação afetiva com os seus cuidadores formais. Os jovens destacaram a compreensibilidade, confiabilidade e disponibilidade para o auxílio como sendo as características que determinaram a sua preferência em relação aos cuidadores formais do LIJ. Refira-se, ainda, que as situações que ativam a procura destas figuras estão relacionadas com a necessidade de apoio e proteção. O presente estudo sugere que é possível um LIJ promover relações semelhantes às desenvolvidas em meio familiar e atuar de forma reparadora ao nível das relações de vinculação. / In the attachment theory framework, one can establish attachment relationships throughout one's life. In the case of institutionalized youngsters, even though at first they seem to refuse new attachment relationships, these adolescents end up looking for them, if the person is perceived as a responsive, stable and supportive caregiver. The main goal of this study is to understand whether children and young people taken into Child and Youth Residential Care establish attachment relationships with formal caregivers and, if so, understand how that relationship is built. We have used the questionnaires Important People Interview (IPI; Kobak & Rosenthal, 2010) and Hierarquização das Figuras Significativas por Campos de Vida (HFSCV) (Hierarchization of Significant Figures by Life Fields), created to include the youngsters who consider not have developed attachment relations with Residential Care's formal caregivers. We have also conducted a semi-structured interview. Even though we used a quantitative methodology to process the results of the two inquiries, this research nevertheless privileges a qualitative approach, thorough the technique of analysis of interview content. The study was conducted at the “Comunidade Juvenil de São Francisco de Assis” residential care institution, in Coimbra, Portugal. It had the participation of 16 youngsters of both genders, with ages between 13 and 19 (M=16; DP=1,8), who had been staying at the home for two or more years, non-interrupted. These 16 adolescents are therefore the total sample for this study, and all of them were submitted to the first part (the quantitative approach) of the research. For the second part (the qualitative approach) we worked with a subsample of 11 youngsters, chosen from the initial sample of 16. Results suggest that most young people have indeed developed attachment relationships with residential care's formal caregivers, and most hierarchies of attachment figures were built based on familiarity and affection bonds with their formal caregivers. The subjects have highlighted understanding, trustworthiness and helpfulness as the features that best determine their preference regarding formal caregivers. We must note that the need for protection and support is what enables young people to look out for attachment figures the most. The current study suggests that it is possible for Child and Youth Residential Care to promote relationships similar to those developed in family environment and acts as repairing in what concerns attachment relationships.

Indicadores de Resiliência em Adolescentes Institucionalizados: o papel da vinculação aos pares, aos professores e aos funcionários da instituição

Ser resiliente implica ser capaz de adaptar positivamente a contextos de grande adversidade. Esta capacidade depende de múltiplos fatores (individuais, relacionais e contextuais) cuja mobilização se encontra dificultada entre os adolescentes cujo desenvolvimento ficou comprometido pela experiência de maus-tratos. Quando protegidos pelo acolhimento institucional, é nos pares, nos professores e nos funcionários da instituição que estes adolescentes encontram o cuidado, o suporte e o encorajamento de que necessitam, e que tanto pesa sobre o seu bem-estar. Foi, assim, objetivo deste estudo examinar o papel que a qualidade da vinculação aos pares, professores e funcionários da instituição desempenha na promoção da resiliência em adolescentes institucionalizados. Os dados foram recolhidos junto de 45 adolescentes (18 rapazes e 27 raparigas), com idades compreendidas entre os 10 e os 20 anos, em regime de acolhimento institucional prolongado. Para o efeito foram utilizados um breve questionário sociodemográfico, o Child and Youth Resilience Measure – 28 – versão para Jovens (Liebenberg, Ungar & Van de Vijver, 2012; versão portuguesa Ferreira & Nobre-Lima, 2013), o Inventory of Parent and Peer Attachment Revised (Armsden & Greenberg, 1987; versão portuguesa Figueiredo & Machado, 2008) – versão para Pares e Professores – e o Questionário de Ligação aos Professores e Funcionários (Mota & Matos, 2005). Ainda que tenham sido encontradas correlações significativas entre a resiliência e cada uma das variáveis em estudo, a percepção de vinculação aos pares e aos funcionários da instituição sobressaem como as variáveis que melhor explicam a resiliência nestes adolescentes, em particular nos rapazes. Já nas raparigas, a única variável que parece explicar a resiliência é a percepção de vinculação aos funcionários da instituição. A discussão explora estes resultados em termos do seu significado e implicações práticas. / Being resilient implies the ability to positively adapt to contexts of great adversity. This ability depends on a variety of factors (individual, relational and contextual) that are mostly non operative among the adolescents whose development was compromised by maltreatment. When protected by residential care these adolescents rest on peers, teachers and residential caregivers to find the care, support and encouragement they need to improve their sense of wellbeing. Therefore, the aim of this study was to examine how attachment to peers, teachers and residential caregivers can contribute to foster resilience in institutionalized adolescents. Data was collected from a sample of 45 adolescents (18 boys and 27 girls), aged between 10 and 20 years old, under extended placement in an institution. The PI is composed by a brief social-demographic questionnaire, the Child and Youth Resilience Measure – 28 – Youth version (Liebenberg, Ungar & Van de Vijver, 2012, Portuguese version Ferreira & Nobre- Lima, 2013), the Inventory of Parent and Peer Attachment Revised (Armsden & Greenberg, 1987; Portuguese version Figueiredo & Machado, 2008) – Peers and Teacher’s version – and the Questionnaire of the Affective Relationship with Teachers and Employees (Mota & Matos, 2005). Although findings showed significant correlations between resilience and each one of the variables in study, the perception of attachment to peers and residential caregivers stood out as the most correlated variables to resilience among these adolescents, mainly among the boys. Conversely, the only variable that seems to explain resilience among girls is the perception of attachment to residential caregivers. The discussion explores the possible meaning and practical implications of these findings.

Developing leadership in managers to facilitate the implementation of national guideline recommendations : a process evaluation of feasibility and usefulness

Background: Previous research supports the claim that managers are vital players in the implementation of clinical practice guidelines (CPGs), yet little is known about interventions aiming to develop managers’ leadership in facilitating implementation. In this pilot study, process evaluation was employed to study the feasibility and usefulness of a leadership intervention by exploring the intervention’s potential to support managers in the implementation of national guideline recommendations for stroke care in outpatient rehabilitation. Methods: Eleven senior and frontline managers from five outpatient stroke rehabilitation centers participated in a four-month leadership intervention that included workshops, seminars, and teleconferences. The focus was on developing knowledge and skills to enhance the implementation of CPG recommendations, with a particular focus on leadership behaviors. Each dyad of managers was assigned to develop a leadership plan with specific goals and leadership behaviors for implementing three rehabilitation recommendations. Feasibility and usefulness were explored through observations and interviews with the managers and staff members prior to the intervention, and then one month and one year after the intervention. Results: Managers considered the intervention beneficial, particularly the participation of both senior and frontline managers and the focus on leadership knowledge and skills for implementing CPG recommendations. All the managers developed a leadership plan, but only two units identified goals specific to implementing the three stroke rehabilitation recommendations. Of these, only one identified leadership behaviors that support implementation. Conclusion: Managers found that the intervention was delivered in a feasible way and appreciated the focus on leadership to facilitate implementation. However, the intervention appeared to have limited impact on managers’ behaviors or clinical practice at the units. Future interventions directed towards managers should have a stronger focus on developing leadership skills and behaviors to tailor implementation plans and support implementation of CPG recommendations.