1 resultado para music and health
em Institutional Repository of Leibniz University Hannover
Filtro por publicador
- Repository Napier (3)
- ABACUS. Repositorio de Producción Científica - Universidad Europea (1)
- Aberdeen University (6)
- Academic Archive On-line (Jönköping University; Sweden) (1)
- Acceda, el repositorio institucional de la Universidad de Las Palmas de Gran Canaria. España (1)
- AMS Tesi di Dottorato - Alm@DL - Università di Bologna (2)
- Andina Digital - Repositorio UASB-Digital - Universidade Andina Simón Bolívar (3)
- Aquatic Commons (1)
- Archive of European Integration (69)
- Archivo Digital para la Docencia y la Investigación - Repositorio Institucional de la Universidad del País Vasco (3)
- Aston University Research Archive (9)
- Biblioteca Digital da Produção Intelectual da Universidade de São Paulo (7)
- Biblioteca Digital da Produção Intelectual da Universidade de São Paulo (BDPI/USP) (2)
- Bioline International (6)
- BORIS: Bern Open Repository and Information System - Berna - Suiça (58)
- Brock University, Canada (11)
- Cambridge University Engineering Department Publications Database (2)
- CentAUR: Central Archive University of Reading - UK (39)
- Chinese Academy of Sciences Institutional Repositories Grid Portal (8)
- Coffee Science - Universidade Federal de Lavras (1)
- Comissão Econômica para a América Latina e o Caribe (CEPAL) (9)
- CORA - Cork Open Research Archive - University College Cork - Ireland (7)
- Corvinus Research Archive - The institutional repository for the Corvinus University of Budapest (4)
- Dalarna University College Electronic Archive (4)
- Deakin Research Online - Australia (193)
- Digital Archives@Colby (2)
- Digital Commons - Montana Tech (1)
- Digital Commons at Florida International University (27)
- Digital Howard @ Howard University | Howard University Research (1)
- Digital Peer Publishing (2)
- DigitalCommons@The Texas Medical Center (16)
- DigitalCommons@University of Nebraska - Lincoln (1)
- Digitale Sammlungen - Goethe-Universität Frankfurt am Main (1)
- Doria (National Library of Finland DSpace Services) - National Library of Finland, Finland (1)
- DRUM (Digital Repository at the University of Maryland) (4)
- Duke University (6)
- eResearch Archive - Queensland Department of Agriculture; Fisheries and Forestry (2)
- Greenwich Academic Literature Archive - UK (2)
- Harvard University (4)
- Helda - Digital Repository of University of Helsinki (20)
- Illinois Digital Environment for Access to Learning and Scholarship Repository (1)
- Indian Institute of Science - Bangalore - Índia (3)
- Institute of Public Health in Ireland, Ireland (3)
- Institutional Repository of Leibniz University Hannover (1)
- Instituto Nacional de Saúde de Portugal (2)
- Instituto Politécnico de Viseu (3)
- Instituto Politécnico do Porto, Portugal (2)
- Iowa Publications Online (IPO) - State Library, State of Iowa (Iowa), United States (2)
- Ministerio de Cultura, Spain (6)
- National Center for Biotechnology Information - NCBI (9)
- Nottingham eTheses (2)
- Plymouth Marine Science Electronic Archive (PlyMSEA) (1)
- QSpace: Queen's University - Canada (2)
- QUB Research Portal - Research Directory and Institutional Repository for Queen's University Belfast (78)
- Queensland University of Technology - ePrints Archive (90)
- RCAAP - Repositório Científico de Acesso Aberto de Portugal (1)
- ReCiL - Repositório Científico Lusófona - Grupo Lusófona, Portugal (1)
- Repositorio Académico de la Universidad Nacional de Costa Rica (1)
- Repositório Científico da Universidade de Évora - Portugal (2)
- Repositório digital da Fundação Getúlio Vargas - FGV (2)
- Repositório Digital da Universidade Municipal de São Caetano do Sul - USCS (1)
- Repositório Institucional da Universidade de Aveiro - Portugal (1)
- Repositorio Institucional de la Universidad de Málaga (2)
- Repositório Institucional UNESP - Universidade Estadual Paulista "Julio de Mesquita Filho" (7)
- Research Open Access Repository of the University of East London. (1)
- RUN (Repositório da Universidade Nova de Lisboa) - FCT (Faculdade de Cienecias e Technologia), Universidade Nova de Lisboa (UNL), Portugal (1)
- SAPIENTIA - Universidade do Algarve - Portugal (1)
- School of Medicine, Washington University, United States (1)
- Scielo España (1)
- Universidad de Alicante (7)
- Universidad del Rosario, Colombia (1)
- Universidad Politécnica de Madrid (3)
- Universidade Complutense de Madrid (2)
- Universita di Parma (1)
- Université de Lausanne, Switzerland (1)
- Université de Montréal, Canada (5)
- University of Canberra Research Repository - Australia (3)
- University of Connecticut - USA (5)
- University of Michigan (147)
- University of Queensland eSpace - Australia (41)
- University of Washington (9)
- WestminsterResearch - UK (4)
Resumo:
BACKGROUND: The aim of this study was to determine the social/economic costs and health-related quality of life (HRQOL) of patients with epidermolysis bullosa (EB) in eight EU member states. METHODS: We conducted a cross-sectional study of patients with EB from Bulgaria, France, Germany, Hungary, Italy, Spain, Sweden and the United Kingdom. Data on demographic characteristics, health resource utilisation, informal care, labour productivity losses, and HRQOL were collected from the questionnaires completed by patients or their caregivers. HRQOL was measured with the EuroQol 5-domain (EQ-5D) questionnaire. RESULTS: A total of 204 patients completed the questionnaire. Average annual costs varied from country to country, and ranged from euro9509 to euro49,233 (reference year 2012). Estimated direct healthcare costs ranged from euro419 to euro10,688; direct non-healthcare costs ranged from euro7449 to euro37,451 and labour productivity losses ranged from euro0 to euro7259. The average annual cost per patient across all countries was estimated at euro31,390, out of which euro5646 accounted for direct health costs (18.0 %), euro23,483 accounted for direct non-healthcare costs (74.8 %), and euro2261 accounted for indirect costs (7.2 %). Costs were shown to vary across patients with different disability but also between children and adults. The mean EQ-5D score for adult EB patients was estimated at between 0.49 and 0.71 and the mean EQ-5D visual analogue scale score was estimated at between 62 and 77. CONCLUSION: In addition to its negative impact on patient HRQOL, our study indicates the substantial social/economic burden of EB in Europe, attributable mostly to high direct non-healthcare costs.