102 resultados para Caregivers
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OBJECTIVE: This study aimed to analyze the correlation between the levels of functional dependence of elderly living in the community, the burden related to care and the perception of quality of life in familiar caregivers. METHODS: This is an observational, descriptive and analytical study, using non probabilistic sampling selected by convenience in the period from December 2008 to May 2009, in the urban area of Curitiba and Colombo, state of Paran, Brazil. Interviews were applied to caregivers, using demographic inquiry, functional evaluation of the aged, burden interview (Zarit-Burden-Interview) and quality of life instrument (WHOQOL-Bref). Spearman, Mann-Whitney and Kruskal Wallis coefficients were used to analyze the correlations between instruments and socio-demographic variables. Bivariate analyses identified which variables correlate with burden, and the most significant were included in a multiple linear regression. RESULTS: Forty-five caregivers were interviewed, mostly women (91.11%) with high educational level attending dependent elderly (66.77%). Moderate/severe burden was perceived in 75.55% of the sample. We found correlation between dependence, more severe burden in caregivers (r=-0.281, p=0.013) and worse perception of quality of life. The multiple linear regression identified strong association between burden related to care and psychological domain from WHOQOL-bref and time as caregiver (R=0.58, p<0.001). CONCLUSION: In a sample of familiar caregivers, we identified correlations between lower burden related to care and better quality of life perceptions, as well as higher disability and less satisfactory quality of life perceptions.
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Este estudo transversal e descritivo objetivou verificar a prevalncia de hbitos de suco em pr-escolares e a percepo dos pais sobre a relao com a ocorrncia de malocluses. A populao do estudo constituiu-se por uma amostra representativa de pais de pr-escolares de 4 meses a 6 anos de idade. Utilizou-se um questionrio semiestruturado, composto por questes abertas e fechadas, referentes frequncia e conhecimentos dos pais frente aos hbitos de suco no nutritivos. Dos 356 participantes da pesquisa, 70,8% afirmaram que as crianas apresentavam algum hbito bucal, sendo a suco de chupeta o mais frequente (45,6%). Apesar da grande maioria dos pesquisados (97,1%) relatarem saber que os hbitos podiam causar prejuzo aos dentes, 70,2% deles j haviam oferecido chupeta criana, na maioria das vezes para acalm-la (61,8%). Houve associao estatisticamente significativa entre a oferta da chupeta criana e o conhecimento sobre a relao da presena de hbitos no nutritivos e a ocorrncia de malocluso (p < 0,0001 e Qui-quadrado = 60,123). A prevalncia de hbitos bucais na populao estudada alta e, apesar da maioria dos pais saberem que o hbito de suco de chupeta pode causar danos sade bucal, ofertavam a chupeta a fim de acalmar a criana.
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The regular practice of physical therapy is indicated as a non-pharmacological treatment of Alzheimer's disease by promoting cognitive, behavioral and functional benefits. However, little is known about the protocols with home-based motor intervention for this population. Thinking about it, this review aimed to investigate and analyze the protocols for home-based motor intervention for elderly with Alzheimer's disease described in scientific articles. A systematic search was performed in the following databases: Web of Science, PubMed, PsycINFO, and Scopus, using the following keywords and Boolean operators: home-based exercise OR home-based physical exercise OR home-based physical fitness OR home-based rehabilitation OR home-based physical therapy OR home-based physical activity OR home-based engine Intervention and AD OR Alzheimer's disease OR AlzheimerOR Alzheimer's dementia. We also conducted a manual search of reference lists of selected articles. Of the five articles that met the inclusion criteria adopted, three performed a protocol for home motor intervention, achieving good compliance with the program, improvement of general health and reduction of depressive symptoms. The other two studies were limited to describing the protocols. Although more studies are needed, with detailed protocols, this review allowed to show that protocols for home motor intervention can also produce positive effects for both patients and caregivers.
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Fundao de Amparo Pesquisa do Estado de So Paulo (FAPESP)
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The present study aimed to identify the presence of indicators of stress, levels of stress and overload with the formal and informal caregivers of cancer patients. Participated in the survey 33 caregivers of cancer patients in total, 16 formal and 17 informal. To collect data, we used: 1) Roadmap for characterization of participants; 2) Inventory of Stress Symptoms Lipp - ISSL and 3) Protocol Zarit Burden Interview - ZBT. The results revealed that 43 % of informal carers were in the resistance phase, 29 % in the burnout stage, 14 % at the stage of exhaustion and almost 14 % in the alert phase. Formal caregivers 25 % are in the exhaustion phase and 75 % in the resistance. The overload has also performed on a larger scale in informal than formal caregivers, 47 % to 18,7 % charge respectively. However, the results revealed no statistically significant difference between groups for the incidence of stress but indicated a difference against overloading pointing out that professional caregivers in the incidence is lower. The results suggest the need to implement support for informal and formal caregivers programs, develop coping strategies, handling the situations of overload and stress, aiming to better quality of life for the caregiver, and consequently for the patient who is receiving care.
