Sobrecarga w sofrimento psíquico em familiares de portadores de transtorno de pânico com agorafobia

Pós-graduação em Saúde Coletiva - FMB

Indicadores de stress e sobrecarga em cuidadores formais e informais de pacientes oncológicos

The present study aimed to identify the presence of indicators of stress, levels of stress and overload with the formal and informal caregivers of cancer patients. Participated in the survey 33 caregivers of cancer patients in total, 16 formal and 17 informal. To collect data, we used: 1) Roadmap for characterization of participants; 2) Inventory of Stress Symptoms Lipp - ISSL and 3) Protocol Zarit Burden Interview - ZBT. The results revealed that 43 % of informal carers were in the resistance phase, 29 % in the burnout stage, 14 % at the stage of exhaustion and almost 14 % in the alert phase. Formal caregivers 25 % are in the exhaustion phase and 75 % in the resistance. The overload has also performed on a larger scale in informal than formal caregivers, 47 % to 18,7 % charge respectively. However, the results revealed no statistically significant difference between groups for the incidence of stress but indicated a difference against overloading pointing out that professional caregivers in the incidence is lower. The results suggest the need to implement support for informal and formal caregivers programs, develop coping strategies, handling the situations of overload and stress, aiming to better quality of life for the caregiver, and consequently for the patient who is receiving care.

Perfil de pacientes portadores de gastrostomia e o papel dos cuidadores no domicílio

Pós-graduação em Enfermagem (mestrado profissional) - FMB

Cuida e ser cuidado: compreendendo as significações desse processo para famíliares cuidadores e idosos dependentes usuários de um Centro Dia

Pós-graduação em Saúde Coletiva - FMB

Reconhecendo a sobrecarga e a qualidade de vida de cuidadores familiares de idosos frágeis

OBJECTIVE: This study aimed to analyze the correlation between the levels of functional dependence of elderly living in the community, the burden related to care and the perception of quality of life in familiar caregivers. METHODS: This is an observational, descriptive and analytical study, using non probabilistic sampling selected by convenience in the period from December 2008 to May 2009, in the urban area of Curitiba and Colombo, state of Paraná, Brazil. Interviews were applied to caregivers, using demographic inquiry, functional evaluation of the aged, burden interview (Zarit-Burden-Interview) and quality of life instrument (WHOQOL-Bref). Spearman, Mann-Whitney and Kruskal Wallis coefficients were used to analyze the correlations between instruments and socio-demographic variables. Bivariate analyses identified which variables correlate with burden, and the most significant were included in a multiple linear regression. RESULTS: Forty-five caregivers were interviewed, mostly women (91.11%) with high educational level attending dependent elderly (66.77%). Moderate/severe burden was perceived in 75.55% of the sample. We found correlation between dependence, more severe burden in caregivers (r=-0.281, p=0.013) and worse perception of quality of life. The multiple linear regression identified strong association between burden related to care and psychological domain from WHOQOL-bref and time as caregiver (R²=0.58, p<0.001). CONCLUSION: In a sample of familiar caregivers, we identified correlations between lower burden related to care and better quality of life perceptions, as well as higher disability and less satisfactory quality of life perceptions.

Avaliação da sobrecarga em cuidadores familiares de pacientes de um Centro de Atenção Psicossocial

