Qualidade de vida e saúde: aplicações do WHOQOL

O instrumento World Health Organization Quality of Life (WHOQOL) destina-se à avaliação da qualidade de vida (QdV), tendo sido desenvolvido em coerência com a definição assumida pela Organização Mundial de Saúde (OMS), isto é como a percepção do indivíduo sobre a sua posição na vida, dentro do contexto dos sistemas de cultura e valores nos quais está inserido e em relação aos seus objectivos, expectativas, padrões e preocupações. Trata-se de uma definição que resulta de um consenso internacional, representando uma perspectiva transcultural, bem como multidimensional, que contempla a complexa influência da saúde física e psicológica, nível de independência, relações sociais, crenças pessoais e das suas relações com características salientes do respectivo meio na avaliação subjectiva da qualidade de vida individual.

Health related quality of life in patients with refractory chronic heart failure undergoing cardiac resynchronization: type of therapeutic response

The benefits of cardiac resynchronization therapy (CRT) in the health-related quality of life (HRQL) are largely demonstrated in selected patients with severe congestive heart failure (CHF). However, the differences between responders and non-responders, with regard to the effect of CRT in the various dimensions that constitute HRQL are still a matter of discussion. Objective: To evaluate the impact of CRT on the HRQL of patients with CHF refractory to optimal pharmacological therapy, within 6 months after CRT. Methods: 43 patients, submitted to successful implantation of CRT, were evaluated in hospital just before intervention and in the outpatient clinic within 6 months after CRT. HRQL was analyzed based on the Kansas City Cardiomyopathy Questionnaire (KCCQ). Patients were classified as super-responders (ejection fraction of left ventricle - LVEF - ≥45% post-CRT), n=15, responders (sustained improvement in functional class and LVEF increased by 15%), n=19, and non-responders (no clinical or LVEF improvement), n=9. Results: In the group of super-responders, CRT was associated with an improvement in HRQL for the various fields and sums assessed (ρ<0.05); in responders, CRT has been associated with an improvement of HRQL in the various fields and sums, except in the self-efficacy dimension (ρ<0.05); in non-responders, CRT was not associated with improvement of HRQL. Conclusion: In a population with severe CHF undergoing CRT, the patients with clinical and echocardiographic positive response, obtained a favorable impact in all dimensions of HRQL, while the group without response to CRT showed no improvement. These data reinforces the importance of HRQL as a multidimensional tool for assessment of benefits in clinical practice.

How important is personality in neurological patient' quality of life perception?

In the last decades, the value of research on neurological patients’ quality of life (QOL) has become unquestionable. In this context, most studies focus on the relationship between patients’ QOL and their sociodemographic and/or clinical and/or modifiable psychosocial characteristics. They give us information regarding the sociodemographic and clinical profile most prone to low QOL reports and also on ways to improve patients’ QOL (e.g., targeting their selfesteem). Nevertheless, little is known about the role nonmodifiable psychosocial variables can have on patients’ QOL perception. Consequently, the aim of the present study is to explore the relationship between QOL and personality in neurological patients.

Características psicométricas dos instrumentos usados para avaliar a qualidade de vida na esclerose múltipla: uma revisão bibliográfica