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The aim of this study was to verify the reliability of the Brazilian Portuguese version of the instrument Cerebral Palsy: quality of life questionnaire for children: primary caregiver questionnaire (CP QOLChild: primary caregiver) translated and culturally adapted. Thus, the translation and cultural adaptation of the instrument was made, and then the procedures to verify its reliability were performed. The translated and culturally adapted questionnaire was answered by 30 caregivers of children with cerebral palsy and inter and intra-observer analysis followed. The data allowed the authors to identify an internal consistency rangering from 0.649 to 0.858, intra-observer reliability from 0.625 to 0.809 and inter-observer reliability from 0.498 to 0.903. The analysis suggests that the instrument has acceptable psychometry.
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With the growing aging population will be an increase of chronic degenerative diseases such as dementia. Among the various forms of dementia Alzheimers disease (AD) is the most prevalent. In individuals with AD, there is a loss in the processing of sensory information, which may aggravate the imbalance and falls. As the disease progresses, the individual lose the ability to function independently, becoming dependent on a caregiver. This study aimed to analyze the balance of the mental state and quality of life of individuals with AD, to determine whether a correlation exists between these variables and analyze the influence on quality of life of caregivers. This study was conducted with thirty individuals (82.86 9.07 years) with AD, both sexes, and their caregivers. The evaluation of the balance was accomplished by the Scale of Functional Balance of Berg (EEFB), the cognitive function for the Mini-exam of the Mental State (MEEM), and the quality of life (QV) for the scale life Quality - Disease of Alzheimer (QdV - DA) that is composed for three versions: patient, caregiver and family The data were analyzed by coefficient of correlation of Spearman. The balance analyses (EEFB=32,17 13,26 points) shows increased in the risk of falls in the elderly and negative correlation (R = - 0,55, p <0,01) with age and good correlation with MEEM (R=0,63 p <0,01). Already in relation of the MEEM and QV, can observed correlation between the familiar version and the MEEM ((R=0,40 p=0,02). In Relation the versions of the QV questionnaire, found significant correlation among: QdV-DA patient X caregiver (R=0,41 p=0,02), QdV-DA patient X family (R=0,40 p=0,03). In this way we can conclude that the individuals with DA, appraised in this study, present a deficit in the balance, so much related with the age as with to the cognitive decline, and the greater the cognitive decline worse the impression of caring about the QOL of their family, and still, that the worsening in the quality of the patients life contemplates in a worsening in the quality of your caregivers life.
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O acompanhamento do desenvolvimento de bebs implica na considerao de fatores de risco para os mesmos e na utilizao de instrumentos que possibilitem a identificao de defasagens, comportamentais, visando elaborao de intervenes pontuais junto a pais e outros cuidadores. O presente estudo prendendeu descrever variveis distais e proximais do desenvolvimento de uma amostra de bebs, a partir de suas caractersticas peculiares, bem como das dos seus familiares e avaliar o repertrio comportamental dos bebs, correlacionando-o com variveis de risco como prematuridade, baixo peso ao nascer e filhos de mes adolescentes, comparando-o com bebs sem condio de risco identificada. Pretendeu, tambm, identificar comportamentos tpicos nas res do desenvolvimento avaliadas pelo inventrio portage operacionalizado, ms a ms, durante o primeiro ano de vida, utilizando os critrios de estabilizao, normalizao e aparecimento destes comportamentos entre os meninos e meninas. Participaram do estudo 217 bebs que foram avaliados no decorrer do primeiro ano de vida, sendo que 33% eram prematuros, 28% filhos de mes adolescentes, 11% com baixo peso nascidos a termo, 3% sindrmicos ou filhos de mes portadoras de HIV+ e 25% do Grupo Controle, sem condies de risco identificado no nascimento. Os dados foram coletados a partir da entrevista inicial e da avaliao mensal do inventrio. Os dados foram coletados a partir da entrevista inicial e da aplicao mensal do inventrio portage operacionalizado (IPO), em um Centro de Psicologia Aplicada de uma universidade pblica. Os desempenhos dos bebs no IPO e as condies de risco identificadas foram submetidas ao tratamento por meio do Statistic Package Social for Science (SPSS, verso 12.0). para a identificao de comportamentos tpicos utilizaram-se os critrios de Estabilizao... (Resumo completo, clicar acesso eletrnico abaixo)
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Currently , as a result of the significant increase in the number of elderly, one can observe an increase in the number of chronic diseases , among them Alzheimer's disease (AD) , which affects both patients and their caregivers , that due care with the patient , just overwhelmed , anxious and depressed. Therefore, this study aims to draw a profile of caregivers of Alzheimer's patients, correlating the physical activity of patients with levels of overload, anxiety, depression caregivers. For both sample consisted of 40 patients with AD to characterize the physical activity levels and perform activities of daily living. In addition, we evaluated 40 caregivers. Patient assessment was made through a medical history, beyond the score Clinical Dementia Rating (CDR), Mini - Mental State Examination (MMSE), Modified Baecke Questionnaire for Older Adults (MBQ) , Functional Activities Questionnaire PFEFFER (QAFP) , and the Self Perception Performance in Activities of Daily Living (EAPAVD). For assessing the caregiver