Experiences and desires of people with tetraplegia living with and without electronic aids to daily living: an Irish focus group study


Autoria(s): Verdonck, Michèle Claire; Steggles, Elizabeth; Chard, Gill
Contribuinte(s)

Health Research Board

Data(s)

16/02/2012

16/02/2012

2009

Resumo

This qualitative descriptive study explores the lived experience for persons with a high cervical spinal cord injury who have Electronic Aids to Daily Living (EADLs), and for persons who have no EADLs. Fifteen people with cervical spinal cord injuries attended four focus groups. Data analysis uncovered a novel framework of several themes that were organised into three categories: experiences, desires and meanings of living with EADL. Users’ and non users’ groups revealed homogenous themes. Experiences and desires are explored further in this paper. Themes within the category of experiences included: EADL devices, supply support and training, abandonment, mouthsticks and powered wheelchairs. Desires included: simple stuff, reliability, aesthetics and voice activation. Findings offer valuable personal insights about life with EADL to be considered by all involved with EADL.

Health Research Board (HRB research fellowship for the Clinical Therapies, CTFP-06-15)

Accepted Version

Peer reviewed

Formato

application/pdf

Identificador

Verdonck, M.C., Steggles, E., & Chard, G. (2009). Experiences and desires of people with tetraplegia living with and without electronic aids to daily living: an Irish focus group study. In: RESNA Assistive Technology & All That Jazz. 23-27 June 2009, New Orleans, USA.

http://hdl.handle.net/10468/522

Idioma(s)

en

Publicador

RESNA

Relação

RESNA Assistive Technology & All That Jazz. 23-27 June 2009, New Orleans, USA.

http://web.resna.org/conference/proceedings/2009/JEA/Verdonck.html

Direitos

© 2009 RESNA

Palavras-Chave #Environmental control systems (ECS) #Focus groups #Tetraplegia/quadriplegia #Qualitative #Electronic Aids to Daily Living (EADL) #Electronic assistive technology (EAT) #Quadriplegia #Quadriplegics--Rehabilitation #Spinal cord--Wounds and injuries #Rehabilitation technology
Tipo

Conference item