Com a reforma psiquiátrica o modelo de atenção à saúde mental sofreu transformações, retirando a centralização do poder do hospital psiquiátrico por meio da implantação de programas e serviços substitutivos de atenção e cuidado aos sujeitos em sofrimento psíquico, sendo que uma das principais estratégias adotadas é a consolidação dos Centros de Atenção Psicossocial. O retorno do sujeito ao convívio familiar após longos anos de internação coloca em questão a dificuldade do convívio social e familiar, assim como a retomada dos cuidados da família em relação a este. Assumir os cuidados de um paciente psiquiátrico pode gerar sobrecarga e muitas vezes, significa renunciar às próprias necessidades, projetos e desejos, colocando os do paciente/familiar em primeiro plano. A presente pesquisa tem por objetivo investigar a presença de indicadores de sobrecarga em cuidadores informais de pessoas com transtornos mentais atendidas em um Centro de Atenção Psicossocial - CAPS de um município do interior de São Paulo. Participaram da presente pesquisa 37 cuidadores informais de pessoas com transtornos mentais. Para coleta de dados foram utilizados dois instrumentos: um roteiro de entrevista para caracterização da amostra e o protocolo ZaritBurden Interview (ZBT) para avaliar a presença de indicadores de sobrecarga. Os dados foram analisados de acordo com os escores atribuídos no manual de aplicação da escala padronizada. Os resultados obtidos revelam o predomínio da sobrecarga moderada e modera da severa (78%), indicando a necessidade de intervenção junto aos cuidadores no sentido de desenvolver estratégias que favoreçam o cuidado e ao mesmo tempo preservem sua saúde.

Vivenciando a sobrecarga ao vir-a-ser um cuidador familiar de pessoa com acidente vascular cerebral (AVC): análise do conhecimento

Trata-se de trabalho do tipo bibliográfico com a finalidade de fazer uma análise temática da produção do conhecimento em periódicos, acerca da sobrecarga em cuidadores familiares de pessoas com Acidente Vascular Cerebral (AVC). O corpus de análise reuniu artigos localizados nas décadas de 80 e 90, a partir das bases de dados Medline, Lilacs e Cinahl. A análise de conteúdo foi o referencial metodológico que permitiu organizar todo o conhecimento, em um corpo de categorias e subcategorias, denominadas: Categoria 1 - As seqüelas do AVC gerando sobrecarga; Categoria 2 - Aspectos gerando sobrecarga, congregando as subcategorias: o isolamento social, as mudanças e as insatisfações conjugais, as dificuldades financeiras e os déficits na saúde física e no autocuidado do cuidador; Categoria 3 - Outras análises relacionadas à sobrecarga em cuidadores familiares.

Estratégias de coping desenvolvidas por cuidadores de idosos portadores de doença crônica

Fundação de Amparo à Pesquisa do Estado de São Paulo (FAPESP)

O papel do enfermeiro como educador junto a cuidadores familiares de pessoas com AVC.

This article was written based on bibliographical research aiming at making a thematic analysis of the production of knowledge in newspapers and magazines about the nurse's role as an educator toward people who care for BVA (brain vascular accident) patients. The analysis gathered articles published in the 80's and 90's, from the Medline, Lilacs and Cinahl databases. Content analysis was the methodological background that allowed the organization of knowledge in two categories: educational intervention in the acute stage and the post-discharge support.

Qualidade de vida e sobrecarga de trabalho em cuidadores de idosos em seguimento ambulatorial

We evaluated the quality of life related to health and work overloads among 126 caregivers to patients at two geriatric outpatient clinics of a university hospital, as well as the association between overloads and demographic and clinical variables, using an exploratory, descriptive, cross sectional and quantitative approach. The Zarit Burden Interview, a socio-demographic and clinical characterization instrument, was used to assess perceived workloads and the Medical Outcomes Study Short-Form Health Survey (SF-36) was used to assess quality of life related of health. Descriptive, comparative, correlative, and multivariate data analyses were carried out. There was significant difference between two outpatient caregiver workloads; all socio-demographic aspects and variables related to care were associated to worsening at least one dimension of the SF-36; frequent illnesses among caregivers were related to a worsening of their quality of life related to health, demonstrating the wear experienced by caregivers to the elderly in these health care units.