A esclerose múltipla (EM) é a doença crónica neurológica que mais afeta adultos jovens; em 80% dos casos, a doença progride para situações de níveis variados de incapacidade, o que torna necessário avaliar a qualidade de vida (QV) desses indivíduos. O objetivo desta revisão foi localizar estudos que avaliam a QV em indivíduos com EM, identificando os instrumentos utilizados e suas características psicométricas. Foram consultadas as bases Psycinfo, Psycarticles, Psycbooks, Psychology & Behavioral Science Collection, EJS E-Journal, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, Medline, e Academic Search Complete, utilizando os descritores 'multiple sclerosis' e 'quality of life', para localizar artigos publicados no período 1997-2007. Foram selecionados 1.376 artigos e, após a leitura dos resumos, excluídos os referentes a instrumentos que não tinham boas características psicométricas e/ou eram pouco referenciados. Foram encontrados 461 artigos, dos quais 267 usaram instrumentos genéricos e 194 específicos para a EM. Dos 7 instrumentos (2 genéricos, 5 específicos) com boas características psicométricas utilizados pelos estudos consultados, o mais usado é o SF-36 (em 237 estudos). Todos os instrumentos têm validade verificada e apresentam grau elevado de confiabilidade, podendo ser utilizados para avaliação da qualidade de vida de pacientes com EM tanto em pesquisa quanto na clínica. ABSTRACT - Multiple sclerosis (MS) is the chronic neurological disease that most affects young adults; 80% of patients experience a transition towards persistent disability, hence the need to assess their quality of life (QoL). The aim of the study was to review studies that assess QoL in patients with multiple sclerosis, inquiring on the instruments used and their psychometric features. Articles published from 1997 through 2007 were searched for by means of key words 'multiple sclerosis' and 'quality of life' in databases Psycinfo, Psycarticles, Psycbooks, Psychology & Behavioral Science Collection, EJS E-Journal, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, Medline, and Academic Search Complete. From the 1,376 studies found, after abstract reading those that reported on instruments with poor psychometric properties and/or were little referred were excluded. A total of 461 articles were selected, of which 267 reported using generic instruments and 194, MS-specific ones. Among the 7 instruments reported by the studies as having good psychometric characteristics (2 generic, five MS-specific), the most used is the SF-36 (by 237 studies). All instruments have shown adequate psychometric properties and a high degree of reliability, hence may be used to assess QoL in subjects with multiple sclerosis both in clinic and research.

The importance of quality of life in patients with multiple sclerosis: do they need auxiliary walking devices?

Objective: To describe the importance of training multiple sclerosis (MS) patients with auxiliary walking devices (walking stick, crutch, or wheelchair) in a way that achieves a better quality of life (QOL). Design: Exploratory and descriptive. Setting: General hospital in Portugal.

Evaluating the quality of life in patients with refractory chronic heart failure undergoing cardiac resynchronization regarding the type of therapeutic response

The benefits of cardiac resynchronization therapy (CRT) in the quality of life have been largely demonstrated in selected patients with severe congestive heart failure (CHF). However, the differences between responders and non-responders, with regard to the effect of CRT in the various dimensions of quality of life is still a matter of discussion. Objective: to evaluate the impact of CRT on the quality of life of patients with CHF refractory to optimal pharmacological therapy, within 6 months after CRT.

Relation of happiness, hope and affection with quality of life in patients with heart failure

Introduction: Meeting the actual role of positive psychology, begins to be recognized the relation of positive variables with health. Objective: To know the relation of happiness, hope and affection with quality of life in individuals with heart failure. Population and Methodology: 128 individuals with heart failure, 98 men and 30 women, 61.9±12,1 years of age, 6,6±3,9 years in school and 74,2% retired because of this disease. 56,3% were in Class III of New York Heart Association, with poor left ventricular ejection fraction (25,3±6,2%). The clinical history was of 9,4±8,5 years for this heart disease and had at least one hospitalization due to heart failure with 51,6% having ischemic heart disease.

Happiness, hope and affection as predictors of quality of life and functionality of individuals with heart failure at 3 month follow up

Introduction: Meeting the actual role of positive psychology, begins to be recognized the contribution of positive variables in health outcomes. Objective: To know the contribution of happiness, hope and affection individually and as a whole in the quality of life and functionality of individuals with heart failure. Population and Methodology: 128 individuals with heart failure, 98 men and 30 women, 61.9±12,1 years of age, 6,6±3,9 years of school and 74,2% retired because of this disease. 56,3% were in Class III of New York Heart Association, with poor left ventricular ejection fraction (25,3±6,2%). The clinical history was of 9,4±8,5 years for this heart disease and had at least one hospitalization due to heart failure with 51,6% having ischemic heart disease.

