Sighted volunteers’ motivations to assist people with visual impairments in freetime sport activities

Since the changing of the political and economic system in 1989-1990 in Hungary, volunteer movements have appeared all over the country. Volunteers of different ages and socioeconomic backgrounds are engaged in a wide range of activities, wishing to add values to the lives of others in need, hoping to improve their micro or/and macro environment. Volunteering has also appeared in the field of sport, and the work of a large number of nongovernmental sport organisations is strongly dependent on volunteers’ participation. In the socialist era disability sports were neglected by the state. The new democratic state has been paying increasing attention to disability sports and volunteers have been a great asset in improving the accessibility of spare time sport activities. The present empirical research investigates which factors motivate sighted volunteers to join Hungarian Sports and Leisure Association for the Visually Impaired (Látássérültek Szabadidős Sportegyesülete, LÁSS). Results confirm that joining LÁSS was in few cases (N=3) attributed to having parental or other family relations with blind or partially sighted people. Respondents unanimously admit to have a wish to share the joy of physical activity with their visually impaired peers.

“I'm not the woman I was”: Women´s perceptions on the effects of fibromyalgia on private life

In this qualitative study we explored how gender shapes the women´s experiences of living with Fibromyalgia and how it affects their private lives. Through thematic analysis of data from 13 in-depth interviews in Spain, we identified 7 themes which reflect that these women feel remorse and frustration for not being able to continue to fulfil the gender expectation of caring for others and for the home. This research contributes to a better understanding into what suffering from fibromyalgia implies for women and provides insights into how family and providers can support women with fibromyalgia in order to achieve a beneficial lifestyle.

Parceria escola-família: como envolver os pais nas práticas educativas na educação pré-escolar e ensino do 1º ciclo do ensino básico

Trabalho final apresentado para a obtenção do grau de mestre na área de Educação pré-escolar e ensino do 1º ciclo do ensino básico

Luto nos familiares da pessoa em situação de cuidados paliativos

Enquadramento: O luto é algo complexo e abarca múltiplas dimensões que podem resultar em luto patológico. Objetivos: Determinar a prevalência de luto complicado em familiares de pessoas em situação paliativa; identificar que variáveis sociodemográficas e de contexto do luto interferem no processo de luto complicado; averiguar se há relação entre a funcionalidade familiar, satisfação quanto aos cuidados prestados ao ente querido, a sobrecarga do cuidador e o luto em familiares de pessoas em situação paliativa. Métodos: Estudo quantitativo, transversal, descritivo e correlacional, realizado numa amostra de 75 familiares de doentes em situação paliativa. Utilizou-se um Questionário Sociodemográfico; Escala de Apgar Familiar (Agostinho & Rebelo, 1988), Escala do Contexto do Luto (Cunha, 2014), Escala de Avaliação da Satisfação dos Familiares dos Doentes em Cuidados Paliativos - Escala FAMCARE (Almeida, 2012), Escala de Sobrecarga do Cuidador (Sequeira, 2010) e o Inventory of Complicated Grief (ICG) (Frade & Rocha, 2008). Resultados: Dos 75 participantes, apenas 24 (35.2%) que se encontravam pelo menos há 6 meses enlutados obtiveram uma pontuação superior a 30 no ICG, tradutora de vivência de luto complicado. Destes, 58.3% eram mulheres e 41.7% homens; na faixa etária =<49 anos (37.5%); com companheiro(a) (54.2%); 70.8% revelam funcionalidade familiar; 62.5% dos participantes perdeu um familiar direto, cujo falecimento ocorreu em 71.4% dos casos no domicílio; 83.3% dos familiares revelam sobrecarga com os cuidados; 29.2% revelam-se insatisfeitos com os cuidados prestados ao seu familiar. Conclusão: Os resultados revelam a necessidade de identificação dos fatores de risco no luto, de modo a mobilizarem-se os recursos para a promoção da vivência saudável do luto. Palavras-Chave: Cuidados Paliativos; Familiares; Luto Complicado.

