Orphan DNA: Indigenous samples, ethical biovalue and postcolonial science in Australia

Thousands of blood samples taken from Australia’s indigenous people lie in institutional freezers of the global North, the legacy of a half-century of scientific research. Since those collections were assembled, standards of ethical research practice have changed dramatically, leaving some samples in a state of dormancy. While some European and American collections are still actively used for genetic research, this practice is viewed as unethical by most Australian genetic researchers, who have closer relationships with indigenous Australians and postcolonial politics. For collections to be used ethically, they require a ‘guardian’ who has an ongoing and documented relationship with the donors, so that consent to further studies on samples can be negotiated. This affective and bureaucratic network generates ‘ethical biovalue’ such that a research project can satisfy Australian ethical review. I propose in this article that without ethical biovalue, collections become ‘orphan’ DNA, divorced from a guardian and often difficult to trace to their sources. Such samples are both orphaned and functionally sterile, unable to produce data, scientific articles, knowledge or prestige. This article draws on an ethnographic study of genetic researchers who are working in indigenous communities across Australia. I present tales of researchers’ efforts to generate ethical biovalue and their fears for succession; fears that extend to threats to destroy samples rather than see them orphaned, or worse, fall into the wrong hands. Within these material and affective  networks, indigenous DNA morphs from biological sample to sacred object to political time bomb. 

Measuring community and service provider attitudes to child sexual abuse in remote indigenous communities in Western Australia

This study aimed to evaluate a scale to measure attitudes to child sexual abuse (CSA) in remote Australian Indigenous communities. The scale was developed to gauge attitudes that may be inhibiting the reporting of cases of CSA to police, as well as to evaluate whether interventions that focused on collaborative relationships between community members and police resulted in changes in attitudes. Participants included service providers living outside the community (58%), community members (living within the community; 9%), and service providers who were also community members (33%); 18% of participants identified as Indigenous. Principal components analysis revealed a nonintuitive six-factor solution that did not support the original four concepts. Four intuitive factors emerged from an abridged version of the scale: entrenched issues, personal understanding and knowledge, communication between community and government, and community action. The scale detected significant differences between community status and between Indigenous status groups on some factors.

Promoting the persistence of Indigenous students through teaching at the cultural interface

The promise of higher education remains elusive for many Indigenous students in Australia. To date, institutional efforts to improve the persistence and retention of Indigenous students have been largely piecemeal, poorly integrated and designed to remediate skill deficits. Yet, market-led expansion of Australian higher education is driving curricular reform and demands for accountability and quality. Despite this, very little is known about how teaching and pedagogy can be used to support the learning and persistence of Indigenous students. In this context, the paper provides a reconceptualization of current debates and positions that are currently bound up within the limitations of questionable binary divides and oppositions, for example, educational psychology/sociology, transmission/critical or decolonial pedagogies and Indigenous/Western Knowledge. Nakata's concept of the Cultural Interface is mobilized to acknowledge some of the nuances and complexities that emerge when Indigenous and Western knowledge systems come into convergence within the higher education classroom.

Indigenous blood and ethical regimes in the United States and Australia since the 1960s

Blood samples collected from members of indigenous communities in the mid-20th century by scientists interested in human variation remain frozen today in institutional repositories around the world. This article focuses on two such collections-one established and maintained in the United States and the other in Australia. Through historical and ethnographic analysis, we show how scientific knowledge about the human species and ethical knowledge about human experimentation are coproduced differently in each national context over time. Through a series of vignettes, we trace the attempts of scientists and indigenous people to assemble and reassemble blood samples, ethical regimes, human biological knowledge, and personhood. In including ourselves-a U.S. historian of science and an Australian anthropologist-in the narrative, we show how humanistic and social scientific analysis contributes to ongoing efforts to maintain indigenous samples. [indigenous, biospecimens, science, genomics, postcolonial, ethics, cryopreservation].

The role of traditional regulation in the Indigenous villages for conservation of village pattern

Balinese traditional architecture is a significant treasure which has been inherited to the Balinese descendants. Scholars over the last 50 years have identified this statement, pointing to the unique and distinctiveness of Balinese culture and its associated architecture. Their research documents Balinese architecture and culture of the past and how Balinese architecture has been affected by development pressures in Bali, and in the Indonesian nation as a whole. This knowledge can understood through their research that documents how the Balinese people interact with their society, to their spiritual realm and with their environment, and to their God which is integral to their philosophy of Tri Hita Karana which is their universal discourse. This historical relationship has ensured that Bali Island has become a major tourism destination and is considered one the most beautiful places on Earth, both of which result in increasing pressures upon Bali that directly affect the nature and quality of Balinese life.