Quality of life in dilated cardiomyopathy with refractory chronic heart failure undergoing devices implantation

Heart failure is the final stage of most of cardiac diseases. It is a complex syndrome in which the patients should have the following features: symptoms of heart failure, typically shortness of breath at rest or during exertion, and/or fatigue; signs of fluid retention such as pulmonary congestion or ankle swelling; and objective evidence of an abnormality of the structure or function of the heart at rest. This progressive syndrome as a high incidence and prevalence and poor prognosis: four-year mortality is around 50% with 40% of the patients admitted to hospital dying or readmitted within a year. With ageing, many patients will develop chronic heart failure, which, because of its symptoms, patient’s awareness of their risk of dying, and the effects of therapy, together with frequent hospitalizations, has considerable impact on patient’s health-related quality of life.

Processos de transição para a vida pós-escolar de crianças e jovens com deficiência : Um estudo de caso no concelho da Lourinhã

A integração de crianças e jovens com deficiência após o seu período escolar emerge como uma necessidade social face os direitos atribuídos a esse grupo social. O presente trabalho de investigação procurou compreender o processo de integração da criança e jovem com deficiência a partir do contexto escolar, analisando o processo de transição para a vida pós-escolar de seis crianças e jovens que frequentam uma escola no concelho da Lourinhã. Procuramos ainda, ouvir os encarregados de educação, professores e técnicos que trabalham com estas crianças, no sentido de analisar os seus discursos sobre estes processos de transição. Do ponto de vista teórico e metodológico considerou-se, ao longo do trabalho, o aluno deficiente como ator social, da mesma forma que procuramos no decorrer das nossas observações, recolhas de dados e das análises feitas ressaltar a “voz” ativa dos mesmos. Dos resultados apurados no nosso campo empírico de estudo, consegue-se identificar as expetativas e preocupações em torno da transição pós-escolar, nomeadamente as questões de integração laboral.

Implication of an intervention program for the promotion of physical activity in the quality of life of people with multiple sclerosis

The aims of this study is to examine the interest for quality of life of an implementation of program physical activity, with patients of multiple sclerosis.

Dispositional optimism is unidimensional or bidimensional? The Portuguese Revised Life Orientation Test

The aim of the study is to adapt and then discuss the appropriateness of the Life Orientation Test as a one or two dimension scale. The research includes two studies; one is composed of a sequential sample of 280 people with multiple sclerosis, 71% female, and another includes a convenience sample of 615 individuals from the community, 51.1% female. Because the construct is built upon a theoretical assumption that has one dimension, we examine the hypothesis of one or two factor solutions through confirmatory factor analysis, and the two-dimension solution premise demonstrates better adjustment for both samples. The other psychometric properties explored show appropriate results for the Portuguese sample, and similar to the original ones; the Test therefore seems appropriate for use in cross cultural studies. Based on our results, we discuss whether the questionnaire is a one or two dimension instrument, concluding that it appears appropriate to accept the recommendations of the original authors to use it as a one-dimensional tool and, when necessary, to use both dimensions. - RESUMO: El objetivo del estudio es adaptar y discutir la adecuación de la prueba de Orientación de la Vida en una o dos escalas de dimensión. La investigación engloba dos estudios, uno constituido por una muestra secuencial de 280 personas con esclerosis múltiple, 71% mujeres y otro con una muestra de conveniencia de la comunidad de 615 individuos, 51,1% del sexo femenino. Como el constructo se asienta sobre la presunción teórica de que tiene una dimensión, inspeccionamos la hipótesis de una o dos soluciones de factor a través del análisis factorial confirmatorio y la hipótesis de dos dimensiones manifiesta un mejor ajuste para ambas muestras. Las otras propiedades psicométricas exploradas muestran los resultados apropiados para la muestra portuguesa, y semejantes a los originales. Parece apropiado para los estudios culturales transversales. Basándonos en nuestros resultados, discutimos si el cuestionario es un instrumento de una o dos dimensiones, concluyéndose que parece conveniente seguir las recomendaciones de los autores originales, para utilizarlo como un instrumento unidimensional y, si fuera necesario necesario, utilizar cada una de las dimensiones.