A inclusão escolar de crianças com paralisia cerebral: a relação das características dos cuidadores familiares implicadas neste processo

Pós-graduação em Educação - FFC

Influência de um programa sistematizado de danças circulares em aspectos psiconeuroimunológicos de idosos cuidadores de indivíduos com doença de Alzheimer

Fundação de Amparo à Pesquisa do Estado de São Paulo (FAPESP)

Níveis de sobrecarga, ansiedade e depressão de cuidadores de pacientes com doença de Alzheimer participantes e não participantes de grupos de apoio

Currently , as a result of the significant increase in the number of elderly, one can observe an increase in the number of chronic diseases , among them Alzheimer's disease (AD) , which affects both patients and their caregivers , that due care with the patient , just overwhelmed , anxious and depressed. Therefore, this study aims to draw a profile of caregivers of Alzheimer's patients, correlating the physical activity of patients with levels of overload, anxiety, depression caregivers. For both sample consisted of 40 patients with AD to characterize the physical activity levels and perform activities of daily living. In addition, we evaluated 40 caregivers. Patient assessment was made through a medical history, beyond the score Clinical Dementia Rating (CDR), Mini - Mental State Examination (MMSE), Modified Baecke Questionnaire for Older Adults (MBQ) , Functional Activities Questionnaire PFEFFER (QAFP) , and the Self Perception Performance in Activities of Daily Living (EAPAVD). For assessing the caregiver was also used an interview, then the Neuropsychiatric Inventory (NPI), anxiety and depression scale (HAD) Scale and the Zarit caregiver burden (Zarit). The data were processed using descriptive procedures for the analysis of characterization of samples, such as cognitive screening and physical activity level and profile of caregivers. There was a normal distribution of the data using the Shapiro Wilk, For data with normal distribution were used parametric descriptive procedures using One Way ANOVA to compare groups and applying a post hoc Bonferroni. As for the data that showed the destruction not normal was used to standardize the test by Z -score , and then treated by means of parametric statistical procedures , as presented earlier . The Pearson correlation was used to identify possible associations between variables. It was assumed significance level of 5 % (p ≤ 0.05) for all analyzes. Given these results, we conclude that...

Efeito de intervenções não farmacológicas nos níveis de estresse em cuidadores de pacientes com doença de Alzheimer: uma revisão sistemática

Beside aging process comes the incidence of dementia and, among them Alzheimer's disease (AD) accounts for approximately 60% of cases. This disease is characterized as a neuropathology with unknown etiology that causes cognitive deficits and behavioral disorders. Caring for patients with AD can cause an overload, both physical and psychological, which can cause high levels of stress on the primary caregiver. It is necessary that the caregiver also receives attention and develop activities that promote health benefits, while providing moments of distraction from the task of caring. Nonpharmacological interventions may be favorable for improving health with consequent decreased on the levels of stress. The objective of this study was to conduct a systematic review of scientific papers that aimed to verify the effect of nonpharmacological interventions on stress levels in caregivers of patients with AD. To contamplate this goal was accomplished a systematic search in the following databases: Biological Abstracts, PsycINFO, PubMed/Medline, Web of Science, LILACS and SciELO. The following keywords and Boolean operators was used: “caregivers” OR “family” and “nonpharmacological interventions” OR “support groups” OR “therapies” AND “Alzheimer's disease” OR “Alzheimer's dementia” OR “Alzheimer” OR “elderly” AND “stress”. There were found 3studies that met inclusion criteria adopted for the present work, and none showed significant results for the variable stress. It is not possible to affirm, according to the studies, that nonpharmacologial interventions programs for caregivers of patients with AD are effective to influence and to control the stress. However, studies show benefits for other variables such as self-efficacy and confidence in relation to care... (Complete abstract click electronic access below)

Los predictores psiconeuroinmunológicos de la sobrecarga de cuidado en ancianos cuidadores de pacientes con enfermedad de Alzheimer

Introduction: The responsibility of giving care to patients with Alzheimer’s disease (AD) may result in health changes in the older caregiver. It is important to explore the factors which influence the presence of care burden and to create strategies to face this condition. In this context, the aims of present study were to investigate the relationships between psychoneuroimmunological parameters and determine the predictors to burden in older caregivers of patients with AD. Material and methods: A total of 30 AD older caregivers participating in the «Cognitive and Functional Kinesiotherapy Program in Elderly with Alzheimer’s disease«(PRO-CDA)», de Rio Claro, SP-Brazil, were submitted to an assessment protocol to evaluate the psychoneuroimmunological parameters. A descriptive statistical analysis, Pearson correlation and multiple linear regressions were performed.