The positive impact of multiple sclerosis (MS) on carers: Associations between carer benefit finding and positive and negative adjustment domains

Purpose. This study examined benefit finding in MS carers including the dimensionality of benefit finding, relations between carer and care recipient benefit finding, and the effects of carer benefit finding on carer positive and negative adjustment domains. Method. A total of 267 carers and their care recipients completed questionnaires at Time 1 and 3 months later, Time 2 (n=155). Illness data were collected at Time 1, and number of problems, stress appraisal, benefit finding, negative (global distress, negative affect) and positive (life satisfaction, positive affect, dyadic adjustment) adjustment domains were measured at Time 2. Results. Qualitative data revealed seven benefit finding themes, two of which were adequately represented by the Benefit Finding Scale (BFS) [1] (Mohr et al. Health Psychology 1999; 18: 376). Factor analyses indicated two factors (Personal Growth, Family Relations Growth) which were psychometrically sound and showed differential relations with illness and adjustment domains. Although care recipients reported higher levels of benefit finding than carers, their benefit finding reports regarding personal growth were correlated. The carer BFS factors were positively related to carer and care recipient dyadic adjustment. Care recipient benefit finding was unrelated to carer adjustment domains. After controlling for the effects of demographics, care recipient characteristics, problems and appraisal, carer benefit finding was related to carer positive adjustment domains and unrelated to carer negative adjustment domains. Conclusion. Findings support the role of benefit finding in sustaining positive psychological states and the communal search for meaning within carer-care recipient dyads.

Benefit finding in multiple sclerosis, and associations with positive and negative outcomes

This study examined the direct and stress-buffering effects of benefit finding on positive and negative outcomes. A total of 502 people with multiple sclerosis completed a questionnaire at Time 1 and, 3 months later, at Time 2 (n = 404). Measures of illness were collected at Time 1, and number of problems, stress appraisal, benefit finding, subjective health, and negative (global distress, negative affect) and positive (life satisfaction, positive affect, dyadic adjustment) outcomes were measured at Time 2. Factor analyses showed the Benefit Finding scale to have 2 dimensions: Personal Growth and Family Relations Growth. Hierarchical regressions showed that after controlling for the effects of demographics, illness, problems, and appraisal, benefit finding showed strong direct effects on the positive outcomes. Benefit finding did not have a direct effect on distress, or subjective health but had a weak association with negative affect. Family Relations Growth had a stress-buffering effect on distress.

AS INFLUÊNCIAS DA REALIZAÇÃO DO CURSO SUPERIOR DE TECNOLOGIA EM GESTÃO DE RECURSOS HUMANOS A DISTÂNCIA NA SITUAÇÃO PROFISSIONAL E FAMILIAR DE ALUNOS EGRESSOS DO POLO DE APOIO PRESENCIAL DA CIDADE DE MAUÁ DA UMESP

Esta pesquisa traz as primeiras evidências das influências da realização do Curso Superior de Tecnologia em Gestão de Recursos Humanos a Distância na situação profissional e familiar dos alunos egressos de um polo de apoio presencial da UMESP: Mauá. A análise de conteúdo das entrevistas semiestruturadas com alunos e gestores, em uma abordagem qualitativa de caráter exploratório, e a análise do Projeto Pedagógico indicam influências do curso na situação profissional e familiar do aluno egresso, embora elas não representem mudanças radicais, bem como apontam para a possibilidade de o curso desenvolver competências pessoais e profissionais e aumentar a empregabilidade, apesar de não formar gestores e empreendedores. Essa pesquisa é relevante à medida que os resultados apresentam evidências do que pode acontecer na situação profissional e familiar e, nesse sentido, pode contribuir para pesquisas futuras , ainda que esses resultados sejam preliminares e, por isso, não devam ser generalizados.

Qualidade da Construção dos Vínculos entre Filhas Cuidadoras e Mães Idosas Dependentes