was also used an interview, then the Neuropsychiatric Inventory (NPI), anxiety and depression scale (HAD) Scale and the Zarit caregiver burden (Zarit). The data were processed using descriptive procedures for the analysis of characterization of samples, such as cognitive screening and physical activity level and profile of caregivers. There was a normal distribution of the data using the Shapiro Wilk, For data with normal distribution were used parametric descriptive procedures using One Way ANOVA to compare groups and applying a post hoc Bonferroni. As for the data that showed the destruction not normal was used to standardize the test by Z -score , and then treated by means of parametric statistical procedures , as presented earlier . The Pearson correlation was used to identify possible associations between variables. It was assumed significance level of 5 % (p 0.05) for all analyzes. Given these results, we conclude that...
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The aim was to reflect what action to prevent accidents used by caregivers / participants in the home. This is a prospecive cross-sectional descriptive study conducted at the Pediatric Inpatient Unit, Hospital of the Medical School of Botucatu Unesp, during the months from May to August 2010.A questionnaire was used in the form of check list (Annex I) on measures to prevent accidents. The participant chose two alternatives taking into consideration the order of priority in the prevention of accidents. This study shows that for the age group from 29 days to 2 years, the companions chose these preventive measures for falls, burns, poisoning and drowning, do not put near the windows mobile (27.8%), no access the match, lighter and appliances (22.2%), leave toxic substances out of reach and sight of children (41.7%) and empty buckets, tubs and pools after use (27.8% ). Regarding the age group 2-6 years, the measures for these types of accidents were not put near the windows mobile (26.5%), do not have access to matches, lighters and household appliances (20.9% ), leave toxic products out of reach and sight of children (27.9%) and maintain tanks, tanks and wells or struck with some protection (20.2%). For ages 6 to 10 years, the measures chosen to more such accidents were dry liquid spilled on the ground (23.5%), do not have access to matches, lighters and household appliances (22.5% ), leave toxic products out of reach and sight of children (31%) and keep tanks, tanks and wells or struck with some protection (23.5%). One fact that attracted our attention was that the preventive measures most frequently used by caregivers, regardless of age, show results that differ in few alternatives. It is essential to the understanding of the escorts / participants on the importance of injury prevention. Even today is predominantly defined as accident, injury must be addressed through measures
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The Alzheimer's dementia (AD) is a chronic, neurodegenerative and progressive disorder, characterized by cognitive decline, affecting brain functions like memory, reasoning and communication, occurrence of behavioral disturbances and difficulty in performing activities of daily living (ADLs). These conditions lead to patients dependence, which can cause depressive symptoms in caregivers, due to physical and mental burden caused by of the difficulties of the act of caring. Whereupon, it became necessary to find strategies to improve the caregivers quality of life. An interesting hypothesis is that physical activity can be considered a non-pharmacological alternative in reducing depressive symptoms, being an important factor for maintaining the physical and mental well-being of the general population, especially on positive changes in mood and social interaction. This study aimed to analyze the effects of a physical activity protocol on depressive symptoms and burden of caregivers of patients with AD. This experimental study, of longitudinal character, comprised a sample of 19 caregivers, of both genders, divided into two groups: a) intervention group IG (10 caregivers who participated in a physical activity protocol) and b) control group CG (9 caregivers who didnt participate in the physical activity protocol). This protocol, which worked the components of functional ability and social interaction of participants, was held three times a week, being 48 sessions of 60 minutes each, for 16 weeks. Data collect was performed at pre and post-intervention for both groups. The assessment instruments used were: a) Zarit Burden Interview, b) Hospital Anxiety and Depression Scale (HAD) and c) battery of motor tests of the American Alliance for Health Physical Education Recreation and Dance (AAHPERD). Nonparametric statistics was used, with intra-group comparison by Wilcoxon test... (Complete abstract click electronic access below)
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This study aimed at analyzing the meanings of Children and Child Rights awarded by the kindergarten children and their educators, parents and teacher. Interest in the subject arose from the participation of the University Extension Project, conducted at the Department of Education, UNESP, Bauru, called The Rights of the Child: ECA in school. Since then, the question arose: to what extent we have visibility of meanings that educators and the child has on the Rights of the Child relating to the specifics of childhood? The research followed the tenets of qualitative research, methodological procedures and adopting the observation in a classroom from kindergarten (K II), semi-structured interview through leisure moments, with the class of aged five years and a questionnaire for family and teacher. The research adopted as reference material, studies of the area of Sociology of Childhood, History of Childhood, Public Policy, Legislation Related to the theme, and an overview of psychogenic to talk about the morality of children. The results showed that parents and caregivers understand childhood as a stage of child development, marked by jokes and fancies, in which the family and the school has an important role in this process. In what concerns the children's rights, there are contradictions in the legal aspects and the situation of children today. The results showed that children's childhood is characterized by recreational activities, and adults are responsible for caring for them. And it comes on the Rights of the Child noted that there is a confusion between rights and duties because they are in a phase of moral heteronomy. The findings indicate the need for wide dissemination on the Statute of Children and Adolescents, especially in preschools in line with families to practice it a new look at childhood, conceiving children as subjects... (Complete abstract click electronic access below)