The value of ethnoecological knowledge of the Minahasans: repositioning traditional biocultural knowledge in Indonesian environmental planning

Indonesian strategic and statutory environmental regimes have drawn directly from conventional Western models of environmental planning and natural resource management. These models are often at odds with, do not connect with, nor appreciate generational traditional biocultural knowledge and information from regionally-specific Indigenous communities in Indonesia. This knowledge, and the voice of the custodians of this knowledge, has been overlooked and circumvented in the name of broadscale nationalistic co-ordinated strategic planning. The problem is that nationalist planning, in a multicultural archipelago full of a diverse set of communities often with their own languages, dialects, cultural relationships to landscape, and mixed connectivity to different cohorts of colonial (European and Asian) and religious affiliations means that a deep understanding of environmental information at local and regional level is negated and denied legitimacy. This paper offers a platform to discuss this issue, the difficulty of nationalistic planning and its failings at the Minahasan regional level in Indonesia, and the wealth of cultural and environmental answers the Minahasan culture can bring to the table to better management its landscape sustainably and culturally. This paper’s purpose is to question conventional and generic environmental planning systems in Indonesia and charts an alternate culturally-attuned agenda that can offer to inform and better manage landscapes sustainably and culturally. The tipping points are deep questions about how to regionally manage landscapes sustainably and culturally in deference to a nationalistic agenda before the latter dooms the former producing a 'one-fits all' or generic Indonesian biogeographical landscape devoid of cultural nuances.

Science, research and social change in Indigenous health – evolving ways of knowing

History tells us of the overwhelming destructive influence of exotic culture, politics and knowledge forms upon the worldview and wellbeing of Indigenous Australians. The power of dominant culture to oppress, control and dominate traditional Indigenous ways of knowing and being has been identified as a being a crucial influence on the health status, future hopes and aspirations of Indigenous Australians. Fundamental to this assertion is that the alienating effect of the belief in and application of the scientific method in relation to learning and knowing is a phenomenon that is incompatible with the law and cultural ways of traditional Indigenous people. The establishment of the Centre of Clinical Research Excellence (CCRE) is predicated upon and responds to a deep need in our community today to synthesise the ideological and epistemological premises of an increasing range of cultures and world views. It recognises that clinical research, for example, is important to the health of Aboriginal and Torres Strait Islander peoples, but also that the way such research is designed and carried out is also crucial to its potential to effect change in and improve the state of Indigenous health in Australia. This paper examines knowledge principles and processes associated with research in Indigenous communities, explores emerging research trends in science and proposes an epistemological framework for synthesis of traditional approaches with those of the scientific paradigm.

Relationality and ethical know-how in Indigenous research

The central aims of principles and protocols for ethics and ethical conduct of Indigenous research such as those found in AIATSIS Guidelines for Ethical Research in Indigenous Studies (2012) and thoseon pre-­‐ethics protocols recently developed by emerging researchers in this field (Martin, Barrett , Koolmatrie et al , 2015) has been to address the problem of non-­‐Indigenous researchers remaining blind to their own imitations, overlooking the partial and situated perspectives and assumptions that underpin their approaches to research and hence creating asymmetrical relations between researcher and participant -­‐ usually to the detriment of the latter. However, we may ask whether these principals, in themselves, are enough to achieve this aim if the very ontological and epistemological foundations of western research in Indigenous contexts remain the same.

‘“Glossary Islands” as sites of the “Abroad” in post-colonial literature: towards a new methodology for language and knowledge relations in Keri Hulme’s The Bone People and Melissa Lucashenko’s Mullumbimby.’

The publication of Melissa Lucashenko’s Mullumbimby in 2013 drew attention once more to the issue of how post-colonial scholars might best engage with English-language literary texts also containing a glossary of Indigenous words. This issue emerged first with the publication of Keri Hulme’s The Bone People in 1984. This article argues that, to date, scholars like Simon During and Eve Vincent have perpetuated a binary either/or approach to the interpretation of these glossaries. The result of this approach has been that either the pre-colonial Indigenous language or the colonial/post-colonizing English language has been privileged as the locus of linguistic power in the text. One problem with this approach is that it does not adequately represent the complex historical, cultural and political circumstances of post-colonial and multi-cultural nations like Australia (setting of Mullumbimby) and New Zealand (setting of The Bone People) as these link to matters of language. Another problem is that this binary approach restrains a close reading of the differences between different types of such glossaries, and of the nuanced relationship of a glossary to the text it accompanies. In place of this approach, this article proposes a new methodology that works with Elizabeth M. DeLoughrey’s notion of “tidalectics” as a way of reading island literatures. The neologism “glossary islands” allows another way into considering the function of glossaries in islandic literary texts like Lucashenko’s and Hulme’s. The post-colonial connection between islands and glossaries lies in the fact that they are each an intensified site of knowledge.

Positioning research and new knowledge systems

Debates into the positioning of research and aligning them with new knowledge systems has received mixed reactions. Many argue that research needs to follow discrete silos of disciplinary knowledge where knowledge needs to remain within a particular and defined construct. However, in the global world that we now embrace, there is a burgeoning of new knowledge systems that have disrupted ‘traditional’ processes of carrying out research and foregrounded the encompassing of new knowledge systems that follow research pathways and methodologies that are all encompassing of the multifaceted educational and social systems that embrace specific postcolonial and indigenous societies. Much of this corollary has stemmed from historical and political factors that have seen the rise of some disciplines of knowledge and the non-awareness’s and non-recognition of others. This paper articulates from an auto-ethnographic perspective the discussion surrounding the positioning of research, new knowledge systems and interdisciplinary learning in the areas of International and Aboriginal students. Focusing on postcolonial theory and Aboriginal approaches to research, the author foregrounds the tensions of historiography, hybridity, subjectivities, collaborative sharing and voice through what she terms a ‘strands of knowledge’ approach in these two areas. In the process, the author conceptualises two definitions. These are: intra-paradigm shifts and the irreducibility of the ethics of research and discusses how they are integral concepts when researching in or around particular cultural communities and groups.