Este estudo teve por objetivos: - descrever as dificuldades nas relações entre as filhas-cuidadoras e suas mães idosas dependentes de cuidados, a partir de relatos das filhas; - investigar, a partir dos relatos da história familiar dessas filhas, a existência de conflitos prévios a necessidade de cuidar, relacionados à construção dos vínculos; identificar os principais desafios associados assistência ao cuidador familiar de idosos no que tange a resolução de conflitos com o idoso dependente. Método – tratou-se de um estudo qualitativo em que foram apresentados três casos clínicos de cuidadoras que haviam sido encaminhados para atendimento psicológico pela equipe multiprofissional de um Instituto de Geriatria e Gerontologia, unidade de atenção secundária da Secretaria de Estado da Saúde de S.P. Os resultados indicaram dificuldades relacionais entre ambas: cuidadoras filhas e mães idosas. As cuidadoras revelaram sobrecarga física e emocional e grande sofrimento. Todavia, a existência desses conflitos remontava às relações anteriores à atual situação de dependência; ficando bastante evidenciado, tanto pelas histórias de vida das cuidadoras, quanto pelo conteúdo trazido durante o processo terapêutico, a repetição das relações primeiras estabelecidas entre mãe-filha. O processo psicoterapêutico pôde permitir a essas cuidadoras a compreensão da necessidade em ter suas falhas ambientais supridas, na medida em que foi propiciado um ambiente favorável ao relacionamento humano. Assim, ao observarmos que ao longo do processo as pacientes apresentavam mudanças significativas, entendemos que a psicoterapia pode figurar como meio preventivo e preservação de equilíbrio psíquico.

Internação involuntária e o abuso de substâncias psicoativas - o pathos familiar

The use and abuse of Psychoactive Substances (PAS) in contemporaneity corresponds to a social issue and a public health issue. Few social phenomena entail more costs with justice and health, family difficulties, and appearances in the media than the PAS abuse comsumption. The government power has been facing this situation allocating investments and developing public policies. Despite the current Mental Health Policy, based on the principles of Psychiatric Reform that prioritizes outpatient services, the number of investments from various government spheres and families requests for admissions continue increasing. This study aimed to understand the pathos experienced by an individual toward the involuntary internment of a family member who is an abusive user of PAS. The research also aimed to investigate what led that individual to choose this type of treatment. The Psychoanalysis was the theoretical basis of this work, and the exercise of the psychoanalytic method, from the collection of bibliographic references up to the interpretation of the semi-structured interview, conducted in depth, was intended. The findings of this research gave us the oportunity of thinking about how the social callings to the family were made, especially in regard of atention and care with their family members who are user of PAS and how it affects this family individual. It also allowed to discuss how the public policies that preconize involuntary internment, affectivity, prohibitionist and mono-disciplinarity – that cross the State in the attention given to this issue – are formulated and implemented. The interview analysis showed us how happen the agencying of pathos, the libidinal aspects of joy and guilt, the desire to punish and atonement, working in family relations and in caring relations, especially in the decision for involuntary internment. The survey also made possible to understand how a mother, facing the chaotic scene of public health, helpless, finds in the involuntary internment a way to reverberate her affections.

Das saudades que se tem: a representação paterna na escrita autobiográfica de Bartolomeu Campos de Queirós

In our work, we analyze some works of Bartolomeu Campos de Queirós that compose the “autobiographical cycle”, especially those ones that bring the image of father’s absence/presence, the relationship between life and writing, as well as the father’s figurations and his intermediates and substitutes. We especially investigated the aspect of repetition about how the family relations are articulated, highlighting those ones that happen between father and son and that appear in these texts. This problematic interested us as a research object, a priori, because the works of Bartholomeu Campos de Queirós are an exponent of literature for children field, as far as they show that the childhood is not always “colorful”, happy and perfect as several productions supposedly made “for children” seek to have us believe. In addition, the selected texts that have an autobiographical characteristic and put the issue of child suffering because of the father’s absence are configured as a very rich corpus for studies related to the relation between life/work and investigations in the dialogue between Literature and Psychoanalysis. These aspects will permit us to understand why the pain of missing father be repetitive and insistent in these books. Thus, we problematize, by the selected works for this study, the concept of literature for children and young people and the notion of literary reading. We also analyzed in the “statements” given by the author the relationship between life and writing and we investigated, based on psychoanalytic studies, the literary writing as a possibility of both unconscious development of memory marked by the father’s absence – remedy – as of a perpetuation of this same conflict – poison. Furthermore, we analyzed how the relationship between son and father are processed considering the mother’s absence, since the works that have this person’s presence, she seems to mediate such relationships in a certain way.

