6 resultados para Glaser
Resumo:
The Association of Cancer Physicians in the United Kingdom has developed a strategy to improve outcomes for cancer patients and identified the goals and commitments of the Association and its members.
Resumo:
Background: Most qualitative studies exploring the impactof prostate cancer on men and their partners consider the dominant ethnicgroups in the USA, UK, Scandinavia and Australia, with generally concordantfindings. Other ethnic groups are likelyto have different experiences.
Aims: To explorethe impact of prostate cancer and its treatment on men and their partners fromthe less studied ethnic groups.
Methods: Using meta-ethnographyand textual narrative we synthesised peer reviewed qualitative interview-based studiesdated 2000-2015 focused on less well reported ethnic groups, as a sub-synthesisof a comprehensive metasynthesis on the impact of prostate cancer.
Results: Twenty-twopapers (15 studies) covering 11 ethnic groups were analysed. Nine studies considered black and minorityethnic groups in the UK and USA, with the remainder in Brazil, the PacificIslands, Israel, Turkey and Japan. We collected first and second order themesfrom the studies to develop conceptual third order themes with the following specificto the US and UK minority groups andPacific Islanders: A spiritual continuum: from the will of God to God ashelpmate; One more obstacle in the lifelong fight against adversity; Developingsensitive talk with a purpose (on disclosingthe cancer to informal networks in culturally appropriate ways). Themes from theother studies were similar to those in the overall metasynthesis.
Conclusions: Healthcare for prostate cancer should takeaccount of contextually and culturally specific coping mechanisms andpsychosocial factors in minority ethnic groups. More studies are needed indiverse ethnic groups.
Resumo:
Introduction Emerging evidence suggests that patient-reported outcome (PRO)-specific information may be omitted in trial protocols and that PRO results are poorly reported, limiting the use of PRO data to inform cancer care. This study aims to evaluate the standards of PRO-specific content in UK cancer trial protocols and their arising publications and to highlight examples of best-practice PRO protocol content and reporting where they occur. The objective of this study is to determine if these early findings are generalisable to UK cancer trials, and if so, how best we can bring about future improvements in clinical trials methodology to enhance the way PROs are assessed, managed and reported. Hypothesis: Trials in which the primary end point is based on a PRO will have more complete PRO protocol and publication components than trials in which PROs are secondary end points.
Methods and analysis Completed National Institute for Health Research (NIHR) Portfolio Cancer clinical trials (all cancer specialities/age-groups) will be included if they contain a primary/secondary PRO end point. The NIHR portfolio includes cancer trials, supported by a range of funders, adjudged as high-quality clinical research studies. The sample will be drawn from studies completed between 31 December 2000 and 1 March 2014 (n=1141) to allow sufficient time for completion of the final trial report and publication. Two reviewers will then review the protocols and arising publications of included trials to: (1) determine the completeness of their PRO-specific protocol content; (2) determine the proportion and completeness of PRO reporting in UK Cancer trials and (3) model factors associated with PRO protocol and reporting completeness and with PRO reporting proportion.
Ethics and dissemination The study was approved by the ethics committee at University of Birmingham (ERN_15-0311). Trial findings will be disseminated via presentations at local, national and international conferences, peer-reviewed journals and social media including the CPROR twitter account and UOB departmental website (http://www.birmingham.ac.uk/cpro0r).
Resumo:
Objectives: To summarise black and minority ethnic (BME) patients' and partners
experiences of prostate cancer (PCa) by examining the findings of existing qualitative studies
Methods:
We undertook a systematic metasynthesis of qualitative studies using a modified version of
Noblit and Hare's 'meta-ethnography' approach, with a 2000-2015 search of seven databases.
Results: Thirteen studies of men from US and UK BME groups were included. We explored
constructs with BME-specific features. Healthcare provider relationships, formation of a
spiritual alliance with God (which enhanced the participants’ feeling of empowerment and
ability to cope with the cancer) and living on for others (generally to increase cancer
awareness), often connected to spiritual regrowth, were the three constructs most commonly
reported. A magnified effect from erectile dysfunction was also common. Initially this
affected men’s disclosure to others about their cancer and their sexual problems, but
eventually men responded by shifting their conceptualisations of masculinity to sustain self
and social identities. There was also evidence of inequality resulting from financial
constraints and adversity that necessitated resilience in coping.
Conclusions: The prostate cancer experience of BME men and their partners is affected by a
complex intersection of ethnicity with other factors. Healthcare services should acknowledge
this. If providers recognise the men’s felt masculinities, social identities and spiritual beliefs
and their shifting nature, services could be improved, with community as well as individual
benefits. More studies are needed in diverse ethnic groups