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Dramatic changes occur in the lives of patients on peritoneal dialysis and his family life, changing lifestyle, professional and social activities. Considering the important role of family in treatment, is crucial for nurses to know how these families perceive their role as caregivers and their difficulties and needs, in the process of peritoneal dialysis. The approach chosen for the study was the phenomenological method, based on Merleau-Ponty, who proposes to understand the human experience, from the description of those who lived it. The study findings show that in the beginning of treatment, family members, feel impacted with the disease severity and eager to become responsible for maintenance treatment, fearing not match the expectations.Guided by staff, appear confident in taking care and deal with the difficulties and complications of treatment, supported by professionals. However, resent the great changes in their social activities and work, his life turns out to be quite limited, due to the dedication to a sick family member. Many feel overwhelmed because they are not supported by other family members. Some envision a future outlook for renal transplant, others seem skeptical, given the long waiting list, especially when advanced age of the sick family member. These results suggest the need for individualized attention to family caregivers, and to encourage the family to organize itself and develop a joint work. In this sense, the design of health care, taking care with the focus of the family, it seems highly appropriate in preparing the plan of family orientation, this is defined as a dynamic unity, which, working in harmony, can contribute positively in the treatment of health a sick member
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Beside aging process comes the incidence of dementia and, among them Alzheimer's disease (AD) accounts for approximately 60% of cases. This disease is characterized as a neuropathology with unknown etiology that causes cognitive deficits and behavioral disorders. Caring for patients with AD can cause an overload, both physical and psychological, which can cause high levels of stress on the primary caregiver. It is necessary that the caregiver also receives attention and develop activities that promote health benefits, while providing moments of distraction from the task of caring. Nonpharmacological interventions may be favorable for improving health with consequent decreased on the levels of stress. The objective of this study was to conduct a systematic review of scientific papers that aimed to verify the effect of nonpharmacological interventions on stress levels in caregivers of patients with AD. To contamplate this goal was accomplished a systematic search in the following databases: Biological Abstracts, PsycINFO, PubMed/Medline, Web of Science, LILACS and SciELO. The following keywords and Boolean operators was used: caregivers OR family and nonpharmacological interventions OR support groups OR therapies AND Alzheimer's disease OR Alzheimer's dementia OR Alzheimer OR elderly AND stress. There were found 3studies that met inclusion criteria adopted for the present work, and none showed significant results for the variable stress. It is not possible to affirm, according to the studies, that nonpharmacologial interventions programs for caregivers of patients with AD are effective to influence and to control the stress. However, studies show benefits for other variables such as self-efficacy and confidence in relation to care... (Complete abstract click electronic access below)
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Presently, the dying process and death most often occur in hospitals and, particularly, in Intensive Care Units (ICU), where patients lives are prolonged thanks to advanced technological devices and highly efficient medicines. To learn about the opinion of health care professionals working at a Pediatric Intensive Care Unit in relation to the dying process and dying. This is a descriptive quantitative study. A questionnaire was applied to the units staff members from June to August, 2011. Data were statistically analyzed. Twenty-five professionals answered the questionnaire, and 72% faced death as a natural life process. 60% felt compassion, but that feeling did not interfere with how they cared for patients. Concerning their professional training, 52% reported not to have received any concerning patients caregivers in the dying process or death; therefore, they experienced such situation when they were already working, and 76% reported to be interested in updating courses on that theme. Further discussion about this topic during academic education is necessary. It is also necessary to provide health care professionals with specialization courses, debates and experience exchange so that they can better understand and deal with their feelings and limitations in face of death and thus give better care to patients and relate to patients families during the dying process of a loved one