Mothers but not wives: The increasing lag between nonmarital births and marriage

This study analyzed trends in marital behavior for unwed mothers who gave birth between 1960 and 2004. With nationally representative data on 15,353 White and Black unmarried mothers, results indicated that mothers who gave birth after 1989 were waiting much longer to marry than were mothers giving birth before 1968. The most pronounced delays were found immediately after a birth. Over the study period, the cumulative proportion of women who married within three years of a birth decreased for Whites by 27% and for Blacks by 60%. Findings underscore the separation that has developed between first births and first marriages in the United States, and they highlight the older ages at which children are experiencing a transition to marriage. © National Council on Family Relations, 2011.

Female employment from the household. Towards a comprehensive analysis of work-life articulation

Research on women’s employment has proliferated over recent decades, often under a perspective that conceptualizes female labour market activity as independent of male presences and absences in the productive and reproductive spheres. In the face of these approaches, the article argues the need to focus on the couple as the unit of analysis of work-life articulation. After referring to the main theoretical arguments that, from a gender perspective within labour studies, have pointed out the relevance of placing the household as the central space for the analysis of the sexual division of labour, the article reviews different empirical contributions that have incorporated such perspective in the international literature. Next, the state of the art in the Spanish literature is presented, before arguing the desirability of applying such framework of analysis to the study of employment and care work in Spanish households, which are at present undergoing major transformations.

Understandings of transnational families in debates on Migration and development

International migration sets in motion a range of significant transnational processes that connect countries and people. How migration interacts with development and how policies might promote and enhance such interactions have, since the turn of the millennium, gained attention on the international agenda. The recognition that transnational practices connect migrants and their families across sending and receiving societies forms part of this debate. The ways in which policy debate employs and understands transnational family ties nevertheless remain underexplored. This article sets out to discern the understandings of the family in two (often intermingled) debates concerned with transnational interactions: The largely state and policydriven discourse on the potential benefits of migration on economic development, and the largely academic transnational family literature focusing on issues of care and the micro-politics of gender and generation. Emphasizing the relation between diverse migration-development dynamics and specific family positions, we ask whether an analytical point of departure in respective transnational motherhood, fatherhood or childhood is linked to emphasizing certain outcomes. We conclude by sketching important strands of inclusions and exclusions of family matters in policy discourse and suggest ways to better integrate a transnational family perspective in global migration-development policy.

Estudiantes de primera generación en Chile: una aproximación cualitativa a la experiencia universitaria

El propósito de este artículo es analizar la experiencia universitaria de un grupo de estudiantes de primera generación de tres universidades ubicadas en Concepción, Chile. En un contexto de fuerte masificación de la educación superior, la experiencia de los estudiantes cuyos padres completaron como máximo la educación secundaria, se ha transformado en un ámbito de incipiente interés. En función de los objetivos, la investigación fue abordada desde el paradigma constructivista y diseñada de acuerdo al método biográfico, cuya principal técnica de recolección de datos fueron las entrevistas semi-estructuradas. Los resultados de esta investigación, de carácter exploratorio, revelan que la construcción de un proyecto de estudios universitarios se encuentra notablemente influenciado por los padres, quienes se transforman en una fuente fundamental de apoyo. Asimismo, los estudiantes configuran tres significaciones a su experiencia universitaria: la movilidad social ascendente, la vocación y la retribución a los padres. Finalmente, se discuten los resultados a partir de los cuales se proponen nuevos interrogantes.

Normalisering av ungdomar i problem genom styrning av föräldrar : Från strukturella orsaksförklaringar till familjecentrerade lösningar

Normalizing problematized youth by governing their parents: From structural explanations to family-centred solutions The current article explores the ways that organizational representatives outline the causes of and propose solutions to the problematic behaviour of youth living in, what is described as, an immigrant neighbourhood in a Swedish city. The empirical material, consisting of interviews with representatives from various organizations (such as the police, schools, social services and NGOs) as well as field observations, has been analyzed using the theory of governmentality. The causes of problematic youth behaviour are related to disadvantaged immigrant urban space, unemployment, unstable home situations and family relations, and parents’ deviant norms, knowledge and culture. In the discourses about causes and solutions, a recurring frame of reference is the issue of immigration in general and parent’s migrant background in particular. In spite of the complexity of the proposed causes, the pronounced solutions are directed towards the fostering of immigrant parents, the establishment of zones of communication and early prevention. Hence, the prevailing solutions are permeated by discourses of activation of parents.