As relações intergeracionais e as sociedades envelhecidas : Envelhecer numa sociedade não Stop – O território multigeracional de Lisboa Oriental

A dissertação de mestrado subordinada ao tema das Relações Intergeracionais e as Sociedades Envelhecidas surgiu, no âmbito do Mestrado em Educação Social e Intervenção Comunitária, da Escola Superior de Educação de Lisboa e teve como ponto de partida saber se a participação em actividades intergeracionais promove o envelhecimento ativo de 8 mulheres com 65 e mais anos, residentes num território multigeracional de Lisboa Oriental. A abordagem concetual do envelhecimento social, do envelhecimento ativo, das relações intergeracionais e da participação conduziu o estudo, através da triangulação dos instrumentos de análise qualitativa de entrevistas de histórias de vida e de focus group. As mulheres entrevistadas têm entre 65 e 85 anos de idade cronológica, mas em média dizem sentir que têm menos 34 anos. Afirmam, ser jovens de espirito e por isso preferem ser chamadas de seniores. Manifestam que sempre foram e são, mulheres autónomas, livres, independentes, com poder de decisão, com auto-estima elevada e com qualidade de vida. Mulheres que ocupam o tempo em actividades da vida diária, em actividades de tempos livres, e voluntariado. Mulheres reivindicativas, proativas, frontais e determinadas que assumem um papel social ativo envolvendo-se socialmente em todas as actividades produtivas ou orientadas para a performance e em actividades colectivas e ou orientadas para a união, com vista alcançar objetivos comuns. Mulheres, que ganham prestígio e estatuto na comunidade por se envolverem socialmente no processo de tomadas de decisão, organização, execução e avaliação, com as gerações mais novas. São visionárias ancestrais de espirito jovem que abrem novas portas para a construção social da velhice nas sociedades neoliberais e desafiam os humanistas quando afirmam que as atividades produtivas na velhice dão sentido à própria existência. São histórias de mulheres que nos fazem acreditar que a participação social contribui espontaneamente para o diálogo entre as gerações, em todas as fases da vida. - Abstract A dissertation on the subject of Intergenerational Relationships and Societies Aged emerged within the Master of Education Social and Community Intervention, School of Education and Lisbon had as starting point whether participation promotes intergenerational activities on aging 8 active women aged 65 years and older, residing in the territory of Eastern Lisbon multigenerational. The conceptual approach of social aging, active aging, intergenerational relations and participation conducted the study through triangulation of instruments qualitative analysis of interviews and life stories focus group. The women interviewed are between 65 and 85 years of chronological age, but on average say they feel they are under 34 years old. They claim to be young in spirit and so they prefer to be called seniors. Demonstrate that have always been and are women autonomous, free, independent, decision-making, self-esteem and quality of life. Women who occupy the time in activities of daily life, in leisure activities, and volunteering. Women reivindicativas, proactive, front and determined to play an active social role by engaging in socially productive activities or any performance-oriented and collective activities and or targeted at the union in order to achieve common objectives. Women who gain prestige and status in the community by becoming involved socially in the process of decision making, organization, implementation and evaluation with the younger generations. They are young visionary spirit of ancestors that open new doors to the social construction of old age in neoliberal societies and challenge humanists say when productive activities in old age give meaning to their own existence. These are stories of women who have us believe that social participation contributes to spontaneous dialogue between generations, in all stages of life.

Comportamentos de interação em alunos com perturbações do espectro do autismo: o contributo de histórias sociais na hora do conto

Dissertação apresentada à Escol a Superior de Educação de Lisboa para obtenção de grau de mestre em Ciências da Educação, especialidade Educação Especial: Problemas Graves de Cognição e Multideficiência

Universidades da terceira idade: duas décadas de intervenção em Portugal

Dissertação apresentada à Escola Superior de Educação de Lisboa para a obtenção do grau de mestre em Ciências da Educação - Especialidade em Educação Social e Intervenção Comunitária