Health Care Delivery Practices in Huntington's Disease Specialty Clinics : An International Survey


Autoria(s): Frich, Jan C; Rae, Daniela; Roxburgh, Richard; Miedzybrodzka, Zofia H; Edmondson, Mary; Pope, Erika Bjorklund; Goodman, LaVonne; Haddad, Monica S; Giuliano, Joe; Nelson, Eugene C; Guttman, Mark; Nance, Martha
Contribuinte(s)

University of Aberdeen, Medicine, Medical Sciences & Nutrition, HSRU

University of Aberdeen, Medicine, Medical Sciences & Nutrition, Applied Medicine

University of Aberdeen, Data Safe Haven

Data(s)

23/08/2016

23/08/2016

27/06/2016

Resumo

The CHDI Foundation, Inc. funds Enroll-HD and the activities of the Enroll-HD Care Improvement Committee, including the present survey. We would like to acknowledge the Enroll-HD and REGISTRY administrative staff that assisted in the recruitment of sites and sites that completed the survey.

Peer reviewed

Publisher PDF

Formato

7

Identificador

Frich , J C , Rae , D , Roxburgh , R , Miedzybrodzka , Z H , Edmondson , M , Pope , E B , Goodman , L , Haddad , M S , Giuliano , J , Nelson , E C , Guttman , M & Nance , M 2016 , ' Health Care Delivery Practices in Huntington's Disease Specialty Clinics : An International Survey ' Journal of Huntington's disease , vol 5 , no. 2 , pp. 207-213 . , 10.3233/JHD-160192

1879-6397

PURE: 69220746

PURE UUID: 5d1b32eb-3577-4287-b516-939e19f2b95f

PubMed: 27372053

http://hdl.handle.net/2164/7368

http://dx.doi.org/10.3233/JHD-160192

Idioma(s)

eng

Relação

Journal of Huntington's disease

Direitos

This article is published online with Open Access and distributed under the terms of the Creative Commons Attribution Non-Commercial License. https://creativecommons.org/licenses/by-nc/4.0/

Palavras-Chave #Huntington’s disease #health services #quality of health care #R Medicine #R
Tipo

Journal article